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Medicine X
The United Kingdom comes to town
MY TRANSPLANT JOURNEY
Diagnosed in 1960’s
First surgery in 1970’s 4 surgeries down by 1980’s
Career halted in 1990’s By 2000’s not much
bowel left
2010 intestinal failure Bowel transplant
HOW MY ILLNESS WAS COMMUNICATED TO ME
The
doctor
decides
The CEO
decides
The
INSURER
decides
The
Hospital/NHS
decides
Actually the
patient decidedWHO DECIDES ON YOUR CARE?
My Patient dashboard
Marion O’Connor
• Specialist dietician at NHS
• Lead specialist dietician at Oxford University Hospitals
• Provides in-patient and out-patient dietetic service at Nuffield Health,
The Manor Hospital Oxford
• Specific experience in:
• Complex chronic illness
• Inflammatory bowel disease
• Intestinal Failure
• Short bowel syndrome
• Intestinal Transplantation
Marion….
• Provides nutrition seminars for Industry and groups
• Key note speaker to health professionals on various aspects of clinical
nutrition
• Published author writing for journals and health magazines
It started with a blog
Communication can be as simple as a
text
Clear
Instructions
1. Increased patient
satisfaction
2. What is needed
It can be via twitter
Blood results
Or even email
Patients can have a greater impact than
doctors
4 months later another patient is having a
transplant
Marion’s engagement rule
1. Be yourself
2. Only say on line what you would
say in clinic – Be professional
3. Respond to both negative &
positive comments.
4. Treat patients as intelligent
individuals
5. Remember online
communication isn’t for
everyone
Patients can be
innovators
They can impact the hospital wards
It is not just patients who believe in social
media
What the Mayo Clinic says
“The biggest risk in health care social
media is not participating in the
conversation”
Farris Timimi, M.D., is medical director for the Mayo Clinic Center for Social Media
What the NHS says
"We trust our staff with patients’
lives, so why don’t we trust them
with social media?”
Extract from - January 2013 Briefing 87 NHS An essential guide for HR directors and Managers in
social media
Does technology help in practical terms?
• Improves communication -
• doctor – patient
• Doctor - doctor
• Improves compliance
• With medications
• With complex conditions
• Increases patient engagement
• Patients like to be able to access advice when they feel anxious or have
questions.
• Waiting can often exacerbate the anxiety

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Michael Seres & Marion O'Connor: The evolving role of the engaged patient

  • 1. Medicine X The United Kingdom comes to town
  • 3. Diagnosed in 1960’s First surgery in 1970’s 4 surgeries down by 1980’s Career halted in 1990’s By 2000’s not much bowel left 2010 intestinal failure Bowel transplant HOW MY ILLNESS WAS COMMUNICATED TO ME
  • 6. Marion O’Connor • Specialist dietician at NHS • Lead specialist dietician at Oxford University Hospitals • Provides in-patient and out-patient dietetic service at Nuffield Health, The Manor Hospital Oxford • Specific experience in: • Complex chronic illness • Inflammatory bowel disease • Intestinal Failure • Short bowel syndrome • Intestinal Transplantation
  • 7. Marion…. • Provides nutrition seminars for Industry and groups • Key note speaker to health professionals on various aspects of clinical nutrition • Published author writing for journals and health magazines
  • 9. Communication can be as simple as a text Clear Instructions 1. Increased patient satisfaction 2. What is needed
  • 10. It can be via twitter Blood results
  • 12. Patients can have a greater impact than doctors
  • 13. 4 months later another patient is having a transplant
  • 14. Marion’s engagement rule 1. Be yourself 2. Only say on line what you would say in clinic – Be professional 3. Respond to both negative & positive comments. 4. Treat patients as intelligent individuals 5. Remember online communication isn’t for everyone
  • 16. They can impact the hospital wards
  • 17.
  • 18. It is not just patients who believe in social media What the Mayo Clinic says “The biggest risk in health care social media is not participating in the conversation” Farris Timimi, M.D., is medical director for the Mayo Clinic Center for Social Media What the NHS says "We trust our staff with patients’ lives, so why don’t we trust them with social media?” Extract from - January 2013 Briefing 87 NHS An essential guide for HR directors and Managers in social media
  • 19. Does technology help in practical terms? • Improves communication - • doctor – patient • Doctor - doctor • Improves compliance • With medications • With complex conditions • Increases patient engagement • Patients like to be able to access advice when they feel anxious or have questions. • Waiting can often exacerbate the anxiety