SlideShare a Scribd company logo
 
share	
  sensi)ve	
  data	
  with	
  confidence	
  
Latanya	
  Sweeney	
  
latanya@fas.harvard.edu	
  
	
  latanyasweeney.org	
  
Gender, Race
Ethnicity
Micro-ethnicity (sub groups)
Median Household income**
Attended elite boarding school?
Hometown Foreign Country?
Hometown State*
Primary academic major*
Secondary academic major*
Dorm Freshman Year*
Dorm Neighborhood, 4 zones
Network linkages of roommates
On Facebook?
Facebook: Political view
Facebook: Interested In
Facebook: number of friends (school)
Facebook: total number of friends
Facebook: number of Picture Friends
Facebook: Favorite Movies*
Facebook: Favorite Music*
Facebook: Favorite Books*
Facebook: linkages of friends
Jason’s	
  Dataset	
  
Joe’s	
  Dataset	
  
Description
* Date of visit (month, day and year)
Transaction#
Unique patient identifier
* Patient 5-digit ZIP code
* Month, day and Year of Birth
* Gender
Unique Provider ID
Provider 5-digit ZIP code
* ICD9 diagnosis code 1
* ICD9 diagnosis code 2
* ICD9 diagnosis code 3
* ICD9 diagnosis code 4
* ICD9 diagnosis code 5
* ICD9 diagnosis code 6
Francesca’s Combined Data	
  
Chevron	
  Refinery	
  
Liberty/	
  Atchison	
  Villages	
  
Interstate	
  
Levin-­‐Richmond	
  Terminal	
  Corp	
  (marine)	
  
General	
  Chemical	
  Corp	
  Rail	
  yard	
  
Julia’s	
  Interviews	
  
N	
  
l
All	
  these	
  people	
  need	
  to	
  store	
  data	
  	
  
in	
  a	
  manner	
  that	
  respects	
  	
  
legal	
  and	
  ethical	
  commitments.	
  	
  
#1	
  	
  
Readme	
  
Files	
  
#2	
  	
  
Uniform	
  
storage	
  and	
  
handling	
  
How	
  	
  
does	
  a	
  
researcher	
  
comply	
  	
  
with	
  more	
  
than	
  2000	
  
privacy	
  
laws?	
  
Legal	
  Experts	
  Codify	
  
Jurisprudence	
  	
  
into	
  the	
  six	
  levels.	
  
Set	
  of	
  computer	
  rules	
  
for	
  tagging	
  data	
  on	
  
ingesUon	
  
Data	
  with	
  its	
  dataTag	
  
deposit	
  into	
  a	
  dataTags-­‐
compliant	
  repository	
  
Wiki	
  approach	
  
HarmonizaUon	
  
Modeling	
  
Legal	
  Experts	
  Codify	
  
Jurisprudence	
  	
  
into	
  the	
  six	
  levels.	
  
Set	
  of	
  computer	
  rules	
  
for	
  tagging	
  data	
  on	
  
ingesUon	
  
Data	
  with	
  its	
  dataTag	
  
deposit	
  into	
  a	
  dataTags-­‐
compliant	
  repository	
  
Expert	
  System:	
  
decision	
  tree	
  
Expert	
  System:	
  
rule-­‐based	
  
Legal	
  Experts	
  Codify	
  
Jurisprudence	
  	
  
into	
  the	
  six	
  levels.	
  
Set	
  of	
  computer	
  rules	
  
for	
  tagging	
  data	
  on	
  
ingesUon	
  
Data	
  with	
  its	
  dataTag	
  
deposit	
  into	
  a	
  dataTags-­‐
compliant	
  repository	
  
Interview	
  Server	
  
Remote	
  API	
  Q&A	
  
Binary,	
  Remote	
  Exec	
  
Legal	
  Experts	
  Codify	
  
Jurisprudence	
  	
  
into	
  the	
  six	
  levels.	
  
