This document summarizes a presentation on using social media for recruiting hard-to-reach populations like LGBTQ youth for clinical trials and research. It discusses the benefits and disadvantages of social media recruitment, how to target audiences on different platforms, challenges with sampling and data quality, and details of a study that successfully recruited over 1,500 LGBTQ youth through ads on Facebook, Instagram and Snapchat in under a month. It concludes with implications for future research using social media to engage populations that are difficult to reach through traditional methods.
Slides for presentation given at Immigration, Refugees and Citizenship Canada (IRCC) in Ottawa as part of the "Research Matters" series on Sep 25. Joint work with Emilio Zagheni, Kiran Garimella, Joao Palotti and others. See https://ingmarweber.de/publications/ for publications and citation information. The trip to Ottawa is supported in part by ACM's Distinguished Speakers Program (https://speakers.acm.org/speakers/weber_7123).
Kristen Purcell presents the latest Pew Internet findings on participatory and mobile news consumption, and the level of public interest in religious and spiritual news and information. More: pewinternet.org
How today’s changing information ecology, specifically the increasing use of social media and mobile technologies, has altered the way consumers access and interact with news and information. Read more: pewinternet.org
Lisa C. Burns, CFRE and David Tinker, CFRE's presentation on social media policies at nonprofit organizations. Presented at the AFP Greater Houston Chapter on 1/18/13.
Tapping into advertising platforms to monitor ict usage and moreIngmar Weber
Examples for how to use publicly available, aggregate and anonymous data from online advertising platforms to monitor (i) digital gender gaps, (ii) international migration, and (iii) income inequalities. Details at https://ingmarweber.de/publications/. Joint work with Ridhi Kashyap, Masoomali Fatehkia, Joao Palotti, Emilio Zagheni and others.
Slides for presentation given at Immigration, Refugees and Citizenship Canada (IRCC) in Ottawa as part of the "Research Matters" series on Sep 25. Joint work with Emilio Zagheni, Kiran Garimella, Joao Palotti and others. See https://ingmarweber.de/publications/ for publications and citation information. The trip to Ottawa is supported in part by ACM's Distinguished Speakers Program (https://speakers.acm.org/speakers/weber_7123).
Kristen Purcell presents the latest Pew Internet findings on participatory and mobile news consumption, and the level of public interest in religious and spiritual news and information. More: pewinternet.org
How today’s changing information ecology, specifically the increasing use of social media and mobile technologies, has altered the way consumers access and interact with news and information. Read more: pewinternet.org
Lisa C. Burns, CFRE and David Tinker, CFRE's presentation on social media policies at nonprofit organizations. Presented at the AFP Greater Houston Chapter on 1/18/13.
Tapping into advertising platforms to monitor ict usage and moreIngmar Weber
Examples for how to use publicly available, aggregate and anonymous data from online advertising platforms to monitor (i) digital gender gaps, (ii) international migration, and (iii) income inequalities. Details at https://ingmarweber.de/publications/. Joint work with Ridhi Kashyap, Masoomali Fatehkia, Joao Palotti, Emilio Zagheni and others.
Lee Rainie, Director, Internet, Science and Technology from the Pew Research Center to delivered a keynote address at WAN-IFRA’s first World Media Policy Forum. Rainie is one of the world’s top academic researchers on the internet and the social changes triggered by information and communication technologies (ICT.) He talked about what research is showing us about privacy strategies and statistics.
Social Media and the U.S. Election: IntroductionJanelle Ward
slides from October 22, 2012, the introductory session of the course Social Media and the U.S. Election. The course is taught by Janelle Ward and hosted by the John Adams Institute in Amsterdam, the Netherlands.
Monitoring migration using social media data an introductionIngmar Weber
Webinar hosted by Georgetown Global Human Development Program. Recording of the session is available at https://georgetown.zoom.us/rec/play/vMElIrir-mg3HYWWtwSDVP4rW461Jqis2iAZ8qUEyErnBiQGNFqlb7tEM-ofDv5GgHLYljjfYoBR0852?continueMode=true&_x_zm_rtaid=8UtYz48MSICS36P_gsSTDg.1588250263912.a1e6098b19d99104d94a3a1063c22f70&_x_zm_rhtaid=503
Original eventbrite at https://www.eventbrite.com/e/monitoring-migration-using-social-media-data-an-introduction-tickets-102687830064
These slides provide the basic talking points for a series of talks I did in Paris, Rome and Berlin from the 11th through the 13th of July 2017. The talk was based on the Quello Center project on 'The Part Played by Search in Shaping Public Opinion', which was supported by a grant from Google.
