The document summarizes two case studies of public dialogue conducted by Sciencewise: a dialogue on carbon emissions commissioned by the UK Committee on Climate Change, and a dialogue on mitochondrial replacement techniques commissioned by the UK's Human Fertilisation and Embryology Authority. The carbon emissions dialogue involved 25 members of the public over multiple sessions and informed the Committee's policy advice. The mitochondrial replacement dialogue used multiple methods including surveys and workshops to gather views from over 3,000 participants, and its findings supported new legislation to allow and regulate the techniques. Public dialogue was seen as particularly valuable for these issues given their technical nature and potential controversies.
Comments to IJC on comment Preliminary Recommendations on Microplastics in th...LOWaterkeeper
The International Joint Commission (IJC) invited public comment on its Preliminary Recommendations on Microplastics in the Great Lakes for binational, science, policy, and education solutions to microplastic pollution. The Commission was interested in public comments on the following questions: Are the recommendations sound? Are any important considerations overlooked? Are there relevant examples from your community or business to consider?
Members of the public were invited to provide comments until November 10, 2016.
The Alliance for the Great Lakes, Environmental Defence Canada, EcoSuperior Environmental Programs, Freshwater Future, Freshwater Future Canada, and Lake Ontario Waterkeeper submitted these comments.
Unwrapping the reasons for lack of public discussion around CCS - Presentation by Dr Carly Maynard (University of Edinburgh) at the UKCCSRC's CCS: Issues in governance and ethics workshop in Edinburgh, 23 September 2014
Webinar 5 | Jul-16 | Governance, Decentralization and Energy: Towards a Resea...Smart Villages
Ed Brown
Addressing Energy Governance: Questions of Scale and Scope
This webinar brings together researchers working on energy governance issues from a range of projects funded under two different DFID initiatives. These initiatives are the EPSRC/DFID/DECC funded Understading Sustainable Energy Solutions (USES) programme whose 13 projects are networked under the USES Network (http://www.lcedn.com/uses) and the DFID-funded Gender and Energy research programme which is managed by Energia (http://www.energia.org/research).
Issues that will be covered in the webinar include: the roles of local government and political decentralization in energy governance; the political economy of energy sector dynamics and decision-making processes; Energy sector reform and fossil-fuel subsidization and the role of cities and municipalities in sustainable energy transitions.
Marie-Lène GAAB, ACRO, France, " Citizen involvement in the measurement of r...Nuclear-Transparency-Watch
Marie-Lène GAAB, ACRO, France,
" Citizen involvement in the measurement of radioactivity in the context of Fukushima"
SEMINAR ON PUBLIC INFORMATION IN EP&R:
http://www.nuclear-transparency-watch.eu/activities/nuclear-emergency-preparedness-and-response/seminar-on-public-information-in-epr.html
Comments to IJC on comment Preliminary Recommendations on Microplastics in th...LOWaterkeeper
The International Joint Commission (IJC) invited public comment on its Preliminary Recommendations on Microplastics in the Great Lakes for binational, science, policy, and education solutions to microplastic pollution. The Commission was interested in public comments on the following questions: Are the recommendations sound? Are any important considerations overlooked? Are there relevant examples from your community or business to consider?
Members of the public were invited to provide comments until November 10, 2016.
The Alliance for the Great Lakes, Environmental Defence Canada, EcoSuperior Environmental Programs, Freshwater Future, Freshwater Future Canada, and Lake Ontario Waterkeeper submitted these comments.
Unwrapping the reasons for lack of public discussion around CCS - Presentation by Dr Carly Maynard (University of Edinburgh) at the UKCCSRC's CCS: Issues in governance and ethics workshop in Edinburgh, 23 September 2014
Webinar 5 | Jul-16 | Governance, Decentralization and Energy: Towards a Resea...Smart Villages
Ed Brown
Addressing Energy Governance: Questions of Scale and Scope
This webinar brings together researchers working on energy governance issues from a range of projects funded under two different DFID initiatives. These initiatives are the EPSRC/DFID/DECC funded Understading Sustainable Energy Solutions (USES) programme whose 13 projects are networked under the USES Network (http://www.lcedn.com/uses) and the DFID-funded Gender and Energy research programme which is managed by Energia (http://www.energia.org/research).
