ripfa NCASC 2012 presentation: User-Led Organisations


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A presentation on User-Led Organisations. This was done at the NCASC 2012 in Eastbourne, done jointly with research in practice for adults and the Strengthening DPULOs Programme.

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  • research in practice for adults 01/11/12
  • Disability Equality North West – met with Mark to talk about their work in Preston and across Lancashire Services provided: Information and advice service – welfare rights, employment, law, human rights, leisure Client liaison service – cross- cutting advocacy, we provide advice across all areas Volunteering and volunteering bureau – supports the disabled person who volunteers and also the agency who takes them as a volunteer Training Disabled people’s network – opportunities to get together Campaigns – short-lived Website and newsletter We are a base for disabled people to access anything, we are a good place to start. research in practice for adults 01/11/12
  • Our strength is being close to people who use the service, we are user-led, user-owned and directed More rapid contact with people on receiving end of services – cost and time savings ULOs are more agile and can react more quickly We can work across gaps and cross-cutting issues research in practice for adults 01/11/12
  • All of our volunteers have experience of disability as a disabled person or a carer, I noticed that there was a dearth of opportunities in other agencies, many were actually frightened of taking on people with support needs for various reasons, so we worked with agencies that had a history of volunteering but no experience of working with disabled people, we matched people up and supported them, this raises awareness and reduces discrimination Diversity arts festival with Preston council – that was an arts festival around disability arts, it was about raising awareness and visibility We are part of the single point of contact, Help Direct, have built up good working relationships, they refer to us and we can refer to them, we have local knowledge More specifically, at the moment we are part of community pathway, we provide a one-to-one support planning process, the LA resources this It is a step forward to have another agency involved in support planning rather than the LA who are going to pay for it research in practice for adults 01/11/12
  • Discrimination – quite straightforward barriers that could be removed Resources – it is a constant battle to raise funds, can turn you into a funding-led organisation Need more effective way of getting resources and staying with our mission – not just resources but also skills Better communication – need clarity about what consultations are for, what people can expect research in practice for adults 01/11/12
  • ripfa NCASC 2012 presentation: User-Led Organisations

    1. 1. NCASC 2012: User-Led Organisationsand Social CareRich Watts, Strengthening ULOs ProgrammeGerry Nosowska, research in practice foradults
    2. 2. Overview Which problems are ULOs a solution to? What’s the evidence they’re a solution? You’ve convinced me: what do I do next?
    3. 3. The demand side: questionsyou might be asking yourself What is a ULO? What do they do? How does this support me in my work? So?
    4. 4. What is a ULO? At least 75% of Management Board are disabled people At least 50% of staff are disabled people At least 50% of volunteers are disabled people Works from the social model of disability perspective  (Or working towards the above) Around 350  Significant variation  Across the country  In shape and size  How can commissioners be expected to work with organisations which they might not even know are there?
    5. 5. What problems are they asolution to? (1) ULOs do the voice side of things very well  Local Involvement Networks: saved £4.30 for every £1 invested  Community development: saved £3.80 for every £1 invested  POET survey: good support for navigating the care system vital ODI’s Support, Advocacy & Brokerage Project  People have more control over their care and support  People feel they achieve more through their care and support Demos Counting the Costs report  Examples of coproduction to make difficult decisions  Mitigates or minimises effects of these choices
    6. 6. What problems are they asolution to? (2) IAG – 89% of all people who went through a peer-led IAG service took up a DP, compared to 13% nationally Support planning – 100% of all people who went through peer-led approach took up a DP, compared to 17% locally Peer-led approaches save money  Leeds User-Led Crisis Centre – saves £28k/year by reducing acute hospital days  Support, Time & Recovery peer-led model – saved £120k/year  More complex referrals in a more personalised way Disability hate crime reporting – higher incidence Healthwatch, employment, housing etc. Three in five people (59%) trust services more
    7. 7. Example:Disability Equality North West We are a base for disabled people to access anything, we are a good place to start.
    8. 8. Strengths We inhabit and work in the gaps between other services
    9. 9. Examples Volunteer bureau Diversity Arts Festival Help Direct One-to-one support planning
    10. 10. How local authorities can help Working more closely together, more as human beings, would be good
    11. 11. The supply side:ULO challenges Independence Professionalisation Building constructive, positive relationships whilst also being a critical friend and staying true to your values Recognising PBs and personalisation represent an opportunity As well as…  Governance  Business skills  Linking with other relevant organisations
    12. 12. What can be done? Significant commissioning options  E.g. reserving contracts (Article 19) Contracts for voice-related work Work together to deliver value for money at a time of austerity Strategic partnerships (incl secondments) Health & Wellbeing Boards and local HealthWatch organisations Section 106 agreements
    13. 13. What support is available?(1) Strengthening ULOs Programme  15 local Ambassadors  £3m Facilitation Fund specifically for ULOs  Key is to focus on sustainability  Chance to develop ideas to put them into practice    Twitter - #dpulo
    14. 14. What support is available?(2) ripfa work  Key Issues publication on ULOs  Strategic Briefing  Customer Guide  Dedicated website section on ULOs  Support for organisational change  Forum and network support  
    15. 15. Thanks and contact details Gerry Nosowska  Research & Development Manager, ripfa   01803 847262 Rich Watts  National Lead, Strengthening ULOs Programme   07595 345235  Twitter – @rich_w