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Social Media:
A Critical Tool for Public Health and
Academic Research?

@joyclee
@pfanderson
I gave you homework
Presenter Disclosure
Social Media Editor
JAMA Pediatrics
Agenda
•  Definition of Social Media
•  How to Use Twitter
•  Public Health Applications of Social
Media
•  Social Media and my Research
I’m a Pediatrician
Diabetes Specialist
Clinical and Health Services
Researcher

Since this was a talk about my “research”
you can visit my publications here
http://joyceisplayingontheinter.net/
andpublishing.html
These are the friends I met who
Introduced me to Twitter 2 yrs ago
When they told me that they
met individuals on Twitter,
my initial response was,
“You’re joking, right?”
What is
social media?
Social Media
Web-based and mobile technologies
used to turn communication into
interactive dialogue between
organizations, communities, and
individuals
Social Media
What is Twitter?
It’s a microblogging
platform,
a place to have a
conversation
How do you use
Twitter?
First, set up your profile
and choose your name
@_________
First, set up your profile
and choose your name
@joyclee
@pfanderson
@urbandata
@mindofandre
@risalavizzo
@hhs_drkoh
“Who is that egghead?”
An Unengaging Profile
An Engaging Profile
(s/p a social media intervention)
To tweet,
hit this button
Tweet

You only have 140 characters
to say something
Tweet
Use a link shortener to save space
Announce an event
Retweet someone else’s tweet

RT (Retweet), MT (Modified Tweet)
H/T (Hat tip)
To follow and to be followed
To follow and to be followed
To follow and to be followed
Use mentions to reach out to
specific individuals
#hashtags=topic or group
#Hashtag=Conference
Tweetchat: #sm4pm
So now you know
how to use
Social Media,
but why would
a public health care
professional use it?
You don’t feel like tweeting your
morning breakfast
You’re not Miley Cyrus
You have better things to do than
put your math skills on display
Neither are you mother monster
(Lady Gaga)
Here is a comprehensive list of
resources you can use to
explore Twitter for Public Health

http://www.mindmeister.com/270101756/
twitter-hashtags-by-pf-anderson
But first, let’s discuss
Rules of Engagement
Separate the Personal from
the Professional
	
  	
  	
  

Lady Gaga
by night

Dr. Joyce Lee
Associate Professor
by day
Follow the
12-word Social Media Policy
from the Mayo Clinic
“Don’t Lie, Don’t Pry

Don’t Cheat, Can’t Delete

Don’t Steal, Don’t Reveal”"
Don’t talk about patients,
even in general terms

Remember HIPAA!
If you wouldn’t say it in an
elevator, don’t say it online
-Dave Ekrem
http://bit.ly/1349R9M
Here is my top 10 list
on why I use
Twitter
First:
To follow movements and
people that can help inform
your work/research
#quantifiedself
(#qs2012/#qschat)
#mhealth
#dataviz
The Quantified Self Movement
Mood Tracker

Sleep Monitor

Heart Rate
Recorder

Calorie
Counter

GPS Logger

Pedometer

http://www.technologyreview.com/biomedicine/37784/
A curated, organized list of #mhealth
apps that I didn’t have to compile!
I am thinking
about this
paradigm for
creating
#mhealth/
#dataviz
interventions in
teens for
diabetes
#dataviz
Click on image for these amazing
#dataviz libraries
I had students create this amazing
dashboard (click image for blogpost)
And you even hear about wacky
things like….
Now that’s an #mhealth app!
Second:
To crowdsource solutions
to your research problems
and find collaborators
I used Storify to curate the content so that I
could use it for the homework and my talk
The traditional way to seek help
Computing
Community
Consortium
NIH/NSF

Margie Morris, PhD
Clinical Psychologist
Senior Researcher
Intel

Wendy Ju, PhD
Director of Research
Stanford Design Lab
Third:
To provide you with
information to help with your
traditional research endeavors
is slow
compared with
Fourth:
To provide you with tools to
help with your traditional
research endeavors
11:23 AM
11:41 AM
11:49 AM
12:07 PM
With social media, the task
took less than 1 hour!
(30+ by hand)
Fifth:
To translate your research
http://diabetessafety.net/
Tangle.js

A very cool interactive
#dataviz tool (click
Image for document)
“Research (by two blogging economists at the
World Bank) suggests that academic papers
cited by bloggers are far more likely to be
downloaded. Blogging economists are
regarded more highly than non-bloggers with
the same publishing record.”
http://www.economist.com/node/21542193
http://owl.english.purdue.edu/owl/resource/747/08/
Sixth:
Unexpected Networking
Academia is a social process
that depends on networking
•  Media Interviews
•  Workshop Presentations
•  Lecture Invitations
•  Committee Invitations
A Doctor? At a
•  Design Conference?
Grant Opportunities
•  Dissemination

Vineet Arora
FutureDocs
Seventh:
To create new
opportunities for education
and engagement
Have a Conversation before
the class even begins
Eighth:
To be part of a larger dynamic and
real-time conversation that can
lead to new ways of approaching
clinical care and research
http://goo.gl/Cipd1b
Ninth:
To facilitate bidirectional
communication between
providers and patients
Diabetes Online Community (#doc)
Glucose Sensor + Flovent = Rash-free?