STUDENTS ARE SPEAKING UP ABOUT SPEAKING OUT.
Today’s high schoolers are more supportive of First Amendment rights than at any time during the past decade, while adults are more likely to say the First Amendment
“goes too far.”
Surveyed students overwhelmingly wanted freedom from government
surveillance and tracking by business, although they were less
certain when terrorism was evoked.
Digital & Social Media: 3-step action plan for clinical trials volunteer recr...Aimee Edgeworth
This presentation provides guidance on using social media for volunteer recruitment to research studies, including a case example from ResearchMatch. Presented in the Clinical Research Center of Vanderbilt University Medical Center for continued education credit and shared on the CTSA's Trial Innovation Network Recruitment Toolkit.
Digital Trace Data for Demographic ResearchIngmar Weber
Lecture given as part of the BIGSSS 2019 summer school on migration (https://bigsss-css.jacobs-university.de/migration2019/migration/). See https://ingmarweber.de/publications/ for related publications. Mostly joint work with Emilio Zagheni.
Using Social Media to Support Youth Healthy Sexual BehaviorYTH
Erin Wright of the mHealth Impact Laboratory at the Colorado School of Public Health, provides an overview of Just/Us, a study to analyze the impact of social networking sites to effectively support healthy sexual behavior for young people. Presented at YTH Live 2014 session "Social Media for Sexual Health Outreach."
Venton Jones, from the National Black Gay Men's Advocacy Coalition and Meico Whitlock, from National Alliance of State and Territorial AIDS Directors (NASTAD) review findings of a survey of black gay men who have sex with men about their social media use. Suggestions are made to engage this audience for HIV prevention using social and mobile media. Presented at YTH Live 2013.
Lee Rainie, Director, Internet, Science and Technology from the Pew Research Center to delivered a keynote address at WAN-IFRA’s first World Media Policy Forum. Rainie is one of the world’s top academic researchers on the internet and the social changes triggered by information and communication technologies (ICT.) He talked about what research is showing us about privacy strategies and statistics.
Social Media and the U.S. Election: IntroductionJanelle Ward
slides from October 22, 2012, the introductory session of the course Social Media and the U.S. Election. The course is taught by Janelle Ward and hosted by the John Adams Institute in Amsterdam, the Netherlands.
Monitoring migration using social media data an introductionIngmar Weber
Webinar hosted by Georgetown Global Human Development Program. Recording of the session is available at https://georgetown.zoom.us/rec/play/vMElIrir-mg3HYWWtwSDVP4rW461Jqis2iAZ8qUEyErnBiQGNFqlb7tEM-ofDv5GgHLYljjfYoBR0852?continueMode=true&_x_zm_rtaid=8UtYz48MSICS36P_gsSTDg.1588250263912.a1e6098b19d99104d94a3a1063c22f70&_x_zm_rhtaid=503
Original eventbrite at https://www.eventbrite.com/e/monitoring-migration-using-social-media-data-an-introduction-tickets-102687830064
These slides provide the basic talking points for a series of talks I did in Paris, Rome and Berlin from the 11th through the 13th of July 2017. The talk was based on the Quello Center project on 'The Part Played by Search in Shaping Public Opinion', which was supported by a grant from Google.
STUDENTS ARE SPEAKING UP ABOUT SPEAKING OUT.
Today’s high schoolers are more supportive of First Amendment rights than at any time during the past decade, while adults are more likely to say the First Amendment
“goes too far.”
Surveyed students overwhelmingly wanted freedom from government
surveillance and tracking by business, although they were less
certain when terrorism was evoked.
Digital & Social Media: 3-step action plan for clinical trials volunteer recr...Aimee Edgeworth
This presentation provides guidance on using social media for volunteer recruitment to research studies, including a case example from ResearchMatch. Presented in the Clinical Research Center of Vanderbilt University Medical Center for continued education credit and shared on the CTSA's Trial Innovation Network Recruitment Toolkit.
