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The global challenge

of citizenship for all
Dr Simon Duffy
Auckland, 2016
We live in an 

increasingly strange &
crazily interconnected world
Ursula Le Guin
Honour can exist anywhere,
Love can exist anywhere,
But justice can exist only among people

who found thei...
• Love is the most important force in society, but it
cannot be forced, bullied or incentivised.
• Family is vital to life...
Since World War II there has been significant
international progress in advancing citizenship for
people with disabilities…...
Countries where self-directed support is happening
• Progress on self-direction has been slow and
fragmentary, but it’s very real
• Some groups are still excluded, but its s...
Location N Change
England - 6 Sites Phase I Report 60 -18.0%
England - 17 Sites Phase II Report 128 -9.0%
England - 13 Sit...
We must beware
the drift of ideas
rooted in rights
and citizenship
into the emptiness
of consumerism
Origin of “Consumer” early 15c., "one who
squanders or wastes," agent noun from
consume. In economic sense, "one who
uses ...
• It is also possible to see self-direction as one
element of a wider challenge
• Reforming and modernising the welfare st...
I hope what follows describes
only a UK problem. Sadly, I
fear that, I may be wrong.
However progress has not only been slow, but there are
worrying signs of things going in reverse. In the UK,
while self-di...
In total, across England as a
whole, the WCA disability
reassessment process during
this period was associated with
an add...
The Committee is seriously concerned about the
disproportionate adverse impact that austerity measures,
introduced since 2...
…there is reliable evidence that the threshold of grave or
systematic violations of the rights of persons with
disabilitie...
Other groups face similar injustices
• Migrants, refugees and asylum seekers find
themselves directly excluded from citizen...
The Scotsman reported on 3rd February 2012:
High-earning migrants and promising student
entrepreneurs will find it easier t...
“Today we frankly recognise that
democracy can be no more than
an aspiration, and have rule not
so much by the people as b...
When people lose their way
Charities flourish and self-righteousness grows.
When we value cleverness and business acumen
We...
So, let’s turn the
tables and go
back through the
looking glass
Let’s welcome each other into full citizenship
• Advance a richer concept of what citizenship
demands
• Challenge ourselve...
This is the ‘stuff’ of citizenship by
which we protect our status as equals
1. Finding our sense of purpose
2. Having the ...
• Danish citizens saved
nearly all Danish Jews
and refugee Jews from
the gas chambers.
• After first hiding them from
the N...
We do not need to accept the current distortions:
• We can reclaim the language of citizenship
• Our values give us streng...
This strategy can be powerful
• Making citizenship central to our arguments
• Assume the validity of our models (demand
ev...
1. Get connected
2. Get informed
3. Learn from others
4. Share with others
5. Change the world
• It is time to “gird our loins” again [girding up your loins
meant to tie up long, loose clothes so that they were
more p...
For those of us who value citizenship

this beautiful world of diverse people
and complex communities is a 

profound sour...
www.cforwr.org
@citizen_network

@CforWR 

@simonjduffy
fb.me/centreforwelfarereform
fb.me/citizennetwork
e simon@centrefo...
The global challenge of achieving citizenship for all
The global challenge of achieving citizenship for all
The global challenge of achieving citizenship for all
The global challenge of achieving citizenship for all
The global challenge of achieving citizenship for all
The global challenge of achieving citizenship for all
The global challenge of achieving citizenship for all
The global challenge of achieving citizenship for all
The global challenge of achieving citizenship for all
The global challenge of achieving citizenship for all
The global challenge of achieving citizenship for all
The global challenge of achieving citizenship for all
The global challenge of achieving citizenship for all
The global challenge of achieving citizenship for all
The global challenge of achieving citizenship for all
The global challenge of achieving citizenship for all
The global challenge of achieving citizenship for all
The global challenge of achieving citizenship for all
The global challenge of achieving citizenship for all
The global challenge of achieving citizenship for all
The global challenge of achieving citizenship for all
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The global challenge of achieving citizenship for all

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Dr Simon Duffy, at the Manawanui International Conference on self-direction, argues that we can work together to advance citizenship for all. He outlines the place that self-directed support has had in advancing citizenship, but also warns of the danger of consumerism. He explores the growing threats to citizenship from scapegoating and meritocracy. He launched an international membership cooperative - Citizen Network.