Set	
  of	
  computer	
  rules	
  
for	
  tagging	
  data	
  on	
  
ingesUon	
  
Data	
  with	
  its	
  dataTag	
  
deposit	
  into	
  a	
  dataTags-­‐
compliant	
  repository	
  
Dataverse	
  
iRods	
  
Legal	
  Experts	
  Codify	
  
Jurisprudence	
  	
  
into	
  the	
  six	
  levels.	
  
Set	
  of	
  computer	
  rules	
  
for	
  tagging	
  data	
  on	
  
ingesUon	
  
Data	
  with	
  its	
  dataTag	
  
deposit	
  into	
  a	
  dataTags-­‐
compliant	
  repository	
  
Interview	
  
datatags.org	
  
DataTags: Sharing Privacy Sensitive Data by Latanya Sweeney

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DataTags: Sharing Privacy Sensitive Data by Latanya Sweeney

  • 1.   share  sensi)ve  data  with  confidence   Latanya  Sweeney   latanya@fas.harvard.edu    latanyasweeney.org  
  • 2. Gender, Race Ethnicity Micro-ethnicity (sub groups) Median Household income** Attended elite boarding school? Hometown Foreign Country? Hometown State* Primary academic major* Secondary academic major* Dorm Freshman Year* Dorm Neighborhood, 4 zones Network linkages of roommates On Facebook? Facebook: Political view Facebook: Interested In Facebook: number of friends (school) Facebook: total number of friends Facebook: number of Picture Friends Facebook: Favorite Movies* Facebook: Favorite Music* Facebook: Favorite Books* Facebook: linkages of friends Jason’s  Dataset  
  • 3. Joe’s  Dataset   Description * Date of visit (month, day and year) Transaction# Unique patient identifier * Patient 5-digit ZIP code * Month, day and Year of Birth * Gender Unique Provider ID Provider 5-digit ZIP code * ICD9 diagnosis code 1 * ICD9 diagnosis code 2 * ICD9 diagnosis code 3 * ICD9 diagnosis code 4 * ICD9 diagnosis code 5 * ICD9 diagnosis code 6
  • 5. Chevron  Refinery   Liberty/  Atchison  Villages   Interstate   Levin-­‐Richmond  Terminal  Corp  (marine)   General  Chemical  Corp  Rail  yard   Julia’s  Interviews   N   l
  • 6. All  these  people  need  to  store  data     in  a  manner  that  respects     legal  and  ethical  commitments.     #1     Readme   Files   #2     Uniform   storage  and   handling  
  • 7. How     does  a   researcher   comply     with  more   than  2000   privacy   laws?  
  • 8.
  • 9.
  • 10. Legal  Experts  Codify   Jurisprudence     into  the  six  levels.   Set  of  computer  rules   for  tagging  data  on   ingesUon   Data  with  its  dataTag   deposit  into  a  dataTags-­‐ compliant  repository   Wiki  approach   HarmonizaUon   Modeling  
  • 11. Legal  Experts  Codify   Jurisprudence     into  the  six  levels.   Set  of  computer  rules   for  tagging  data  on   ingesUon   Data  with  its  dataTag   deposit  into  a  dataTags-­‐ compliant  repository   Expert  System:   decision  tree   Expert  System:   rule-­‐based  
  • 12. Legal  Experts  Codify   Jurisprudence     into  the  six  levels.   Set  of  computer  rules   for  tagging  data  on   ingesUon   Data  with  its  dataTag   deposit  into  a  dataTags-­‐ compliant  repository   Interview  Server   Remote  API  Q&A   Binary,  Remote  Exec  
  • 13. Legal  Experts  Codify   Jurisprudence     into  the  six  levels.   Set  of  computer  rules   for  tagging  data  on   ingesUon   Data  with  its  dataTag   deposit  into  a  dataTags-­‐ compliant  repository   Dataverse   iRods  
  • 14. Legal  Experts  Codify   Jurisprudence     into  the  six  levels.   Set  of  computer  rules   for  tagging  data  on   ingesUon   Data  with  its  dataTag   deposit  into  a  dataTags-­‐ compliant  repository   Interview   datatags.org