Alternative social services versus Institutions for children with intellectual disabilities. De Passerel’s project in Bulgaria. For the international conference in Bishkek, 1-3 March 2011, Kyrgyzstan.
Intellectual disability is characterized by deficits in cognitive ability and adaptive functioning that originate before age 18. It involves limitations in conceptual, social, and practical skills. The severity of intellectual disability can be mild, moderate, severe, or profound based on IQ scores. Causes include genetic syndromes, biological factors, medical conditions during pregnancy or birth, and psychosocial problems. Placement programs may include inclusion, individualized education, behavior therapy, and transition to adult services focusing on independent living skills and employment. Current research studies various approaches to improving academic engagement and quality of life for those with intellectual disability.
Kazakh model of providing complex services for disabled children Self-employed
Kazakh model of providing complex services for children with psycho neurological pathologies. For the international conference in Bishkek, March 2011, Kyrgyzstan.
Services for PwID in Urban and Rural areasMURUGANT24
Adulthood and family issues encompass a broad range of topics related to the experiences and challenges individuals face as they transition into and navigate adulthood, particularly in the context of family dynamics.
MINDS HUB - One-Stop Touchpoint for Persons with Disabilities PeiminLin3
An estimated up to 80% adult persons with disabilities (PWDs) / persons with intellectual disabilities (PWIDs) in Singapore may be undiagnosed or unserved, and are not attending regular services.
This results in deteriorating conditions and ultimately a pre-mature need for PWD/PWIDs to be kept in residential institutions. It is important to keep PWIDs in the community, as placing them in homes or institutionalised facilities will only further deteriorate their conditions, and isolate them from the community.
There is also a significant mental, emotional and physical strain on caregivers who have to manage the challenges that come with caregiving for aging PWDs/PWIDs.
To address this, MINDS Hub offers an array of healthcare and social support services all under one roof. Located in the heartlands of Singapore, MINDS Hub ensures PWDs/PWIDs and their families have more support closer to their homes, enabling them to participate actively in the community and to live independently.
This document discusses early intervention for children with disabilities in Russia and the CIS region. It outlines the following key points:
- Children with disabilities have a right to health care without discrimination under the UN Convention on the Rights of Persons with Disabilities. Early intervention is important to support development and inclusion.
- Early intervention aims to normalize life for the child and family, help parents create an optimal environment, and prevent institutionalization. It involves interdisciplinary teamwork, family support, information/legal support, social inclusion, and transitions between services.
- There is a shift from a "defectological" approach that focuses on correcting defects, to a family-centered early childhood intervention approach based on child and family
Presentación empleada por Itziar Álvarez - Grupo SSI en el AAL Forum 2018 Bi...Grupo SSI
This document summarizes two user cases of elderly individuals in the Basque Country and how technology could help meet their needs. Edurne, age 75 and living alone, needs support with daily tasks and strengthening her social network. Ignacio, age 81 and living alone with limited mobility, needs coordinated care, prevention of health issues, and accessible health information. Technology could help both users by providing information, increasing social contact, expanding social networks, activating community support, and enabling remote health monitoring and communication to improve care coordination and self-management of conditions.
A webinar on ' Concept of Impairment, Disability, and Handicap' organised by Department of Education,
Manonmaniam Sundaranar University,
Tirunelveli.
Invited Resource Person
Dr. R. P. Deepa,
Assistant Professor,
NVKSD College of Education,
Attoor.
DYSKINETIC CP: SOCIAL CULTURAL PERSPECTIVES IN THE CONTEXT OF BANGLADESHipnabsmmu
This document discusses dyskinetic cerebral palsy (CP) from a social and cultural perspective in Bangladesh. It provides demographic information about Bangladesh and discusses the prevalence of disability, including CP. Two case scenarios are presented: a 2-year-old boy living in an urban area who receives treatment at a tertiary medical center, and a 10-year-old boy from a rural area who was assisted by an NGO and now attends a developmental center. Barriers to treatment are explored, such as lack of awareness, financial burden, and social stigma. The document also notes challenges faced by those with disabilities in Bangladesh and the strengths of existing laws and programs to support disabled individuals.
Intellectual disability is characterized by deficits in cognitive ability and adaptive functioning that originate before age 18. It involves limitations in conceptual, social, and practical skills. The severity of intellectual disability can be mild, moderate, severe, or profound based on IQ scores. Causes include genetic syndromes, biological factors, medical conditions during pregnancy or birth, and psychosocial problems. Placement programs may include inclusion, individualized education, behavior therapy, and transition to adult services focusing on independent living skills and employment. Current research studies various approaches to improving academic engagement and quality of life for those with intellectual disability.