Issues that will be covered in the webinar include: the roles of local government and political decentralization in energy governance; the political economy of energy sector dynamics and decision-making processes; Energy sector reform and fossil-fuel subsidization and the role of cities and municipalities in sustainable energy transitions.
Marie-Lène GAAB, ACRO, France, " Citizen involvement in the measurement of r...Nuclear-Transparency-Watch
Marie-Lène GAAB, ACRO, France,
" Citizen involvement in the measurement of radioactivity in the context of Fukushima"
SEMINAR ON PUBLIC INFORMATION IN EP&R:
http://www.nuclear-transparency-watch.eu/activities/nuclear-emergency-preparedness-and-response/seminar-on-public-information-in-epr.html
To Issue Commemorative Stamp Featuring the Contributions of Chemistry in the
United States on the Occasion of the 2011 International Year of Chemistry To Issue Commemorative Stamp Featuring the Contributions of Chemistry in the
United States on the Occasion of the 2011 International Year of Chemistry
Engaging with the Green Climate Fund: Experience from NepalAIDA_Americas
Presentation of Tunga Rai, Nepal Federation of Indigenous Nationalities (NEFIN), during the Session 3 of the GCF Watch international webinar series "Engaging with the GCF in different regions and countries".
Paul Dorfman: "Setting the scene: Radioactive waste management – its percepti...Nuclear-Transparency-Watch
Setting the scene: Radioactive waste management – its perception and acceptance - Presentation made by Paul Dorfman at the EESC Workshop on 7 September 2015.
Laura Merrill & Richard Bridle
Addressing Energy Governance: Questions of Scale and Scope
This webinar brings together researchers working on energy governance issues from a range of projects funded under two different DFID initiatives. These initiatives are the EPSRC/DFID/DECC funded Understading Sustainable Energy Solutions (USES) programme whose 13 projects are networked under the USES Network (http://www.lcedn.com/uses) and the DFID-funded Gender and Energy research programme which is managed by Energia (http://www.energia.org/research).
Issues that will be covered in the webinar include: the roles of local government and political decentralization in energy governance; the political economy of energy sector dynamics and decision-making processes; Energy sector reform and fossil-fuel subsidization and the role of cities and municipalities in sustainable energy transitions.
Slides for the presentation by Aylwin Pillai and Anne-Michelle Slater (University of Aberdeen) at UKCLE's Environmental justice in legal education event
Peta Ashworth, Group Leader of the Science into Society Group at the Australian Commonwealth Scientific and Industrial Research Organisation (CSIRO) presented a Global CCS Institute webinar on public awareness and acceptance of CCS.
Citizen Science as a tool to support land management in the Cairngorms Nation...Muki Haklay
Presentation by Jan Dick from the participatory virtual workshop in June 2020. Part of UKRI project to explore the suitability of citizen science for Long-Term Scoio-Ecological Research (LTSER)
Webinar: An overview and explanation of the creation of the communication res...Global CCS Institute
'What happens when CO2 is stored underground' is a very useful guide for those at the frontline, communicating and educating the public about CO2 and carbon capture and storage (CCS) technology.
The booklet provides simple answers to some of the most frequently asked questions around CCS, all grounded in the experience, and extensive research results, of the IEAGHG Weyburn-Midale CO2 Monitoring and Storage program – an internationally significant research program that operated in Saskatchewan, Canada from 2000-2012.
This webinar provided opportunity to join lead author, Norm Sacuta from the Petroleum Technology Research Centre (PTRC) and Kirsty Anderson from the Global CCS Institute, as they gave an overview of the resource, and discuss the findings from a review process that involved community stakeholder focus groups and a communication expert review panel.
The webinar was designed to be an interactive medium and questions from the audience were actively encouraged.
Science advice to government - Auckland conferencebis_foresight
Presentation by Sir Mark Walport at the Science Advice to Governments conference held in Auckland, 28-29 August 2014.
(This is the final version of the presentation, as it was delivered.)
