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Knowledge Database
• Slide Presentation for the lecture of: Dana Roth
Beit Issie Shapiro, Israel
• Topic of lecture: Auton...
Inclusion
“No longer
researching
about us
without us”
Action Research
Action research generates
knowledge to impact practice
Inclusive Action Research
Inclusive / participatory research approach
includes representatives of those who are
the “Subje...
People with disabilities participate in establishing the
research topic and research question (s).
People with disabilitie...
People with disabilities participate in designing the
institutional review application (ethics review), especially as it
r...
The Researchers
Adults with complex learning, adjustment &
Function disabilities (4); Professional
researches (2).
The Res...
The Research Question
Is there a correlation between
autonomy, dependency, self- image
(perception) & Quality of life of
p...
Literature Review
[Patricia ,Sitlington and Frank (1990) Cuskelly and Bryde (2004) Deci, Hodges, Pierson and
Tommasone (20...
Research Measures (based on)
1. Quality of life Questionnaire, (Cummins, 2005).
2. Autonomy, Dependence scale, (ACS -30)
(...
Research Measures
2. Autonomy, Dependence scale (ACS -30)
1. Quality of life Questionnaire
i.e. How satisfied are you from...
Data Collection
• Respondents recruited by the
researchers with disability :
• explaining the study
• Supporting responden...
gender
%N
49.145Female
55.957Male
7No response
109
Age
7.2S.D.33.9Mean
21-54Range
Employment Statues
%N
90.990Employed
9.1...
Means of Scales
0
0.5
1
1.5
2
2.5
3
3.5
4
Quality of life Self esteem Autonomy in
relationships
independent
thinking
Initi...
Significant findings Based on indept. Var
0
0.5
1
1.5
2
2.5
3
3.5
QOLSelf Esteem
Single
In a relationship
Correlations among the variable
independent
thinking
Initiative
Autonomy in
relationships
Self esteem
Quality of
life
.083...
Conclusion
 Relationship is an area where emphasis must take
place, its complexity, significance in self esteem and
quali...
Recommendations
Inclusive research is a MUST when conducting
research on lives of people, critical in
formulating the rel...
Dana Roth: Autonomy and Dependency Relationship with Self-Perception and Quality of Life among People with Complex Learnin...
Dana Roth: Autonomy and Dependency Relationship with Self-Perception and Quality of Life among People with Complex Learnin...
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Dana Roth: Autonomy and Dependency Relationship with Self-Perception and Quality of Life among People with Complex Learning Disabilities, Adjustment and Function Disorders: An Inclusive Research - Slide presentation

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Dana Roth: Autonomy and Dependency Relationship with Self-Perception and Quality of Life among People with Complex Learning Disabilities, Adjustment and Function Disorders: An Inclusive Research - Slide presentation

