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Health and Wellness Information
for Librarians
Dave Castelli
Trudy Jorgensen-Price
#ula2016
Paging Dr. Google
Wikipedia Pages Updated
After drug safety warning
within 2 weeks Ave 42 days unchanged
Medical Reporting in Popular
Media
Does it matter who the reporter is?
HealthNewsReview.org
The importance of health literacy
Health literacy affects your health
filing out health forms
understanding what the doctor is saying to you
following doctors recommendations
following prescription medication instructions
agreeing to treatments
Health Literacy
Chart retrieved from:http://health.gov/communication/literacy/issuebrief/#survey
The CRAAP Test
C
R
A
A
P
urrency
elevancy
uthority
ccuracy
urpose
Dr. Oz
WebMD
Almost always in your top 10 search
results—so can we trust it?
MedlinePlus.gov
MayoClinic.org
Complementary and Integrative
Medicine
https://Nccih.nlm.gov
Association Webpages
Diabetes.org
Cancer.org & cancer.gov
Aafa.org
Heart.org
Mentalhealth.gov
Medical Library Association
www.mlanet.org
Other ways to get the training you
need: The Medical Library
Association can help!
• Consumer Health Information Specialist (CHIS)
• Academy of Health Information Professionals
(AHIP)
CHIS
Help you keep current in the consumer health
information field
Level I
• 12 hours in approved CHIS courses
• basic familiarity with consumer health information
resources
Level II
• 24 hours in approved CHIS courses
• additional training in consumer health areas
AHIP
• Academy of Health Information Professionals
– MLA’s professional development program
– Progress depends on medical library experience,
conference attendance, writing, research,
presenting, etc.
– CHIS credits can be applied
Health Information
• Population Health
– Providers are rewarded for keeping patients
healthy
– Increased patient interest
– Increased patient use of Internet
• Drug information
• Symptom checkers
And then what about Healthy
Living information?
Mayohealth.org
Healthfinder.gov
Toxnet.gov
Choosemyplate.gov
Whatscooking.fns.usda.gov
The Nudge
The best tool?
Load it up!
Use and protect it!
Health Information Landscape
• NLM apps
https://www.nlm.nih.go
v/mobile/
• U-Bar
http://healthcare.utah.
edu/hospital/library/u-
bar-apps.php
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Health and Wellness Information for Librarians

Editor's Notes

  1. According to the Pew Research Internet Project, in 2013 "59% of U.S. adults say they have looked online for information about a range of health topics in the past year. 35% of U.S. adults say they have gone online specifically to try to figure out what medical condition they or someone else might have.“ Consider all of the possibilities Health sites Drug sites Commercial sites (drug stores, insurance companies, patient information, etc) Nutrition sites Complimentary or alternative medicine web sites Blogs Facebook sites Entertainment sites (like Dr Oz) Researchers found that when the FDA issues a drug safety warning, Google searches about that drug increase 82% on average in the following week. Wikipedia pages about the drug see a 175% increase in views on the day of the announcement.
  2. [The paper, titled “Drug Safety in the Digital Age," primarily focused on how quickly these web sources were updated with information concerning drug labels and warnings. The study examined the Wikipedia pages for their safety warning content, as well as their timeliness in updating drug safety information, for 22 prescription drugs over a 2-year period.] More than one third of the Wikipedia pages in the study were updated within 2 weeks of an FDA announcement, according to the paper.  More prevalent diseases (defined as affecting more than 1 million people in the United States) were more likely to be updated in this time frame than the less prevalent conditions. About 23% of the Wikipedia pages were updated more than 2 weeks after an FDA announcement, taking, on average, 42 days to post the new information. More than a third of the website's pages remained unchanged more than one year later, according to the study
  3. So our patron comes in because they have seen something on the internet or on the news…. A small little bit of news. We need to be aware of how that information comes into being…. As I am sure you are aware, scientific and medical research almost never gives us clear cut answers. They do not conduct a study and find the one true answer for everyone. If everyone, everywhere does this one thing their cardiovascular health will definitely improve. Instead, a scientist conducts a very complicated study and determines that something has a statistically significant positive impact on cardiovascular health in certain people under certain circumstances and more study should be done. This is not an awesome headline. We are on a 24 hour news cycle with a lot of sound bite sized information and the market is competitive so it has be turned into an great headline. So information is condensed, simplified and sensationalized to grab our attention. So the finding go from chemical in red wine has statistically significant impact on cardiovascular health to a glass of red wine every day is good for your heart. “Finding Reliable Information Online: Adventures of an Information Sleuth” by Leslie Stebbins HealthNewsReview.org can help you parse the strength of the data.