Digital Trace Data for Demographic ResearchIngmar Weber
Lecture given as part of the BIGSSS 2019 summer school on migration (https://bigsss-css.jacobs-university.de/migration2019/migration/). See https://ingmarweber.de/publications/ for related publications. Mostly joint work with Emilio Zagheni.
Using Social Media to Support Youth Healthy Sexual BehaviorYTH
Erin Wright of the mHealth Impact Laboratory at the Colorado School of Public Health, provides an overview of Just/Us, a study to analyze the impact of social networking sites to effectively support healthy sexual behavior for young people. Presented at YTH Live 2014 session "Social Media for Sexual Health Outreach."
Venton Jones, from the National Black Gay Men's Advocacy Coalition and Meico Whitlock, from National Alliance of State and Territorial AIDS Directors (NASTAD) review findings of a survey of black gay men who have sex with men about their social media use. Suggestions are made to engage this audience for HIV prevention using social and mobile media. Presented at YTH Live 2013.
Social Norm Marketing Campaign for CSUMeghan Brown
Attached is a presentation summarizing my social norms marketing (SNM) campaign for Colorado State University (CSU), regarding condom usage. The presentation highlights my campaign planning skills by highlighting various aspects of a SNM campaign. The presentation uses known strategies to help increase audience engagement, and change perceptions regarding the usage of condoms, in order to help increase safer sexual practices amongst CSU students.
2015 NAFA Session: Millennials/Generation Z and Social MediaAshley Houston
Millennials and Generation Z students are no longer using the same social media channels they were using even just two years ago. They have moved on to other platforms, like Instagram, Snapchat, and WhatsApp, and in China and other parts of the world - WeChat. This presentation provides an overview of the latest trends in social media use among these students and how to engage with them on these new platforms.
Speaking their Language. Sampling and Recruitment Strategies and Consideratio...JSI
This poster will be presented by Fonda Ripley at the American Evaluation Association Conference on October 31, 2018.
Engaging specific, hard to reach populations in evaluation can be challenging. JSI conducted an evaluation of a teen peer crowd segmented social marketing campaign implemented by the Vermont Tobacco Control Program to assess impact on tobacco use among country teens in Vermont.
Presentation delivered at the Canadian Evaluation Society Conference in Toronto in June 2013. The results and process behind the development evaluation and outcome evaluation with the Break It Off social media campaign for youth smoking cessation were discussed.
Social Marketing and Youth through a Community Collaborative ProjectYTH
Not every agency or coalition is equipped to work with young people, especially when it comes to developing a social media or social marketing campaign with limited resources and high expectations. Where should you begin when the objective is teen pregnancy prevention but promoting sexual and reproductive health in general feels more right? With a room full of community stakeholders, adult allies must ensure that youth leadership and young people's needs don't get overlooked. Here are examples from communities in Hollywood, Orangeburg, and Salem piloting similar projects and how their lessons learned are transforming into a model for future programs.
Why aren't Evaluators using Digital Media Analytics?CesToronto
Whether it’s through blogs, tweets, or even the comments section of an online newspaper, the world is increasingly talking online. However, the potential uses for the massive amounts of information available on the internet remain largely untapped in the sphere of evaluation.
This presentation will explore innovative methods to extract these insights from the large and complex collections of digital data publicly available online. In particular, we will examine the unprecedented uses, and potential limitations, of digital media analytics to:
• Measure the outcomes of public outreach, advocacy, communications, and information sharing programs;
• Establish current and retroactive baselines;
• Conduct “borderless” data collection to gain insights from other countries, as well as disapora communities in Canada;
• Identify unknown stakeholder groups and create detailed stakeholder maps; and,
• Provide context and insight to inform further data collection.
Similar to Recruitment for Hard-to-Reach Populations: LGBTQ Youth (E. Fordyce) (20)
micro teaching on communication m.sc nursing.pdfAnurag Sharma
Microteaching is a unique model of practice teaching. It is a viable instrument for the. desired change in the teaching behavior or the behavior potential which, in specified types of real. classroom situations, tends to facilitate the achievement of specified types of objectives.