Kazakh model of providing complex services for disabled children Self-employed
Kazakh model of providing complex services for children with psycho neurological pathologies. For the international conference in Bishkek, March 2011, Kyrgyzstan.
Services for PwID in Urban and Rural areasMURUGANT24
Adulthood and family issues encompass a broad range of topics related to the experiences and challenges individuals face as they transition into and navigate adulthood, particularly in the context of family dynamics.
MINDS HUB - One-Stop Touchpoint for Persons with Disabilities PeiminLin3
An estimated up to 80% adult persons with disabilities (PWDs) / persons with intellectual disabilities (PWIDs) in Singapore may be undiagnosed or unserved, and are not attending regular services.
This results in deteriorating conditions and ultimately a pre-mature need for PWD/PWIDs to be kept in residential institutions. It is important to keep PWIDs in the community, as placing them in homes or institutionalised facilities will only further deteriorate their conditions, and isolate them from the community.
There is also a significant mental, emotional and physical strain on caregivers who have to manage the challenges that come with caregiving for aging PWDs/PWIDs.
To address this, MINDS Hub offers an array of healthcare and social support services all under one roof. Located in the heartlands of Singapore, MINDS Hub ensures PWDs/PWIDs and their families have more support closer to their homes, enabling them to participate actively in the community and to live independently.
This document discusses early intervention for children with disabilities in Russia and the CIS region. It outlines the following key points:
- Children with disabilities have a right to health care without discrimination under the UN Convention on the Rights of Persons with Disabilities. Early intervention is important to support development and inclusion.
- Early intervention aims to normalize life for the child and family, help parents create an optimal environment, and prevent institutionalization. It involves interdisciplinary teamwork, family support, information/legal support, social inclusion, and transitions between services.
- There is a shift from a "defectological" approach that focuses on correcting defects, to a family-centered early childhood intervention approach based on child and family
Presentación empleada por Itziar Álvarez - Grupo SSI en el AAL Forum 2018 Bi...Grupo SSI
This document summarizes two user cases of elderly individuals in the Basque Country and how technology could help meet their needs. Edurne, age 75 and living alone, needs support with daily tasks and strengthening her social network. Ignacio, age 81 and living alone with limited mobility, needs coordinated care, prevention of health issues, and accessible health information. Technology could help both users by providing information, increasing social contact, expanding social networks, activating community support, and enabling remote health monitoring and communication to improve care coordination and self-management of conditions.
A webinar on ' Concept of Impairment, Disability, and Handicap' organised by Department of Education,
Manonmaniam Sundaranar University,
Tirunelveli.
Invited Resource Person
Dr. R. P. Deepa,
Assistant Professor,
NVKSD College of Education,
Attoor.
DYSKINETIC CP: SOCIAL CULTURAL PERSPECTIVES IN THE CONTEXT OF BANGLADESHipnabsmmu
This document discusses dyskinetic cerebral palsy (CP) from a social and cultural perspective in Bangladesh. It provides demographic information about Bangladesh and discusses the prevalence of disability, including CP. Two case scenarios are presented: a 2-year-old boy living in an urban area who receives treatment at a tertiary medical center, and a 10-year-old boy from a rural area who was assisted by an NGO and now attends a developmental center. Barriers to treatment are explored, such as lack of awareness, financial burden, and social stigma. The document also notes challenges faced by those with disabilities in Bangladesh and the strengths of existing laws and programs to support disabled individuals.
Implementation of Community Based Rehabilitation (CBR) for Children with Disabilities in Tajikistan, lessons learned and steps forward
From 4th Child Protection Forum in Tajikistan, 2013.
This document provides information about child abandonment and strategies to prevent it, with a focus on disabled children. It discusses definitions of child abandonment, risk factors, incidence rates in different countries like Bulgaria, Romania and Turkey, and strategies recommended by organizations to prevent abandonment. These strategies include family support services, counseling, financial assistance, parent training, and ensuring access to information and support for families of children with disabilities. The document emphasizes that supporting families rather than institutionalization is key to preventing abandonment.
Elana Gaia, Social Policy Specialist, UNICEF CEE/CIS and Denise Stuckenbruck, Child Protection Specialist, UNICEF ESARO – Family support and social protection, Expert Consultation on Family and Parenting Support, UNICEF Office of Research – Innocenti Florence 26-27 May 2014
Community based services as a prevention of institutionalization: Macedonian ...Self-employed
Community based services as a prevention of institutionalization:
Macedonian experiences and perspectives.
