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Wellbeing Analytics Code of
Practice
Andrew Cormack, Chief Regulatory Adviser (@Janet_LegReg)
Initial insight
•Learning analytics = Data-informed learning support
• Some learning issues have wider causes
• Can we help those in similar way?
•Data-informed wellbeing support = Wellbeing analytics?
• NB not limited to “analytics” in the “big data” sense
2 Wellbeing Analytics Code of Practice
© LillyCantabile on Pixabay
Comparison with Learning Analytics
Same…
•Might consider data for
• Self-awareness/benchmarking (apps, dashboards…)
• Single data entry (counsellor knows your workload)
• Triage (what’s the most appropriate source of help)
• Alerts (intervention may be needed)
But different…
•Not a closed system: many more sources
• To identify stresses (“environment”)
• To suggest response (“behaviour”)
•Even higher risk
• Sensitive data/inferences
• Consequences of false positives
• Consequences of false negatives
• Self-fulfilling prophecies
•Provide tools to support those?
3 Wellbeing Analytics Code of Practice
Learning Analytics CoP (ethics-based) a good start
4
What does law (GDPR+DPA18) add?
•NOT “is this lawful?”
• Many routes, many answers to that
•Take safeguards from all relevant sections
Wellbeing Analytics Code of Practice
https://www.jisc.ac.uk/guides/code-of-practice-for-learning-analytics
Information Commissioner’s Office Sandbox project
•One of 10 projects accepted (60+ applied) ☺
•In depth discussions with DP Regulator of
• Legal framework
• Code of Practice content
• Other support tools
• NB No data!
•Sandbox activity completed early 2020
• ICO and Jisc very happy with process & result ☺
© Liji Jinaraj (KarmaDude) on Flickr5 Wellbeing Analytics Code of Practice
Key differences from Learning Analytics
•Must be overseen by health professionals
• As learning analytics is overseen by learning professionals
• But can be operated by appropriately trained tutors & support staff
•Testing & Validation even more important
• Potentially even more serious consequences of error
• Best to treat these as separate processes to avoid data leakage
•Must have sufficient resources to use the data/flags raised
• Otherwise processing merely increases risk
•High risk: likely to require a formal Data Protection Impact Assessment…
•Wider range of sources: need to consider Purpose Compatibility…
6 Wellbeing Analytics Code of Practice
Tools: DPIA template
Assessing risk to individuals
•Likely legal requirement for wellbeing projects
• Confidence-building measure anyway
•Based on ICO approach
•Jisc fills in some likely risks
• Institutions add/remove/assess severity
•Jisc fills in some likely controls
• Institutions add/remove/assess residual risk
https://www.jisc.ac.uk/guides/code-of-practice-for-wellbeing-and-mental-health-analytics Annex
A
7 Wellbeing Analytics Code of Practice
Tools: Purpose compatibility matrix
Assessing scariness to individuals
•Helps select among (existing) data sources
•Purpose similarity
• Data collected/used for similar purposes
•E.g. individual tutorial support
• Data collected/used for different purposes
•E.g. statistics
•How hard to communicate the change?
•Distance => Risk
• Of causing alarm/hurt/resistance
• Of destructive reaction
https://www.jisc.ac.uk/guides/code-of-practice-for-wellbeing-and-mental-health-analytics Annex B
8 Wellbeing Analytics Code of Practice
References
• Code of Practice
• https://www.jisc.ac.uk/guides/code-of-practice-for-wellbeing-and-mental-health-analytics
• Information Commissioner on Data Protection Impact Assessments
• https://ico.org.uk/for-organisations/guide-to-data-protection/guide-to-the-general-data-
protection-regulation-gdpr/accountability-and-governance/data-protection-impact-
assessments/
• Information Commissioner on Purpose Compatibility
• https://ico.org.uk/for-organisations/guide-to-data-protection/guide-to-the-general-data-
protection-regulation-gdpr/principles/purpose-limitation/
• Information Commissioner Sandbox report
• https://ico.org.uk/media/for-organisations/documents/2618023/jisc-regulatory-sandbox-final-
report.pdf
• Background and Updates
• https://regulatorydevelopments.jiscinvolve.org/wp/tag/wellbeing/
9 Wellbeing Analytics Code of Practice
Discussion Points:
• How to make data protection your friend?
• How important are wellbeing analytics to your
institution?
• How would you go about implementing wellbeing
analytics?
and
• Anything else that you think is important?
