Sabrina Donina: Aligning Assessment Data to Enhance Quality Of Life Outcomes in Person with Intellectual and Developmental Disability - Slide presentation

2. ALLIGNING ASSESSMENT DATA TO ENHANCE QUALITY OF LIFE OUTCOMES IN PERSON WITH INTELLECTUAL AND DEVELOPMENTAL DISABILITY Sabrina Donina, FoBAP a marchio Anffas, Luigi Croce, Università Cattolica del Sacro Cuore Marco Lombardi, HoGent University 2

3. Referral and Taking in Responsibility Assessment Desires and Expectations Personal characteristics IQ & AB Functioning Assessment & Classification Health Assessment (medical & nursing) Environmental Assessment Iiving setting Support Needs SIS Current QoL POS Functioning Profile Strenghts & Limitations +/- Project Ecological Balance General Life Aim/Target Support Objectives Supports strategies Plan Programs Outcomes Personal (POS) Functional Clinical Project Synthesis Case Conceptualization & Framing Report Report Report Report INPUT THROUGHPUT OUTPUT Ecological Matrix Matrice dei Sostegni Support Matrix From Schalock, 2012, Gardner, 2009, modified LIFE DESIGN Claes 2011; Croce 2013 presentation s3

4. Ecological Variables Quality of Life Domains PWB MWB EWB SD PD SI IR RE What is important to the Person? Personal Goals and Preferences general Personal Goals and Preferences specific What is important for the Person? Support Needs Items 1. Home living 2. Community living 3. Lifelong Learning 4. Occupancy 5. Health and Safety 6. Social 7. Protection and Advocacy 8. Medical excp. 9. Behavioral excp. Adaptive Behavior Particip. incl. Functioning strenghts Functioning limitations Health Physical Health Mental Health Context Facilitators Barriers QoL level POS scores Support Objectives ISP: Individual Support Plan Concise Reconceptualization Ecological Matrix 1: From Assessment to Support Objectives (INPUT)

5. What is important to the person? 5

6. Subject: male 36 years old 6 • I like to go out for walksPHYSICAL WELL BEING EMOTIONAL WELL-BEING MATERIAL WELL-BEING PERSONAL DEVELOPMENT SELF-DETERMINATION • I like to go to the church and sing with the choir SOCIAL INCLUSION • I like to chat with my caregiversINTERPERSONAL RELATIONS • I like to be free to move and walk wherever I want RIGHT

9. Person 1: male 36 years old 9 PHYSICAL WELL BEING EMOTIONAL WELL-BEING MATERIAL WELL-BEING • Learning domestic skills • Learning personal skills PERSONAL DEVELOPMENT • More opportunity to choose what he want to do SELF-DETERMINATION • More opportunity to go outSOCIAL INCLUSION • Learning social skills to improve his relations INTERPERSONAL RELATIONS RIGHT

12. Subject: male 36 years old 12 0 20 40 60 80 100 120 Vineland Adaptive Behavior Scale 2° edition (Sparrow et al., 1984)

13. Aberrant Behavior Checklist (Aman et al., 1985) • Impulsive (acts without thinking) • Does not stay in seat (during lesson, training session, meals, etc.) • Will not sit still for any length of time • Easily distractible • Disobedient, difficult to control • Deliberately ignores directions • Disturbs others • Repetitive Speech • Repeats a word or phrase over and over 13

14. Person 1: male 36 years old 14 PHYSICAL WELL BEING • To be always smiling • Appropriate behavior with the others EMOTIONAL WELL-BEING • Not able to manage his spare timeMATERIAL WELL-BEING • Low attention level (few seconds) • Not able to stay in seat during a training; ignore istructions • Imitative skills PERSONAL DEVELOPMENT • Low attention level (few seconds)SELF-DETERMINATION • No social rulesSOCIAL INCLUSION • Not compliance during a conversation • To be always smiling INTERPERSONAL RELATIONS RIGHT

17. Subject: male 36 years old • Moderate intellectual disability • Attention Deficit Hyperactivity Disorder • Psychotic disorder • Epilepsy unspecified, without status epilepticus • Enuresis 17

18. Person 1: male 36 years old 18 • High risk to fall on the groundPHYSICAL WELL BEING EMOTIONAL WELL-BEING • Clothes always wet (enuresis)MATERIAL WELL-BEING • Many difficult to listen to instructions(ADHA)PERSONAL DEVELOPMENT • Very low of attention levels (ADHD)SELF-DETERMINATION SOCIAL INCLUSION • Problems to mantain relations (ADHD)INTERPERSONAL RELATIONS • Not allow to stay alone (ADHD) • Stigma (enuresis) RIGHT

21. 21 -4 -3 -2 -1 0 1 2 3 4 International Classification of Functioning (WHO,2001): ENVIRONMENTAL PROFILE SUPPORT AND RELATIONSHIP ATTITUDES

22. Subject: male 36 years old 22 • Health professionals satisfy his needsPHYSICAL WELL BEING • Immediate family doesn’t support him and doesn’t tolerate his behaviors EMOTIONAL WELL-BEING • Immediate family doesn’t provide to his material needs MATERIAL WELL-BEING •Staff care want to teach him skills •Immediate family is not interested in teaching new skills PERSONAL DEVELOPMENT • Immediate family doesn’t support his decision taking SELF-DETERMINATION SOCIAL INCLUSION • Good relations with care staffINTERPERSONAL RELATIONS RIGHT

25. 25 0 2 4 6 8 10 12 14 16 18 PERSONALDEVELOPMENT SELF-DETERMINATION INTERPERSONALRELATIONS SOCIALINCLUSION RIGHT EMOTIONALWELL-BEING PHISICALWELL-BEING MATERIALWELL-BEING PERSONAL OUTCOMES SCALE (van Loon et al., 2008)

27. Ecological Matrix Iniziativa approvata e co-finanziata Ministero Lavoro e Politiche Sociali ex legge 383/2000, art. 12, lett. f bando 2013 26

28. Defining Support Objectives Iniziativa approvata e co-finanziata Ministero Lavoro e Politiche Sociali ex legge 383/2000, art. 12, lett. f bando 2013 28

29. SIRIUS RIGEL ANTARES ALTAIR BELLATRIX VEGA BETELGEUSE 29

30. Thank you!!! 30

Sabrina Donina: Aligning Assessment Data to Enhance Quality Of Life Outcomes in Person with Intellectual and Developmental Disability - Slide presentation

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Sabrina Donina: Aligning Assessment Data to Enhance Quality Of Life Outcomes in Person with Intellectual and Developmental Disability - Slide presentation

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