Couples presenting to the infertility clinic- Do they really have infertility...Sujoy Dasgupta
Dr Sujoy Dasgupta presented the study on "Couples presenting to the infertility clinic- Do they really have infertility? – The unexplored stories of non-consummation" in the 13th Congress of the Asia Pacific Initiative on Reproduction (ASPIRE 2024) at Manila on 24 May, 2024.
These simplified slides by Dr. Sidra Arshad present an overview of the non-respiratory functions of the respiratory tract.
Learning objectives:
1. Enlist the non-respiratory functions of the respiratory tract
2. Briefly explain how these functions are carried out
3. Discuss the significance of dead space
4. Differentiate between minute ventilation and alveolar ventilation
5. Describe the cough and sneeze reflexes
Study Resources:
1. Chapter 39, Guyton and Hall Textbook of Medical Physiology, 14th edition
2. Chapter 34, Ganong’s Review of Medical Physiology, 26th edition
3. Chapter 17, Human Physiology by Lauralee Sherwood, 9th edition
4. Non-respiratory functions of the lungs https://academic.oup.com/bjaed/article/13/3/98/278874
Title: Sense of Taste
Presenter: Dr. Faiza, Assistant Professor of Physiology
Qualifications:
MBBS (Best Graduate, AIMC Lahore)
FCPS Physiology
ICMT, CHPE, DHPE (STMU)
MPH (GC University, Faisalabad)
MBA (Virtual University of Pakistan)
Learning Objectives:
Describe the structure and function of taste buds.
Describe the relationship between the taste threshold and taste index of common substances.
Explain the chemical basis and signal transduction of taste perception for each type of primary taste sensation.
Recognize different abnormalities of taste perception and their causes.
Key Topics:
Significance of Taste Sensation:
Differentiation between pleasant and harmful food
Influence on behavior
Selection of food based on metabolic needs
Receptors of Taste:
Taste buds on the tongue
Influence of sense of smell, texture of food, and pain stimulation (e.g., by pepper)
Primary and Secondary Taste Sensations:
Primary taste sensations: Sweet, Sour, Salty, Bitter, Umami
Chemical basis and signal transduction mechanisms for each taste
Taste Threshold and Index:
Taste threshold values for Sweet (sucrose), Salty (NaCl), Sour (HCl), and Bitter (Quinine)
Taste index relationship: Inversely proportional to taste threshold
Taste Blindness:
Inability to taste certain substances, particularly thiourea compounds
Example: Phenylthiocarbamide
Structure and Function of Taste Buds:
Composition: Epithelial cells, Sustentacular/Supporting cells, Taste cells, Basal cells
Features: Taste pores, Taste hairs/microvilli, and Taste nerve fibers
Location of Taste Buds:
Found in papillae of the tongue (Fungiform, Circumvallate, Foliate)
Also present on the palate, tonsillar pillars, epiglottis, and proximal esophagus
Mechanism of Taste Stimulation:
Interaction of taste substances with receptors on microvilli
Signal transduction pathways for Umami, Sweet, Bitter, Sour, and Salty tastes
Taste Sensitivity and Adaptation:
Decrease in sensitivity with age
Rapid adaptation of taste sensation
Role of Saliva in Taste:
Dissolution of tastants to reach receptors
Washing away the stimulus
Taste Preferences and Aversions:
Mechanisms behind taste preference and aversion
Influence of receptors and neural pathways
Impact of Sensory Nerve Damage:
Degeneration of taste buds if the sensory nerve fiber is cut
Abnormalities of Taste Detection:
Conditions: Ageusia, Hypogeusia, Dysgeusia (parageusia)
Causes: Nerve damage, neurological disorders, infections, poor oral hygiene, adverse drug effects, deficiencies, aging, tobacco use, altered neurotransmitter levels
Neurotransmitters and Taste Threshold:
Effects of serotonin (5-HT) and norepinephrine (NE) on taste sensitivity
Supertasters:
25% of the population with heightened sensitivity to taste, especially bitterness
Increased number of fungiform papillae
MANAGEMENT OF ATRIOVENTRICULAR CONDUCTION BLOCK.pdfJim Jacob Roy
Cardiac conduction defects can occur due to various causes.
Atrioventricular conduction blocks ( AV blocks ) are classified into 3 types.
This document describes the acute management of AV block.
