This document discusses the role of patient stories and art in healthcare. It notes that patient stories provide a fuller picture than just core measures and surveys. When patients and families are invited to participate and share their perspectives, it can change conversations and lead to better outcomes. The document encourages using art to redefine expectations and build bridges for better communication between all stakeholders in healthcare.

1. The Patient Story
is sometimes
dark and sometimes light.
But both are needed for a masterpiece.
These paints are same color
They are defined by their tone.
They provide a scale of Value.

2. This is another scale of value.
“During this hospital stay, how often was your pain well controlled?”

3. Measurement cannot exist unless access is open and transparent, and this transparency
must continue unto the end. In order to provide necessary data for evidence based medicine
we must reinstate a statistically significant autopsy rate.
In the United States; hospital autopsy rates of 60% in the 1950s fell to 12% in the early
1990s and less than 5% in nonteaching hospitals.*
Private autopsy services begin at $2,000.00 and are far out of reach of many consumers.
In addition, studies find that there is disagreement between pre and post-mortem diagnoses in almost 30% of cases.
“Truth is truth to the end of reckoning.”

4. Patient stories are more than core measures,
surveys and bar charts.

5. Patients can help

6. Family Caregivers
can help.

7. Fred was a “good” patient. He didn’t make waves. He didn’t complain.

8. Patients can join the
conversation
using their own visuals and
speaking from the foundation
of their own skill-set.

9. When you invite us it changes the conversation
9

10. Everyone wants to be invited to play…

11. If we are not invited to speak with a provider, that doesn’t mean we stop talking.
We just talk to the whole world.

12. The Walking Gallery
Join a Walking Wall of Patient Stories

13. Patients spend much of their
days living in
Negative space.
Instead of being the subject
of attention
We are often the space around
The image of medicine.
The back ground
The prop

14. 14

15. Street Art:
The more stickers that are out there the more important it seems.
The more important it seems, the more people want to know what it is.
The more they ask they ask each other.
It gains real power from perceived power. -Shepard Fairey

16. We can redefine expectations of the role of art in medicine
at every hospital, clinic and conference.

17. Sometimes we need to build bridges for better communication.

18. When we invite Moms and Dads, brothers and sisters to the table,
we will have better outcomes emotionally and physically.

19. When everyone plays. Everyone wins.

20. Are you ready ? Art is what you make of it…
You can choose the role of art in medicine.
Choose wisely.
I hope to see you in the rabbit hole. ~ @ReginaHolliday