Planet Under Pressure 2012: State of the Planet Declarationuncsd2012
Scientists issue first “State of the Planet” declaration at the world’s largest gathering of experts on global environmental and social issues in advance of the major UN Summit Rio+20 in June.
To Issue Commemorative Stamp Featuring the Contributions of Chemistry in the
United States on the Occasion of the 2011 International Year of Chemistry To Issue Commemorative Stamp Featuring the Contributions of Chemistry in the
United States on the Occasion of the 2011 International Year of Chemistry
Engaging with the Green Climate Fund: Experience from NepalAIDA_Americas
Presentation of Tunga Rai, Nepal Federation of Indigenous Nationalities (NEFIN), during the Session 3 of the GCF Watch international webinar series "Engaging with the GCF in different regions and countries".
Paul Dorfman: "Setting the scene: Radioactive waste management – its percepti...Nuclear-Transparency-Watch
Setting the scene: Radioactive waste management – its perception and acceptance - Presentation made by Paul Dorfman at the EESC Workshop on 7 September 2015.
Laura Merrill & Richard Bridle
Addressing Energy Governance: Questions of Scale and Scope
This webinar brings together researchers working on energy governance issues from a range of projects funded under two different DFID initiatives. These initiatives are the EPSRC/DFID/DECC funded Understading Sustainable Energy Solutions (USES) programme whose 13 projects are networked under the USES Network (http://www.lcedn.com/uses) and the DFID-funded Gender and Energy research programme which is managed by Energia (http://www.energia.org/research).
Issues that will be covered in the webinar include: the roles of local government and political decentralization in energy governance; the political economy of energy sector dynamics and decision-making processes; Energy sector reform and fossil-fuel subsidization and the role of cities and municipalities in sustainable energy transitions.
Slides for the presentation by Aylwin Pillai and Anne-Michelle Slater (University of Aberdeen) at UKCLE's Environmental justice in legal education event
Peta Ashworth, Group Leader of the Science into Society Group at the Australian Commonwealth Scientific and Industrial Research Organisation (CSIRO) presented a Global CCS Institute webinar on public awareness and acceptance of CCS.
Citizen Science as a tool to support land management in the Cairngorms Nation...Muki Haklay
Presentation by Jan Dick from the participatory virtual workshop in June 2020. Part of UKRI project to explore the suitability of citizen science for Long-Term Scoio-Ecological Research (LTSER)
Webinar: An overview and explanation of the creation of the communication res...Global CCS Institute
'What happens when CO2 is stored underground' is a very useful guide for those at the frontline, communicating and educating the public about CO2 and carbon capture and storage (CCS) technology.
The booklet provides simple answers to some of the most frequently asked questions around CCS, all grounded in the experience, and extensive research results, of the IEAGHG Weyburn-Midale CO2 Monitoring and Storage program – an internationally significant research program that operated in Saskatchewan, Canada from 2000-2012.
This webinar provided opportunity to join lead author, Norm Sacuta from the Petroleum Technology Research Centre (PTRC) and Kirsty Anderson from the Global CCS Institute, as they gave an overview of the resource, and discuss the findings from a review process that involved community stakeholder focus groups and a communication expert review panel.
The webinar was designed to be an interactive medium and questions from the audience were actively encouraged.
Science advice to government - Auckland conferencebis_foresight
Presentation by Sir Mark Walport at the Science Advice to Governments conference held in Auckland, 28-29 August 2014.
(This is the final version of the presentation, as it was delivered.)
Planet Under Pressure 2012: State of the Planet Declarationuncsd2012
Scientists issue first “State of the Planet” declaration at the world’s largest gathering of experts on global environmental and social issues in advance of the major UN Summit Rio+20 in June.
Built for Training - Sustainability Workshop Built for:
Built for Training's Sustainability workshop in Manchester on Thursday 12th May 2011 in partnership with GreenBuild News. For training opportunities at your offices call 01622 623786, email contact@builtfortraining.co.uk or visit www.builtfortraining.co.uk/training.
Deliberating with citizen’s about energy development -‐ Citizens' Juries in Scotland, Jen Roberts - Ethics and Governance of CCS meeting, 7 July 2015, Cambridge
Fred Steward: Innovation policy for sustainability - a new agendaSTEPS Centre
Professor Fred Steward, Policy Studies Institute, University of Westminster.
