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www.tobiassonne.com
Tobias Sonne
IT STØTTE TIL BØRN MED ADHD
AGENDA
• Introduktion
• Koncentrations-støtte (CASTT)
• ‘Calming’-støtte(ChillFish)
• Søvn-støtte(MOBERO)
• Opsummering
2
INTRODUKTION
3
DESIGN PROCESSEN
Hands-on training
(Center for ADHD)
Design processer med
ADHD professionelle 

and familier
Empiriske studier
med børn med
ADHD + familier.
Observationer, 

interviews, og

litteratur reviews
4
AGENDA
• Introduktion
• Koncentrations-støtte (CASTT)
• ‘Calming’-støtte(ChillFish)
• Søvn-støtte(MOBERO)
• Opsummering
5
CASTT
Koncentrations-støtte
Sonne, T., Marshall, P., Obel, C., Thomsen, P. H., & Grønbæk, K. (2016). An Assistive Technology Design Framework for ADHD. In Proceedings of the Annual Meeting of the
Australian Special Interest Group for Computer Human Interaction. New York, NY, USA: ACM.
Sonne, T., & Grønbæk, K. (2015). Designing Assistive Technologies for the ADHD Domain. In S. Serino, A. Matic, D. Giakoumis, G. Lopez, & P. Cipresso (Eds.), Pervasive
Computing Paradigms for Mental Health (pp. 259–268). Springer International Publishing. https://doi.org/10.1007/978-3-319-32270-4_26
CASTT
Formål
• Objektiv detektering af fysisk og fysiologisk
aktivitet
• Bruge machine-learning (maskin-læring) til at
genkende et udsnit af karakteristiske ADHD
bevægelses-mønstre.
• Undersøge hvordan teknologi kan støtte børn
med ADHD til at vedholde og/eller genvinde
koncentrationen i skolesituationer.
7
8
CASTT
Implementering
CASTT
Implementering
9
10
Fem forskellige skoler med:
11 børn uden ADHD
6 børn med ADHD
CASTT
Empiriske studier
LESSONS LEARNED
11
BARNETS AKTIVITETSNIVEAU
I 2 minutters Intervaller
CASTT
Opsummering
• CASTT er et wearable system som
støtter børn med ADHD til at genvinde
koncentrationen i skolesituationer.
• CASTT var iterativt designet og
evalueret med 5 skoler med børn
med og uden ADHD.
• CASTT studierne viste mulighederne
for at støtte et barn med ADHD til at
genvinde koncentrationen i ‘kritiske’
skole situationer.
13
AGENDA
• Introduktion
• Koncentrations-støtte (CASTT)
• ‘Calming’-støtte(ChillFish)
• Søvn-støtte(MOBERO)
• Opsummering
14
CHILLFISH
Calming Assistance
15
Sonne, T., & Jensen, M. M. (2016a). ChillFish: A Respiration Game for Children with ADHD. In Proceedings of the TEI ’16: Tenth International Conference on Tangible,
Embedded, and Embodied Interaction (pp. 271–278). New York, NY, USA: ACM. https://doi.org/10.1145/2839462.2839480
Sonne, T., & Jensen, M. M. (2016b). Evaluating the ChillFish Biofeedback Game with Children with ADHD. In Proceedings of the The 15th International Conference on
Interaction Design and Children (pp. 529–534). New York, NY, USA: ACM. https://doi.org/10.1145/2930674.2935981
CHILLFISH
Eksisterende praksis
16
Åndedrætsøvelser 

(“forestill dig at du dufter til en rose…”)
CHILLFISH (VIDEO)
17
CHILLFISH
Designet specielt til børn
18
Designed for children

(Calming and playfull game experience)
Uses a tangible LEGO fish
to detect breathing patterns
+
CHILLFISH
Studier
19
16 voskne 12 børn with ADHD
CHILLFISH
Study Design (1st study)
20
Play test:
ChillFish
2 min
Play test:
ChillFish
2 min
Relaxation
exercise
2 min
Conversation
/ introduction
2-4 min
Conversation
/ interview
2-6 min
Conversation
/ interview
2-6 min
Play test:
Pac-Man
2 min
CHILLFISH
Quantitative Findings
21
NormalizedHRV(RMMSD)
0
0,15
0,3
0,45
0,6
Talk 1 ChillFish Pac-man ChillFish Talk 2 Relaxation Exercise Talk 3
0,363
0,434
0,332
0,507
0,208
0,424
0,326
CHILLFISH
2nd study - Children with ADHD
22
CHILLFISH
Quantitative Findings (Children with ADHD)
23
CHILLFISH
Opsummering
• ChillFish er det første biofeedback spil
designed specifik til at hjælpe børn med
ADHD til at falde til ro og slappe af.
