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Dr Simon Duffy, London, June 2011
The emerging
This is a pincer attack on the rights of disabled
people. If we just focus on the 1.5 million people
with the most significant disabilities - over the next
four years they are likely to lose:
• £4.6 billion in social care support
• £4 billion in disability living allowance
• Termination of ILF
• Cuts to Supporting People
• Many further cuts in housing support
• Reductions to other benefits - especially for those
  not in work
So, more than £8 billion of the total £27 billion
(>>25%) which government is saving from
departmental budgets is being born by less than 3%
And many other cuts will continue to
fall on:
•   People with less
    severe, but still
    significant,
    disabilities

•   People with mental
    health problems

•   Women suffering
    domestic violence

• People not in work
• Refugees and asylum centralised welfare
and we are already the most
    seekers
state - and the 3rd most unequal society after USA
and Portugal
An economic crisis caused by the
bursting of a bubble created by...

• Bankers who benefited from bonuses
• Home owners who benefited from unsustainable
   house price increases
• Investors who benefited from unsustainable
   profits in finance industry
• Politicians who benefited from the illusion of a
   booming economy

Who did not benefit from the bubble?
- the poor and disabled people
Not just cuts - but targeted cuts

Protected                                Cut
Pensions                                 Disability benefits
Healthcare                               Social Care
Education                                Social Housing
£350 billion out of £500                 £40 billion
                                         Special, marginal, for ‘the
Universal, mainstream, for ‘ordinary
                                         poor & unfortunate’ or
people like us’
                                         ‘scroungers’
                                         Delivered by complex and
Delivered by nationalised systems with
                                         diffuse systems with low
high visibility
                                         visibility
The cuts are just a symptom - there
are long-standing problems to
address
•   Weak entitlements - eligibility thresholds high and
    rising, housing rights weak, legal rights weak
•   Super-taxation for disabled people - means-
    testing, charging
•   Poverty traps - benefit systems that punish
    families, savers, earners and disabled people
•   Weakened families - support focused on
    crises,family control undermined, families
    disrespected
•   Imprisonment for many - up to 20,000 people
    with learning difficulties in prison
•   Pre-birth and at-birth eugenics - 92% abortion
Perhaps we could
1. Do nothing - the cuts are inevitable - nothing can
   be done, we just have to cope the best we can -
   the world is simply unfair

2. Rely upon others - other people and
   organisations are already set up to campaign - we
   don’t need another campaign we’ve got nothing
   new to add

3. Just stay positive - there will be positive
   opportunities for change and reform in the cuts -
   this is really a good thing - it will help break the
   reliance on ‘services’
                                 ...or alternatively
There are some opportunities,
amidst thethe values - define the
• Clarify  madness
  beliefs that help us make progress
• Improve practice - innovate and
  reform using technologies that we
  know work
• Build bridges - connect with each
  other and with other groups for
  mutual support
• Advocate change - propose policy
  and legislation that supports
This crisis is part of the
third phase of de-
institutionalisation
1. Closing institutions
2. Personalising services
3. Reforming welfare


To put people fully in
control of their own lives...
....as equal citizens.




       We didn’t expect this to be easy?
• Next steps for an ordinary life - new and old
The story so far... on the future for people with
  leaders met to reflect
  learning difficulties.
•   Comprehensive Spending Review - individuals
    and organisations begin to realise what is going to
    happen.
•   Something must be done - letter to be published
    in the Times - but to what purpose?
•   Campaign is born - 1,000+ individuals sign up,
    plus many organisational members - initial
    structures developed...
•   Scottish Campaign - major event and manifesto
    written
                         ...lots achieved in 4
• Welsh Campaign - steering group formed 2 weeks
                                       months
    ago
Our Purpose




Everyone is equal, no matter their differences or
disabilities. A fair society sees each of its members as a
full citizen - a unique person with a life of their own. A
fair society is organised to support everyone to live a
full life, with meaning and respect.
Scottish manifesto & Joint Human Rights Committee
1. human rights: this means embracing the European Convention on Human
   Rights... a fundamental redesign of the obligations of government at every
   level to secure citizenship for all.
2. the right to support as an objective right established in law: this will
   remove the dependency of older and disabled people on ‘gifts’ from
   professionals...
3. provide families and individuals with early support: this will prevent
   crises, reduce the need for expensive interventions, and end the indignity of
   severe eligibility thresholds.
4. put people back in control of their own lives: this will enhance personal
   autonomy and dignity by restoring people’s right to control both their lives
   and any essential support that they need.
5. good housing: this will give people the right to live in their own accessible
   homes, with a choice of the full range of different types of tenure...
6. guaranteed minimum income free from means-testing: this will create
   the necessary incentives for people to work and make contributions to civic
   life...
7. end the current super-tax on older and disabled people levied
   through local authority charges: this will end the indignity of older people
   having to spend or give away all their savings...
Seven key principles...
1.Family - we give families the support they need to
  look after each other.
2.Citizenship - we are all of equal value and all have
  unique and positive contributions to make.
3.Community - we root support and services in local
  communities.
4.Connection - we all get chances to make friends and
  build relationships.
5.Capacity - we help each other to be the best that we
  can be.
6.Equality - we all share the same basic rights and
  entitlements.
The possible scope of the
Campaign
•   People with learning difficulties
•   Older people
•   Children and families
•   Disabled people
•   Mental health
•   Women and children
•   The poor
•   Community sector
•   Local government

