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EUPATI 2015 Workshop, 22 April 2015, Dublin
EUPATI TAKING OFF IN YOUR COUNTRY – An Interactive Workshop on Implementing
EUPATI in Your Country
Report from Break-Out Group 1
Make it work nationally (for EUPATI Countries
where an ENP is set up)
The project is receiving support from the Innovative Medicines Initiative Joint Undertaking under grant agreement n° 115334, resources of which are composed
of financial contribution from the European Union's Seventh Framework Programme (FP7/2007-2013) and EFPIA companies.
What are some of the benefits of having an
ENP? Are there early signs of added value?
 Central point for questions from natl health policy
& decision-makers groups.
 Diverse groups of national partners speaking with
one voice. Communicating a united message.
 Connecting the dots in terms of individals & orgs
who are interested in patient involvement.
 Perception of multi-sectoral cooperation (pat org,
acad/res, govt, pharma).
 One group to address key issues across nation.
 Getting funders coalesced together around the
table.
Who are some of the national partners?
What might their contributions be?
 All interested patients
 Patient organizations (IT has > 9,000!) – casting
wider net of invitations.
 Academic & research, clinical trials orgs.(strategy
& knowledge & teaching)
 Ministry of Health or other national institutions,
like regulatory authority, institutes of
health.(funding & strategy)
 Healthcare professional associations
 Ethics committees at hospitals & jurisdictions.
 Pharma associations or multiple companies.
 Journalist and media channels. (communication)
What might be some of the strategic
priorities?
 Passing on knowledge of EUPATI trainees to
wider audience (multiplier effect).
 Joining up of the dots in terms of strengthening
partnerships.
 Communicating the existence of new tools, linking
up the players and message broadcast
 Governance of the platform/network.
What does success look like in our
country?
 People aware of each other
 Partners on board (MOUs, institutional buy-in).
 Funds secured from a variety of sources in a
sustainable manner.
 Doors opening, new avenues.
 National Platform/network becomes the ’go-to.’
What do ENPs have in common?
 Each much build relationships, strategic
partnerships, and networks.
 Must decide main role: router, do-er, sign poster,
or portal?
 Case studies to learn from those ENPs further
ahead (IT, ES, IE).
 Each partner has partners and affiliates –
multiplier effect to spread the word.
 Some issues are country-specific (e.g. HTAs).
 Through this networking exists an informal forum
to share ideas and materials.

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G1 report from breakout group 1

  • 1. EUPATI 2015 Workshop, 22 April 2015, Dublin EUPATI TAKING OFF IN YOUR COUNTRY – An Interactive Workshop on Implementing EUPATI in Your Country Report from Break-Out Group 1 Make it work nationally (for EUPATI Countries where an ENP is set up) The project is receiving support from the Innovative Medicines Initiative Joint Undertaking under grant agreement n° 115334, resources of which are composed of financial contribution from the European Union's Seventh Framework Programme (FP7/2007-2013) and EFPIA companies.
  • 2. What are some of the benefits of having an ENP? Are there early signs of added value?  Central point for questions from natl health policy & decision-makers groups.  Diverse groups of national partners speaking with one voice. Communicating a united message.  Connecting the dots in terms of individals & orgs who are interested in patient involvement.  Perception of multi-sectoral cooperation (pat org, acad/res, govt, pharma).  One group to address key issues across nation.  Getting funders coalesced together around the table.
  • 3. Who are some of the national partners? What might their contributions be?  All interested patients  Patient organizations (IT has > 9,000!) – casting wider net of invitations.  Academic & research, clinical trials orgs.(strategy & knowledge & teaching)  Ministry of Health or other national institutions, like regulatory authority, institutes of health.(funding & strategy)  Healthcare professional associations  Ethics committees at hospitals & jurisdictions.  Pharma associations or multiple companies.  Journalist and media channels. (communication)
  • 4. What might be some of the strategic priorities?  Passing on knowledge of EUPATI trainees to wider audience (multiplier effect).  Joining up of the dots in terms of strengthening partnerships.  Communicating the existence of new tools, linking up the players and message broadcast  Governance of the platform/network.
  • 5. What does success look like in our country?  People aware of each other  Partners on board (MOUs, institutional buy-in).  Funds secured from a variety of sources in a sustainable manner.  Doors opening, new avenues.  National Platform/network becomes the ’go-to.’
  • 6. What do ENPs have in common?  Each much build relationships, strategic partnerships, and networks.  Must decide main role: router, do-er, sign poster, or portal?  Case studies to learn from those ENPs further ahead (IT, ES, IE).  Each partner has partners and affiliates – multiplier effect to spread the word.  Some issues are country-specific (e.g. HTAs).  Through this networking exists an informal forum to share ideas and materials.