The unique reproductive and psychological health needs of young breast cancer survivors are often unmet. ICF did an evaluation of 7 organizations that offer tailored support and education services to young breast cancer survivors. With increased funding, organizations are better able to develop and enhance young breast cancer survivor-focused initiatives.
Elizabeth Carosella, International Program and Business Development Manager for Partners for Development, explains the organization's microfinance model to address the devastating link between poverty and poor health in developing nations.
Telehealth NDLW Power Point Elluminate Thursdayvideoreg
Telehealth: Access
Sponsored & Hosted by: Elluminate, Inc. (http://www.elluminate.com/)
This webinar will explore Teleheath, which is a growing industry with a global benefit. Today's medical professionals have the ability support the medical learners in ways that will improve patient care and simplify the administrative work associated with education and competence assessment. Technology has enabled a true revolution within the telehealth industry and the use of it will only get better as it provides access to the home with socially shared communities of practice. Specific areas of interest may focus on the new entrants such as naturopathic medicine, delivery of content via multiple modes, communities of practice, learning standards, international programs, best practices and policies.
Addressing culture in health care delivery: policy, practice and researchdiversityRx
An overview of practice, policy and research on cultural competence in health care delivery. Delivered to the National Science Foundation workshop on intercultural systems design, May 2009.
Elizabeth Carosella, International Program and Business Development Manager for Partners for Development, explains the organization's microfinance model to address the devastating link between poverty and poor health in developing nations.
Telehealth NDLW Power Point Elluminate Thursdayvideoreg
Telehealth: Access
Sponsored & Hosted by: Elluminate, Inc. (http://www.elluminate.com/)
This webinar will explore Teleheath, which is a growing industry with a global benefit. Today's medical professionals have the ability support the medical learners in ways that will improve patient care and simplify the administrative work associated with education and competence assessment. Technology has enabled a true revolution within the telehealth industry and the use of it will only get better as it provides access to the home with socially shared communities of practice. Specific areas of interest may focus on the new entrants such as naturopathic medicine, delivery of content via multiple modes, communities of practice, learning standards, international programs, best practices and policies.
Addressing culture in health care delivery: policy, practice and researchdiversityRx
An overview of practice, policy and research on cultural competence in health care delivery. Delivered to the National Science Foundation workshop on intercultural systems design, May 2009.
This presentation examines the link between quality cancer care and equity.
Bob Gardner, Director of Policy
www.wellesleyinstitute.com
Follow us on twitter @wellesleyWI
Patient Engagement Presentation - MPN Network Forum April 18, 2017Alexandra Enns
April 18, 2017
In April we held a Network Forum on engaging policymakers and patients/public effectively and appropriately. We would like to give a warm thanks to both Carolyn Shimmin, Patient Engagement expert of CHI's Knowledge Translation team, and Marcia Thomson, Assistant Deputy Minister of Manitoba Health, Seniors and Active Living for their presentations. Below you can see Carolyn's presentation - to see more of her work on patient engagement and to learn more about knowledge translation at CHI, please check out the blog Knowledge Nudge here. If you would like more information, helpful tools or advice about patient/public engagement in research, please contact Carolyn Shimmin at cshimmin@exchange.hsc.mb.ca
A preliminary proposal for an application to the Health Care Innovation Challenge sponsored by CMS. Focus of this proposal include gestational diabetes, maternal obesity, postpartum weight loss, and as well as patient engagement / health literacy
Obstacles to maternity service use in Afghanistan: what do we know about cost...IDS
This presentation was given by Sundaram, Steinhardt, Peters and Rahman to the International Health Economics Association Conference 2009 in Beijing. It is research conducted as part of the Future Health Systems Research Programme Consortium www.futurehealthsystems.org.
ICF recent scientific poster “Collaboration Development, Promotion, and Evaluation of a Web-Based Intervention for African American Breast” concludes that for a successful delivery of a web-based intervention for African American young breast cancer survivors, in-person communication with trusted sources, and culturally-tailored digital and social media are critical.
This presentation examines the link between quality cancer care and equity.