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(176) next steps for the campaign (june 2011)

  • 1. Dr Simon Duffy, London, June 2011
  • 3. This is a pincer attack on the rights of disabled people. If we just focus on the 1.5 million people with the most significant disabilities - over the next four years they are likely to lose: • £4.6 billion in social care support • £4 billion in disability living allowance • Termination of ILF • Cuts to Supporting People • Many further cuts in housing support • Reductions to other benefits - especially for those not in work So, more than £8 billion of the total £27 billion (>>25%) which government is saving from departmental budgets is being born by less than 3%
  • 4. And many other cuts will continue to fall on: • People with less severe, but still significant, disabilities • People with mental health problems • Women suffering domestic violence • People not in work • Refugees and asylum centralised welfare and we are already the most seekers state - and the 3rd most unequal society after USA and Portugal
  • 5. An economic crisis caused by the bursting of a bubble created by... • Bankers who benefited from bonuses • Home owners who benefited from unsustainable house price increases • Investors who benefited from unsustainable profits in finance industry • Politicians who benefited from the illusion of a booming economy Who did not benefit from the bubble? - the poor and disabled people
  • 6. Not just cuts - but targeted cuts Protected Cut Pensions Disability benefits Healthcare Social Care Education Social Housing £350 billion out of £500 £40 billion Special, marginal, for ‘the Universal, mainstream, for ‘ordinary poor & unfortunate’ or people like us’ ‘scroungers’ Delivered by complex and Delivered by nationalised systems with diffuse systems with low high visibility visibility
  • 7. The cuts are just a symptom - there are long-standing problems to address • Weak entitlements - eligibility thresholds high and rising, housing rights weak, legal rights weak • Super-taxation for disabled people - means- testing, charging • Poverty traps - benefit systems that punish families, savers, earners and disabled people • Weakened families - support focused on crises,family control undermined, families disrespected • Imprisonment for many - up to 20,000 people with learning difficulties in prison • Pre-birth and at-birth eugenics - 92% abortion
  • 8. Perhaps we could 1. Do nothing - the cuts are inevitable - nothing can be done, we just have to cope the best we can - the world is simply unfair 2. Rely upon others - other people and organisations are already set up to campaign - we don’t need another campaign we’ve got nothing new to add 3. Just stay positive - there will be positive opportunities for change and reform in the cuts - this is really a good thing - it will help break the reliance on ‘services’ ...or alternatively
  • 9. There are some opportunities, amidst thethe values - define the • Clarify madness beliefs that help us make progress • Improve practice - innovate and reform using technologies that we know work • Build bridges - connect with each other and with other groups for mutual support • Advocate change - propose policy and legislation that supports
  • 10. This crisis is part of the third phase of de- institutionalisation 1. Closing institutions 2. Personalising services 3. Reforming welfare To put people fully in control of their own lives... ....as equal citizens. We didn’t expect this to be easy?
  • 11. • Next steps for an ordinary life - new and old The story so far... on the future for people with leaders met to reflect learning difficulties. • Comprehensive Spending Review - individuals and organisations begin to realise what is going to happen. • Something must be done - letter to be published in the Times - but to what purpose? • Campaign is born - 1,000+ individuals sign up, plus many organisational members - initial structures developed... • Scottish Campaign - major event and manifesto written ...lots achieved in 4 • Welsh Campaign - steering group formed 2 weeks months ago
  • 12. Our Purpose Everyone is equal, no matter their differences or disabilities. A fair society sees each of its members as a full citizen - a unique person with a life of their own. A fair society is organised to support everyone to live a full life, with meaning and respect.
  • 13. Scottish manifesto & Joint Human Rights Committee 1. human rights: this means embracing the European Convention on Human Rights... a fundamental redesign of the obligations of government at every level to secure citizenship for all. 2. the right to support as an objective right established in law: this will remove the dependency of older and disabled people on ‘gifts’ from professionals... 3. provide families and individuals with early support: this will prevent crises, reduce the need for expensive interventions, and end the indignity of severe eligibility thresholds. 4. put people back in control of their own lives: this will enhance personal autonomy and dignity by restoring people’s right to control both their lives and any essential support that they need. 5. good housing: this will give people the right to live in their own accessible homes, with a choice of the full range of different types of tenure... 6. guaranteed minimum income free from means-testing: this will create the necessary incentives for people to work and make contributions to civic life... 7. end the current super-tax on older and disabled people levied through local authority charges: this will end the indignity of older people having to spend or give away all their savings...
  • 14. Seven key principles... 1.Family - we give families the support they need to look after each other. 2.Citizenship - we are all of equal value and all have unique and positive contributions to make. 3.Community - we root support and services in local communities. 4.Connection - we all get chances to make friends and build relationships. 5.Capacity - we help each other to be the best that we can be. 6.Equality - we all share the same basic rights and entitlements.
  • 15. The possible scope of the Campaign • People with learning difficulties • Older people • Children and families • Disabled people • Mental health • Women and children • The poor • Community sector • Local government

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