Presentation to the UK-China Innovation Workshop for Sustainable and Equitable Development, Tsinghua University, 19 March 2010, co-organised by China Institute for Science and Technology Policy (CISTP) at Tsinghua University and the STEPS Centre.
http://anewmanifesto.org/news/china-workshop-presentationschina-workshop-presentations/
This slide deck was designed to initiate a conversation with participants of Vancouver ChangeCamp '09 on how we can use social media tools to engage in adaptive strategies to climate change in British Columbia and Canada.
From "Dietary Strategies for Healthy Aging", EU funded conference held 18 May 2015 at The World Expo 2015 in Milan, Italy from 1 May to 31 October, 2015.
To celebrate its 10th anniversary, Sciencewise held a webinar on the 8th September 2014, 13.00-14 to discuss our latest publication which reviews ten years of thought leadership papers. The aim of the webinar was to draw out key themes, valuable insights and learning from the programme’s 10 years of thought leadership research. These are the slides of our presentation.
This presentation considered the following questions:
How and why do people participate?
How ready and willing are citizens to engage in democracy, and why?
What does this mean for representative, deliberative and participatory democracy?
Discussions of different models of democracy often fail to consider what involvement citizens say they want, and if, how and why they are willing to participate. Any form of democracy is shallow without the active participation of citizens. If democracy is to be deepened, it is important that we understand where citizens are now, including what starts and stops them taking a more active role in democracy.
As citizens have become more disillusioned with their elected representatives, the vast majority have not been calling out to participate in other ways. The Hansard Society’s ninth Audit of Political Engagement found satisfaction with the system of governing to be at its lowest level since the Audit began in 2004, but also found frequency of discussing politics and signing a petition to also be at an all time low, while the proportion of citizens who say they would like to be very involved or fairly involved in national decision making had declined from 42% to 33% since the previous audit.
Involve, NCVO and IVR’s Pathways through Participation research explored people’s experiences and perceptions of participation, how and why they participate and what the barriers are to increased active citizenship. This paper will explore the lessons from this and other research and argue that a combination of representative, participatory and deliberative democracy, underpinned by a number of principles, offer the best way of engaging citizens and deepening democracy.
Involve presentation: making the case for public engagementInvolveFoundation
Involves's presentation for the Science Communication conference with the British Science Association on Making the Business Case for Public Engagement
Presentation by Liz Coll (Consumer Focus) and Tim Hughes (Involve) of research into participation and active citizenship:
'Hands up and hands on', by Consumer Focus and
'Pathways through participation', by NCVO, IVR and Involve.
Mary Reid: "Elected representatives and community engagement"InvolveFoundation
Mary Reid, a former (and undefeated) councillor, mayor and cabinet member in the Royal Borough of Kingston upon Thames discusses elected representatives and community engagement.
Jane Lewis, from Woodward-Lewis and Susan Ritchie, an Involve associate and director of Mutual Gain, give an introduction to Positive Deviance – a problem solving approach within communities based on the observation that through their uncommon (or deviant) behaviour some individuals and groups within communities develop better solutions to problems than others – explain how it works and when to use the approach.
Edward Andersson, Deputy Director of Involve, reflects on where engagement is heading in a time of Localism and Austerity, looks at creative methods of engagement and gives advice on when and how they should be used.
A recording of the presentation can be found here: http://www.youtube.com/watch?v=v2Ej3NbCjes
Many ways to support street children.pptxSERUDS INDIA
By raising awareness, providing support, advocating for change, and offering assistance to children in need, individuals can play a crucial role in improving the lives of street children and helping them realize their full potential
Donate Us
https://serudsindia.org/how-individuals-can-support-street-children-in-india/
#donatefororphan, #donateforhomelesschildren, #childeducation, #ngochildeducation, #donateforeducation, #donationforchildeducation, #sponsorforpoorchild, #sponsororphanage #sponsororphanchild, #donation, #education, #charity, #educationforchild, #seruds, #kurnool, #joyhome
Jennifer Schaus and Associates hosts a complimentary webinar series on The FAR in 2024. Join the webinars on Wednesdays and Fridays at noon, eastern.