http://goo.gl/7pgZl9
iSeismometer iPhone app + CGM
on nightstand = effective alarm

Click on image for link
Tenth,
A Personal Reason
Tenth,
a personal story about
how I have used social media
See this slideshare
and check out
http://ihavefoodallergies.tumblr.com/
Social Media
is not going away
Check out the Storify embedded
at the bottom of the homework
Here are some highlights
in the next slides
http://healthmap.org/en/
@foodbornechi
http://foodborne.smartchicagoapps.org/
http://michiganradio.org/post/scientists-pushedengage-public-through-social-media
Thanks to:
@pfanderson
Dr. Mancuso
#publichealth Twitter community
Find me at:
@joyclee
http://joycelee.me/

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Social Media and Public Health

Editor's Notes

  1. @joyclee
  2. http://joyceisplayingontheinter.net/andexploringsm4ph.html
  3. http://thecourse.webicina.com/presentations/Epatients/
  4. I’m a pediatrician
  5. Diabetes Specialist
  6. Clinical and Health Services Researcher. For my publications click here:
  7. http://thecourse.webicina.com/presentations/Epatients/
  8. Collaborative projects content communities, blogs
  9. http://www.mindmeister.com/270101756/twitter-hashtags-by-pf-anderson
  10. http://socialmedia.mayoclinic.org/2012/04/05/a-twelve-word-social-media-policy/
  11. http://www.technologyreview.com/biomedicine/37784/In context, and with much richer resolution
  12. Linked (just click on image)
  13. Linked (just click on image)
  14. Linked (click on image)
  15. http://d3js.org/ (click on image)
  16. http://joycelee.tumblr.com/post/49159243909/dataviz-design-diabetes-the-beginningLinked (click on image)
  17. http://ww.etechlib.wordpress.com/Linked (click on image)
  18. Website in Portuguese!Linked (click on image)http://joycelee.tumblr.com/post/55766867837/pediatrics-mhealth-socialmedia
  19. Linked (click on image)http://storify.com/joyclee/social-media-for-public-health?utm_source=embed_header
  20. Linked (click on image)
  21. Linked to Open mHealth website (click on image)Linked to article (click on image)
  22. http://www.nytimes.com/2012/04/22/opinion/sunday/the-flight-from-conversation.html?_r=2&pagewanted=1
  23. Linked to pubmed abstract (click on image)
  24. http://www.nytimes.com/2012/04/22/opinion/sunday/the-flight-from-conversation.html?_r=2&pagewanted=1
  25. http://www.nytimes.com/2012/04/22/opinion/sunday/the-flight-from-conversation.html?_r=2&pagewanted=1
  26. Linked (click on image) http://diabetessafety.net/
  27. Linked to website http://worrydream.com/Tangle/Linked to Ten Brighter Ideas page (click on image)
  28. http://www.economist.com/node/21542193
  29. Linked (click on image)
  30. http://owl.english.purdue.edu/owl/resource/747/08/Editor, screen name, author, or compiler name (if available). “Posting Title.” Name of Site. Version number (if available). Name of institution/organization affiliated with the site (sponsor or publisher). Medium of publication. Date of access.Salmar1515 [Sal Hernandez]. “Re: Best Strategy: Fenced Pastures vs. Max Number of Rooms?” BoardGameGeek. BoardGameGeek, 29 Sept. 2008. Web. 5 Apr. 2009.
  31. http://www.nytimes.com/2012/04/22/opinion/sunday/the-flight-from-conversation.html?_r=2&pagewanted=1
  32. Promotion and TenureConferencesEditorial BoardsIOM committeesGrant review committees
  33. Linked (click on image)
  34. Linked (click on image)
  35. Linked (click on image)
  36. http://www.nytimes.com/2012/04/22/opinion/sunday/the-flight-from-conversation.html?_r=2&pagewanted=1
  37. Linked (click on Section Editors image)
  38. Linked (click on image)
  39. Linked (click on image)
  40. Linked (click on image)
  41. Tumblr blog
  42. http://www.nytimes.com/2012/04/22/opinion/sunday/the-flight-from-conversation.html?_r=2&pagewanted=1
  43. Linked (click on image)
  44. Linked to http://kckidsdoc.com/ (click on KC Kids Doc image)
  45. Twitter hashtag#doc
  46. http://sixuntilme.com/blog2/2012/11/dexcom_rash_swinging_for_the_f.html
  47. Linked (click on image) Sixuntilme
  48. http://www.nytimes.com/2012/04/22/opinion/sunday/the-flight-from-conversation.html?_r=2&pagewanted=1
  49. http://www.slideshare.net/joyclee/doctor-as-designer-26625644Add image in back…
  50. http://www.nytimes.com/2012/04/22/opinion/sunday/the-flight-from-conversation.html?_r=2&pagewanted=1
  51. http://storify.com/joyclee/social-media-for-public-health
  52. Linked (click on image)
  53. Linked (click on image)