Communicating Palliative Care of Needs of
Patients to Out Of Hours Services
Irish Cancer Society
May 2014
Marie Lynch
Today’s talk
1. Background to work of Irish Hospice Foundation
2. Information on the Primary Palliative Care
Programme
3. Describe the GP →Out of Hours Palliative
Care Handover Form
4.
marie.lynch
Death and Dying in Ireland
90% of care in last year of life provided
by community based Health care
professionals
2010 Stats
Irish Hospice Foundation
Vision
No one should face death or
bereavement without the care
and support they need
Mission
Achieve dignity, comfort and choice for all
people facing the end of life.
We do this by addressing, with our partners and
the public, critical matters relating to death,
dying and bereavement in Ireland
Information on the IHF
http://vimeo.com/90234575
marie.lynch
Irish Hospice Foundation
IHF Programmes
• Primary Palliative Care
• Palliative Care for All
• Hospice Friendly Hospitals
• Bereavement Education and Training
• Children's Programme
• Forum on End of Life/ Think Ahead
• Carers
Grant programmes
Primary Palliative Care Programme
AIM
To identify palliative care initiatives that
will support primary care teams responses
to adults with advanced progressive
diseases in that live in the community
who are expected to die in the next 12
months.
‘Primary care professionals have the
potential and ability to provide end of life
care for most patients, given adequate
training, resources, and, when needed,
specialist advice.
They share common values with palliative
care specialists - holistic, patient centred
care, delivered in the context of families
and friends’ S Murray 2004
2011
marie.lynch
GATHERING
VIEWS –
186
QUESTIONNAIRE
SURVEY
RESPONSES
8 Key Themes
marie.lynch
Patients and
families
primary
palliative care
needs
Information
transfer
between
services Services
outside
traditional
working
hours
Developing
competence
Enhancing
communication
Non-
malignant
disease
Access to
equipment
Role Clarity &
resourcing
Private
healthcare
Education Needs
marie.lynch
Guidance Support
marie.lynch
Medication and Equipment
Initiatives
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‘Would like to see improved
communication with primary
care and hospice team in
caring for clients/families at
home ‘
‘Not enough
support in
community
settings for these
patients’
‘Would love to provide this service
but don’t think I have the
necessary skills to do so’
‘The difficulty in
accessing all services
outside of traditional
working hours for these
patients is a problem’
‘Joint
consultations
with the palliative
care team would
be useful ‘
‘I tend to step back when
Palliative Care come
involved…. I have a sense
of being disempowered
and de-roled’
PRIORITISED
RECOMMENDATIONS
1. Develop and implement a palliative care
summary for communication with out of hours
services
2. Create a system for primary care teams to
identify patients with palliative care needs and
respond appropriately.
3. Clarify the extent and means of access to 24
hour SPC advice/information.
4. Provision of information supporting delivery of
primary palliative care.
5. Compatibility of medications.
GP→OOH Palliative Care
Handover Form
• WHY
• WHAT
• WHERE & WHEN
• HOW
WHY
marie.lynch
Kiely (2013)
• 82% of Irish GPs do not routinely hand over information
to the OOH team for patients with palliative care needs
• 96% would value a standardised way of transferring
information
Wallace (2010)
• Admissions to ED of patients in receipt of SPC. 35 Visits
by 30 patients.
Source of
Referrals
Self 40%
On call GP 25.5%
SPC 6%
Timing of
referrals
Outside working
hours
63%
Sat/Sun 26%
WHY
Electronic Palliative Care Summary GPs and OOH
NHS Scotland 2009
An independent review
– the majority of GPs using this for cancer patients.
– The benefits
• increased reassurance patients and carers;
• better informed their decision making OOH teams
• assisted in their advance planning with patients.
• Recommendations included
– further training in communications and
– information technology to support the GPs in
the use of this form.
marie.lynch
WHAT IS IT
• Information transfer system between GPs and their
out-of-hours colleagues in relation to patients with
palliative care needs
• GPs who may have never met the patient before will
have comprehensive clinical information as well as
information pertaining to the wishes of the patient
• Patients receive increase
– Continuity of care
– Safer care
marie.lynch
WHERE & WHEN
SOUTH DOC PILOT
• 6 MONTHS April – Sept
• 500 GPs
• Cork and Kerry
• Include residential care
homes
marie.lynch
HOW it
WORKS
marie.lynch
1. GP fills out form
2. Fax to South Doc
3. Details registered on OOH IT system
4. If call comes in about patient triage access
information on form available to support
continuity of care
marie.lynch
Evaluation
Impact of Service
patient care
GPs
OOH service providers
residential care providers
Usage
What are the essential information fields
What additional information would help
How easy is the process
marie.lynch
marie.lynch
CONTACT DETAILS
FOR QUERIES
Marie Lynch
01 673 0063
Marie.lynch@hospicefoundation.ie
http://hospicefoundation.ie/
Palliative Care for All
IHF Nurses for Night Care
marie.lynch
IHF Nurses for Night Care referrals
2007 – 2012
Disease Breakdown
0
50
100
150
200
250
300
Heart Failure MND other Neuro dementia Heart/Circulatory Respiratory renal Other
marie.lynch
Bereaved.ie
Think Ahead
marie.lynch
CARERS.IE
marie.lynch

Communicating Palliative Care of Needs of Patients to Out Of Hours Services

  • 1.
