Karen Charnley: Patient engagement - encourage and provide service user, carer and community engagement within the context of AIIHPC's work and the work of the wider palliative care community on the island of Ireland. Will inform and influence palliative care education, research, policy and practice, in a collaborative and supportive manner.

1. HFH Acute Hospital Network Meeting
20 March 2018

2. Purpose
to encourage and provide service user, carer and community engagement
within the context of:
• AIIHPC’s work
• the work of the wider palliative care community across both jurisdictions
on the island of Ireland
The perspectives of Voices4Care members will inform and influence:
• palliative care education, research, policy and practice, in a collaborative
and supportive manner

3. Membership
Established 2013, refreshed/renewed 2016
• 43 members (29 Republic of Ireland, 14 NI)
• Patients/service users
• Carers/former carers
• Citizens interested in palliative care
Meet in full approximately twice during year
Other smaller groups pieces of work – some project specific or geographic
specific (north/south)
Mix of face to face and by correspondence – email

4. Examples of Involvement
• ECHO AIIHPC Nursing Home Steering Group
• National Healthcare Charter (RoI)
• Comments on draft ‘Living with a Neurological Illness – Planning for the Future’ &
‘Planning for the Future with COPD’ booklets
• Advance Care Planning Project Steering Group (NI)
• Inform project planning for Palliative Care Week 2017
• Public information re National Institute of Health and Care Excellence (NICE)
Guidelines on the Care of the Dying Adult
• Forum on End of Life
• Palliative Care Experience Video Project 2017
• Research Panel (11 members)

5. Examples of Involvement
• ECHO AIIHPC Nursing Home Steering Group
• National Healthcare Charter (RoI)
• Comments on draft ‘Living with a Neurological Illness –
Planning for the Future’ & ‘Planning for the Future with
COPD’ booklets
• Advance Care Planning Project Steering Group (NI)
• Inform project planning for Palliative Care Week 2017
• Public information re National Institute of Health and Care
Excellence (NICE) Guidelines on the Care of the Dying Adult
• Forum on End of Life
• Palliative Care Experience Video Project 2017
• Research Panel (11 members)