Doctors 2.0 & You; the power of a blog
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Margot Vanfleteren discusses the value of patient blogs for diabetes care and management. She notes that patients spend 99.993% of their time managing their diabetes alone, with only 0.007% spent with healthcare providers. Patient blogs can help address quality of life issues like adherence, access to support, and self-management by providing a platform for psycho-social support and involvement in care. Blogs also give insights into patient needs and experiences that can help healthcare providers, the pharmaceutical industry, and researchers better understand barriers to person-centered care and identify opportunities for innovation.
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Doctors 2.0 & You; the power of a blog
- 2. Time alone Time with HCP • 0,007 % of time with HCP • 99,993% alone The facts on diabetes care Diabetes hands foundation Sinsky C, Colligan L, Li L, Prgomet M, Reynolds S, Goeders L, et al. Allocation of Physician Time in Ambulatory Practice: A Time and Motion Study in 4 Specialties. Ann Intern Med. 2016;165:753-760. doi: 10.7326/M16-0961
- 3. WHY: QoL • Problem areas in diabetes care: • Adherence • Access to support • Self-management • Involvement in care • Unknown barriers to person-centered care Nicolucci, A., Kovacs Burns, K., Holt, R. I. G., Comaschi, M., Hermanns, N., Ishii, H., ... & Tarkun, I. (2013). Diabetes Attitudes, Wishes and Needs second study (DAWN2™): Cross‐national benchmarking of diabetes‐related psychosocial outcomes for people with diabetes. Diabetic Medicine, 30(7), 767-777.
- 4. Social media Providing support & GCP to improve health outcomes
- 5. Influence of blogs Blog HCP Patient (s) Pharma ceutical industry Health and Life sciences research DAWN initiative. (2015). Study design. Retrieved from http://www.dawnstudy.com/dawn2/about-dawn2/dawn2_-study-design.html
- 6. 1. Healthcare professionals • Provides insight on needs of patient • What’s hot and happening in the community • Transparency: • Ethical: informed consent • Logic: empowerment movement • Patient as equivalent actor
- 7. 2. Patient(s) • For the blogger: • Coping • Document treatment history • Accessible platform • Psycho-social support • Involved in care • For patient community: • Sharing is caring • psycho-social support • Be empowered • Involved in care
- 8. 3. Pharmaceutical industry • Discover needs • What life is the patient experiencing? • Open communication/brainstorm on possible solutions • Direct feedback • Innovation
- 9. 4. Health and life sciences industry • Innovation • Equivalent actor • Feedback • Direct communication • Fast track • New collaborative opportunities
- 10. Key take-away
- 11. Value of a (patient) blog • Stimulate adherence: active processing of info leads to better understanding of disease and treatment • Access to social support: social media connects people • Patients becomes care partners: they know more and can thus discuss treatment options • Understanding of needs: patient blogs open new opportunities for pharmaceutical industry to have a real life understanding of challenges.
- 14. Margot Vanfleteren @MargotVF o Student Health sciences o Living with type 1 diabetes o Patient entrepreneur o Patient advocate https://simplyput.blog/contact/
Editor's Notes
- During the office day, physicians spent 27.0% of their total time on direct clinical face time with patients and 49.2% of their time on EHR and desk work. - Sinsky C, Colligan L, Li L, Prgomet M, Reynolds S, Goeders L, et al. Allocation of Physician Time in Ambulatory Practice: A Time and Motion Study in 4 Specialties. Ann Intern Med. 2016;165:753-760. doi: 10.7326/M16-0961
- QOL was more problematic in PWD who had little to no support system according to dawn 2 study.
- Peyrot, M., Burns, K. K., Davies, M., Forbes, A., Hermanns, N., Holt, R., ... & Willaing, I. (2013). Diabetes Attitudes Wishes and Needs 2 (DAWN2): a multinational, multi-stakeholder study of psychosocial issues in diabetes and person-centred diabetes care. Diabetes research and clinical practice, 99(2), 174-184.