• ChillFish er revalueret med både voksne
og børn med ADHD
• ChillFish giver en ligende eller bedre
afslappende effekt end en traditionelt
åndedrætsøvelse.
• (Bonus) ChillFish er også testet med
success på Skejby Sygehus i forbindelse
med at børn fik taget blodprøver.
24
AGENDA
• Introduktion
• Koncentrations-støtte (CASTT)
• ‘Calming’-støtte(ChillFish)
• Søvn-støtte(MOBERO)
• Opsummering
25
MOBERO
Søvn-støtte
26
Sonne, T., Müller, J., Marshall, P., Obel, C., & Grønbæk, K. (2016). Changing Family Practices with Assistive Technology: MOBERO Improves Morning and Bedtime
Routines for Children with ADHD. In Proceedings of the 34th Annual ACM Conference on Human Factors in Computing Systems. New York, NY, USA: ACM.
Sonne, T., Marshall, P., Müller, J., Obel, C., & Grønbæk, K. (2016). A Follow-up Study of a Successful Assistive Technology for Children with ADHD and Their
Families. In Proceedings of The 15th International Conference on Interaction Design and Children (pp. 400–407). New York, NY, USA: ACM.
MOBERO
Søvn problemer og ADHD
Anne Virring, Rikke Lambek, Per H. Thomsen, Lene R. Møller, and Poul J. Jennum. 2016. Disturbed sleep in attention-deficit hyperactivity disorder (ADHD) is not a question of psychiatric comorbidity or ADHD
presentation. Journal of Sleep Research. http://doi.org/10.1111/jsr.12377
70%of all children with ADHD have sleep problems
27
28
Indlæring Adfærd Wellbeing Kognitive
Funktioner
Cortese, S. et al. 2009. Sleep in Children With Attention-Deficit/Hyperactivity Disorder: Meta-Analysis of Subjective and Objective Studies. 

Journal of the American Academy of Child & Adolescent Psychiatry
Dewald, J.F. et al. 2010. The influence of sleep quality, sleep duration and sleepiness on school performance in children and adolescents: A meta-analytic review.
Sleep Medicine Reviews.
MOBERO
Søvn problemer og ADHD
Cortese, S. et al. 2009. Sleep in Children With Attention-Deficit/Hyperactivity Disorder: Meta-Analysis of Subjective and Objective Studies.
Journal of the American Academy of Child & Adolescent Psychiatry
Mor: “Der er en råben og skrigen fra alle sider, selv
fra vores, op til 30min før han [barnet] er kommet
seng”
Far: “Når du endelig kommer nedenunder, falder
du simplethen bare om”
Mor: “Der har været gange hvor jeg næsten ikke
har haft kræfter til at lægge ham i seng”
MOBERO
Morning & Bedtime Routines
31
MOBERO
Morning & Bedtime Routines
32
MOBERO
Morning & Bedtime Routines
33
MOBERO
Morning & Bedtime Routines
34
MOBERO
Morning & Bedtime Routines
35
MOBERO
Morning & Bedtime Routines
36
MOBERO
Study Design
37
13 børn med ADHD
4 piger
9.3 gennemsnitsalder
7 tog ADHD medicin
38
39
Baseline
2 uger
Intervention
2 uger
13 Children with ADHD
40
Baseline
2 uger
Intervention
2 uger
41
ADHD Rating Scale-IV
(ADHD-RS)
Faries, D.E. et al. 2001. Validation of the ADHD Rating Scale as a clirlician administered and scored instrument. Journal of Attention Disorders.
42
ADHD Rating Scale-IV
(ADHD-RS)
The Children's
Sleep Habits Questionnaire
(CSHQ)
Owens, J.A. et al. 2000. The Children’s Sleep Habits Questionnaire (CSHQ): psychometric properties of a survey instrument for school-aged children. Sleep.