Recordings are on YouTube and the company website.
https://www.youtube.com/@jenniferschaus/videos
This session provides a comprehensive overview of the latest updates to the Uniform Administrative Requirements, Cost Principles, and Audit Requirements for Federal Awards (commonly known as the Uniform Guidance) outlined in the 2 CFR 200.
With a focus on the 2024 revisions issued by the Office of Management and Budget (OMB), participants will gain insight into the key changes affecting federal grant recipients. The session will delve into critical regulatory updates, providing attendees with the knowledge and tools necessary to navigate and comply with the evolving landscape of federal grant management.
Learning Objectives:
- Understand the rationale behind the 2024 updates to the Uniform Guidance outlined in 2 CFR 200, and their implications for federal grant recipients.
- Identify the key changes and revisions introduced by the Office of Management and Budget (OMB) in the 2024 edition of 2 CFR 200.
- Gain proficiency in applying the updated regulations to ensure compliance with federal grant requirements and avoid potential audit findings.
- Develop strategies for effectively implementing the new guidelines within the grant management processes of their respective organizations, fostering efficiency and accountability in federal grant administration.
Presentation by Jared Jageler, David Adler, Noelia Duchovny, and Evan Herrnstadt, analysts in CBO’s Microeconomic Studies and Health Analysis Divisions, at the Association of Environmental and Resource Economists Summer Conference.
ZGB - The Role of Generative AI in Government transformation.pdfSaeed Al Dhaheri
This keynote was presented during the the 7th edition of the UAE Hackathon 2024. It highlights the role of AI and Generative AI in addressing government transformation to achieve zero government bureaucracy
4. www.sciencewise-erc.org.uk 4
What proportion of human genetic
material would give a transgenic goat
human rights?
A) It should never have human rights
B) 25%
C) 51%
D) 75%
E) 100%
5. www.sciencewise-erc.org.uk
What is public dialogue?
A process of engagement that brings
together members of the public, policy
makers and experts
• To discuss in depth, and where
possible reach conclusions about a
particular issue.
• To highlight the social, ethical and
practical issues raised by up-coming
policies.
• To make more robust decisions
reflecting (rather than at odds with)
public values.
5
12. www.sciencewise-erc.org.uk
What does it mean in practice?
• Bringing together ‘the whole system in
the room’ – the public, experts and
policy makers
• Independent facilitators
• Clear expectations of the extent of
public influence (informing but not
deciding)
• An informed discussion
• Often meeting more than once,
allowing time for reflection
• Evaluation afterwards
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Impact on policy
• Opens up potential for movement on
controversial areas of policy
• Delivers significant cost savings
• Increases responsiveness and
accountability of policy
• Supports behaviour change
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Case Study – Carbon emissions
The Committee on Climate Change (CCC) is
an independent statutory body under the
Climate Change Act 2008. Under the Act, the
CCC is required to have ‘regard to the
desirability of involving the public in the
exercise of its functions’.
The public dialogue project was set up to
feed into development of the Committee’s
advice to government as part of setting the
Fourth Carbon Budget.
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Carbon emissions - the challenges
The Committee on Climate Change
needed to develop an idea of the
public’s understanding of and views
towards the role of the UK
government in addressing the global
climate change challenge, and of how
different actions could affect the UK in
terms of energy bills, price changes,
economic costs and competitiveness.
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Public Dialogue –
Sciencewise’s Role
Commissioning body: Committee on Climate Change
(CCC)
Duration of process: the dialogue process took place
within a six-week time period in September October
2013, with the public involved over a 4 day period
Total public participants involved: 25
Total stakeholders involved: 8
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Public Dialogue – Aims and
Objectives
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• What is the public understanding of the
risks of climate change?
• What is the UK’s role and responsibility?
• What is the public’s understanding of
and attitudes to impacts of UK action on
energy bills?
• What is the public’s understanding of,
and attitudes towards, the wider
implications of UK action?
• Does the public think the case for UK
action has changed significantly since
the 4th Carbon Budget was legislated in
June 2011?
To help the CCC understand the views of the public
to inform its review of the Government’s 4th Carbon
Budget.
