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Shared Lives:
Transforming Care and Lives
Anna McEwen, James Rosborough and Andy Cooke – Shared Lives Plus
National Society for Epilepsy, Chalfont,
Bucks
How many different houses did you
live in?
How long were you at Chalfont?
What was it like?
What did you do at Chalfont?
Stuff!
How did you feel about living at
Chalfont?
Shared Lives begins
in Ware, Herts
December 2010
New House, Job & Voting,
Community life
Community Connections &
Citizenship
How I feel now…
What else would you like to know
about our Shared Lives?
John
How does Shared Lives work?
Matching with older or
disabled person who needs
support
Ongoing support, training and
reviews with Shared Lives
scheme
Recruitment, assessment &
approval of Shared Lives
carers by one of 152 local
regulated schemes
Shared Lives carers
 In England in 2015/16 there were 8770 Shared Lives carers:
 6020 (69%) provide live in Shared Lives arrangements
 2750 (32%) provide short breaks and day support
 Shared Lives carers often have skills gained through previous
roles, working in health and social care sector- some are nurses,
mental health practitioners, ex-prison staff.
 Many have had children who have grown up and moved out,
and are left with a spare room, and want to share their lives
again using the skills they’ve gained to make a difference
Paul & Sheila, Birmingham
Shared Lives in England
Main (not sole) reason Number % Growth pa
for support:
Learning disability 8490 71% 4%
Mental health 910 8% 13%
Autism 540 5%
Dementia 400 3% 7%
Other age-related 540 5% -11%
Physical impairment 510 4% 112%
Transition to adulthood 110 1% NA
Other groups: care leavers, offenders, parent/child, substance misuse,
intermediate care, other (150/1%).
Quality – Inspection results
Safer, better, lower cost
 The average net savings from a long term Shared Lives arrangement
per person per year are £26,000 for people with learning disabilities and
£8000 for people with mental health needs.
• Higher costs associated with complex needs, out-of-area services etc
• Hospital stay £2,800 per week compared with around £500 per week
living with a Shared Lives Carer
 Shared Lives outperforms all other care in government safety and
quality inspections.
 It achieves great outcomes which can be out of reach to traditional
services
 34% of service users had made five or more new friends.
Developing Shared Lives in health
 NHSE funded programme over 5 years
 7 match funded CCGS – Portsmouth, South Tees, Derby City,
Bolton, Barnsley, Gloucestershire, Wirral
 Developing a Shared Lives offer for the health sector
 Transforming Care, Dementia, Acquired Brain Injury, Mental ill
health
Developing Shared Lives for
Transforming Care
 South Tees, Gloucestershire, Bolton & Southern Derbyshire are
developing Shared Lives for this group
 Other areas outside of the match funded programme are
interested in this – support is available through the programme
 Work with existing Shared Lives provider
 Work with experienced provider to develop Shared Lives offer
Transforming Shared Lives –
What needs to be in place?
 Wrap around support needed – several Shared Lives carers to
provide live in, day and respite support
 Telephone support line 24/7
 All information must be shared with Shared Lives carer and
scheme
 Specialist training and support for Shared Lives carers
 Support from other professionals e.g. community nursing,
community learning disability teams, other providers
Barriers to Transforming Care in
Shared Lives
 Perceived risk
 Lack of awareness and understanding of the Shared Lives model
within health commissioning and among frontline health staff.
 Complex
 Practitioners stick to what they know
 Difficult to release money in the system to do something different
Opportunities for Transforming Care in
Shared Lives
 Opportunity for people to live a good life in the community
 Build trusting relationships with a small number of people
 Feel settled, accepted and part of a family
 To reduce risk of admittance for young people with complex
learning disabilities/autism
Meg

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BILD Event – 21 March 2018 : Transforming care - Sharing solutions that make a real difference

  • 1. Shared Lives: Transforming Care and Lives Anna McEwen, James Rosborough and Andy Cooke – Shared Lives Plus
  • 2. National Society for Epilepsy, Chalfont, Bucks
  • 3. How many different houses did you live in?
  • 4. How long were you at Chalfont?
  • 5. What was it like?
  • 6. What did you do at Chalfont?
  • 8. How did you feel about living at Chalfont?
  • 9. Shared Lives begins in Ware, Herts December 2010
  • 10. New House, Job & Voting, Community life
  • 12. How I feel now…
  • 13. What else would you like to know about our Shared Lives?
  • 14. John
  • 15. How does Shared Lives work? Matching with older or disabled person who needs support Ongoing support, training and reviews with Shared Lives scheme Recruitment, assessment & approval of Shared Lives carers by one of 152 local regulated schemes
  • 16. Shared Lives carers  In England in 2015/16 there were 8770 Shared Lives carers:  6020 (69%) provide live in Shared Lives arrangements  2750 (32%) provide short breaks and day support  Shared Lives carers often have skills gained through previous roles, working in health and social care sector- some are nurses, mental health practitioners, ex-prison staff.  Many have had children who have grown up and moved out, and are left with a spare room, and want to share their lives again using the skills they’ve gained to make a difference Paul & Sheila, Birmingham
  • 17. Shared Lives in England Main (not sole) reason Number % Growth pa for support: Learning disability 8490 71% 4% Mental health 910 8% 13% Autism 540 5% Dementia 400 3% 7% Other age-related 540 5% -11% Physical impairment 510 4% 112% Transition to adulthood 110 1% NA Other groups: care leavers, offenders, parent/child, substance misuse, intermediate care, other (150/1%).
  • 19. Safer, better, lower cost  The average net savings from a long term Shared Lives arrangement per person per year are £26,000 for people with learning disabilities and £8000 for people with mental health needs. • Higher costs associated with complex needs, out-of-area services etc • Hospital stay £2,800 per week compared with around £500 per week living with a Shared Lives Carer  Shared Lives outperforms all other care in government safety and quality inspections.  It achieves great outcomes which can be out of reach to traditional services  34% of service users had made five or more new friends.
  • 20. Developing Shared Lives in health  NHSE funded programme over 5 years  7 match funded CCGS – Portsmouth, South Tees, Derby City, Bolton, Barnsley, Gloucestershire, Wirral  Developing a Shared Lives offer for the health sector  Transforming Care, Dementia, Acquired Brain Injury, Mental ill health
  • 21. Developing Shared Lives for Transforming Care  South Tees, Gloucestershire, Bolton & Southern Derbyshire are developing Shared Lives for this group  Other areas outside of the match funded programme are interested in this – support is available through the programme  Work with existing Shared Lives provider  Work with experienced provider to develop Shared Lives offer
  • 22. Transforming Shared Lives – What needs to be in place?  Wrap around support needed – several Shared Lives carers to provide live in, day and respite support  Telephone support line 24/7  All information must be shared with Shared Lives carer and scheme  Specialist training and support for Shared Lives carers  Support from other professionals e.g. community nursing, community learning disability teams, other providers
  • 23. Barriers to Transforming Care in Shared Lives  Perceived risk  Lack of awareness and understanding of the Shared Lives model within health commissioning and among frontline health staff.  Complex  Practitioners stick to what they know  Difficult to release money in the system to do something different
  • 24. Opportunities for Transforming Care in Shared Lives  Opportunity for people to live a good life in the community  Build trusting relationships with a small number of people  Feel settled, accepted and part of a family  To reduce risk of admittance for young people with complex learning disabilities/autism
  • 25. Meg