43
ADHD-RS
CSHQ
Start Baseline Start Intervention End of study
Week 2 Week 4Week 0
ADHD-RS
CSHQ
44
rt Intervention End of study
Week 2 Week 4
ADHD-RS
CSHQ
Week 8
Interviews
End of follow-up study
19%
reduction
ADHD SYMPTOMS
45
ADHD-RS
Parent rated ADHD Symptoms
46
6
11
17
22
Inattention Hyperactivity/Impulsivity Behaviour
8,6
15,8
17,2
11,7
17,9
21,5
Baseline Intervention
10%
improvement
SLEEP QUALITY
47
“[Barnets navn] var selvkørende under sengerutinen”
Baseline
Intervention
0 % 20 % 40 % 60 % 80 % 100 %
2 %
20 %
12 %
15 %
20 %
22 %
38 %
35 %
28 %
7 %
Meget enig Enig Neutral Uenig Meget uenig
48
“Jeg oplevede sengerutinen som frustrerende”
Baseline
Intervention
0 % 20 % 40 % 60 % 80 % 100 %
3 %
20 %
12 %
13 %
20 %
25 %
32 %
32 %
33 %
11 %
Meget uenig Uenig Neutral Enig Meget enig
49
“Also, it [a paper-based tool] is not involving
in the same way, I mean, a piece of paper
appeals to something for adults right?”
QUALITATIVE FINDINGS
The qualities of a technological approach
50
“We have tried several different [physical]
charts, but after a few days there are torn
apart or have vanished. This [MOBERO] is
always there, so that is convenient”
51
QUALITATIVE FINDINGS
The qualities of a technological approach
“Because it is on the phone
he accepts the sequence completely”
QUALITATIVE FINDINGS
Children do not question tasks in MOBERO
52
53
“I do not have to tell him to wash his hands.
Before, he did not want to
and there would be a bloody fight
if he had to wash his hands
– and now he also just does that”
QUALITATIVE FINDINGS
Children do not question tasks in MOBERO
“[…] then he put his socks on, he has never done that
before, but now there is an activity saying “put socks
on”, and then he just does it (laughing)
54
QUALITATIVE FINDINGS
Children do not question tasks in MOBERO
“He thinks today is the worst day in his life
because you come and pick up
the phone [MOBERO]”
55
QUALITATIVE FINDINGS
Children integrated MOBERO into their daily routines
MOBERO
Opsummering
• 4 ugers studie med 13 børn med ADHD
og deres familier der benyttede MOBERO
• Forældrene rapporterede:
• 19% Reduktion i ADHD symptomer
• 10% Forbedret søvnkvalitet
• Lavere frustration hos forældrene
omkring morgen og sengerutiner
• Højere grad af selvstændighed hos
børnene
56
MOBERO
AFRUNDING
• Teknologi holder unikke muligheder for
at forbedre eksisterende praksis,
analoge redskaber og give støtte til
børn med ADHD.
• CASTT, ChillFish og MOBERO er
eksempler på hvordan teknologi kan
støtte og styrke børn med ADHD (og
deres familier).
• Teknologi bør støtte og ikke erstatte
fagprofessionelle og/eller eksisterende
behandlinger.
57
TAK
www.tobiassonne.com
t.sonne@ucl.ac.uk
58
Tobias Sonne
SPØRGSMÅL / KOMMENTARER?
59
www.tobiassonne.com
t.sonne@ucl.ac.uk
Tobias Sonne

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IT støtte til børn med ADHD

  • 2. AGENDA • Introduktion • Koncentrations-støtte (CASTT) • ‘Calming’-støtte(ChillFish) • Søvn-støtte(MOBERO) • Opsummering 2
  • 4. DESIGN PROCESSEN Hands-on training (Center for ADHD) Design processer med ADHD professionelle 
 and familier Empiriske studier med børn med ADHD + familier. Observationer, 
 interviews, og
 litteratur reviews 4
  • 5. AGENDA • Introduktion • Koncentrations-støtte (CASTT) • ‘Calming’-støtte(ChillFish) • Søvn-støtte(MOBERO) • Opsummering 5
  • 6. CASTT Koncentrations-støtte Sonne, T., Marshall, P., Obel, C., Thomsen, P. H., & Grønbæk, K. (2016). An Assistive Technology Design Framework for ADHD. In Proceedings of the Annual Meeting of the Australian Special Interest Group for Computer Human Interaction. New York, NY, USA: ACM. Sonne, T., & Grønbæk, K. (2015). Designing Assistive Technologies for the ADHD Domain. In S. Serino, A. Matic, D. Giakoumis, G. Lopez, & P. Cipresso (Eds.), Pervasive Computing Paradigms for Mental Health (pp. 259–268). Springer International Publishing. https://doi.org/10.1007/978-3-319-32270-4_26