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How did we involve the public? (1)
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The public dialogue took the form of three panel
discussions held in London over a four-day period
in October 2013 with the same 25 members of the
public attending each event.
The first two events were in the evening and the final
event was on a Saturday. Each event lasted between
3 and 3½ hours.
The whole dialogue process, including preparation of
materials, took place within a six-week timescale. The
design for the public dialogue adopted elements of the
Citizen’s Jury model.
22. www.sciencewise-erc.org.uk
How did we involve the public? (2)
22
The dialogue participants formed a panel that
was supported through several stages of work
to enable deep engagement with the issues.
This started by exploring the context of carbon
emission reductions and moved on to making
recommendations to the CCC.
Before the first event, public participants were
provided with four short think pieces to
introduce them to the challenges of the issues
before they considered them in the face-to-
face sessions
23. www.sciencewise-erc.org.uk
Key messages from public dialogue
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Attendees made the following recommendations to
the CCC:
• Greater public debate and engagement on the
sorts of measures the Committee is considering
in the 4th Carbon Budget review
• Education at all levels on climate change and
carbon emission reductions
• Acting now by investing in safe, renewable
energy sources
• Incentivising positive contributions by individuals
and business in the form of grants and tax breaks
• Keeping data up to date and using current data to
inform policy advice
• The issue of climate change is too important to
be swayed by party politics and independent
advice followed by legislation, as necessary, is
essential.
“A simple education
[programme] to explain
to us how climate
change will actually
affect our lives in
England and then
worldwide.”
Public participant
24. www.sciencewise-erc.org.uk
Impact and Influence (1)
- The outcomes of the public dialogue
influenced the second part of the CCC’s
formal advice to the Government on the
4th Carbon Budget, which was
published in December 2013.
- The dialogue is referenced in the CCC’s
main advice to Government, while the
panel’s six key recommendations are
outlined in full in a supporting Technical
Report.
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Impact and Influence (2)
25
• The public voiced strong support for the
UK taking an international leadership role
in this field
• The dialogue helped to identify specific
technologies that the public were
comfortable with and supportive of (e.g.
heat pumps) and those that they were less
enthusiastic about (e.g. Carbon Capture
and Storage); this gave the CCC “pause
for thought” on supporting specific
technologies themselves
26. www.sciencewise-erc.org.uk
Impact and Influence (3)
Policy maker view
“The dialogue demonstrated that members of the
public were keen to engage on issues around
climate change, and in particular on the means and
costs of meeting the UK’s carbon budgets. They
were supportive of UK leadership, as well as
providing insights on specific measures. It was
reassuring that, in general, they understood and
supported the CCC’s emerging narrative on
emissions reduction for the fourth carbon budget….
It has raised the question for us about whether we
should be doing more on behaviour change and
factoring this into our analyses and projections.”
CCC interviewee
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“to seek public views on emerging IVF-based
techniques to prevent the transmission of
mitochondrial disease,” with support from
Sciencewise Expert Resource Centre
Conduct a public dialogue exercise to
explore:
• The ethical aspects and issues involved
in techniques to avoid mitochondrial
disease; and
• The practical implications of allowing
such techniques within regulation
Regulations would need to be passed in
both houses of Parliament
Mitochondria replacement: What
the government asked HFEA to
do?
29. www.sciencewise-erc.org.uk
What is mitochondria replacement?
Mitochondrial disease caused by
faults in the small amount of DNA in
the mitochondria, inherited from the
mother
•Pronuclear transfer & maternal spindle
transfer: transfer nuclear material from an
egg/embryo containing unhealthy
mitochondria to a healthy donor
egg/embryo.
•DNA from parents and a donor
•These techniques, which are referred to as
mitochondria replacement, are illegal in
treatment in the UK.
30. www.sciencewise-erc.org.uk
Mitochondria replacement: hopes & concerns
• Estimated 1 in 5,000 people affected by
mitochondrial disease, around 1 in 6,500 children
thought to develop serious mitochondrial disorder.
• Range of conditions linked to mitochondrial
disease – from mild to life threatening – no known
cure or treatment.
Hopes? …for women with mitochondrial disease who
want children genetically related to them without
passing on disease.
