IAOS-OECD 2018 conference, 19-21 September 2018, Paris. More information at: http://www.oecd.org/iaos2018/

1. Official statistics and
Indigenous People – the
state of play and recent
developments
Paper prepared for the 16th Conference of IAOS
OECD Headquarters, Paris, France, 19-21 September 2018
Per Axelsson
Umeå University, Umeå, Sweden

2. SWEDEN
– THE LANCET-LOWITJA STUDY
(2016)
“Sweden’s inability to disaggregate data by
ethnicity means that it is unable to monitor the
health status of its Indigenous population and
respond accordingly through policy and service
delivery.”
Anderson I, Robson B, Connolly M, Al-Yaman F, Bjertness E,
King A, et al (incl. Axelsson P). Indigenous and tribal peoples' health
(The Lancet-Lowitja Institute Global Collaboration) : a population study.
THE LANCET. 2016;388(10040):131-57.

3. Indigenous Data
Sovereignty:
GLOBAL PROGRESSION
Please cite as:
Rainie, Stephanie Carroll, Maggie Walter, Per Axelsson, Maui Hudson, Jennifer Walker, and Oscar Figueroa-Rodríguez.
(2018). Indigenous Data Sovereignty: Global Progression. Presented at the Tenth Annual Native American and Indigenous
Studies Association Meeting. 18 May 2018. Los Angeles.
Stephanie Carroll Rainie, University of Arizona, US
Maggie Walter, University of Tasmania, Australia
Per Axelsson, Umea University, Sweden
Maui Hudson, University of Waikato, Aotearoa
Jennifer Walker, Laurentian University, Canada
Oscar Figueroa-Rodríguez, Campus Montecillo, Colegio
de Postgraduados, Mexico

4. INDIGENOUS DATA
SOVEREIGNTYThe right of Indigenous peoples and nations to
govern the collection, ownership, and application of
their own data.
Derives from
inherent rights to
govern their
peoples, lands, and
resources.
1
Genesis in
traditions, roles,
and responsibilities
for the use of
community held
information.
2
Knowledge
belongs to the
collective and is
fundamental to
who we are as
peoples.
4
Definition from Rodriguez-Lonebear, D., and Rainie, S.C. (2016). US Indigenous Data Sovereignty founding documents.
Much of the language regarding rights and framing comes from the charter of Te Mana Raraunga, the Maori Data Sovereignty Network in Aotearoa/New Zealand founded in July 2015.
Available at www.tmr.maori.nz.
3
Positioned within
human rights
framework and
court cases,
treaties, and/or
recognition.

5. WHAT ARE INDIGENOUS DATA?
Data, information, and knowledge, in any format, that impacts
Indigenous lives at the collective and individual levels:
DATA ABOUT US AS
INDIVIDUALS
Administrative, legal,
health, education,
economic, social,
commercial, corporate,
services, etc.
DATA ABOUT OUR
RESOURCES AND
ENVIRONMENTS
Land, water, geology,
titles, air, soil, sacred
sites, territories,
plants, animals, etc.
DATA ABOUT US AS
NATIONS/
COLLECTIVES
Traditional and
cultural information,
archives, oral
histories, literature,
ancestral and clan
knowledge, stories,
belongings, etc.
Informed by British Columbia First Nations Data Governance Institute - BCFNDGI.COM

6. Senter for samisk
helseforskning
Det helsevitenskapelige
fakultet
Helse og levekårsundersøkelsen i
områder med samisk og norsk
SAMINOR
Senter for samisk
helseforskning
Det helsevitenskapelige
fakultet
Forskningsleder Dr. Med
Ann Ragnhild Broderstad

7. PRESSRELEASE SWEDISH GOVERNMENT:
AUGUST 2018

8. OLLU GIITU! JIJNJH GYJHTELES!
THANKS!
Contact:
Per.axelsson@umu.se