New Directions in Targeted Therapeutic Approaches for Older Adults With Mantl...i3 Health
i3 Health is pleased to make the speaker slides from this activity available for use as a non-accredited self-study or teaching resource.
This slide deck presented by Dr. Kami Maddocks, Professor-Clinical in the Division of Hematology and
Associate Division Director for Ambulatory Operations
The Ohio State University Comprehensive Cancer Center, will provide insight into new directions in targeted therapeutic approaches for older adults with mantle cell lymphoma.
STATEMENT OF NEED
Mantle cell lymphoma (MCL) is a rare, aggressive B-cell non-Hodgkin lymphoma (NHL) accounting for 5% to 7% of all lymphomas. Its prognosis ranges from indolent disease that does not require treatment for years to very aggressive disease, which is associated with poor survival (Silkenstedt et al, 2021). Typically, MCL is diagnosed at advanced stage and in older patients who cannot tolerate intensive therapy (NCCN, 2022). Although recent advances have slightly increased remission rates, recurrence and relapse remain very common, leading to a median overall survival between 3 and 6 years (LLS, 2021). Though there are several effective options, progress is still needed towards establishing an accepted frontline approach for MCL (Castellino et al, 2022). Treatment selection and management of MCL are complicated by the heterogeneity of prognosis, advanced age and comorbidities of patients, and lack of an established standard approach for treatment, making it vital that clinicians be familiar with the latest research and advances in this area. In this activity chaired by Michael Wang, MD, Professor in the Department of Lymphoma & Myeloma at MD Anderson Cancer Center, expert faculty will discuss prognostic factors informing treatment, the promising results of recent trials in new therapeutic approaches, and the implications of treatment resistance in therapeutic selection for MCL.
Target Audience
Hematology/oncology fellows, attending faculty, and other health care professionals involved in the treatment of patients with mantle cell lymphoma (MCL).
Learning Objectives
1.) Identify clinical and biological prognostic factors that can guide treatment decision making for older adults with MCL
2.) Evaluate emerging data on targeted therapeutic approaches for treatment-naive and relapsed/refractory MCL and their applicability to older adults
3.) Assess mechanisms of resistance to targeted therapies for MCL and their implications for treatment selection
Anti ulcer drugs and their Advance pharmacology ||
Anti-ulcer drugs are medications used to prevent and treat ulcers in the stomach and upper part of the small intestine (duodenal ulcers). These ulcers are often caused by an imbalance between stomach acid and the mucosal lining, which protects the stomach lining.
||Scope: Overview of various classes of anti-ulcer drugs, their mechanisms of action, indications, side effects, and clinical considerations.
Recruitment for Hard-to-Reach Populations: LGBTQ Youth (E. Fordyce)
1. At the Crossroads of Social Media and Clinical Trials: A Workshop
on the Future of Clinician, Patient and Community Engagement
June 8, 2018
Erin Fordyce, MS, MEd
*The findings and conclusions in this presentation are those of
the authors and do not necessarily represent the official position
of the Centers for Disease Control and Prevention.
Social Media Recruitment for Hard-to-Reach
Populations:
Surveying LGBTQ Youth
2. • Benefits and Disadvantages of Social Media Recruitment
• Know Your Audience
• Sampling and Data Quality
• Recruiting LGBTQ Youth
• Implications for Future Research
• Upcoming Work
2
Overview
3. 3
Benefits and Disadvantages
Benefits Declining response rates in other modes
Advancing Technology
Faster Data Collection
Less Expensive
Hard-to-Reach Populations (conflicting findings)
Decreased respondent burden
Disadvantages Potential Bias
Mode Effects
Data Quality
Site Popularity Changes
6. • Nonprobability sampling
• Population not given equal chance to participate
• Little progress in attempts to show how data collected through the use of
social media sites can represent the general population (Murphy et al
2014).
• Coverage error
– Multiple accounts on the same platform,
– Shared accounts
– Accounts can represent companies or products instead of individuals
(Murphy et al 2014, Nexgate 2013).
• Active sampling
• Using social media sites and search engines to collect sample, collect
survey responses, or both.