Concerns?... “3 parent babies”; akin to cloning,
genetic modification of humans; interfering with
natural or spiritual aspects of reproduction…
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Aim of the dialogue & consultation
To identify:
• The process of deliberation people
use to form views on mitochondria
replacement
• The differences between informed
and uninformed public views on
these techniques
• Interested stakeholders’ arguments
for and against the use of the
techniques
• Analysis of the ethical and
regulatory issues involved.
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Multi-method approach
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Selected public audiences
(“uninformed”)
•Public representative survey –
1000 face to face interviews/
“top of head” views with little
information
•3 sets of deliberative public
workshops (met twice) – 90
participants in total.
• Scientists & Bio-ethicist
specialist input
• Videos, posters, quizzes,
info sheets, presentations
& questions
Self-Selecting/ Interested
audiences (“informed”)
•Open consultation website
& questionnaire
•2 x Open public
consultation meetings
•Patient focus group –
those affected by
mitochondrial disease
33. www.sciencewise-erc.org.uk
Key messages from deliberative workshops
Broadly agreed support for the new techniques with caveats
and conditions:
• Individual parent choice
• Provision of information to make an informed choice
• Regulated environment
• Parents should be offered counselling
• Donor’s identity should be protected – though maybe some
information to the child?
• Fair access to the techniques – available on NHS free of
charge
• Only to produce a healthy child, no other purpose
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Impact & Influence
• A total of 3,004 public and stakeholder participants
involved:
• 1,069 public participants - 90 in deliberative
workshops plus 979 in poll survey;
• 1935 stakeholders - 7 in focus group, 92 in open
meetings and 1,836 responses to the open
consultation questionnaire.
• Led to direct policy influence, outputs integrated into
the HFEA process to develop recommendations to
Government
• Enabled promotion of new legislation (draft regulation
for consultation – earlier this year) to allow and
regulate the use mitochondria replacement techniques,
by demonstrating public support in principle, and the
precautions necessary to retain that support.
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Impact & Influence #2
• Sciencewise was seen as bringing a
'badge of quality'.
• Evaluation & feedback, suggests this was
an exemplary process, particularly the
stakeholder engagement in the
governance, and the multi-strand
consultation.
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Public dialogue is particularly valuable
when….
• Policy is at an early stage of development and public interests
and concerns may be satisfied if understood and responded to
early
• Issues are /potentially contentious and there is potentially
strong public interest
• Technical expertise and stakeholder views alone are not
sufficient
• Successful implementation will depend on getting the
practicalities right
Go through bullets, and then before next slide
Why does this matter?
Go through bullets, and then before next slide
Why does this matter?
No conferring – please just write down your answer to the polling question. Now, I’d like a show of hands – who is comfortable that they’ve got the right answer?
Now, I’d like you to share and discuss your response with the rest of the people on your table for a couple of minutes…
…ok. Time’s up. I’d like another show of hands – who is more comfortable or less uncomfortable with their answer now?
And who has come up with some new issues or insights in the discussion?
And who needs more time?
This is what Sciencewise is hugely expert in: dialogue
Not just a one way information push, but rather a two way process, a conversation
It’s not as fast as a poll, though they may be able to support you if you do need to poll…
Dialogue – participants takes part over two weekends
1st weekend: given information, access to experts etc
2nd weekend: time to debate and discuss
Done well, dialogue is an open interactive process that can help you
explore and understand the risks and benefits of new technology,
how to minimise the risks and maximise the benefits
and give you a better basis for investment decisions.
Go through bullets, and then before next slide
Why does this matter?
Bottom line
The public are the ultimate customer, innovation will only work if it brings mutual benefits
PAS 2014:
7 in 10 people said scientists should listen more to what ordinary people think
Half of them think that technologists are very secretive
73% want technologists to share information on technology before it is developed
Engage to reduce risk of failure and learn from your customers – benefits outweigh costs
For example, Sciencewise sponsored work on cyber security cost £140k, industry wide benefits of billions
Go through bullets, and then before next slide
Why does this matter?