  4. Health Literacy affects everyone’s lives. Filing out forms at the doctors office so that they are accurate and the doctor knows the things they need to know Understanding what the doctor is telling you –understanding that Hypertension is… high blood pressure. Angina is chest pain. How to take prescription medication Agreeing to treatment– when you sign the form at the hospital agreeing to a hysterectomy you should know that they are going to be removing your uterus.
  5. According to US Department of Education, Institute of Education Sciences: Only 12% of US adults have proficient health literacy— over 1/3rd of adults would have trouble with common health tasks, such as following directions on prescription medication or adhering to a childhood immunization schedule 14% below basic literacy– the ablitiy to tell what they could drink before a medical test Age & education effect literacy levels… ages 65-75 only 5% are considered proficient and over age 75, only 1% are proficient Health and the city on youtube
  6. You all know how to evaluate a website so we won’t spend much time– but a reminder about how important it is on medical information websites. They are tricky. Even if they seem like reputable sources, sometimes they are not. There is a simple acronym that I like to use to remember how to evaluate a website. The CRAAP test. It is easy to remember because you want to know if your site is CRAAP or not.
  7. CRAAP stands for currency, relevancy, authority, accuracy and purpose. Check the four corners, top and bottom of websites…. Check for dates and authority. Especially check for purpose… a lot of websites are selling something, even when it seems like they aren’t
  8. A lot of people get medical and medication information from sources like Dr. Oz. Dr. Oz is indeed a doctor. He is on the faculty at Columbia Medical School. Should be good information, but check the website carefully… if you look at the fine print at the bottom of the site you will see that it is “for entertainment purposes only” Be careful out there.
  9. Let’s talk about this one because it comes up in the top 10 of google searches all the time. It is run and curated by doctors—so that part is good. This website makes a lot of money selling advertising to pharmaceutical companies. So they get paid by the click. There is nothing on this website that you can get to all of the content on in less than 6 clicks. The results tend toward the alarmist. You are almost always told to see a doctor or ask about a medication. No list of sponsors readily findable It is much better since new leadership about a year ago and the dust-up in 2010 that exposed a quiz on their site about depression… could this anti-depressant help you?.... Sort of quiz. And no matter what answers you gave it told you to ask your doctor to give you this medication. They have gotten better since them, but still be wary.