Bob Gardner, Director of Policy
www.wellesleyinstitute.com
Follow us on twitter @wellesleyWI
Patient Engagement Presentation - MPN Network Forum April 18, 2017Alexandra Enns
April 18, 2017
In April we held a Network Forum on engaging policymakers and patients/public effectively and appropriately. We would like to give a warm thanks to both Carolyn Shimmin, Patient Engagement expert of CHI's Knowledge Translation team, and Marcia Thomson, Assistant Deputy Minister of Manitoba Health, Seniors and Active Living for their presentations. Below you can see Carolyn's presentation - to see more of her work on patient engagement and to learn more about knowledge translation at CHI, please check out the blog Knowledge Nudge here. If you would like more information, helpful tools or advice about patient/public engagement in research, please contact Carolyn Shimmin at cshimmin@exchange.hsc.mb.ca
A preliminary proposal for an application to the Health Care Innovation Challenge sponsored by CMS. Focus of this proposal include gestational diabetes, maternal obesity, postpartum weight loss, and as well as patient engagement / health literacy
Obstacles to maternity service use in Afghanistan: what do we know about cost...IDS
This presentation was given by Sundaram, Steinhardt, Peters and Rahman to the International Health Economics Association Conference 2009 in Beijing. It is research conducted as part of the Future Health Systems Research Programme Consortium www.futurehealthsystems.org.
ICF recent scientific poster “Collaboration Development, Promotion, and Evaluation of a Web-Based Intervention for African American Breast” concludes that for a successful delivery of a web-based intervention for African American young breast cancer survivors, in-person communication with trusted sources, and culturally-tailored digital and social media are critical.
Winning Renewable Energy Investment Strategies for Fortune 1000 FirmsICF
ICF International explores how the combination of rapid declines in capital costs, a proliferation of financing options, and growing interest in sustainability make renewable energy an attractive investment for many firms. Whether the customer is deploying its own capital or pursuing projects through power purchase agreements, these projects often carry underappreciated financial risks that impact this win.
Additional discussion topics include examples of on-site solar and off-site wind and solar projects to demonstrate how ICF evaluates project value and helps clients mitigate risks and navigate renewable energy investment strategies.
Is it time to update your intranet? These are the signs to look out for. ICF Interactive, the interactive services division of ICF International, teamed up with CMSWire to host a webinar covering SharePoint, Yammer, social business and what it all means in 2013.
View the full webinar here: http://www.cmswire.com/cms/social-business/webinar-recap-yammer-sharepoint-mobile-oh-my-022548.php
Kevin Michaels, global managing director – aviation consulting & services at ICF International, presented at the 2nd Annual European Aerospace Raw Materials & Manufacturers Supply Chain Conference. The conference is designed to serve a full-range of participants in the dynamic global commercial and military aerospace markets.
In this presentation, Mr. Michaels addresses Aerospace demand outlook and supply chain trends in the market.
http://www.icfi.com/markets/aviation
Members of the Coleman Supportive Oncology Collaborative including over 169 cancer care providers from 44 institutions came together in person to share lessons from their 3-year project to improve supportive cancer care across the region and to launch the next step in the Coleman Foundation initiative which is to improve patient communication and experience.
Speaking at the 2015 CCIH Annual Conference, Carl Henn, MSPH, Director, HIV/AIDS Twinning Center, American International Health Alliance, explores a partnership in Kenya involving AIHA, the Kenya Conference of Catholic Bishops General Secretariat and DePaul University to integrate Christian and African values to prevent HIV infection in youth.
Palliative care in the United States has experienced tremendous growth and visibility over the past decade. Integrating palliative care principles into mainstream health care systems is becoming increasingly common in both acute care and community-based programs. The Center to Advance Palliative Care (CAPC) has played a key role in advancing this field by providing resources, education and training to healthcare providers.
USC Partners with Advocacy Organization to Improve Heart Health among Latinos...SC CTSI at USC and CHLA
Trained and administered by Visión y Compromiso, a Latino advocacy group, "promotoras" are local residents who provide culturally relevant health education for low-income Latinos throughout California.
The SC CTSI collaborated in the study with the Keck School of Medicine at USC and Visión y Compromiso, an advocacy organization devoted to improving knowledge and access to health care for California's native-born and immigrant Latino communities. Visión y Compromiso is also one of California's leading proponents of the "promotor" model of community health education.