  • 7. CASTT Formål • Objektiv detektering af fysisk og fysiologisk aktivitet • Bruge machine-learning (maskin-læring) til at genkende et udsnit af karakteristiske ADHD bevægelses-mønstre. • Undersøge hvordan teknologi kan støtte børn med ADHD til at vedholde og/eller genvinde koncentrationen i skolesituationer. 7
  • 10. 10 Fem forskellige skoler med: 11 børn uden ADHD 6 børn med ADHD CASTT Empiriske studier
  • 12. BARNETS AKTIVITETSNIVEAU I 2 minutters Intervaller
  • 13. CASTT Opsummering • CASTT er et wearable system som støtter børn med ADHD til at genvinde koncentrationen i skolesituationer. • CASTT var iterativt designet og evalueret med 5 skoler med børn med og uden ADHD. • CASTT studierne viste mulighederne for at støtte et barn med ADHD til at genvinde koncentrationen i ‘kritiske’ skole situationer. 13
  • 14. AGENDA • Introduktion • Koncentrations-støtte (CASTT) • ‘Calming’-støtte(ChillFish) • Søvn-støtte(MOBERO) • Opsummering 14
  • 15. CHILLFISH Calming Assistance 15 Sonne, T., & Jensen, M. M. (2016a). ChillFish: A Respiration Game for Children with ADHD. In Proceedings of the TEI ’16: Tenth International Conference on Tangible, Embedded, and Embodied Interaction (pp. 271–278). New York, NY, USA: ACM. https://doi.org/10.1145/2839462.2839480 Sonne, T., & Jensen, M. M. (2016b). Evaluating the ChillFish Biofeedback Game with Children with ADHD. In Proceedings of the The 15th International Conference on Interaction Design and Children (pp. 529–534). New York, NY, USA: ACM. https://doi.org/10.1145/2930674.2935981
  • 18. CHILLFISH Designet specielt til børn 18 Designed for children
 (Calming and playfull game experience) Uses a tangible LEGO fish to detect breathing patterns +
  • 20. CHILLFISH Study Design (1st study) 20 Play test: ChillFish 2 min Play test: ChillFish 2 min Relaxation exercise 2 min Conversation / introduction 2-4 min Conversation / interview 2-6 min Conversation / interview 2-6 min Play test: Pac-Man 2 min
  • 21. CHILLFISH Quantitative Findings 21 NormalizedHRV(RMMSD) 0 0,15 0,3 0,45 0,6 Talk 1 ChillFish Pac-man ChillFish Talk 2 Relaxation Exercise Talk 3 0,363 0,434 0,332 0,507 0,208 0,424 0,326
  • 22. CHILLFISH 2nd study - Children with ADHD 22
  • 24. CHILLFISH Opsummering • ChillFish er det første biofeedback spil designed specifik til at hjælpe børn med ADHD til at falde til ro og slappe af. • ChillFish er revalueret med både voksne og børn med ADHD • ChillFish giver en ligende eller bedre afslappende effekt end en traditionelt åndedrætsøvelse. • (Bonus) ChillFish er også testet med success på Skejby Sygehus i forbindelse med at børn fik taget blodprøver. 24
  • 25. AGENDA • Introduktion • Koncentrations-støtte (CASTT) • ‘Calming’-støtte(ChillFish) • Søvn-støtte(MOBERO) • Opsummering 25
  • 26. MOBERO Søvn-støtte 26 Sonne, T., Müller, J., Marshall, P., Obel, C., & Grønbæk, K. (2016). Changing Family Practices with Assistive Technology: MOBERO Improves Morning and Bedtime Routines for Children with ADHD. In Proceedings of the 34th Annual ACM Conference on Human Factors in Computing Systems. New York, NY, USA: ACM. Sonne, T., Marshall, P., Müller, J., Obel, C., & Grønbæk, K. (2016). A Follow-up Study of a Successful Assistive Technology for Children with ADHD and Their Families. In Proceedings of The 15th International Conference on Interaction Design and Children (pp. 400–407). New York, NY, USA: ACM.
  • 27. MOBERO Søvn problemer og ADHD Anne Virring, Rikke Lambek, Per H. Thomsen, Lene R. Møller, and Poul J. Jennum. 2016. Disturbed sleep in attention-deficit hyperactivity disorder (ADHD) is not a question of psychiatric comorbidity or ADHD presentation. Journal of Sleep Research. http://doi.org/10.1111/jsr.12377 70%of all children with ADHD have sleep problems 27
  • 28. 28 Indlæring Adfærd Wellbeing Kognitive Funktioner Cortese, S. et al. 2009. Sleep in Children With Attention-Deficit/Hyperactivity Disorder: Meta-Analysis of Subjective and Objective Studies. 
