Presentation 'Use of social networks for innovation in health' done by Vicente Traver (SABIEN-ITACA previously TSB-ITACA) during the IBEC 2014 conference held in Gwangju from 20 to 22th November, 2014. Presentation is focused about how social media can be used as driver for innovation in health

1. Use of social networksforinnovationin health
Vicente Traver vtraver@itaca.upv.es
Gwangju, 22th November2014

2. Are youin a social network?

4. Social networks
Evolutiveprocessin continuouschange
+ FAR
+ FAST
+ INFO
Social networks+ ICT

5. Are weusingproperlythetoolswealreadyhave?
In additionto itworks… whatare theotherquestionswehaveto keepin mind?

6. Do we know choosing the right tool?
Whichcriteriaare wefollowingto selectthepropertool?

7. How do we convince our colleagues that new tools are better than the currently used ones?
EVIDENCE

8. Whatisinnovation?
Invention+ commercialization
Somethingdifferent– create, grow, change

9. Privilegerightsto informationaccess
1994 –Mr. Murphy’scase -EnglewoodHospital
2004 –Marian Sandmeier-Washington Post journalist. Firstuse epatientterm

10. Healthormedicine ?
Hospital
Pharmacy
Specialist centre
General Practice
Home
Restaurant
Supermarket
Museum
Sports centre
Farm
Work
Car
Loop 1
Loop 2
Regulated Health Market
Unregulated Health Market

11. Data
Information
Knowledge

12. Taketherightdecisionat therighttime

13. Patients
Citizens
Patient’sassociations
Medical staff
Key decisionmakers
Social networksinteractwiththewholeecosystem

14. EMPOWERMENT is the process through which people gain greater control over decisions and actions affecting their health. Empowerment may be a social, cultural, psychological or political process through which individuals and social groups are able to express their needs, present their concerns, devise strategies for involvement in decision-making, and achieve political, social and cultural action to meetthoseneeds. (WHO. Healthpromotionglossary, 1998)
awareness
freedom
Empoweredpatient

16. Doubtsaboutsocial media?
Let’sdestroysomemyths….

17. Ananalysisof theACOR mailinglistshowedthaterroneouscontentwasveryrareand mostof thetimes quickly corrected by the community
•Esquivel, A, F. Meric-Bernstam, et al. Accuracyand selfcorrectionof informationreceivedfromaninternet breastcancerlist: contentanalysis. BMJ 2006 332(7547):939-42.
Only3% US citizenscan statethattheyorsomebodyknownhavesuffereda problemderivedfromcontentormedical advicefoundonInternet. Thisrateisstablesince2006.
•SusannahFox, SidneyJones. TheSocial Lifeof HealthInformation. PewResearchCenter’sInternet & American LifeProject. URL:http://www.pewinternet.org/Reports/2009/8-The-Social-Life-of-Health- Information.aspx.
The excess of information in Internet does not diminish confidence in the physician, but it is even increased.
•Hesse B, MoserR, RuttenL. Surveysof Physiciansand ElectronicHealthInformation. NEJM 2010 Mar 4;362(9):859-60.

18. 77% doctors interviewed said that the consultation is of better quality when the patient has been previously informed through Internet. Despite an obvious bias (online survey), many physicians are happy with the patient empowerment.
•Analysisof 9th HON Surveyof Healthand MedicalInternet Users. HealthOnTheNet Foundation. URL: http://www.hon.ch/Survey/Survey2005/res.html.
83% doctors trust more than what is documented in the network that their past experiences.
•ConnectingwithPhysiciansOnline: SearchingforAnswers. Hall & Partners, Nov 2009. Citedand accesible Pamela Lewis Dolan. 86% Of PhysiciansUse Internet ToAccess HealthInformation. American Medical News. URL:http://www.ama- assn.org/amednews/2010/01/04/bisc0104.htm.

19. Key factorsforinnovation
Makethehealthiesttheeasiestoption
Be known–broadcastthemessage
Customisethemessage
Includegamificationtechniques

20. Citizen’s behaviour and the health impact
Health status determinants
Health system (10%)
Environment
(5%)
Behavioral
(40%)
Social
(15%)
Genetic (30%)
McGinnis et al., Health Affairs 21(2), 2002
Makethehealthiesttheeasiestoption

21. Whotakescareof ourInternet searches?
Whomakesuseasy?
YouTube–321.000 videos
Google -93.000.000 Links
82.000 apps (iTunes, Google Play)
ARTHRITIS
Makethehealthiesttheeasiestoption

22. Wholikeshurling?
NOBODY likesunknownissues
Be known–broadcastthemessage

23. Communicationstrategy
Why?
Forwhat?
Howdo wemeasure?
It’snotjusta matterof buyingTwitter orFB followers
Be known–broadcastthemessage

26. Customisethemessage

27. Juegos serios vs Ludificación
GAMIFICATIONis the use of game thinking and game mechanics in non-game contexts to engage users in solving problems and increase users' self contributions.Gamification has been studied and applied in several domains, with some of the main purposes being to engage, teach, entertain, measure, and to improve the perceived ease of use of information systems
Includegamificationtechniques
Through gamification desired behaviors are encouraged, using psychological predisposition of humans to play games.