Learn more about SC CTSI: http://sc-ctsi.org/
ICF’s technical experts are supporting various clients in quickly adapting different types and sizes of meetings, workshops, and conferences to virtual formats. We’re designing and facilitating collaboration sessions with localities such as Prince Edward Island and Fairfax County; converting international workshops into web- based trainings for USAID; and conducting co-creation sessions through our Spark Labs offering.
ICF supports organizations through the entire meeting process, from selecting the right platforms and tools to designing remote-friendly agendas and providing effective meeting facilitation.
Planning & Designing for Accessible ExperiencesICF
In recent years, there has been a growing need for companies to design digital experiences that are accessible and inclusive for all audiences. Join ICF Next Partners Anne Catherine Feeney and Jane Motz Hayes for pro advice on how to exceed project expectations while navigating accessibility from the very start. After this discussion, you will be able to:
1. Understand accessibility and inclusivity.
2. Navigate guidelines.
3. Design content.
4. Develop and test effectively.
In this interview, Sue Southon discusses her IEDC presentation designed to help state and local governments operationalize a CDBG-CV program in 45 days.
Brooke Shelley's 2019 AEA presentation about the importance of collaboration in creating effective program evaluations that help ensure project success.
How one team unlocked a cultural experience that created a movementICF
Creating a shared cultural experience can help engage your brand's audiences in a meaningful way. Find out firsthand how the Minnesota Wild inspired its fan base to actively participate in a new tradition, Our Ice.
Assessing the Impact of Mentoring: Lessons Learned from a Research Study in W...ICF
Samantha Spinney, Ph.D., Manager, Child Welfare & Education, ICF
Understand the impact mentoring has on students' behavioral engagement, academic achievement, and non-cognitive skill outcomes and learn best practices for designing and implementing a randomized controlled trial (RCT) in a school setting.
Learn more: https://www.icf.com/
Edward Shelswell-White, Principal Airport Customer Strategy and Air Service Development, ICF
ACI 10th Annual Airport Economics and Finance Conference and Exhibition
Learn how Long Island MacArthur Airport (ISP) increased passenger growth with the Air Service Development (ASD) 2.0 approach from ICF. By prioritizing the number of airline routes over capacity, ISP became the number one U.S. airport for domestic seat and passenger growth.
Learn more: https://www.icf.com/
January 25-26, 2017
Cancun, Mexico
ICF delivered a presentation at the MRO Latin America Conference in Cancun, Mexico.
The presentation provides a forecast for the maintenance, repair, and overhaul (MRO) industry and highlights trends in aircraft operations.
At the 2016 Aviation Week MRO Europe conference on October 18-20 in Amsterdam, Netherlands, ICF's Jonathan Berger presented "MRO Market Update & Industry Trends." Download his presentation to learn about the MRO forecast and aircraft technology trends in Europe.
For more information, click here: http://bit.ly/2dPaEtb
Presented at the Emergency Services Show in Birmingham, UK on the 21st September 2016. This presentation focuses on findings from the evaluation of the Winter Pressures pilot and highlights the work the fire service is doing as a health asset.
Railway developers cannot control an agency’s environmental review process. However, it can take steps to smooth the NEPA process and increase the likelihood of success.
This infographic reviews the three fundamentals for navigating through the NEPA Process with the Surface Transportation board.
For more information, click here (http://bit.ly/2bhmCHO)
Passenger Analytics: A Better Way to Manage AirportsICF
Through passenger analytics, airports can improve their terminal efficiency for all users, at all levels, for everyone's benefit.
This infographic overviews the three steps to performance optimization through passenger analytics. Also included, are real world examples of how these steps have been applied in airports.
For more information, click here: http://bit.ly/2bfZDPc
Latin American MRO Market Update & Industry Trends ICF
At the 2016 ALTA CCMA & Aircraft MRO Conference on May 15-18 in Puerto Rico, ICF's Jonathan Berger presented "MRO Market Update & Industry Trends." Download his presentation to learn how forward-looking airline and MRO leadership is gaining a competitive edge in Latin America.
