NDIS: What, When, Where and
Making it Real for all Australians




         Presentation to field AGM
         Bruce Bonyhady AM, Chairman, Yooralla
         16 November, 2012
National Disability Insurance Scheme


Themes and Overview
     The NDIS is transformative, complex to implement and not yet secure

     Productivity Commission Report Key Findings; a great leap forward

     Eligibility

     What benefits are included?

     “Reasonable and Necessary” Supports

     What is not included and “boundary challenges”

     Implementation Challenges

     Funding-Making it Real for all Australians

     Conclusions, Questions, Answers and Discussion
                                        www.everyaustraliancounts.com.au    2
National Disability Insurance Scheme


Productivity Commission Report-July 2011
 “The current disability system is underfunded, unfair, fragmented and
  inefficient, and gives people with disability little choice and no certainty
  of access to appropriate supports”

 The NDIS is relevant to everyone, not just those with disability today, as
  every 30 minutes an Australian is diagnosed with a significant,
  permanent disability.

 A National Disability Insurance Scheme (NDIS) should be established
  progressively between now and 2018/19 to provide reasonable and
  necessary support to all Australians with a significant permanent
  disability under age 65 which affects self-care, mobility, communication
  or self-management and requires significant on-going support

 Alongside the NDIS, a National Injury Insurance Scheme (NIIS) should
  be established to cover new people who acquire catastrophic injuries
  and provide an umbrella for existing compensation schemes

                                         www.everyaustraliancounts.com.au    3
National Disability Insurance Scheme



NDIS Leapfrogs Current Reform Directions
      NDIS builds on current reform directions, including individualised
       funding and Commonwealth and State agreements to move towards
       national assessment criteria and portability

      Frames disability as an issue for everyone. It is an entitlement
       scheme, providing “universal” insurance, in an area of market
       failure. Private insurance is not available, so a Medicare type
       scheme makes good policy sense

      NDIS will take an investment approach. (Minimise lifetime costs,
       maximise lifetime opportunities, prioritise early intervention, etc)

      NDIS will double funding

      Fits with the national agenda to boost participation and productivity,
       where possible; not passive welfare. With rights come responsibility
       to engage to maximum capacity in work and community. Tough love

                                       www.everyaustraliancounts.com.au       4
National Disability Insurance Scheme



NDIS Design, Implementation and Launch
 Highly collaborative technical design work is being undertaken by the
  Commonwealth and States to get ready for launch on 1 July 2013

 Five Launch Sites agreed: Victoria (Barwon Region, 5,000 people),
  NSW (Hunter Region, 10,000 people), ACT (5,000 people), SA (Age 0-
  14 cohort) and Tasmania (Age 15 -25 cohort)

 COAG Select Council Advisory Group has been appointed to advise
  on Scheme design and work with Commonwealth and States. Four
  Expert Groups established: Eligibility and Assessment; Quality and
  Safeguards; Workforce and Sector Capacity; and, Control and Choice

 Work is well advanced on defining key terms such as scope of
  eligibility and “reasonable and necessary” benefits. Little progress on
  NIIS. Draft legislation due in two weeks. Go to www.ndis.gov.au and
  for updates and Your Say

                                       www.everyaustraliancounts.com.au   5
National Disability Insurance Scheme



NDIS: Tiers and Eligibility




                                       www.everyaustraliancounts.com.au   6
National Disability Insurance Scheme



Draft Eligibility Statement
1. The individual resides in Australia and is an Australian citizen; and

2. The individual is less than 65 years of age on entry to an NDIS; and
3. The individual has a disability that is attributable to an intellectual, psychiatric, cognitive,
neurological, sensory or physical impairment, or a combination of impairments; or is a child
with a global developmental delay; and
4. The impairment/s:
            a. is permanent or likely to be permanent; and
          b. results in a substantially reduced functional capacity of the individual to
undertake activities of daily living; and
            c. impacts on the individual’s participation in the community or employment; and
            d. may be of a chronic episodic nature and result in the need for ongoing or long
            term episodic support; and
5. The support needs will persist for the foreseeable future and are not more appropriately
met by other systems including education, health and/or palliative care.



