This document discusses the power of people in healthcare through sharing stories and experiences. It provides examples of studies that found most patients understood medical notes shared with them and felt greater adherence to medication protocols as a result. The document advocates for using social media, art, and crowd-funding to raise awareness of important healthcare issues and empower patients. It promotes the idea that teamwork and sharing our experiences can help improve healthcare and end-of-life conversations.

1. The Power of People
By Artist and Activist Regina Holliday

2. How this began…

3. Johnny Strikes or
Giant Strides?

4. Which
play center
is open?

5. Playing in a Closed Data Loop

6. Who taught you how
to be a patient?

7. The living child
within us all.

8. Returning to OZ

9. THE
POWER
Of
HEALTH
INFORMATICS

10. Blue Button: More than app for veterans

11. Blue Button and the story of Peter L. Levin

12. “You’re going to need a
bigger binder…”

13. “The cake is a lie.”
Meaningful Use

15. 2 year study at Primary care settings of Beth
Israel Deaconess Medical Center, Geisinger
and Harborview
90% patients responded they understood
what they had read & were not bothered by it.
1-2% were concerned/offended by the
contents of the notes
87% of those patients enrolled in this study
did check the notes.
Doctors said the study either only added a
modest increase in work or that it was
negligible.
80% Patients claimed greater adherence to
medication protocols due to access to the
notes.

16. Painting Advocacy meets
Social Media
Street art is truly the first global art movement fueled by the Internet.
–Marc and Sara Schiller, Wooster Collective,

17. “The aim of art is to represent
not the outward appearance of
things, but their inward
significance.”
~Aristotle

18. Next Steps: Why not paint open access hospital data
sets…

19. …in front of said hospital?

20. Why not paint about the need
for better hygiene practices and
then enter that painting in an
online vote competition?

21. Social media, unconferences and
crowdfunds
can help us FLY

22. Partnership for with Patients
Sometimes “blowing a gasket” leads to the best kind of collabor
disruption. Crowd-funding exists to make the impossible possible….

23. Patient Scholarships
You can crowd fund in healthca

24. Partnership with Patients

25. What would help us talk about end of life?

26. Where are the HOSPICE cards?
There is nothing between “Get Well” and “Sympathy”
Where are the faces of the dying and those that love the

27. #TweetChat
can change
the conversation.
#EOL
#Tedmed
#DWDchat
#hospice

29. #HospiceCards
Become a reality

30. The
Power
Of
Team Work

31. The Walking Gallery

32. The more stickers that are out there the more important it seems.
The more important it seems, the more people want to know what it is.
The more they ask they ask each other.
It gains real power from perceived power. -Shepard
Fairey

34. Our world of health care
seen through a child’s eye

35. PhotobyTedEytan

36. Jerry Matczak
Shares the story
of his brother’s
life and death
upon his back.

37. What happens to user experience when designers like
Michael Graves design wheelchairs?

38. Adverse
Childhood
Experience
Survey
@boltyboy

39. Do you know about Engage with Grace?
Alex Drane created this after losing a family member.

40. The family of Julia Hallisy

41. We can redefine expectations of how we communi
in medicine at every hospital, clinic and conferenc

42. Be the change you wish to se

43. “You are the hero of your own story.”
-Joseph Campbell
“Everyone is Awesome.”
-The Lego Movie

44. You can take a negative and turn
it into a POSITVE.
~ @ReginaHolliday