For more info: http://bit.ly/1UaAtgf
General International Trends and Efforts in Coping with Climate ChangeICF
Renato Roldao, ICF’s Carbon Trading and Climate Change expert, addresses supporting the Design and Implementation of Emissions Trading Systems in China. Roldao examines the international as well as the domestic context for climate change programs.
http://bit.ly/1sPPmPl
ICF MRO Market Forecast & Trends – Asia Pacific March 9-10, 2016 Airline E&M:...ICF
ICF International's Jonathan Berger delivered a presentation at the Airline E&M: China & East Asia conference in Hong Kong, China on March 9-10, 2016. The presentation provides a forecast for the maintenance, repair, and overhaul (MRO) industry and highlights trends in aircraft, operations. See appendix for acronyms.
For more information: http://bit.ly/1Y42p8U
Knee anatomy and clinical tests 2024.pdfvimalpl1234
This includes all relevant anatomy and clinical tests compiled from standard textbooks, Campbell,netter etc..It is comprehensive and best suited for orthopaedicians and orthopaedic residents.
Explore natural remedies for syphilis treatment in Singapore. Discover alternative therapies, herbal remedies, and lifestyle changes that may complement conventional treatments. Learn about holistic approaches to managing syphilis symptoms and supporting overall health.
ARTIFICIAL INTELLIGENCE IN HEALTHCARE.pdfAnujkumaranit
Artificial intelligence (AI) refers to the simulation of human intelligence processes by machines, especially computer systems. It encompasses tasks such as learning, reasoning, problem-solving, perception, and language understanding. AI technologies are revolutionizing various fields, from healthcare to finance, by enabling machines to perform tasks that typically require human intelligence.
Couples presenting to the infertility clinic- Do they really have infertility...Sujoy Dasgupta
Dr Sujoy Dasgupta presented the study on "Couples presenting to the infertility clinic- Do they really have infertility? – The unexplored stories of non-consummation" in the 13th Congress of the Asia Pacific Initiative on Reproduction (ASPIRE 2024) at Manila on 24 May, 2024.
Prix Galien International 2024 Forum ProgramLevi Shapiro
June 20, 2024, Prix Galien International and Jerusalem Ethics Forum in ROME. Detailed agenda including panels:
- ADVANCES IN CARDIOLOGY: A NEW PARADIGM IS COMING
- WOMEN’S HEALTH: FERTILITY PRESERVATION
- WHAT’S NEW IN THE TREATMENT OF INFECTIOUS,
ONCOLOGICAL AND INFLAMMATORY SKIN DISEASES?
- ARTIFICIAL INTELLIGENCE AND ETHICS
- GENE THERAPY
- BEYOND BORDERS: GLOBAL INITIATIVES FOR DEMOCRATIZING LIFE SCIENCE TECHNOLOGIES AND PROMOTING ACCESS TO HEALTHCARE
- ETHICAL CHALLENGES IN LIFE SCIENCES
- Prix Galien International Awards Ceremony
Pulmonary Thromboembolism - etilogy, types, medical- Surgical and nursing man...VarunMahajani
Disruption of blood supply to lung alveoli due to blockage of one or more pulmonary blood vessels is called as Pulmonary thromboembolism. In this presentation we will discuss its causes, types and its management in depth.
Ethanol (CH3CH2OH), or beverage alcohol, is a two-carbon alcohol
that is rapidly distributed in the body and brain. Ethanol alters many
neurochemical systems and has rewarding and addictive properties. It
is the oldest recreational drug and likely contributes to more morbidity,
mortality, and public health costs than all illicit drugs combined. The
5th edition of the Diagnostic and Statistical Manual of Mental Disorders
(DSM-5) integrates alcohol abuse and alcohol dependence into a single
disorder called alcohol use disorder (AUD), with mild, moderate,
and severe subclassifications (American Psychiatric Association, 2013).
In the DSM-5, all types of substance abuse and dependence have been
combined into a single substance use disorder (SUD) on a continuum
from mild to severe. A diagnosis of AUD requires that at least two of
the 11 DSM-5 behaviors be present within a 12-month period (mild
AUD: 2–3 criteria; moderate AUD: 4–5 criteria; severe AUD: 6–11 criteria).
The four main behavioral effects of AUD are impaired control over
drinking, negative social consequences, risky use, and altered physiological
effects (tolerance, withdrawal). This chapter presents an overview
of the prevalence and harmful consequences of AUD in the U.S.,
the systemic nature of the disease, neurocircuitry and stages of AUD,
comorbidities, fetal alcohol spectrum disorders, genetic risk factors, and
pharmacotherapies for AUD.