                                                www.everyaustraliancounts.com.au                 7
National Disability Insurance Scheme



NDIS: What benefits are included?
     “Reasonable and necessary” support package ($ amount) based on agreed
      goals, independent assessment process and benchmarking

     Personal care and support

     Therapy, aids, equipment and home modifications

     Access to training, development, education, community and work

     Families/Carers to receive tailored support, including a choice to work or
      provide informal care, based on age-appropriate caring roles

     Local Area Co-ordinators (including for Tier 2), independent advisers,
      advocacy and case management to support decisions, if required

     Lifetime planning, including early intervention and support at transitions,
      recognising that needs will change or be episodic
                                            www.everyaustraliancounts.com.au        8
National Disability Insurance Scheme



Draft of “reasonable and necessary” supports:
a. are designed to support the individual to achieve their goals and
 maximise their independence;
b. support the individual’s capacity to undertake activities of daily living
 to enable them to participate in the community and/or employment;
c. are effective, and evidence informed;
d. are value for money;
e. reflect community expectations, including what is realistic to expect
 from the individual, families and carers; and
f. are best provided through an NDIS and are not more appropriately
  provided through other systems of service delivery and support,
  including services that are offered by mainstream agencies as a part of
  their universal service obligations to all citizens.

                                       www.everyaustraliancounts.com.au        9
National Disability Insurance Scheme



NDIS: What is not included?
 Income support (DSP)

 Access to complementary systems which must be universal and support
  people with disabilities:

      Education

      Health

      Employment, aligning the employment goals in the DES with the
       NDIS, including potentially an additional weighting for Tier 3 in DES

      Ageing, should be seamless and allow for aging in place

      Housing needs new investment and innovation in accessible social
       housing, shared equity models, key ring support models, etc
                                         www.everyaustraliancounts.com.au   10
National Disability Insurance Scheme



  Implementation Challenges
  Managing expectations

  Rapid implementation timetable

  Embedding insurance principles

  Cultural change, so that people with disabilities are in control

  Diversifying supply, attracting new workers and services

  New quality framework for a market

  Strengthening safeguards; Care Concerns Unit

  Funding


                                       www.everyaustraliancounts.com.au   11
National Disability Insurance Scheme


NDIS Funding
     In the 2012-13 Budget the Commonwealth Government committed
      $1 billion to the NDIS, but this is really just more of a lottery!

     The Federal Opposition is supportive. Tony Abbott is “Dr Yes”.
      Andrew Robb is strongly committed. Joe Hockey is now supportive

     The Commonwealth and States have not agreed the full scheme
      funding of $7.5 billion

     The last COAG meeting was a watershed in the history of practical
      disability rights and power in Australia. Many ordinary Australians
      said “Enough! Just do it!” and this secured launch sites in Victoria
      and NSW

     The Commonwealth will need to fund and underwrite the full
      Scheme, as recommended by the PC, which is a huge challenge,
      given declining revenues and other expensive priorities, e.g.
      Gonski. We will need YOUR support
                                       www.everyaustraliancounts.com.au   12
National Disability Insurance Scheme




Scale of Funding Needed …
                                       Fully funded NDIS in Operation
                                        Fully funded NDIS in Operation
                                                                                                  $7.5
                                                                                                  Billion
                                                                                                  2018


                                                                                            $5.9
                                                                                            Billion
                                                                                            2017

                                                                                      $3.9
                                                                                      Billion
                                                                                      2016
          Budget support for NDIS
          Budget support for NDIS                                               $2.4
                                                                                Billion
                                                                                2015-
                                                                      $900      Budget
                                                                      Million   $363M
                                                            $550
                                                  $50                 2014-
                                                            Million
                                       $10        Million             Budget
                                                            2013-
                                       Million    2012-               $363M
                                                            Budget
                                       2011       Budget    $345M
                                                  $83M




                                                 www.everyaustraliancounts.com.au                 13
National Disability Insurance Scheme



Conclusions
   Very exciting time- we are on the threshold of a transformation built on
    universal insurance and entitlement to reasonable and necessary support
   The Commonwealth has contributed $1 billion to start the NDIS and five
    States are participating in Launch Sites
   Enormous effort is going into detailed scheme design, which is complex.
    Keep up to date and have your say by going to www.ndis.gov.au
   There is light and hope. Preparing carefully for the NDIS is essential
   However, there is still no commitment to full funding so you must keep
    reminding our politicians, State and Federal, Labor, Liberal, National Party
    and Greens that they must deliver the FULL NDIS
   Thank you for your interest and support. Go to
    www.everyaustraliancounts.com.au Sign up EVERYONE YOU KNOW!