International conference, 1-3 March 2011, Bishkek, Kyrgyzstan
10% of the world's population has a disability, with 20% of populations affected when including family members. Only 1-2% of people with disabilities receive education or rehabilitation services in developing countries. AAMAL is a non-profit established in 2002 to provide rehabilitation services and advocacy for people with disabilities in Syria. Their programs include academic and vocational training, rehabilitation services for speech, hearing, autism and visual impairments, deaf support, social awareness campaigns, and governmental advocacy to promote inclusion of people with disabilities. AAMAL works to empower people with disabilities and pursue an integrated approach through networking with other organizations.
Early Childhood care and Development (ECCD) in the philippines.pdfROSEDEGUZMAN21
Early Childhood Care and Development (ECCD) programs in the Philippines aim to promote the holistic growth and development of children aged 0-6. These programs address threats like malnutrition, lack of immunization, and developmental delays that affect many Filipino children. The legal basis for ECCD includes the ECCD Act of 2000 and Early Years Act of 2013. The national ECCD system incorporates center-based, home-based, and community-based programs delivered by both public and private service providers.
This document outlines a career exploration curriculum pilot project for teenagers aged 14 to 16 living in an orphanage in Russia. The project aims to equip children with skills needed for a successful transition to adulthood and careers by providing a nurturing classroom, workshops with professionals, short internships, and mentorship programs. It will take place over the 2016-2017 year and involve creating a safe space, guest speakers, shadowing opportunities, matching mentors, and developing education plans.
This document discusses services and support for children with disabilities and their families in Europe. It outlines several key principles:
1) Protection of children's rights is a priority, and states should support families to meet children's needs.
2) Institutional care should only be used as a last resort, as evidence shows it is not effective and violates children's rights.
3) Successful models emphasize developing community-based, family-focused services across sectors like health, education, and social welfare.
Early intervention, parental support, and inclusion in community life are emphasized.
This paper reviews my First Exposure to Finnish Professional Life in Louhela Day Care Centre. And additionally elaborates the Finnish Child care system.
International Journal of Humanities and Social Science Invention (IJHSSI) is an international journal intended for professionals and researchers in all fields of Humanities and Social Science. IJHSSI publishes research articles and reviews within the whole field Humanities and Social Science, new teaching methods, assessment, validation and the impact of new technologies and it will continue to provide information on the latest trends and developments in this ever-expanding subject. The publications of papers are selected through double peer reviewed to ensure originality, relevance, and readability. The articles published in our journal can be accessed online.
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This document provides an overview of the child protection system and out-of-home care in Denmark. It discusses the Structural Reform of 2007 which consolidated municipalities and changed governance of social services. It also describes the legislative requirements for protecting children at risk, including early intervention and multidisciplinary cooperation. Finally, it outlines the new Supervision Reform which establishes regional supervision centers to approve all social services using a new Quality Model focused on outcomes.
The document summarizes mental health services and support systems for people experiencing homelessness and severe mental illness in Indonesia. It outlines statistics on rates of untreated severe mental illness and "pasung" (chaining of individuals). It then describes various government regulations and ministries involved, as well as community-based initiatives like daycare centers, shelters, supported housing programs, and grassroots organizations providing peer support. Integrated support systems aim to help individuals move from temporary shelters to independent living in the community.
This document discusses the needs of a 15-month-old child named Laila who has severe vision impairment and her newcomer family. It provides information about Laila's condition, how vision impairment can affect development, and what supports may help meet Laila's and her family's needs. Specifically, it suggests ECE teachers and professionals can help with Laila's development, and community services in their native language, schools, clinics, and foreign community groups can provide additional support. The document also outlines accommodations that could be made in childcare to help Laila and refers the reader to agencies and resources available in the Greater Toronto Area.
Internet as place: Policy, practice, and research in e-mental health for Scot...Diane Rasmussen Pennington
This document summarizes a presentation on place-based approaches to e-mental health in Scotland. It discusses how geographic context is important in policy and practice. Place-based policies that involve local and higher-level groups working together can help address social exclusion and underutilization of potential in different areas. The document also reviews Scotland's national strategies and plans for improving digital health, including increasing access to online cognitive behavioral therapy, developing self-help resources, and ensuring technologies support independent living for those with dementia.
The document discusses the scope of sociology in the fields of knowledge and profession. It describes several specialized fields of sociology that provide knowledge about different aspects of human social life. It also lists some common professional roles for sociologists, including teaching, research, and administration. Finally, it provides details on various social welfare programs and services in Pakistan, including orphanages, vocational training centers, and medical assistance projects.