Published in: Government & Nonprofit
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The global challenge of achieving citizenship for all

  1. 1. The global challenge
 of citizenship for all Dr Simon Duffy Auckland, 2016
  2. 2. We live in an 
 increasingly strange & crazily interconnected world
  3. 3. Ursula Le Guin Honour can exist anywhere, Love can exist anywhere, But justice can exist only among people
 who found their relationships upon it
  4. 4. • Love is the most important force in society, but it cannot be forced, bullied or incentivised. • Family is vital to life and development, but families cannot be organised, managed or engineered. • We long to belong to an inclusive community, but communities inherit the flaws of their members. • But we can always think and act as a citizen, even when most have forgotten what citizenship means.
  5. 5. Since World War II there has been significant international progress in advancing citizenship for people with disabilities… • Deinstitutionalisation and inclusion • Disability rights and anti-discrimination • Self-direction and personalisation
  6. 6. Countries where self-directed support is happening
  7. 7. • Progress on self-direction has been slow and fragmentary, but it’s very real • Some groups are still excluded, but its scope continues to expand • The argument is increasingly less theoretical and increasingly empirical
  8. 8. Location N Change England - 6 Sites Phase I Report 60 -18.0% England - 17 Sites Phase II Report 128 -9.0% England - 13 Sites IBSEN Report 203 -6.0% England - Northamptonshire 17 -18.7% England - City of London 10 -30.0% England - Worcestershire 73 -17.0% England - Southwark 85 -29.8% Scotland - Glasgow 12 -44.0% USA - Denver - Disabled Children - -34.0% USA - Florida - Disabled Children - -30.0%
  9. 9. We must beware the drift of ideas rooted in rights and citizenship into the emptiness of consumerism
  10. 10. Origin of “Consumer” early 15c., "one who squanders or wastes," agent noun from consume. In economic sense, "one who uses up goods or articles" (opposite of producer) from 1745.
  11. 11. • It is also possible to see self-direction as one element of a wider challenge • Reforming and modernising the welfare state to support citizenship and community • Shifting resources upstream, a broader version of de-institutionalisation - for everybody
  12. 12. I hope what follows describes only a UK problem. Sadly, I fear that, I may be wrong.
  13. 13. However progress has not only been slow, but there are worrying signs of things going in reverse. In the UK, while self-direction and personalisation are the official policy: • Austerity is leading to severe cuts in disability support and income security systems. • Other policies, which are supposed to help people into work have led to stigma, mental illness and suicide. • Policies of euthanasia and eugenics are becoming increasingly accepted as inevitable.
  14. 14. In total, across England as a whole, the WCA disability reassessment process during this period was associated with an additional 590 suicides (95% CI 220 to 950), 279,000 additional cases of self- reported mental health problems (95% CI 57,000 to 500,000) and the prescribing of an additional 725,000 antidepressant items (95% CI 406 000 to 1 045 000). Barr B, et al. J Epidemiol Community Health 2015;0:1–7. doi:10.1136/jech-2015-206209
  15. 15. The Committee is seriously concerned about the disproportionate adverse impact that austerity measures, introduced since 2010, are having on the enjoyment of economic, social and cultural rights by disadvantaged and marginalised individuals and groups. The Committee is concerned that the State party has not undertaken a comprehensive assessment of the cumulative impact of such measures on the realisation of economic, social and cultural rights, in a way that is recognised by civil society and national independent monitoring mechanisms (art. 2, para. 1). UN Committee on Economic, Social and Cultural Rights: Concluding observations on the sixth periodic report of 
 the United Kingdom of Great Britain and Northern Ireland
 24 June 2016 UN declares UK Government fails to respect human rights