                                        www.everyaustraliancounts.com.au           14
National Disability Insurance Scheme




                                  Questions
                                       &
                                  Discussion



                                       www.everyaustraliancounts.com.au   15

NDIS: What, When, Where and Making it Real for all Australians, Bruce Bonyhady AM, Chairman, Yooralla

  • 1.
    NDIS: What, When,Where and Making it Real for all Australians Presentation to field AGM Bruce Bonyhady AM, Chairman, Yooralla 16 November, 2012
  • 2.
    National Disability InsuranceScheme Themes and Overview  The NDIS is transformative, complex to implement and not yet secure  Productivity Commission Report Key Findings; a great leap forward  Eligibility  What benefits are included?  “Reasonable and Necessary” Supports  What is not included and “boundary challenges”  Implementation Challenges  Funding-Making it Real for all Australians  Conclusions, Questions, Answers and Discussion www.everyaustraliancounts.com.au 2
  • 3.
    National Disability InsuranceScheme Productivity Commission Report-July 2011  “The current disability system is underfunded, unfair, fragmented and inefficient, and gives people with disability little choice and no certainty of access to appropriate supports”  The NDIS is relevant to everyone, not just those with disability today, as every 30 minutes an Australian is diagnosed with a significant, permanent disability.  A National Disability Insurance Scheme (NDIS) should be established progressively between now and 2018/19 to provide reasonable and necessary support to all Australians with a significant permanent disability under age 65 which affects self-care, mobility, communication or self-management and requires significant on-going support  Alongside the NDIS, a National Injury Insurance Scheme (NIIS) should be established to cover new people who acquire catastrophic injuries and provide an umbrella for existing compensation schemes www.everyaustraliancounts.com.au 3
  • 4.
    National Disability InsuranceScheme NDIS Leapfrogs Current Reform Directions  NDIS builds on current reform directions, including individualised funding and Commonwealth and State agreements to move towards national assessment criteria and portability  Frames disability as an issue for everyone. It is an entitlement scheme, providing “universal” insurance, in an area of market failure. Private insurance is not available, so a Medicare type scheme makes good policy sense  NDIS will take an investment approach. (Minimise lifetime costs, maximise lifetime opportunities, prioritise early intervention, etc)  NDIS will double funding  Fits with the national agenda to boost participation and productivity, where possible; not passive welfare. With rights come responsibility to engage to maximum capacity in work and community. Tough love www.everyaustraliancounts.com.au 4
  • 5.
    National Disability InsuranceScheme NDIS Design, Implementation and Launch  Highly collaborative technical design work is being undertaken by the Commonwealth and States to get ready for launch on 1 July 2013  Five Launch Sites agreed: Victoria (Barwon Region, 5,000 people), NSW (Hunter Region, 10,000 people), ACT (5,000 people), SA (Age 0- 14 cohort) and Tasmania (Age 15 -25 cohort)  COAG Select Council Advisory Group has been appointed to advise on Scheme design and work with Commonwealth and States. Four Expert Groups established: Eligibility and Assessment; Quality and Safeguards; Workforce and Sector Capacity; and, Control and Choice  Work is well advanced on defining key terms such as scope of eligibility and “reasonable and necessary” benefits. Little progress on NIIS. Draft legislation due in two weeks. Go to www.ndis.gov.au and for updates and Your Say www.everyaustraliancounts.com.au 5
  • 6.
    National Disability InsuranceScheme NDIS: Tiers and Eligibility www.everyaustraliancounts.com.au 6
  • 7.
    National Disability InsuranceScheme Draft Eligibility Statement 1. The individual resides in Australia and is an Australian citizen; and 2. The individual is less than 65 years of age on entry to an NDIS; and 3. The individual has a disability that is attributable to an intellectual, psychiatric, cognitive, neurological, sensory or physical impairment, or a combination of impairments; or is a child with a global developmental delay; and 4. The impairment/s: a. is permanent or likely to be permanent; and b. results in a substantially reduced functional capacity of the individual to undertake activities of daily living; and c. impacts on the individual’s participation in the community or employment; and d. may be of a chronic episodic nature and result in the need for ongoing or long term episodic support; and 5. The support needs will persist for the foreseeable future and are not more appropriately met by other systems including education, health and/or palliative care. www.everyaustraliancounts.com.au 7