As presented at the International Workshop on “Qualitative Personal Caring in a European Perspective”, 07 May 2015, Antalya, Turkey
http://mcare-project.eu/
This project (M-Care - 539913-LLP-1-2013-1-TR-LEONARDO-LMP) has been funded with support from the European Commission. This website reflects the views only of the author, and the Commission cannot be held responsible for any use which may be made of the information contained therein.
The document discusses support services provided by the Polish Association for Persons with Mental Disability in Gdansk, Poland for families with disabled children. It outlines several programs run by the association including an early intervention center, education and rehabilitation center, occupational therapy workshop, daily activity center, art gallery, orchestra, and supported employment agency. The association aims to support the whole family and assist across different areas of life.
отчет Финальная оценка проекта ХелсПром в КР 2013-2016Self-employed
Отчет по результатам независимой оценки результатов партнерского проекта ХелсПром "Поддержка детей с инвалидностью в КР" за счет гранта Фонда Биг Лоттери за 2013-2016 гг. В проекте были задействованы 13 партнерских организаций для реализации деятельности во всех семи регионах страны. Менеджер проекта Азат Исраилов.
Оценка проведена Рахат Орозовой и Мехригуль Аблезовой, компании PIL Research, в августе-сентябре 2016 г.
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This document outlines a career exploration curriculum pilot project for teenagers aged 14 to 16 living in an orphanage in Russia. The project aims to equip children with skills needed for a successful transition to adulthood and careers by providing a nurturing classroom, workshops with professionals, short internships, and mentorship programs. It will take place over the 2016-2017 year and involve creating a safe space, guest speakers, shadowing opportunities, matching mentors, and developing education plans.
This document discusses services and support for children with disabilities and their families in Europe. It outlines several key principles:
1) Protection of children's rights is a priority, and states should support families to meet children's needs.
2) Institutional care should only be used as a last resort, as evidence shows it is not effective and violates children's rights.
3) Successful models emphasize developing community-based, family-focused services across sectors like health, education, and social welfare.
Early intervention, parental support, and inclusion in community life are emphasized.
This paper reviews my First Exposure to Finnish Professional Life in Louhela Day Care Centre. And additionally elaborates the Finnish Child care system.
International Journal of Humanities and Social Science Invention (IJHSSI) is an international journal intended for professionals and researchers in all fields of Humanities and Social Science. IJHSSI publishes research articles and reviews within the whole field Humanities and Social Science, new teaching methods, assessment, validation and the impact of new technologies and it will continue to provide information on the latest trends and developments in this ever-expanding subject. The publications of papers are selected through double peer reviewed to ensure originality, relevance, and readability. The articles published in our journal can be accessed online.
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This document provides an overview of the child protection system and out-of-home care in Denmark. It discusses the Structural Reform of 2007 which consolidated municipalities and changed governance of social services. It also describes the legislative requirements for protecting children at risk, including early intervention and multidisciplinary cooperation. Finally, it outlines the new Supervision Reform which establishes regional supervision centers to approve all social services using a new Quality Model focused on outcomes.
The document summarizes mental health services and support systems for people experiencing homelessness and severe mental illness in Indonesia. It outlines statistics on rates of untreated severe mental illness and "pasung" (chaining of individuals). It then describes various government regulations and ministries involved, as well as community-based initiatives like daycare centers, shelters, supported housing programs, and grassroots organizations providing peer support. Integrated support systems aim to help individuals move from temporary shelters to independent living in the community.
This document discusses the needs of a 15-month-old child named Laila who has severe vision impairment and her newcomer family. It provides information about Laila's condition, how vision impairment can affect development, and what supports may help meet Laila's and her family's needs. Specifically, it suggests ECE teachers and professionals can help with Laila's development, and community services in their native language, schools, clinics, and foreign community groups can provide additional support. The document also outlines accommodations that could be made in childcare to help Laila and refers the reader to agencies and resources available in the Greater Toronto Area.
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As presented at the International Workshop on “Qualitative Personal Caring in a European Perspective”, 07 May 2015, Antalya, Turkey
http://mcare-project.eu/
This project (M-Care - 539913-LLP-1-2013-1-TR-LEONARDO-LMP) has been funded with support from the European Commission. This website reflects the views only of the author, and the Commission cannot be held responsible for any use which may be made of the information contained therein.
