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LESSONSLEARNEDFROMCONDUCTING
GROUP-BASEDRESEARCHONFACEBOOK
Haley MacLeod1 Ÿ Ben Jelen1 Ÿ Annu Prabhakar1 Ÿ Lora Oehlberg2 Ÿ Katie Siek1 Ÿ Kay Connelly1
1 School of Informatics and Computing, Indiana University
2 Department of Computer Science, University of Calgary
@haley_macleod
www.haleymacleod.com
Human Centered
Research Methods
Interviews Focus Groups
Diary Studies
Photo Elicitation
Design Workshops
Role-Playing
Card Sorting
Collages
Guided Tours
Observations
Collocated studies are
not always possible.
Rare Disease Populations
•  <0.05%
•  Geographically distributed
•  Very active on social media,
especially Facebook
One Option: Remote Interviews
Instant Messaging
(Voida et al. 2004,
Dimond et al. 2012)
Telephone
(Dimond et al. 2012)
Video Conference
(Hillman et al. 2015)
Email
(Dimond et al. 2012)
We need ways of conducting
group based research online.
Asynchronous Remote Communities
(The ARC Method)
Today’s Talk:
•  What we did
•  What we learned
Today’s Talk:
•  What we did
•  What we learned
Recruitment
Recruitment Consent
Recruitment Consent Participants
Procedure
•  Private Facebook group
Procedure
•  Private Facebook group
•  5 day introduction period
Procedure
•  Private Facebook group
•  5 day introduction period
•  22 weeks
Procedure
•  Private Facebook group
•  5 day introduction period
•  22 weeks
•  11 activities
For 24 hours, I’d like you to keep track of interactions you have with other
people about your disease. Make a note of:
•  Who you talked to (could be people on Facebook, your friends or family,
medical providers, etc.),
•  How your talked to them (online, on the phone, in person, etc.)
•  A brief description of what you talked about and how you felt about it.
DiaryStudy
ok, i am not able to even get up
and get my act together to do
this activity, following surgery,
but I can explain mine…
Post Study
•  Group continues to exist
•  Sharing research updates
•  Review drafts of papers
Today’s Talk:
•  What we did
•  What we learned
Pre-Study Interactions
Recruitment
We recommend taking the time to build a
strong rapport with members of groups used
for recruiting before, during, and after the
study, following not only best practices for
recruiting, but also good practices for
maintaining those relationships at the
conclusion of the study.
Pre-Study Interactions
Informed Consent
We recommend investigating alternative
methods of consenting electronically.
Activities
Activity Preferences
We recommend having participants post
directly to the group, even submissions still in
progress. Seeing other participants’
contributions can give inspiration to people
who are hesitant to contribute creatively.
Engagement
Over Time
We discourage having activities that build on
one another where the sequence is important.
Relationships Between Participants
Social vs. Activity Post
We recommend providing opportunities for
socialization between participants that are
separate from formal study activities.
Although this may not appeal to everyone, it
can help weed out participants who are not
interested in this aspect of the study and
would likely become frustrated later if social
conversations continue throughout the study.
Relationships Between Participants
Sub Communities
We recommend giving careful consideration to
the makeup of the group when recruiting,
targeting either a highly homogenous population
or targeting several homogenous groups.
Researcher Perspective
Data Analysis
We recommend being mindful of the number
of input mechanisms (e.g., Google Voice,
email, survey platforms, etc.). Structuring
activities to capture data from a range of
different sources adds to the richness of the
data but means data will be distributed in
different locations and need to be collected
and organized. Each additional input
mechanism introduces additional overhead.
•  Iterating on current approach
•  Other study populations
•  Other stages of design research
Future Work:
Study Materials:
tiny.cc/chi2016material
Haley MacLeod
hemacleo@indiana.edu
Kay Connelly
connelly@indiana.edu
Katie Siek
ksiek@indiana.edu
Ben Jelen
bcjelen@iu.edu
Annu Prabhakar
asprabha@indiana.edu
Lora Oehlberg
lora.oehlberg@iucalgary.ca

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