  10. This is the #1 “go-to” site for consumer health information Vetted information No ads Easily searchable In Spanish Health Topics—Here you can find commonly searched medical conditions, complimentary medicine, topics for different demographic groups and health and wellness information If you don’t see your topic use the a-z list… click on the letter*, scroll to your topic*, information and links are at your fingertips Also note that there is information on prescription medications, over the counter medications, herbs and supplements There are videos—of surgeries, tutorials, games and other loaded content Medical encyclopedia Links to easy to read materials, health information in multiple languages (46) and links to organizations that can have more information
  11. There is advertising on Mayo Clinic—mostly for The Mayo Clinic and its services This really is sponsored and run by the Mayo Clinic, so it is curated by doctors and health professionals The information is reliable and not alarmist Under patient care and health information there are many easy to use links.* The Symptom Checker is nice feature you can look up a symptom you are having and it will try to narrow things down for you Scroll to the bottom of the page and you get the health information links*
  12. A lot of people are using or want to try using alternative, complementary and integrative health care– acupuncture, herbal medicine, and things like that. National center for complementary and integrative health is a great resource. Many claims made about herbs, supplements and other types of cures… this site follows the science. Claims may be true and not yet proven… but this site follows the science. Again it is vetted information, no advertising, reliable. *Under Health info—there are topics a-z, herbs at a glance, information in Spanish and some great tutorials and videos about knowing the science and how to be an informed consumer
  13. Association websites can also be a great resource. One has to be careful in evaluating them because some organizations are sponsored by pharmaceuticals or other advertisers and are not giving unbiased information. However, there are many good ones. American Diabetes Association American Cancer Association National Cancer Institute Asthma & Allergy Foundation of America American Heart Association US Department of Health and Human Services
  14. And in true librarian form, the Medical Library Association has some helpful information on their website If you go to the Patients tab* You get a tutorial on how to find good health information A wonderful “what did my doctor say it breaks down the parts of medical terminology for you so that you can parse out the meaning for example “ectomy”… it tells you that this is the end of the word and it means taking away by surgery. So an appendectomy is a surgery to take out your appendix A link to a list of Top Health Websites according to the Medical Library Association as well as special link to cancer information
  15. IHC libraries are open to the public as well as being available for doctors, nurses, pharmacists and other staff. We have access to a lot of medical journals. If you get stuck on something– call us. We are happy to help you. We have the same issue at our reference desk that you have… people saying they are sorry to bother us….. Bother us… it is why we are here.
  16. Another thing you can do is gain some training or certification The medical library association offers 2 certification courses
  17. Courses are in two major sections Administration and management courses, e.g. the essentials of providing health information service Specialty consumer health courses; e.g. “Will Duct Tape Cure My Warts” and “From A(norexia) to Z(its): Providing Health Information to Teens” The classes are mostly free. If you don’t want the certification, but still want to take the classes there is great information. Not a huge time investment.
  18. Activities tend to be more professional in nature Aimed at building and maintaining a career in medical librarianship
  19. Another change going on in our country right now is a focus on … Symptom checkers are a real boom to cyberchondriacs everywhere! What we see in the library then is an emphasis in the kind of information we seek (vs medical information)
  20. Choosemyplate—supertracker can help you plan, analyze, and track how much to eat, physical activity, weight, personalize goals, journaling, etc
  21. Health: “the condition of being sound in body, mind, or spirit; especially :  freedom from physical disease or pain Wellness : “the quality or state of being in good health especially as an actively sought goal” Is a wellness site commercial? Do they help you live in a state of health? Promote mental wellness? I submit to you that we are trying to figure this out Sometimes the nudge you need can come from data you collect about yourself, free from biases…
  22. Wearables Pedometer FitBit Jawbone You might already have the best tool to promote good health and motive yourself – Your smart phone! What’s under the hood (firmware)? GPS makes a lot of other things possible (features of apps) Accelerometer works by detecting changes from point A to point B Walking, jogging motion is detected by the same method Also by detecting constant movement, swinging, etc. Bike riding / exercise map Altimeter Pedometer Gyroscope Recognize the change Track change in behavior No need to buy a specialized piece of equipment
  23. Apps Food trackers Calorie counters General fitness trackers Home workouts Gym workouts Women’s workouts Zoomba trackers Water drink reminders Glucose trackers Sleep trackers Add a Bluetooth heart rate monitor, too! Look for apps that have a social component to them for encouragement from others (Some may not want this feature!) Don’t forget OneClick Digital or Overdrive apps to listen to your favorite author while working out! Look for apps that don’t have to be turned on and off If power is a concern look for those that run in the background Delivers the “nudge” in several ways (visual, social, fitness data) and in the process increases mindfulness and overall wellness
  24. Incase sports armband Otterbox Running belts/fanny packs for all sizes Mounting kit to keep phone on your bike (while it’s tracking your ride) Belt clips and holsters Ensures you keep getting the info you need
  25. Health information landscape is changing Learn more about how you can identify quality medical and wellness information Mobile devices give your patrons a wealth of information to make healthy choices NLM resources and apps And don’t forget the U-Bar at the Hope Fox Eccles Library at the University Hospital, where you can try out several apps