 Journal of the American Academy of Child & Adolescent Psychiatry Dewald, J.F. et al. 2010. The influence of sleep quality, sleep duration and sleepiness on school performance in children and adolescents: A meta-analytic review. Sleep Medicine Reviews. MOBERO Søvn problemer og ADHD
  • 29. Cortese, S. et al. 2009. Sleep in Children With Attention-Deficit/Hyperactivity Disorder: Meta-Analysis of Subjective and Objective Studies. Journal of the American Academy of Child & Adolescent Psychiatry
  • 30. Mor: “Der er en råben og skrigen fra alle sider, selv fra vores, op til 30min før han [barnet] er kommet seng” Far: “Når du endelig kommer nedenunder, falder du simplethen bare om” Mor: “Der har været gange hvor jeg næsten ikke har haft kræfter til at lægge ham i seng”
  • 38. 13 børn med ADHD 4 piger 9.3 gennemsnitsalder 7 tog ADHD medicin 38
  • 41. 41 ADHD Rating Scale-IV (ADHD-RS) Faries, D.E. et al. 2001. Validation of the ADHD Rating Scale as a clirlician administered and scored instrument. Journal of Attention Disorders.
  • 42. 42 ADHD Rating Scale-IV (ADHD-RS) The Children's Sleep Habits Questionnaire (CSHQ) Owens, J.A. et al. 2000. The Children’s Sleep Habits Questionnaire (CSHQ): psychometric properties of a survey instrument for school-aged children. Sleep.
  • 43. 43 ADHD-RS CSHQ Start Baseline Start Intervention End of study Week 2 Week 4Week 0 ADHD-RS CSHQ
  • 44. 44 rt Intervention End of study Week 2 Week 4 ADHD-RS CSHQ Week 8 Interviews End of follow-up study
  • 46. ADHD-RS Parent rated ADHD Symptoms 46 6 11 17 22 Inattention Hyperactivity/Impulsivity Behaviour 8,6 15,8 17,2 11,7 17,9 21,5 Baseline Intervention
  • 48. “[Barnets navn] var selvkørende under sengerutinen” Baseline Intervention 0 % 20 % 40 % 60 % 80 % 100 % 2 % 20 % 12 % 15 % 20 % 22 % 38 % 35 % 28 % 7 % Meget enig Enig Neutral Uenig Meget uenig 48
  • 49. “Jeg oplevede sengerutinen som frustrerende” Baseline Intervention 0 % 20 % 40 % 60 % 80 % 100 % 3 % 20 % 12 % 13 % 20 % 25 % 32 % 32 % 33 % 11 % Meget uenig Uenig Neutral Enig Meget enig 49
  • 50. “Also, it [a paper-based tool] is not involving in the same way, I mean, a piece of paper appeals to something for adults right?” QUALITATIVE FINDINGS The qualities of a technological approach 50
  • 51. “We have tried several different [physical] charts, but after a few days there are torn apart or have vanished. This [MOBERO] is always there, so that is convenient” 51 QUALITATIVE FINDINGS The qualities of a technological approach
  • 52. “Because it is on the phone he accepts the sequence completely” QUALITATIVE FINDINGS Children do not question tasks in MOBERO 52
  • 53. 53 “I do not have to tell him to wash his hands. Before, he did not want to and there would be a bloody fight if he had to wash his hands – and now he also just does that” QUALITATIVE FINDINGS Children do not question tasks in MOBERO
  • 54. “[…] then he put his socks on, he has never done that before, but now there is an activity saying “put socks on”, and then he just does it (laughing) 54 QUALITATIVE FINDINGS Children do not question tasks in MOBERO
  • 55. “He thinks today is the worst day in his life because you come and pick up the phone [MOBERO]” 55 QUALITATIVE FINDINGS Children integrated MOBERO into their daily routines
  • 56. MOBERO Opsummering • 4 ugers studie med 13 børn med ADHD og deres familier der benyttede MOBERO • Forældrene rapporterede: • 19% Reduktion i ADHD symptomer • 10% Forbedret søvnkvalitet • Lavere frustration hos forældrene omkring morgen og sengerutiner • Højere grad af selvstændighed hos børnene 56 MOBERO
  • 57. AFRUNDING • Teknologi holder unikke muligheder for at forbedre eksisterende praksis, analoge redskaber og give støtte til børn med ADHD. • CASTT, ChillFish og MOBERO er eksempler på hvordan teknologi kan støtte og styrke børn med ADHD (og deres familier). • Teknologi bør støtte og ikke erstatte fagprofessionelle og/eller eksisterende behandlinger. 57