6
Sampling and Data Quality
7. • Measuring data quality with paradata
• Completion time
• Breakoffs
• Nonsubstantive answers
• Rounding/heaping
• Mobile device
• Incentives
7
Sampling and Data Quality
8. 8
Recruiting LGBTQ Youth
• Sponsor: CDC Division of Adolescent and School
Health
• Purpose: Learn about knowledge, attitudes, and
behaviors related to HIV prevention. Develop effective
methods for recruiting hard-to-reach populations.
• Target Population: Males living in the U.S. ages 13-18 who are attracted to males and
transgender individuals ages 13-24. Oversampling Black/African American and Hispanic.
• OMB/IRB: Approved by OMB as formative research and NORC’s IRB
• Pre-Testing: Cognitive interviews (completed) and Pilot (completed)
• Current Step: National survey (finishing data collection)
• Next Steps: Tool development
9. Footer Information Here 9
Ad Development
• Video and static ads created for social media recruitment
• Ads designed to target one of three groups – msm, trans, general teen
population
• Ads designed to also target Black/African American and Hispanic teens
• Experimented with eligibility language
• Developed by NORC staff and Youth Community Advisory Board (YCAB)
• YCAB organized by Fenway Institute (Boston, MA)
• 13 YCAB members (ages 15-19), with diverse sexual orientations,
gender identities, and racial/ethnic identities
• Final ads presented to cognitive interview respondents
10. Footer Information Here 10
Ad Targeting – Facebook/Instagram
• AMSM
• U.S.
• 13-18 years old
• Males
• Interested in men or unspecified
• Transgender
• U.S.
• 13-24 years old
• All genders
• Additional interests: Adam
Bouska, Laverne Cox, National
Center for Transgender Equality,
RuPaul’s Drag Race, The Trevor
Project, transgenderism
• General Population
• U.S.
• 13-24 years old
• All genders
11. Footer Information Here 11
Ad Targeting - Snapchat
• U.S.
• 13-24 years old
• All genders
• Likes (any of the following):
• Zendaya
• Bryan Yambao
• Ellen DeGeneres
• Lady Gaga
• Laverne Cox
• Kylie Jenner
• Tyler Oakley
• Interests:
– adventure seekers, beauty mavens
music fans, fashion and style gurus, high
schoolers, film and TV fans, fitness enthusiasts
12. Footer Information Here 12
Ad Targeting - Google
U.S.
13-24 year olds
Keywords
Gay, teens, trans, gay men,
gay boys, trans people, gender identity, msm, HIV, LGBT, act
up, sexual identity, pflag, transgender, ILGA, GLAAD, pride
parade, GLSEN, Human Rights Campaign, Being trans
(Phase 2 only) Gender non-binary, gender queer, STI, STD,
AIDS, PrEP, nPEP, Truvada, condom, prevention, testing, youth,
adolescent, teen, bullying, pride, queer, gay pride, gay-straight,
non-binary, pansexual, bisexual, questioning, VD, rainbow flag
13. Footer Information Here 13
START Methodology
Phase 1
• Launched 5pm on Friday, January 19, 2018
• Closed 12pm on Saturday, January 20, 2018
• Ads open approximately 19 hours
• Ads posted on Facebook, Instagram, Snapchat, and Google AdWords
Phase 2
• Launched 9:30am on Friday, February 16, 2018
• Closed 1pm on Friday, February 16, 2018
• Ads open approximately 3 1/2 hours
• Ads posted on Facebook, Instagram, and Google AdWords
Phase 3
• Launched 2pm on Monday, March 19, 2018
• Closed 9am on Monday, March 26, 2018
• Ads open one week
• Ads posted on Facebook, Instagram, and Snapchat
Pilot
20. Footer Information Here 20
Results
934
(62%)
570
(38%)
0
100
200
300
400
500
600
700
800
900
1000
MSM Trans
Completes by Targeted Group
21. Footer Information Here 21
Results
12%
8% 3% 46%
68%
74%
75%
41%
20%
18%
22%
13%
0
100
200
300
400
500
600
Black/African
American
Latino/a 13-14 years old Born male trans
Completes by Groups of Interest
Snapchat
Instagram
Facebook
22. 22
Implications for Future Research
• Ads on Facebook, Instagram, and Snapchat proved to be effective for
recruiting young MSM and trans respondents
• Data collected quickly and cost was relatively low
• Recommend using a diverse ad set
• Google was not productive
• Data quality is still a concern
• Respondents clicking through for gift code
• Using fake email accounts to retrieve additional codes
• Completing on separate devices
• Coverage issues
• Ad sharing
• Facebook Data Breach
• News published after Phase 3 of data collection
• Possible slowed approval process for ad postings
23. • Study: Using Social Media for
Recruitment in Cancer Prevention
(SMFR)
• Sponsor: CDC, Division of Cancer
Prevention and Control
• Purpose: Assess the feasibility of
conducting survey-based cancer prevention and
control research using social media platforms for study recruitment.
