- The document discusses poverty and disability in the United States, noting that people with disabilities experience the highest rates of poverty of any subpopulation. It presents data showing that 27.9% of people with disabilities lived in poverty in 2010. - It argues that a "cyclical dependency model" results in long-term impoverishment for people with disabilities, while a "self-sufficiency investment model" enables independence and community participation. Community-based services are more cost-effective than institutionalization and can help people with disabilities work and be self-sufficient. - The document calls for transformational leadership and a shift toward policies that focus on the abilities of people with disabilities rather than their limitations in order to promote

1. CHANGING THE DISABILITY-POVERTY PARADIGM CHALLENGING THE DEPENDENCY PARADOX IN POLICY, MONEY & HUMAN SERVICES

3. THUS FAR, WE HAVE MADE THE SHIFT FROM THIS…… To……..

4. WORK PLAY FAMILY & FRIENDS

5. POVERTY BY THE NUMBERS U.S. Census Bureau (13 September 2011) 46.2 million Americans were living in poverty in 2010. Persons with Disabilities experienced the highest rates of poverty of any other subcategory of Americans for the tenth year in a row. SUBPOPULATION 2009 Poverty Rate 2010 Poverty Rate Children 20.7% 22.0% African-American 25.8% 27.4% Hispanic 25.3% 26.6% Disability 25.0% 27.9% Total U.S. Population 14.3% 15.1%

6. POVERTY AND DISABILITY: MONEY IS THE NOT ALWAYS THE PROBLEM; SOMETIMES IT’S AN ISSUE OF PRIORITY Figure 1. Percentage of Estimated Federal and State Expenditures for Working-Age People with Disabilities by Major Expenditure Category, Fiscal Year 2008 [1] [1] Adapted from Livermore, Stapleton and O’Toole (2011, Health Affairs) $357 Billion in FY2008

7. WHAT DOES $357 BILLION BUY US IN TERMS OF OUTCOMES?

8. WE HAVE PROOF THAT PEOPLE CAN WORK WHEN SERVICES FOCUS ON EMPLOYMENT 2009 – UMASS Boston ICI ID/DD Agency Survey Success in employment varies widely 2009 Washington State (88 %) Oklahoma (60%) Connecticut (54%) Louisiana (47%) New Hampshire (46%)

10. TODAY’S FISCAL CRISES IS NOT JUST A MATTER OF NUMBERS, IT IS A MATTER OF PEOPLE. THE DIALOGUE WE MUST ENGAGE IN IS ONE OF EQUITY, ETHICS, AND ENGAGEMENT.

12. This Model results in Chronic Impoverishment, Cyclical Dependency, and Loss of Human Dignity throughout Lifespan. The Cyclical Dependency Model

13. This Model represents Optimal Self-Sufficiency, Independent Living, Economic Empowerment and Full Community Participation The Self-Sufficiency Investment Model

15. SELF-SUFFICIENCY IS NOT ONLY BETTER FOR PWD, IT ALSO MAKES ECONOMICAL SENSE SERVICE AREA CYCLICAL DEPENDENCY SELF-SUFFICIENCY MODEL Education Segregated: $25-45K/student/year Full Inclusion: $12-26K/student/year Employment Average annual costs of SW/individual: $19,388 SW is less cost-efficient to taxpayers : 0.83 SW is less cost-efficient to workers : 0.24 Ave annual costs of SE/individual: $6,619 SE is more cost-efficient to taxpayers : 1.21 SE is more cost-efficient to workers : 4.20

16. COMMUNITY SERVICES MAKE FINANCIAL SENSE Data Source: Lakin, K.C. MSIS and NCI data from 4 states (1,240 Individuals), 2009 Type of Service Cost per Person People Served with $5 M ICF/MR $128,275 39 HCBS Residential $70,133 71 Host/Foster Family $44,122 113 Own Family $25,072 200

24. THANK YOU!!! Serena Lowe President, AnereS Strategies, LLC Executive Director, Collaboration to Promote Self-Determination Federal Government Affairs Consultant, National Disability Institute 202-548-2502 (Office) 202-907-8369 (Cell) [email_address]