Wellbeing Analytics Code of Practice10
Andrew.Cormack@jisc.ac.uk
jisc.ac.uk
Andrew Cormack
Lumen House, Library Ave, Didcot OX11 0SG
01235 822200

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Wellbeing analytics code of practice

  • 1. Wellbeing Analytics Code of Practice Andrew Cormack, Chief Regulatory Adviser (@Janet_LegReg)
  • 2. Initial insight •Learning analytics = Data-informed learning support • Some learning issues have wider causes • Can we help those in similar way? •Data-informed wellbeing support = Wellbeing analytics? • NB not limited to “analytics” in the “big data” sense 2 Wellbeing Analytics Code of Practice © LillyCantabile on Pixabay
  • 3. Comparison with Learning Analytics Same… •Might consider data for • Self-awareness/benchmarking (apps, dashboards…) • Single data entry (counsellor knows your workload) • Triage (what’s the most appropriate source of help) • Alerts (intervention may be needed) But different… •Not a closed system: many more sources • To identify stresses (“environment”) • To suggest response (“behaviour”) •Even higher risk • Sensitive data/inferences • Consequences of false positives • Consequences of false negatives • Self-fulfilling prophecies •Provide tools to support those? 3 Wellbeing Analytics Code of Practice
  • 4. Learning Analytics CoP (ethics-based) a good start 4 What does law (GDPR+DPA18) add? •NOT “is this lawful?” • Many routes, many answers to that •Take safeguards from all relevant sections Wellbeing Analytics Code of Practice https://www.jisc.ac.uk/guides/code-of-practice-for-learning-analytics
  • 5. Information Commissioner’s Office Sandbox project •One of 10 projects accepted (60+ applied) ☺ •In depth discussions with DP Regulator of • Legal framework • Code of Practice content • Other support tools • NB No data! •Sandbox activity completed early 2020 • ICO and Jisc very happy with process & result ☺ © Liji Jinaraj (KarmaDude) on Flickr5 Wellbeing Analytics Code of Practice
  • 6. Key differences from Learning Analytics •Must be overseen by health professionals • As learning analytics is overseen by learning professionals • But can be operated by appropriately trained tutors & support staff •Testing & Validation even more important • Potentially even more serious consequences of error • Best to treat these as separate processes to avoid data leakage •Must have sufficient resources to use the data/flags raised • Otherwise processing merely increases risk •High risk: likely to require a formal Data Protection Impact Assessment… •Wider range of sources: need to consider Purpose Compatibility… 6 Wellbeing Analytics Code of Practice
  • 7. Tools: DPIA template Assessing risk to individuals •Likely legal requirement for wellbeing projects • Confidence-building measure anyway •Based on ICO approach •Jisc fills in some likely risks • Institutions add/remove/assess severity •Jisc fills in some likely controls • Institutions add/remove/assess residual risk https://www.jisc.ac.uk/guides/code-of-practice-for-wellbeing-and-mental-health-analytics Annex A 7 Wellbeing Analytics Code of Practice
  • 8. Tools: Purpose compatibility matrix Assessing scariness to individuals •Helps select among (existing) data sources •Purpose similarity • Data collected/used for similar purposes •E.g. individual tutorial support • Data collected/used for different purposes •E.g. statistics •How hard to communicate the change? •Distance => Risk • Of causing alarm/hurt/resistance • Of destructive reaction https://www.jisc.ac.uk/guides/code-of-practice-for-wellbeing-and-mental-health-analytics Annex B 8 Wellbeing Analytics Code of Practice
  • 9. References • Code of Practice • https://www.jisc.ac.uk/guides/code-of-practice-for-wellbeing-and-mental-health-analytics • Information Commissioner on Data Protection Impact Assessments • https://ico.org.uk/for-organisations/guide-to-data-protection/guide-to-the-general-data- protection-regulation-gdpr/accountability-and-governance/data-protection-impact- assessments/ • Information Commissioner on Purpose Compatibility • https://ico.org.uk/for-organisations/guide-to-data-protection/guide-to-the-general-data- protection-regulation-gdpr/principles/purpose-limitation/ • Information Commissioner Sandbox report • https://ico.org.uk/media/for-organisations/documents/2618023/jisc-regulatory-sandbox-final- report.pdf • Background and Updates • https://regulatorydevelopments.jiscinvolve.org/wp/tag/wellbeing/ 9 Wellbeing Analytics Code of Practice
  • 10. Discussion Points: • How to make data protection your friend? • How important are wellbeing analytics to your institution? • How would you go about implementing wellbeing analytics? and • Anything else that you think is important? Wellbeing Analytics Code of Practice10
  • 11. Andrew.Cormack@jisc.ac.uk jisc.ac.uk Andrew Cormack Lumen House, Library Ave, Didcot OX11 0SG 01235 822200