  • 8.
    National Disability InsuranceScheme NDIS: What benefits are included?  “Reasonable and necessary” support package ($ amount) based on agreed goals, independent assessment process and benchmarking  Personal care and support  Therapy, aids, equipment and home modifications  Access to training, development, education, community and work  Families/Carers to receive tailored support, including a choice to work or provide informal care, based on age-appropriate caring roles  Local Area Co-ordinators (including for Tier 2), independent advisers, advocacy and case management to support decisions, if required  Lifetime planning, including early intervention and support at transitions, recognising that needs will change or be episodic www.everyaustraliancounts.com.au 8
  • 9.
    National Disability InsuranceScheme Draft of “reasonable and necessary” supports: a. are designed to support the individual to achieve their goals and maximise their independence; b. support the individual’s capacity to undertake activities of daily living to enable them to participate in the community and/or employment; c. are effective, and evidence informed; d. are value for money; e. reflect community expectations, including what is realistic to expect from the individual, families and carers; and f. are best provided through an NDIS and are not more appropriately provided through other systems of service delivery and support, including services that are offered by mainstream agencies as a part of their universal service obligations to all citizens. www.everyaustraliancounts.com.au 9
  • 10.
    National Disability InsuranceScheme NDIS: What is not included?  Income support (DSP)  Access to complementary systems which must be universal and support people with disabilities:  Education  Health  Employment, aligning the employment goals in the DES with the NDIS, including potentially an additional weighting for Tier 3 in DES  Ageing, should be seamless and allow for aging in place  Housing needs new investment and innovation in accessible social housing, shared equity models, key ring support models, etc www.everyaustraliancounts.com.au 10
  • 11.
    National Disability InsuranceScheme Implementation Challenges Managing expectations Rapid implementation timetable Embedding insurance principles Cultural change, so that people with disabilities are in control Diversifying supply, attracting new workers and services New quality framework for a market Strengthening safeguards; Care Concerns Unit Funding www.everyaustraliancounts.com.au 11
  • 12.
    National Disability InsuranceScheme NDIS Funding  In the 2012-13 Budget the Commonwealth Government committed $1 billion to the NDIS, but this is really just more of a lottery!  The Federal Opposition is supportive. Tony Abbott is “Dr Yes”. Andrew Robb is strongly committed. Joe Hockey is now supportive  The Commonwealth and States have not agreed the full scheme funding of $7.5 billion  The last COAG meeting was a watershed in the history of practical disability rights and power in Australia. Many ordinary Australians said “Enough! Just do it!” and this secured launch sites in Victoria and NSW  The Commonwealth will need to fund and underwrite the full Scheme, as recommended by the PC, which is a huge challenge, given declining revenues and other expensive priorities, e.g. Gonski. We will need YOUR support www.everyaustraliancounts.com.au 12
  • 13.
    National Disability InsuranceScheme Scale of Funding Needed … Fully funded NDIS in Operation Fully funded NDIS in Operation $7.5 Billion 2018 $5.9 Billion 2017 $3.9 Billion 2016 Budget support for NDIS Budget support for NDIS $2.4 Billion 2015- $900 Budget Million $363M $550 $50 2014- Million $10 Million Budget 2013- Million 2012- $363M Budget 2011 Budget $345M $83M www.everyaustraliancounts.com.au 13
  • 14.
    National Disability InsuranceScheme Conclusions  Very exciting time- we are on the threshold of a transformation built on universal insurance and entitlement to reasonable and necessary support  The Commonwealth has contributed $1 billion to start the NDIS and five States are participating in Launch Sites  Enormous effort is going into detailed scheme design, which is complex. Keep up to date and have your say by going to www.ndis.gov.au  There is light and hope. Preparing carefully for the NDIS is essential  However, there is still no commitment to full funding so you must keep reminding our politicians, State and Federal, Labor, Liberal, National Party and Greens that they must deliver the FULL NDIS  Thank you for your interest and support. Go to www.everyaustraliancounts.com.au Sign up EVERYONE YOU KNOW! www.everyaustraliancounts.com.au 14
  • 15.
    National Disability InsuranceScheme Questions & Discussion www.everyaustraliancounts.com.au 15