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Our Daughter, Teresa
• Currently 4 ½
• Diagnosed with CVI at 3½
• Severe to profound hearing
loss in both ears
• Severe learning disability
• Curious, curious, curious!
• Regardless, one happy kid!
Pre-CVI Diagnosis
Before the diagnosis of CVI we
were always asking:
• Why doesn’t she look at us?
• Why does she look at the
edges of objects, and not the
objects themselves?
• What is it about transparent
objects that are so fascinating?
Helping her understand her world
• We wanted to be able to
produce material that would
pique our daughter’s interest
and be a conduit for learning.
• To do that we had to ask
ourselves what is Teresa drawn
to? What does she like?
• What are some of the
characteristics of these items?
FIGURING OUT WHAT TO DO
How do we make this work?
What does Teresa like?
• Shiny gold or silver
objects
• Mirrors
• Edges, edges, edges
• Transparent objects
• Soft cloth/objects
• Cords, wires and ropes
• Hair and beards
• Texture
• Looking through
fabrics/mesh/netting
• Patterns (wood grain/plaid)
• Looking up at trees
• Lights
Object Presentation
Characteristics
• Edges
• Transparency
• Sheen
• Color
• Texture/Pattern
Presentation
• Retain as much simplicity as
possible. Don’t show too much
at once!
• Use of simple black or white
background where possible
• Use guided interaction with
objects to encourage learning
cause/effect
MINIMIZE DISTRACTION IN PRESENTATION
Materials Purchased (1)
• Color Texture Toy
• Squigz Toys
• Bead Maze
Materials Purchased (2)
Light Table Transparent Plastic Shapes
Materials Purchased (3)
• Fabrics
• Fabric and mesh of various
colors/ textures
• Black fabric (felt/broadcloth)
• Foam paper/texture foam
• Color or shiny paper
• Mylar (silver and gold)
• Plastic Buttons
• Glue Sticks
• Other Adhesives
• Ribbon
• Textured letters
• Plastic Gate
• Black tri-fold display boards
• Deep black paper
Materials Collected Around the House
• Transparent lids/bowls
• Cardboard
• Transparent plastic
binders
• Sandpaper
• Various paper scraps
• Random Ribbons
• Old thread spools
• Existing toys that fit
criteria
• Pictures of familiar
objects to Teresa
– Mom/Dad
– Sippy Cup
– High Chair, etc.
THE RESULT
CVI Play Area
• Black cloth on one wall
and floor
• Black Tri-fold Display to
create another “wall”
• Felt shapes can be
attached to hanging felt
strip
CVI Interactive Book
Example images used in book
CVI Interactive
Book
CVI Box with Windows
Light Table w/Clear Blocks
Examining Color and Contrast
Various uses of Mylar
OTHER CHANGES TO ROOMS
•Plastic gates and balance ropes
encourage her to remain upright and
engage with her environment
•Set of cards added to dining area to
encourage language development during
meals
2020 1106 CBSS AC mtg mini grant presentation - Beyond the Edge

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2020 1106 CBSS AC mtg mini grant presentation - Beyond the Edge

  • 1.
  • 2. Our Daughter, Teresa • Currently 4 ½ • Diagnosed with CVI at 3½ • Severe to profound hearing loss in both ears • Severe learning disability • Curious, curious, curious! • Regardless, one happy kid!
  • 3. Pre-CVI Diagnosis Before the diagnosis of CVI we were always asking: • Why doesn’t she look at us? • Why does she look at the edges of objects, and not the objects themselves? • What is it about transparent objects that are so fascinating?
  • 4. Helping her understand her world • We wanted to be able to produce material that would pique our daughter’s interest and be a conduit for learning. • To do that we had to ask ourselves what is Teresa drawn to? What does she like? • What are some of the characteristics of these items?
  • 5. FIGURING OUT WHAT TO DO How do we make this work?
  • 6. What does Teresa like? • Shiny gold or silver objects • Mirrors • Edges, edges, edges • Transparent objects • Soft cloth/objects • Cords, wires and ropes • Hair and beards • Texture • Looking through fabrics/mesh/netting • Patterns (wood grain/plaid) • Looking up at trees • Lights
  • 7. Object Presentation Characteristics • Edges • Transparency • Sheen • Color • Texture/Pattern Presentation • Retain as much simplicity as possible. Don’t show too much at once! • Use of simple black or white background where possible • Use guided interaction with objects to encourage learning cause/effect MINIMIZE DISTRACTION IN PRESENTATION
  • 8. Materials Purchased (1) • Color Texture Toy • Squigz Toys • Bead Maze
  • 9. Materials Purchased (2) Light Table Transparent Plastic Shapes
  • 10. Materials Purchased (3) • Fabrics • Fabric and mesh of various colors/ textures • Black fabric (felt/broadcloth) • Foam paper/texture foam • Color or shiny paper • Mylar (silver and gold) • Plastic Buttons • Glue Sticks • Other Adhesives • Ribbon • Textured letters • Plastic Gate • Black tri-fold display boards • Deep black paper
  • 11. Materials Collected Around the House • Transparent lids/bowls • Cardboard • Transparent plastic binders • Sandpaper • Various paper scraps • Random Ribbons • Old thread spools • Existing toys that fit criteria • Pictures of familiar objects to Teresa – Mom/Dad – Sippy Cup – High Chair, etc.
  • 13. CVI Play Area • Black cloth on one wall and floor • Black Tri-fold Display to create another “wall” • Felt shapes can be attached to hanging felt strip
  • 14. CVI Interactive Book Example images used in book
  • 16. CVI Box with Windows
  • 20. OTHER CHANGES TO ROOMS •Plastic gates and balance ropes encourage her to remain upright and engage with her environment •Set of cards added to dining area to encourage language development during meals

Editor's Notes

  1. Hi-Contrast, texture/feel friendly, simple colors