What department has decided (ie things that are no longer open to influence, even if there is significant pressure or backlash)
What are department preferences (but these may be open to negotiation, change or influence if particularly strong views, important information or insights come to light from stakeholders)
What is open (department has no preference)
Go through bullets, and then before next slide
Why does this matter?
The impact of deliberative engagement on policy
1. Supports the development of policy that goes with the grain of public opinion gives government the confidence that a potentially controversial policy is possible
A Sciencewise sponsored dialogue on Mitochondrial replacement, run by the Department of Health, was part of a suite of public engagement activities aimed at opening up to public views on the ethics and science of new IVF-based techniques designed to avoid hereditary mitochondrial disease, which can cause a number of rare but serious and potentially fatal conditions, being transferred from mothers to their children. One person in 6,500 has a mitochondrial disease that can lead to serious health issues meaning that around 12,000 live with these conditions.
In spite of significant and often negative press coverage (e.g. on 'three parent families'), public participants supported the new technique if it could prevent serious illness - as long as it was scrupulously overseen by an appropriate regulatory body. The final guidelines are expected to be published in December 2013 and evaluations indicate that the Sciencewise sponsored dialogue was critical for their development.
The 2010 Sciencewise sponsored dialogue on Animals in research , run by the Department of Health and the academy of Medical Sciences, identified the boundaries of public acceptability in these research areas, including those areas that would require special scrutiny in future when considering licences for research. This fed into the adoption in the UK of the EU Directive on experimentation on animals in research. The AMS believed that the dialogue had influenced the lack of an objections to the publication of the proposals by religious groups, following the well documented public input.
2. Delivers cost effective public dialogue which can lead to significant short and long term financial savings
The 2011 Sciencewise sponsored public dialogue on wellbeing (run by the Department of Health and new economics foundation in 2011) demonstrated that a national social marketing campaign would not be effective in achieving the desired behaviour change. The decision not to proceed with the campaign saved DH an estimated £10 million per year; the dialogue cost £264,000 in total. Private conversations confirm that the dialogue provided the evidence needed to inform the internal departmental debate that led to this decision.
3. Opens up the debate by engaging the public increases the responsiveness and accountability of policy.
The 2011 Sciencewise sponsored Synthetic biology, run by BBSRC and EPSRC, contributed to the ethical, social and regulatory elements of the Synthetic Biology Roadmap for the UK. The results also influenced the scope, tone and content of the Joint Synthetic Biology Initiative, which provides research funds of £24 million, and was seen by several policy makers involved as having avoided a 'GM situation'. The global synthetic biology market was estimated to grow from $1.6 billion in 2011 to $10.8 billion in 20165 ; the Synthetic Biology public dialogue cost £334,000).
In 2013 Sciencewise sponsored a health research public dialogue, run by the NHS Health Research Authority, to feed into a new agenda for Transparent Research. The agenda, which was published in May 2013, drew on a range of evidence including the results of the dialogue. The input from the public particularly affected the section of the agenda on publication of research results and has led to on going work to develop a public involvement strategy to set standards and guidance on how participants should be informed about the outcome of health research findings.
4. Supports behaviour change in complex and controversial areas of policy.
The 2009-2011 Sciencewise sponsored Low Carbon Communities Challenge (LCCC), run by the Department of Energy and Climate Change (DECC), resulted in 8,026 low carbon measures delivered in LCCC areas, from low energy light bulbs to a 1.2MW biomass district heating system, creating a theoretical annual carbon saving of 3,062,091kg of CO2.
Other outcomes included stronger local networks and greater levels of partnership working, the creation of new organisations such as mutual Community Energy Companies; and social outcomes such as residents associations, a community cinema, a community orchard and a community shop. DECC has since built on the LCCC by embedding the community led model into its thinking around new initiatives such as the Local Energy Assessment Fund (LEAF), and the move to involve community organisations in the delivery of the Green Deal.
Key message here is to get across what we are practically, but also what is different about us compared to other parts of government.
Brief detail
Sciencewise brings something different to the policy process from other bits of Whitehall.
has some resource;
SW has cross-Govt remit to do this stuff;
understands how engage public from better comms of issues to working collaboratively and specifically can support on more deliberative forms of engagement;
Go through bullets, and then before next slide
Why does this matter?