7 dementia palliative care guidance documents
•Download as PPTX, PDF•
1 like•254 views
Dementia in Ireland, Challenges of providing palliative and dementia care. Development of evidence guidance for use cross all healthcare settings
Recommended
Recommended
More Related Content
What's hot
What's hot (20)
Similar to 7 dementia palliative care guidance documents
Similar to 7 dementia palliative care guidance documents (20)
More from Irish Hospice Foundation
More from Irish Hospice Foundation (20)
Recently uploaded
Recently uploaded (20)
7 dementia palliative care guidance documents
- 1. Deirdre Shanagher Development Officer The Irish Hospice Foundation Dementia Palliative Care Guidance Documents 9th International Dementia Conference 15th May 2017
- 2. Outline • Dementia Demographics • Context of Developing Guidance Documents • Rationale • Content
- 4. Setting the Scene: Dementia in Ireland
- 5. Where are people with Dementia?
- 7. People with dementia – what the research tells us… • Dementia is not recognised as a progressive/ life-limiting illness • Progression varies significantly from person to person • People with dementia less likely to be referred to Specialist Palliative care • Less likely to be given pain relief • Palliative care needs poorly recognised and prioritised in healthcare settings • Can be more likely to undergo burdensome treatments • Training , knowledge and education of staff working in care settings with people with dementia requires an integrated an interdisciplinary approach (Cahill et al, 2012 :ASI and IHF, 2012)
- 8. End- of- life care needs of people with dementia Care Transitions Multidisciplinary team involvement Pain & other Symptoms Communication Loss and bereavement
- 9. Good end of life care for people with dementia Requires additional emphasis on: 1. Communication skills with people with dementia and families due to cognition, capacity, lack of diagnosis 2. Assessment of end of life symptoms due to diminishing ability to communicate and co-morbidities 3. Wider MDT involvement due to complex symptoms & range of specialist involvement 4. Increase in acute events/transitions for continuity of care transitions 5. Bereavement interventions Anticipatory and ambiguous grief and longer trajectory
- 10. Challenges of providing a Palliative Care Approach PALLIATIVE CARE APPROACH All stages All settings Person with dementia, their family, service providers 10
- 20. Other resources: Still Kathy videos: See IHF on Youtube
- 21. Final Word Hope that people don’t have to feel ashamed or awkward about a dementia diagnosis…. life isn't over
- 22. For more information: Deirdre Shanagher Deirdre.shanagher@hospicefoundation.i e Thank you & Questions
Editor's Notes
- Dementia causes problems in areas which are key to planning for and ensuring a good death: Diminishing capacity Difficulty with communication Uncertainty re prognosis DOUBLE STIGMA around dementia This is compounded by professionals lacking skills and therefore people are not being referred to SPC Teams Course of a person’s illness may be punctuated by episodes of confusion, hallucinations and delusions and possible personality and / or behavioural changes Recognising dementia’s terminal nature has been associated with greater comfort for pts dying with dementia
- Marie Curie did reports on living and dying well with dementia Barriers Identification and Planning Inequity of access Poor quality of care for people with dementia
- RANGE OF SETTINGS RANGE OF MDT INVOLVMENT CONSTRUCT OF DEMENTIA – SOCIAL, MEDICAL, PSYCHOLOGICAL, PHYSICAL, YOUNG ONSET Philosophy of care and actual intervention Big ask for recognition across all these settings and models of care
- The final product is a full document and a 2 page factsheet that was designed to be accessible by healthcare staff so it can be hung on clinic room walls as a prompt. Guidance is provided about communicating with a person with dementia and holding formal family meetings.
- Grief is not just an emotional reaction but brings emotional and practical change. It is a process not an event Grief can be complex! Grief is a fundamental part of the dementia experience Grief is a dynamic and fluid process Recognise that both the experience of dementia and the experience related to the losses which dementia brings are unique to each person Consider that everyone responds to grief and copes in different ways As a staff member, you will meet a person with dementia and their family through your own experiences of loss and grief
- Eating, drinking and swallowing difficulties which occur for the person with dementia can cause many challenges in maintaining adequate nutrition and hydration for the person with dementia. This situation is further complicated by the fact that the person with dementia’s dependence on others increases while their capacity may become compromised. The aim of this guidance document is to provide healthcare staff with evidence based information and guidance to support their care practices related to managing nutrition and hydration.
- As stated earlier , as dementia progresses, the ability to communicate pain becomes increasingly difficult. People with dementia become reliant upon family members and staff being observant and aware of their verbal and nonverbal communication to recognise and assess pain. It is widely acknowledged that pain is often undertreated in patients with dementia, especially as dementia progresses. This guidance document was developed in UCC. This document aims to provide staff with information and knowledge about pain assessment and management in dementia. It uses case studies to apply the learning is accompanied by a factsheet.
- This guidance document provides caregivers of people with dementia with a framework to support ethical decision making for people with dementia at the end of their life. It provides broad ethical principles and an ethical decision making tool for addressing the ethical challenges involving people with dementia. This tool is put into practice in the case studies to support staff learning.
- Medication management is an essential component of care for people with dementia. The aim of this guidance document is to guide healthcare professionals in the principles of medication assessment and management in dementia palliative care.