    Communicating Palliative Careof Needs of Patients to Out Of Hours Services Irish Cancer Society May 2014 Marie Lynch
  • 2.
    Today’s talk 1. Backgroundto work of Irish Hospice Foundation 2. Information on the Primary Palliative Care Programme 3. Describe the GP →Out of Hours Palliative Care Handover Form 4. marie.lynch
  • 3.
    Death and Dyingin Ireland 90% of care in last year of life provided by community based Health care professionals 2010 Stats
  • 4.
    Irish Hospice Foundation Vision Noone should face death or bereavement without the care and support they need Mission Achieve dignity, comfort and choice for all people facing the end of life. We do this by addressing, with our partners and the public, critical matters relating to death, dying and bereavement in Ireland
  • 5.
    Information on theIHF http://vimeo.com/90234575 marie.lynch
  • 6.
    Irish Hospice Foundation IHFProgrammes • Primary Palliative Care • Palliative Care for All • Hospice Friendly Hospitals • Bereavement Education and Training • Children's Programme • Forum on End of Life/ Think Ahead • Carers Grant programmes
  • 7.
    Primary Palliative CareProgramme AIM To identify palliative care initiatives that will support primary care teams responses to adults with advanced progressive diseases in that live in the community who are expected to die in the next 12 months. ‘Primary care professionals have the potential and ability to provide end of life care for most patients, given adequate training, resources, and, when needed, specialist advice. They share common values with palliative care specialists - holistic, patient centred care, delivered in the context of families and friends’ S Murray 2004 2011
  • 8.
  • 9.
    8 Key Themes marie.lynch Patientsand families primary palliative care needs Information transfer between services Services outside traditional working hours Developing competence Enhancing communication Non- malignant disease Access to equipment Role Clarity & resourcing Private healthcare
  • 10.
  • 11.
  • 12.
  • 13.
    ‘Would like tosee improved communication with primary care and hospice team in caring for clients/families at home ‘ ‘Not enough support in community settings for these patients’ ‘Would love to provide this service but don’t think I have the necessary skills to do so’ ‘The difficulty in accessing all services outside of traditional working hours for these patients is a problem’ ‘Joint consultations with the palliative care team would be useful ‘ ‘I tend to step back when Palliative Care come involved…. I have a sense of being disempowered and de-roled’
  • 14.
    PRIORITISED RECOMMENDATIONS 1. Develop andimplement a palliative care summary for communication with out of hours services 2. Create a system for primary care teams to identify patients with palliative care needs and respond appropriately. 3. Clarify the extent and means of access to 24 hour SPC advice/information. 4. Provision of information supporting delivery of primary palliative care. 5. Compatibility of medications.
  • 15.
    GP→OOH Palliative Care HandoverForm • WHY • WHAT • WHERE & WHEN • HOW
  • 16.
    WHY marie.lynch Kiely (2013) • 82%of Irish GPs do not routinely hand over information to the OOH team for patients with palliative care needs • 96% would value a standardised way of transferring information Wallace (2010) • Admissions to ED of patients in receipt of SPC. 35 Visits by 30 patients. Source of Referrals Self 40% On call GP 25.5% SPC 6% Timing of referrals Outside working hours 63% Sat/Sun 26%
  • 17.
    WHY Electronic Palliative CareSummary GPs and OOH NHS Scotland 2009 An independent review – the majority of GPs using this for cancer patients. – The benefits • increased reassurance patients and carers; • better informed their decision making OOH teams • assisted in their advance planning with patients. • Recommendations included – further training in communications and – information technology to support the GPs in the use of this form. marie.lynch
  • 18.
    WHAT IS IT •Information transfer system between GPs and their out-of-hours colleagues in relation to patients with palliative care needs • GPs who may have never met the patient before will have comprehensive clinical information as well as information pertaining to the wishes of the patient • Patients receive increase – Continuity of care – Safer care marie.lynch
  • 19.
    WHERE & WHEN SOUTHDOC PILOT • 6 MONTHS April – Sept • 500 GPs • Cork and Kerry • Include residential care homes marie.lynch
  • 20.
    HOW it WORKS marie.lynch 1. GPfills out form 2. Fax to South Doc 3. Details registered on OOH IT system 4. If call comes in about patient triage access information on form available to support continuity of care
  • 21.
  • 22.
    Evaluation Impact of Service patientcare GPs OOH service providers residential care providers Usage What are the essential information fields What additional information would help How easy is the process marie.lynch
  • 23.
    marie.lynch CONTACT DETAILS FOR QUERIES MarieLynch 01 673 0063 Marie.lynch@hospicefoundation.ie http://hospicefoundation.ie/
  • 24.
  • 25.
    IHF Nurses forNight Care marie.lynch
  • 26.
    IHF Nurses forNight Care referrals 2007 – 2012 Disease Breakdown 0 50 100 150 200 250 300 Heart Failure MND other Neuro dementia Heart/Circulatory Respiratory renal Other
  • 27.
  • 28.
  • 29.
  • 30.