• Target Population: Adult cancer survivors, those at high risk for cancer, and
general population living in the U.S.
• Methods: Ads to be posted to Facebook and Twitter
23
Upcoming Work
24. • Antoun, C., Zhang, C., Conrad, F.G. & Schober, M.F. (2013) Comparisons of Online
Recruitment Strategies: Craigslist, Google Ads and Amazon’s Mechanical Turk. Presented at
the Annual Conference of the American Association of Public Opinion Research. Boston,
MA.
• Bilgen, I., Fontes, A., Horton, R., and Ventura, I. 2015. Recruitment of Targeted Populations
via Social Media: Examination of Nonprobability Based Sampling Approaches. Presented at
2016 American Association for Public Opinion Research Conference, Austin.
• Duggan, M., & Brenner, J. 2013. The demographics of social media users—2012. Pew
Research Center. Retrieved from
http://www.pewinternet.org/files/oldmedia//Files/Reports/2013/PIP_SocialMediaUsers.pdf
• Duggan, M., & Smith, A. 2013. Social media update 2013. Pew Research Center. Retrieved
from http://pewinternet.org/Reports/2013/Social-Media-Update.aspx
• Greenwood, S., Perrin, A., and Duggan, M. 2016. Social Media Update 2016. Pew Research
Center. http://www.pewinternet.org/2016/11/11/social-media-update-2016/
• Lenhart, Amanda. "Teens, Social Media & Technology Overview 2015." Pew Research
Center Internet Science Tech RSS. Pew Research Center, 08 Apr. 2015. Web. 29 Feb. 2016.
• Morales, L. 2011. Google and Facebook users skew young, affluent, and educated. The
Gallup Organization. Retrieved from http://www.gallup.com/poll/146159/facebook-google-
users-skew-young-affluenteducated.aspx
24
References
25. • Murphy, J., Link, M., Childs, J., Tesfaye, C., Dean, E., Stern, M., & Schober, M. F.
(2014). Social media in public opinion research: Report of the AAPOR task force on
emerging technologies in public opinion research.[American Association for Public
Opinion Research].
• Nexgate. (2013). 2013 State of Social Media Spam. http://nexgate.com/wp-
content/uploads/2013/09/Nexgate-2013-State-of-Social-Media-Spam-Research-
Report.pdf
• Perrin, A. 2015. Social Media Site Usage: 2005- 2015. Pew Research Center.
http://www.pewinternet.org/2015/10/08/social-networking-usage-2005-2015/
• Randall Craig. 2013 How Many Social Media Sites Will Survive? Huffington Post.
Published May 21, 2013 http://www.huffingtonpost.ca/randall-craig/social-media-
sites_b_2925234.html
• Stern, Michael J., et al. Effective sampling from social media sites and search engines
for web surveys: Demographic and data quality differences in surveys of Google and
Facebook users. Social Science Computer Review (2016): 0894439316683344.
• Stern, Wolter, and Bilgen. 2013. Can We Effectively Sample from Social Media Sites
and Search Engines? Results from Two Sampling Experiments. Presented at American
Association for Public Opinion Research Annual Conference.
Footer Information Here 25
References Cont’d
*Restricted access to buildings and caller id make online recruiting easier.
*Decreased burden if they don’t have to enter a URL from a web letter or write in answers and mail back a hardcopy questionnaire.
Facebook replaced MySpace.
If the combination of data quality, cost efficiency, and timeliness required by a study can best be achieved through the use of social media, then there is reason to consider these methods for research.
Key demographic differences will occur when comparing the gen pop and internet users, with internet users and those targeted by a specific site, and those targeted versus those who respond (Ipek Bilgen and Ilana Ventura).