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From Parenting to a Professional:  One Parent’s Journey Presented by:  Nichole Pangle
About Me ,[object Object],[object Object],[object Object]
The Journey Begins Matthew David Pangle  April 9, 2007
The First Year Matthew’s first year of development was typical, and often accelerated!
[object Object],[object Object],[object Object],[object Object],Milestones
[object Object],[object Object],[object Object],[object Object],Milestones
Other Milestones ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Health Issues During the First Year ,[object Object],[object Object],[object Object]
Then Came Change ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Questions ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Professional Connects with Mom ,[object Object]
Concerns At Matty’s 18 month check-up, we talked to our pediatrician and said we had some concerns about regression.  We were told not to worry about Autism because Matty seemed social.
Our First Evaluation I wasn’t satisfied with my pediatrician’s evaluation.  In November, I contacted the Infant-Toddler Connection to schedule an evaluation.
Results ,[object Object]
December-January 2008 ,[object Object],[object Object]
Playing the Waiting Game ,[object Object]
April 13, 2009 ,[object Object]
“ Your child has Autism.”
Learning to Intervene ,[object Object],[object Object],[object Object],[object Object]
May 2009—Beginning Intervention ,[object Object],[object Object],[object Object]
June 2009 ,[object Object]
July 2009 ,[object Object],[object Object],[object Object],[object Object],[object Object]
August-September ,[object Object]
Dietary Interventions ,[object Object],[object Object],NO!!!! NO!!!!
October ,[object Object]
Other Interventions ,[object Object],[object Object],[object Object],[object Object]
Making Progress!! ,[object Object],[object Object],[object Object],[object Object]
More Services ,[object Object],[object Object],[object Object],[object Object]
A typical day…if there is such a thing! ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
The Road We have Chosen:  Matty’s Current Course of Treatments ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Looking Ahead ,[object Object]
About A.I.I ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
How Participants are Taught ,[object Object],[object Object],[object Object],[object Object]
Community Involvement is a Must! ,[object Object]
The A.I.I Program will offer opportunities ,[object Object],[object Object]

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Essential pieces presentation

  • 1. From Parenting to a Professional: One Parent’s Journey Presented by: Nichole Pangle
  • 2.
  • 3. The Journey Begins Matthew David Pangle April 9, 2007
  • 4. The First Year Matthew’s first year of development was typical, and often accelerated!
  • 5.
  • 6.
  • 7.
  • 8.
  • 9.
  • 10.
  • 11.
  • 12. Concerns At Matty’s 18 month check-up, we talked to our pediatrician and said we had some concerns about regression. We were told not to worry about Autism because Matty seemed social.
  • 13. Our First Evaluation I wasn’t satisfied with my pediatrician’s evaluation. In November, I contacted the Infant-Toddler Connection to schedule an evaluation.
  • 14.
  • 15.
  • 16.
  • 17.
  • 18. “ Your child has Autism.”
  • 19.
  • 20.
  • 21.
  • 22.
  • 23.
  • 24.
  • 25.
  • 26.
  • 27.
  • 28.
  • 29.
  • 30.
  • 31.
  • 32.
  • 33.
  • 34.
  • 35.

Editor's Notes

  1. Matthew David Pangle came into the world on April 9, 2007, weighing in at 6 lbs. and 9 ounces.
  2. At 5 weeks old, Matthew began turning blue while drinking his bottle. We were told to switch him to soy formula, which initially helped. He chronically cried after the colic period and we were informed it was acid reflux disorder and were prescribed Zantac. From 6 months to 12 months, he had approximately four seizures and was hospitalized once. No results ever indicated epilepsy.
  3. My first indicator something was wrong? He stopped looking at me and smiling for the camera, something he always loved to do.
  4. Social=he made eye contact during the visit
  5. Concerns noted were: not pointing and loss of language.
  6. Matty continued to regress, and eventually stopped talking all together. We scheduled an evaluation to have his hearing tested. There was a possibility of some hearing loss, so a consultation at UVA was scheduled. We also scheduled a developmental evaluation.
  7. Four days after his second birthday and a 30 minute consultation, we were informed that Matty had Autism. We were told to enroll him in school as soon as possible, given a packet of information, and the doctor left the room.
  8. These services all took place in the home. Speech therapy included working on pointing to pictures, labeling food and having him bring the picture to me and using sign language. Developmental therapy included using toys appropriately, interacting, decreasing sensory defensiveness and working on everyday living skills.
  9. Child Find is a component of Individuals with Disabilities Education Act (IDEA) that requires states to identify, locate, and evaluate all children with disabilities, aged birth to 21, who are in need of early intervention or special education services. This is a two hour meeting that goes over developmental history, parental concerns, medical issues, etc.
  10. Did I mention that my husband had to leave for three months for a training in Georgia?
  11. He continued receiving speech and developmental therapy during the school evaluation process.
  12. Unfortunately, gluten and casein free foods generally cost 3X as much as regular food, and are often difficult to find. I began cooking everything from scratch so I knew what my child was eating and that he was getting proper nutrition.
  13. Toward the end of the school he attended school three days a week
  14. Every now and then, he would try to speak
  15. Did I mention the closest place without a waiting list was Sterling?
  16. Matty receives 15 hours a week of intensive in-home therapy services, which focus on his communication skills, adaptive functioning, community relationships, social interaction, etc. He is currently on local waiting lists for speech and physical therapy.