Tom Selleck Health: A Comprehensive Look at the Iconic Actor’s Wellness Journeygreendigital
Tom Selleck, an enduring figure in Hollywood. has captivated audiences for decades with his rugged charm, iconic moustache. and memorable roles in television and film. From his breakout role as Thomas Magnum in Magnum P.I. to his current portrayal of Frank Reagan in Blue Bloods. Selleck's career has spanned over 50 years. But beyond his professional achievements. fans have often been curious about Tom Selleck Health. especially as he has aged in the public eye.
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Introduction
Many have been interested in Tom Selleck health. not only because of his enduring presence on screen but also because of the challenges. and lifestyle choices he has faced and made over the years. This article delves into the various aspects of Tom Selleck health. exploring his fitness regimen, diet, mental health. and the challenges he has encountered as he ages. We'll look at how he maintains his well-being. the health issues he has faced, and his approach to ageing .
Early Life and Career
Childhood and Athletic Beginnings
Tom Selleck was born on January 29, 1945, in Detroit, Michigan, and grew up in Sherman Oaks, California. From an early age, he was involved in sports, particularly basketball. which played a significant role in his physical development. His athletic pursuits continued into college. where he attended the University of Southern California (USC) on a basketball scholarship. This early involvement in sports laid a strong foundation for his physical health and disciplined lifestyle.
Transition to Acting
Selleck's transition from an athlete to an actor came with its physical demands. His first significant role in "Magnum P.I." required him to perform various stunts and maintain a fit appearance. This role, which he played from 1980 to 1988. necessitated a rigorous fitness routine to meet the show's demands. setting the stage for his long-term commitment to health and wellness.
Fitness Regimen
Workout Routine
Tom Selleck health and fitness regimen has evolved. adapting to his changing roles and age. During his "Magnum, P.I." days. Selleck's workouts were intense and focused on building and maintaining muscle mass. His routine included weightlifting, cardiovascular exercises. and specific training for the stunts he performed on the show.
Selleck adjusted his fitness routine as he aged to suit his body's needs. Today, his workouts focus on maintaining flexibility, strength, and cardiovascular health. He incorporates low-impact exercises such as swimming, walking, and light weightlifting. This balanced approach helps him stay fit without putting undue strain on his joints and muscles.
Importance of Flexibility and Mobility
In recent years, Selleck has emphasized the importance of flexibility and mobility in his fitness regimen. Understanding the natural decline in muscle mass and joint flexibility with age. he includes stretching and yoga in his routine. These practices help prevent injuries, improve posture, and maintain mobilit
NVBDCP.pptx Nation vector borne disease control programSapna Thakur
NVBDCP was launched in 2003-2004 . Vector-Borne Disease: Disease that results from an infection transmitted to humans and other animals by blood-feeding arthropods, such as mosquitoes, ticks, and fleas. Examples of vector-borne diseases include Dengue fever, West Nile Virus, Lyme disease, and malaria.
Building the case for expanded support services to young breast cancer survivors: An evaluation of a cooperative agreement
1. Building the Case for Expanded Support Services to Young Breast Cancer Survivors:
An Evaluation of a Cooperative Agreement
Authors:
ICF International - Sarah O’Dell, MPH, Marnie House, EdD, MPH, Mary Ann Hall, MPH
Centers for Disease Control and Prevention - Angela Moore, MPH, Temeika Fairley, PhD
References:
1. Milstein, R. L., Wetterhall, S. F., & the CDC Evaluation Working Group. (1999). Framework for program evaluation
in public health. Morbidity and Mortality Weekly Report, 48(RR-11), 1–40.
2. Patton, M. Q. (1997). Utilization-focused evaluation: The new century text. Thousand Oaks, CA: Sage.
Exhibit 2: DP11-1111 Program Framework
Results
Description of support services and educational resources implemented
Organizations dedicated to supporting YBCS offer a range of services including psychosocial support and education to YBCS, YBCS caregivers, and healthcare providers. Services offered cover the cancer care
continuum, from community outreach and education via multiple platforms (partnership development, online resource compilations, social media, education for healthcare providers) to structured support services
(patient navigation, structured support plans, tailored support groups for survivors and caregivers, healthcare systems-level interventions to improve access to existing services). Exhibit 3 provides an overview of
each program and the main strategies used to reach their intended audience(s).