28. •Badges
•Scores
•Comparisonamongpeers, ratings
•Levels
•Feedback
Gametechniques
Includegamificationtechniques

29. Gamificacion
•Readwebpages
•Followa diet
•Do physicalexercise
•Takedrugs
Helpforboringtasks
•Learnin a new context
•Increaseengagement
•Social capital (identityand status)
Extra motivation
Includegamificationtechniques

30. Includegamificationtechniques
Seriousgamesvs gamification

31. Foto libro

32. Innovation
Patient– Healthcareprovider
PatientOpinion

33. Innovation
Patient– Healthcareprovider
PatientOpinion

34. Innovation
Citizen– Friends
Stickk

35. Innovation
Citizen– Friends
Stickk

36. Innovation
Citizen– Society
TheALS Ice bucketchallenge
ALS Ice Bucket Challenge, is an activity involving dumping a bucket of ice water on someone's head to promote awareness of the disease amyotrophic lateral sclerosis (ALS) and encourage donations to research

37. Innovation
Citizen– Society
TheALS Ice bucketchallenge
ALS Ice Bucket Challenge, is an activity involving dumping a bucket of ice water on someone's head to promote awareness of the disease amyotrophic lateral sclerosis (ALS) and encourage donations to research
TheALS association informed the donations number -“as of monday25 of august 2014,$79.7 million in donations compared to $2.5 million during the same time period last year (July 29 to August 25).” This is a +3,000% rise

38. Innovation
Citizen– Society
TheALS Ice bucketchallenge
ALS Ice Bucket Challenge, is an activity involving dumping a bucket of ice water on someone's head to promote awareness of the disease amyotrophic lateral sclerosis (ALS) and encourage donations to research
TheALS association informed the donations number -“as of monday25 of august 2014,$79.7 million in donations compared to $2.5 million during the same time period last year (July 29 to August 25).” This is a +3,000% rise
$2M in 1month

39. Innovation
CDC – Medical staff
H1N1 flu(swineflue)
2009 Contestamongmedical staff to explainswinefluand howto prevent
> 250 relatedvideos producedforfree witha viral effectfor$2.500

40. Innovation
CDC –Young people
Emergencies–Zombieattack
Viral campaignorientedto Young peoplebasedonthe‘TheWalkingDead’
Participantsneedto show in 60’ thattheyknowhowto be preparedforanemergency(zombis, hurricanes, floodings,…)

41. Innovation
Patient– Patients’ community
Blog SixUntilMe
A diabeticbloggersexplainshowto hidetheinsulinpumpin theweddingdress

42. Innovation
PublicHealth–Citizens
Tweets aboutEbolain theaffectedarea
BMJ 2014; 349 doi: http://dx.doi.org/10.1136/bmj.g5975 (Published 02 October 2014)

43. Innovation
PublicHealth–Citizens
Tweets aboutEbolain theaffectedarea
BMJ 2014; 349 doi: http://dx.doi.org/10.1136/bmj.g5975 (Published 02 October 2014)
Technological advancements do not guarantee that the disseminated information is correct
Only36% includedcorrectmedical information
Major mistakes: wrong information ( Ewedu, blood transfusion, salted water) or not updated information
Erroneoustweets wereretweetedmore thantherightones.

44. Innovation
PublicHealth–Citizens
Tweets aboutEbolain theaffectedarea
BMJ 2014; 349 doi: http://dx.doi.org/10.1136/bmj.g5975 (Published 02 October 2014)
Technological advancements do not guarantee that the disseminated information is correct
Only36% includedcorrectmedical information
Major mistakes: wrong information ( Ewedu, blood transfusion, salted water) or not updated information
Erroneoustweets wereretweetedmore thantherightones.

45. Innovation
Patient– Pharma– HealthMinistry
App- mepedigree
App in Ghana –mpedigreeto checkwitha codewhetherthedrugisvalidora fake

48. And you?
Whichisthemessageyouwantto transmit?

49. Messagesto takehome
Social networks are a means, not an end. They are a very powerful tool but only a tool.
Innovation= invention+ commercialization. Anyinnovationmustproduce a return( notnecessarilyfinancial).
Key factorsfortheinnovationin health: customisation, easeof use, broadcastand gamification.
Why? Forwhat? Needof anstrategyforpresencein social media withclevermetricsforfurtherevaluationand improvement.

50. Usefulmentionedreferences(I)
http://emergency.cdc.gov/socialmedia/zombies_blog.asp CDC Ataque Zombi
http://www.walkonproject.org/blog/ WOP Project
http://www.patientslikeme.com/ PatientsLikeMe
http://www.mpharma.org/mpedigree/index.php mpedigree
http://observatics.com/ OBSERVATICS
https://www.patientopinion.org.uk/ PatientOpinion

51. Usefulmentionedreferences(II)
http://av.conferencearchives.com/pdfs/091105/604.2.pdf CDC -Swineflucampaign
http://www.stickk.com/ Stickk
http://sixuntilme.com/wp/ SixUntilMe
http://www.hsjdbcn.org/ Hospital SantJoan de Dèu
http://www.salupedia.org Salupedia
http://www.slideshare.net/vtraver Thispresentation

52. Vicente Traver vtraver@itaca.upv.es@vtraver
Use of social networksforinnovationin health