  1. 1. Knowledge Database • Slide Presentation for the lecture of: Dana Roth Beit Issie Shapiro, Israel • Topic of lecture: Autonomy and Dependency Relationship with Self-Perception and Quality of Life among People with Complex Learning Disabilities, Adjustment and Function Disorders: An Inclusive Research • The lecture was given at Beit Issie Shapiro’s 6th International Conference on Disabilities - Israel • Year: 2015
  2. 2. Inclusion “No longer researching about us without us”
  3. 3. Action Research Action research generates knowledge to impact practice
  4. 4. Inclusive Action Research Inclusive / participatory research approach includes representatives of those who are the “Subjects” of the research. This approach is geared to study the issues most relevant and important to the group. Based on finding of the research one outcome is action (Social, Policy, etc.)
  5. 5. People with disabilities participate in establishing the research topic and research question (s). People with disabilities participate in the literature review. People with disabilities participate in designing the research methods? People with disabilities participate in designing the instruments to assure relevance, accessibility, and usability. People with disabilities participate in selecting and recruiting study participants (sample). How Inclusive is the research?      D. N. Bryen 2012
  6. 6. People with disabilities participate in designing the institutional review application (ethics review), especially as it relates to informed consent. People with disabilities participate in data collection. People with disabilities participate in data analysis. People with disabilities participate in writing the research results and conclusions. People with disabilities participate in research dissemination, including publication, presentations, brochures, papers in easy language to ensure accessibility and ease of understanding. People with disabilities participate in ensuring that research findings are sustainable and are used for social justice changes.      
  7. 7. The Researchers Adults with complex learning, adjustment & Function disabilities (4); Professional researches (2). The Research process 20 work meetings, about 3 hours each, (May 2012-may 2015), all graduates of BIS “Inclusive University”.
  8. 8. The Research Question Is there a correlation between autonomy, dependency, self- image (perception) & Quality of life of people with complex learning disabilities, adjustment and function disorders
  9. 9. Literature Review [Patricia ,Sitlington and Frank (1990) Cuskelly and Bryde (2004) Deci, Hodges, Pierson and Tommasone (2001), Margalit and Schulman (2001), shessel and reif (1999), Gereber (1999)] Discussion pre-study • What is the difference between disability & dependency? • Does disability means dependence? • Are autonomy & dependency Antonyms? • Is autonomy positive & dependency negative? Almost no publications regarding ADULTS with LD
  10. 10. Research Measures (based on) 1. Quality of life Questionnaire, (Cummins, 2005). 2. Autonomy, Dependence scale, (ACS -30) (Bekker & Van - Assen, 2006) 3. Self Esteem Questionnaire, (Rosenberg, 1965) 4. Sociodemographic information -pilot-
  11. 11. Research Measures 2. Autonomy, Dependence scale (ACS -30) 1. Quality of life Questionnaire i.e. How satisfied are you from your life generally How satisfied are you from thing you achieved in life 3. Self Esteem Questionnaire i.e. I feel that I am worth less than others I don't feel there is much I can be proud of i.e. I can not stand that someone is angry at me Very rarely I think about experiences or feelings of others A. Autonomy in relationships i.e. Many times I am not sure of what my opinions are Usually when I am asked I know the answer B. Autonomy in thinking/thought C. Initiations i.e. It is hard for me to plan new activities I easily deal with problems
  12. 12. Data Collection • Respondents recruited by the researchers with disability : • explaining the study • Supporting respondents • Collecting questionnaires
  13. 13. gender %N 49.145Female 55.957Male 7No response 109 Age 7.2S.D.33.9Mean 21-54Range Employment Statues %N 90.990Employed 9.19Un-Employed 10No response 109 Family Statues %N 69.972Single 31.131In relationship Residential Setting %N 10.111Independent 14.716With parents 37.641Satellite 13.815Training apt. 8.39Therapeutic apt. Social Demographic Profile
  14. 14. Means of Scales 0 0.5 1 1.5 2 2.5 3 3.5 4 Quality of life Self esteem Autonomy in relationships independent thinking Initiative r=.461 r=.320 r=.501 r=.354 r=.292
  15. 15. Significant findings Based on indept. Var 0 0.5 1 1.5 2 2.5 3 3.5 QOLSelf Esteem Single In a relationship
  16. 16. Correlations among the variable independent thinking Initiative Autonomy in relationships Self esteem Quality of life .083.354**.292**.461**1Quality of life .311**.320**.0741Self esteem .211*.278**1Autonomy in relationships .501**1Initiative 1Independent thinking
  17. 17. Conclusion  Relationship is an area where emphasis must take place, its complexity, significance in self esteem and quality of life , with relations to independence and dependence, etc.  The correlation of independent thinking and initiative, implication for early intervention approach.  The correlation of self-esteem and QOL, and the fact that those in relationships rate a higher self esteem.
  18. 18. Recommendations Inclusive research is a MUST when conducting research on lives of people, critical in formulating the relevant questions and in selecting the measures. In the future a measure of efficacy and self- efficacy should be included.

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