Factors affecting implementation
The factors affecting organizations’ implementation of support services and educational resources for YBCS include:
• Reach to and understanding of the needs of the target population
• Organizational leadership support
• Organizational and staff capacity
• Access to and input from individuals from external organizations with expertise in
• YBCS issues (i.e., healthcare professionals, social workers, community leaders)
Background
The unique reproductive and psychosocial health needs of young breast cancer
survivors (YBCS), defined as women diagnosed with breast cancer prior to 45 years
of age, are often unmet, and there is limited evidence to support the use of strategies
that can effectively mitigate the short- and long-term effects of breast cancer in this
population. To address this gap, the Centers for Disease Control and Prevention
(CDC) established a 3-year cooperative agreement (CA) in 2012 with seven
organizations to offer tailored support and education services to YBCS under the
Funding Opportunity Announcement DP11-1111, Developing Support and Educational
Awareness for Young Breast Cancer Survivors in the United States.
ICF International was contracted by CDC to conduct a process evaluation of the
DP11-1111 CA grantees and five non-funded organizations implementing programs
targeting YBCS, their loved ones, and their healthcare providers. The overall
objectives were: (1) to understand the implementation process for initiatives to
develop educational resources for and to provide support services to these audiences;
(2) to provide lessons learned and recommendations for other organizations seeking
to serve YBCS; and (3) to inform the development of promising practices to meet the
reproductive and psychosocial health needs of YBCS.
Methods
The evaluation of the CA is grounded in CDC’s Framework for Program Evaluation in
Public Health1 and in Utilization-Focused Evaluation,2 and employs a multiple case
study design using qualitative methodology. Exhibit 1 provides an overview of the
evaluation approach.
Exhibit 1: Evaluation Approach
Using purposeful sampling, 12 organizations (cases) were selected. Data collection
activities included document reviews, site visits, program observations, and in-depth
interviews with program leadership, program staff, and partners. Thematic analysis of
the collected data was used to address each evaluation question.
Exhibit 2 depicts the DP11-1111 Program Framework, which helped to guide the
evaluation.
Exhibit 3. Description of YBCS Programs
Programs Funded Under the DP11-1111 Cooperative Agreement
Organization Program Description
Living Beyond Breast
Cancer (LBBC)’s Young
Women’s Initiative (YWI)
• Created the Breast Cancer Helpline to increase opportunities for young women to receive peer support
• Educated healthcare providers about the unique needs of young women affected by breast cancer
• Expanded programming and resources for key priority groups (e.g., women diagnosed before age
30, women living with metastatic breast cancer, and African-American and Latina women)
Louisiana State University
(LSU) Health Sciences
Center’s Young Breast
Cancer Survivors
Program
• Offered patient navigation services for YBCS (including an automated flagging system to identify
newly diagnosed YBCS in the electronic medical records system)
• Delivered regional and online support groups tailored for YBCS, families, and caregivers
• Developed and implemented topic-specific workshops designed to address the unique needs of
various groups of YBCS
Sharsheret’s Thriving
Again Program
• Developed culturally relevant materials for YBCS of Jewish heritage, which includes tailored and
personalized survivorship kits
• Attended and presented at educational teleconferences for various audiences
• Offered telephone-based professional and peer support
John C. Lincoln (JCL)
Health Foundation’s
Young Breast Cancer
Survivor Support Initiative
• Developed the Arizona Breast Cancer Resource Guide, an online resource that collates existing
resources into a single comprehensive guide
• Coordinated community education events and support groups throughout the state of Arizona
• Distributed existing breast cancer information and materials to YBCS
University of North
Carolina at Chapel Hill
(UNC)-Chapel Hill’s Lean
Kaizen Initiative
• Conducted Lean Kaizen events to identify waste within healthcare provider processes, and rapid process
improvement activities aimed at increasing provider efficiency during rapid implementation cycles
• Held system design events that focus on engaging providers in implementation and maintenance of
rapid process improvements to improve efficiency
• Developed and maintained centralized list of existing support services within the UNC hospital
system (updated weekly)
Washington University
at St. Louis’s Young
Women’s Breast Cancer
Program (YWBCP)
• Enhanced the Young Women’s Peer Network to increase knowledge of local resources and improve
