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Marie Lynch 
Head of Healthcare Programmes 
3 November 2014 
Overview of IHF Dementia and Palliative Care Programmes
Context and Policy 
2001 2008 
2012 
2013 
2008 
2012
End of life care needs of people with dementia 
Care Transitions 
Multidisciplinary team involvement 
Pain & other Symptoms 
Communication 
Loss and bereavement
2013 - 2016
Three Outcomes 
Palliative care for people with dementia will be prioritised in all care settings; and more people will be supported to die well at home 
Better end of life care in residential care settings for older people with a focus on people with dementia 
Increased public awareness on death and dying, with more people including those with dementia, engaging in early advance planning 
Practice tools, 
service models, 
primary palliative care 
Adaptation of Hospice Friendly Hospital resources, development and education for residential settings 
Roll out and adaptation of Think Ahead 
STRATEGIC ENGAGEMENT
4 Project Groups 
Participation 
Dissemination 
REPRESENTATION: 
Nursing, Medicine, Palliative care, Intellectual Disability, Patient Groups 
Public meetings, consultations, grant funding, seminars, workshops, carers 
Information leaflets, communiques, website, contact database 
STRATEGIC ENGAGEMENT 
2013 
2016
Palliative care for people with dementia will be prioritised in all care settings; and more people will be supported to die well at home 
Planning for the future 
Understanding late stage 
Loss and Bereavement 
Communication & advance care planning 
Intellectual disabilities 
Pain, Symptom , medication 
Ethical decision making 
Bereavement 
RESOURCES FOR PEOPLE WITH DEMENTIA & THEIR FAMILIES, & STAFF 
GUIDANCE DOCUMENTS
Palliative care for people with dementia will be prioritised in all care settings; and more people will be supported to die well at home 
EOLC dementia pathway acute hospital 
Good Neighbour scheme – advanced dementia 
Communicating end of life and dementia residential care 
Supporting palliative care needs when care transitions are necessary 
5 REGIONAL SEMINARS 
DEVELOPMENT GRANTS – GRANT CALL NOW OPEN FOR 2015
SUPPORTING HOME DEATHS FOR PEOPLE WITH DEMENTIA 
Palliative care for people with dementia will be prioritised in all care settings; and more people will be supported to die well at home 
3 
8 
12 
14 
25 
50 
63 
0 
10 
20 
30 
40 
50 
60 
70 
2007 
2008 
2009 
2010 
2011 
2012 
2013 
6 
8 
15 
15 
7 
15 
34 
45 
0 
5 
10 
15 
20 
25 
30 
35 
40 
45 
50 
2010 
2011 
2012 
2013 
Male 
Female
Better end of life care in residential care settings for older people with a focus on people with dementia 
Need to support residential care centres meet end of life care needs of residents and comply with regulations
Better end of life care in residential care settings for older people with a focus on people with dementia 
Onsite facilitation Individual tailoring for quality improvement 
EOLC toolkit 
Education 
End of life reviews 
Telephone support 
End of life toolkit 
Online learning and support 
Community links
EDUCATION AND TRAINING FOR HEALTHCARE STAFF 
•End-of-Life Care Training Workshops 
•Conferences and large-group presentations 
•Supporting families 6 week module 
Better end of life care in residential care settings for older people with a focus on people with dementia
Increased public awareness on death and dying, with more people including those with dementia, engaging in early advance planning
EVALUATION 
LEAP MODEL

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IHF Dementia & Palliative Care Programmes

  • 1. Marie Lynch Head of Healthcare Programmes 3 November 2014 Overview of IHF Dementia and Palliative Care Programmes
  • 2. Context and Policy 2001 2008 2012 2013 2008 2012
  • 3. End of life care needs of people with dementia Care Transitions Multidisciplinary team involvement Pain & other Symptoms Communication Loss and bereavement
  • 5. Three Outcomes Palliative care for people with dementia will be prioritised in all care settings; and more people will be supported to die well at home Better end of life care in residential care settings for older people with a focus on people with dementia Increased public awareness on death and dying, with more people including those with dementia, engaging in early advance planning Practice tools, service models, primary palliative care Adaptation of Hospice Friendly Hospital resources, development and education for residential settings Roll out and adaptation of Think Ahead STRATEGIC ENGAGEMENT
  • 6. 4 Project Groups Participation Dissemination REPRESENTATION: Nursing, Medicine, Palliative care, Intellectual Disability, Patient Groups Public meetings, consultations, grant funding, seminars, workshops, carers Information leaflets, communiques, website, contact database STRATEGIC ENGAGEMENT 2013 2016
  • 7. Palliative care for people with dementia will be prioritised in all care settings; and more people will be supported to die well at home Planning for the future Understanding late stage Loss and Bereavement Communication & advance care planning Intellectual disabilities Pain, Symptom , medication Ethical decision making Bereavement RESOURCES FOR PEOPLE WITH DEMENTIA & THEIR FAMILIES, & STAFF GUIDANCE DOCUMENTS
  • 8. Palliative care for people with dementia will be prioritised in all care settings; and more people will be supported to die well at home EOLC dementia pathway acute hospital Good Neighbour scheme – advanced dementia Communicating end of life and dementia residential care Supporting palliative care needs when care transitions are necessary 5 REGIONAL SEMINARS DEVELOPMENT GRANTS – GRANT CALL NOW OPEN FOR 2015
  • 9. SUPPORTING HOME DEATHS FOR PEOPLE WITH DEMENTIA Palliative care for people with dementia will be prioritised in all care settings; and more people will be supported to die well at home 3 8 12 14 25 50 63 0 10 20 30 40 50 60 70 2007 2008 2009 2010 2011 2012 2013 6 8 15 15 7 15 34 45 0 5 10 15 20 25 30 35 40 45 50 2010 2011 2012 2013 Male Female
  • 10. Better end of life care in residential care settings for older people with a focus on people with dementia Need to support residential care centres meet end of life care needs of residents and comply with regulations
  • 11. Better end of life care in residential care settings for older people with a focus on people with dementia Onsite facilitation Individual tailoring for quality improvement EOLC toolkit Education End of life reviews Telephone support End of life toolkit Online learning and support Community links
  • 12. EDUCATION AND TRAINING FOR HEALTHCARE STAFF •End-of-Life Care Training Workshops •Conferences and large-group presentations •Supporting families 6 week module Better end of life care in residential care settings for older people with a focus on people with dementia
  • 13. Increased public awareness on death and dying, with more people including those with dementia, engaging in early advance planning