  16. 16. …there is reliable evidence that the threshold of grave or systematic violations of the rights of persons with disabilities has been met in the State party… The core elements of the rights to independent living and being included in the community, an adequate standard of living and social protection and their right to employment have been affected… freedom of choice and control over their daily activities restricted, the extra cost of disability has been set aside and income protection has been curtailed as a result of benefit cuts, while the expected policy goal of achieving decent and stable employment is far from being attained UN Committee on the Rights of Persons with Disabilities: Inquiry concerning the United Kingdom of Great Britain and Northern Ireland carried out by the Committee under article 6 of the Optional Protocol to the Convention
 6th October 2016 UN declares UK Government fails to respect disability rights
  17. 17. Other groups face similar injustices • Migrants, refugees and asylum seekers find themselves directly excluded from citizenship • People in poverty, people with chronic illnesses and mental illness are increasingly stigmatised and managed • We can all become detached, disenchanted and or excluded from community and political life
  18. 18. The Scotsman reported on 3rd February 2012: High-earning migrants and promising student entrepreneurs will find it easier to work in Britain as the coalition aims to ensure only “the right people are coming here,” the Immigration Minister has said. Damian Green, a Conservative MP, said middle managers, unskilled labourers and benefit seekers would be kept out as the coalition seeks only migrants who “add to the quality of life in Britain.” If only ‘those’ kind of people add to the quality of life in Britain - what about the rest of us?
  19. 19. “Today we frankly recognise that democracy can be no more than an aspiration, and have rule not so much by the people as by the cleverest people; not an aristocracy of birth, not a plutocracy of wealth, but a true meritocracy of talent.” [1958] Yesterday’s satire feels like today’s tragedy
  20. 20. When people lose their way Charities flourish and self-righteousness grows. When we value cleverness and business acumen We unleash hypocrisy and trickery. When families fall apart Family values are the order of the day. As societies fall apart They fill up with loyal patriots. Lao Tzu - Tao Te Ching
  21. 21. So, let’s turn the tables and go back through the looking glass
  22. 22. Let’s welcome each other into full citizenship • Advance a richer concept of what citizenship demands • Challenge ourselves to act to achieve citizenship for all • Work together to reverse injustice
  23. 23. This is the ‘stuff’ of citizenship by which we protect our status as equals 1. Finding our sense of purpose 2. Having the freedom to pursue it 3. Having enough money to be free 4. Having a home where we belong 5. Getting help from other people 6. Making life in community 7. Finding, sharing and giving love
  24. 24. • Danish citizens saved nearly all Danish Jews and refugee Jews from the gas chambers. • After first hiding them from the Nazis they then manned fishing boats and help them escape to neutral Sweden. • This is true citizenship
  25. 25. We do not need to accept the current distortions: • We can reclaim the language of citizenship • Our values give us strength to outmanoeuvre the elitists, the greedy and the angry - the haters • Reject anger, fear and hate and act from love
  26. 26. This strategy can be powerful • Making citizenship central to our arguments • Assume the validity of our models (demand evidence from those who want to remove power) • Sharing new ideas and innovations freely • Assuming our capacity to realise change without permission
  27. 27. 1. Get connected 2. Get informed 3. Learn from others 4. Share with others 5. Change the world
  28. 28. • It is time to “gird our loins” again [girding up your loins meant to tie up long, loose clothes so that they were more practical when you were working or travelling.] • Learn from the earlier battles, but don’t re-live them • Be prepared to question old assumptions • Make common cause with those who face similar challenges • Get organised and act with courage
  29. 29. For those of us who value citizenship
 this beautiful world of diverse people and complex communities is a 
 profound source 
 of strength
 and joy
  30. 30. www.cforwr.org @citizen_network
 @CforWR 
 @simonjduffy fb.me/centreforwelfarereform fb.me/citizennetwork e simon@centreforwelfarereform.org www.citizen-network.org

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