skills for managing the healthcare system and medical decision-making among YBCS
• Developed a patient coaching program to capture newly diagnosed YBCS at an earlier point in the
treatment process
• Offered specialized support groups designed to increase perceived peer support among YBCS,
their families, and caregivers
• Created a Genetic Navigation Workbook to increase YBCS’ knowledge of family-based cancer risk
assessment and genetic testing
University of California,
Los Angeles (UCLA)’s
Young Breast Cancer
Survivorship Program
• Developed and implemented a psychosocial/psychoeducational program, which offers YBCS,
families, and caregivers access to support groups. One session of the program focuses on goal
setting; the second session focuses on tailored discussions about relationships
• Developed an online resource library, which is a searchable database that houses region-specific
resources tailored for various user types (e.g., YBCS, families, providers)
Programs Not Funded Under the Cooperative Agreement
Knight Cancer Institute
Adolescent and Young
Adult (AYA) Oncology
Program at the Oregon
Health & Science
University
• Offered medical and support services to adolescents and young adults ages 15-39
• Conducted one-hour consultations with patients and AYA oncologist to address patients’ questions,
explain treatment processes, and develop a survivorship care plan and treatment summary
• Referred patient to other internal and external resources, such as clinical trials, support groups for
AYA cancer patients and for their caregivers, classes and educational workshops, peer networks,
the Children’s Healing Art Project, and the First Descents program
The Program for Young
Women with Breast
Cancer at the Dana-
Farber/Brigham and
Women’s Cancer Institute
• Supported and informed YBCS patients of resources available to them, which include:
––Telephone support groups
––Educational events, forums, and workshops
––Financial and legal assistance
––Immediate referral to fertility and genetic specialists
––Social workers, patient navigators, and peer supporter buddies
Tigerlily Foundation • Conducted peer education workshops and other events to raise awareness of YBCS issues
• Identified financial assistance resources for YBCS
• Implemented the use of social media to facilitate YBCS connections through group discussions and
networking
The Young Women’s
Breast Cancer
Translational Program at
the University of Colorado
at Denver
• Enhanced access to services through evening clinic hours and home follow-up care
• Referred patients to the oncofertility program to help YBCS with family planning, as well as
additional support groups and resources
• Offered patient navigation to help YBCS patients through the cancer journey (diagnosis through
survivorship)
Young Survival Coalition
(YSC)
• Educated YBCS through the use of resource link tool and resource kits
• Empowered women through education and awareness raising events
• Connected YBCS via face-to-face meetings (YSC Face 2 Face F2F), meetup.com, and online
bulletin boards which currently have over 1,000 people in participating
Development of key partnerships
Among grantees, most reported that CA funding enhanced their capacity to develop
and/or enhance YBCS-focused initiatives; in the absence of this funding, many were
unsure if they would have been able to implement YBCS activities to the same extent.
Grantees also noted that CDC supported communication opportunities among funded
entities (such as conference calls, in-person meetings, and emails), and provided a
forum to discuss activities implemented, challenges faced, and lessons learned. This
opportunity proved to be a valuable resource for grantees.
Perceived impact on awareness of, access to, and utilization of support services and
educational resources among YBCS, healthcare providers, and caregivers
Across all participating organizations, respondents stated that current YBCS initiatives
helped to address gaps in existing services and information available to these
audiences. Many interviewees felt their initiatives increased the visibility of YBCS’
unique needs via multiple platforms (e.g., presentations at conferences, use of social
media, provider education activities). In addition, many of the organizations funded
through the CA have been able to use program data to demonstrate how funding has
supported expansion of education and support activities.
Conclusion
Findings from this evaluation demonstrate the utility of federal funds to help
organizations increase capacity to support and implement YBCS-focused activities
through the creation of new or augmentation of existing resources and services. The
CA supported increased capacity among a number of leading organizations serving
YBCS and helped to develop communities of learning and engagement among funded
entities. However, more empirical evidence is needed to develop the evidence base
for interventions that are most effective in meeting the psychosocial needs of YBCS.