Jo Fitzpatrick from the Women's Health Action Trust discusses consumer privacy issues related to health information in cyberspace. She notes that 78% of people in a 2006 survey were concerned about the confidentiality of their medical records online. Fitzpatrick highlights examples from the past where women's health information was accessed or disclosed without consent. She expresses concerns that consumers have large knowledge gaps around how their data is collected, shared, and used. Fitzpatrick calls for more consumer representation and involvement in health information forums to help address these issues.

1. Sacred Secrets Meet Cyberspace Privacy Issues for Consumers Jo Fitzpatrick Women’s Health Action Trust HINZ Conference: February 2008

2. Sacred Secrets Meet Cyberspace Is this a straw woman? 2006 Privacy Commission survey 78% concerned about confidentiality of medical records Second only to security of personal records on the internet

31. WHY 3? Because the knowledge gap between us is at least as wide as the Cartwright gap was 20 years ago with the potential to do as much damage. Jo Fitzpatrick, 2008

33. Thank you It’s great to be here Jo Fitzpatrick Women’s Health Action Trust HINZ Conference: February 2008