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- Video recording of this lecture in English language: https://youtu.be/kqbnxVAZs-0
- Video recording of this lecture in Arabic language: https://youtu.be/SINlygW1Mpc
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Overall life span (LS) was 1671.7±1721.6 days and cumulative 5YS reached 62.4%, 10 years – 50.4%, 20 years – 44.6%. 94 LCP lived more than 5 years without cancer (LS=2958.6±1723.6 days), 22 – more than 10 years (LS=5571±1841.8 days). 67 LCP died because of LC (LS=471.9±344 days). AT significantly improved 5YS (68% vs. 53.7%) (P=0.028 by log-rank test). Cox modeling displayed that 5YS of LCP significantly depended on: N0-N12, T3-4, blood cell circuit, cell ratio factors (ratio between cancer cells-CC and blood cells subpopulations), LC cell dynamics, recalcification time, heparin tolerance, prothrombin index, protein, AT, procedure type (P=0.000-0.031). Neural networks, genetic algorithm selection and bootstrap simulation revealed relationships between 5YS and N0-12 (rank=1), thrombocytes/CC (rank=2), segmented neutrophils/CC (3), eosinophils/CC (4), erythrocytes/CC (5), healthy cells/CC (6), lymphocytes/CC (7), stick neutrophils/CC (8), leucocytes/CC (9), monocytes/CC (10). Correct prediction of 5YS was 100% by neural networks computing (error=0.000; area under ROC curve=1.0).
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Cell Therapy Expansion and Challenges in Autoimmune DiseaseHealth Advances
There is increasing confidence that cell therapies will soon play a role in the treatment of autoimmune disorders, but the extent of this impact remains to be seen. Early readouts on autologous CAR-Ts in lupus are encouraging, but manufacturing and cost limitations are likely to restrict access to highly refractory patients. Allogeneic CAR-Ts have the potential to broaden access to earlier lines of treatment due to their inherent cost benefits, however they will need to demonstrate comparable or improved efficacy to established modalities.
In addition to infrastructure and capacity constraints, CAR-Ts face a very different risk-benefit dynamic in autoimmune compared to oncology, highlighting the need for tolerable therapies with low adverse event risk. CAR-NK and Treg-based therapies are also being developed in certain autoimmune disorders and may demonstrate favorable safety profiles. Several novel non-cell therapies such as bispecific antibodies, nanobodies, and RNAi drugs, may also offer future alternative competitive solutions with variable value propositions.
Widespread adoption of cell therapies will not only require strong efficacy and safety data, but also adapted pricing and access strategies. At oncology-based price points, CAR-Ts are unlikely to achieve broad market access in autoimmune disorders, with eligible patient populations that are potentially orders of magnitude greater than the number of currently addressable cancer patients. Developers have made strides towards reducing cell therapy COGS while improving manufacturing efficiency, but payors will inevitably restrict access until more sustainable pricing is achieved.
Despite these headwinds, industry leaders and investors remain confident that cell therapies are poised to address significant unmet need in patients suffering from autoimmune disorders. However, the extent of this impact on the treatment landscape remains to be seen, as the industry rapidly approaches an inflection point.
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Alternative social services versus Institutions for children with intellectual disabilities.
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2. Amsterdam Social services provider 400 employees 34 locations 600+ Clients (mostly Persons with intelllectual disabilities) De Passerel, the Netherlands Apeldoorn
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8. Classification of the living domains gg 1. Accommodation and support for independent living 2. Education, labor, day care 3. Treatment and consultations
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10. Classification of the social services for children with intellectual disabilities gg Age Mild Disabled IQ 49 - 70 Severely disabled IQ 20 - 34 Moderately Disabled IQ 35 - 49 Profoundly disabled IQ 0 - 19 0 – 3 3 – 7 7 – 15 15 – 18
11. Classification of the social services for children gg Type of function Living for children 1 Type of the service 1.1 . Small group home (residential care) 1. 2. Short stay for children Day care for children 2 2.1. Day care for children 0-3 2. 2. Day care with preschool activities 2. 3 . Day care with education 2.4 . Day care with developmental activities 2. 5 . Day care for children with multiple disabilities
12. Classification of the social services for children gg Questions? Therapy and consultations 5 5.1..1. Early identification (0 -7 г.) 5.1.2. Early intervention 5.1.3. Psychological support 5.1.4. Physiotherapy 5.1.5. Speech therapy 5.2.1 . Case management 5.2.2. Family consultations 5.2.3. Ambulatory support 5.2.4. House adjustments 5.2.5. Transport 5.2.6. Attndancy
13. Statistical tool for planning gg Nr of the persons with intellectual disability % form the population For Bulgaria Persons with Intellectual disability 0,63% 47 651 Mailed 0,32% 23 826 Moderate 0,22% 16 678 Severe and profound 0,09% 7 148 Children with intellectual disabilities 0.09% 7 148 Children for early intervention 0,03% 2 269