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www.england.nhs.uk
Building the Right
Support for
Learning Disabilities
Turning improvement ideas into
local action
Kia Oval, Surrey County
Cricket Club, London
SE11 5SS
19 July 2016
www.england.nhs.uk
Building the right support
for people with learning disabilities:
Turning improvement ideas into local action
Dr Julie Higgins
Senior Responsible Officer
Transforming Care Programme
Kia Oval 19 July 2016
www.england.nhs.uk
Making it happen – working together and turning
plans to reality
www.england.nhs.uk
• Making sure less people are
in hospitals by having better
services in the community
• Making sure people don’t
stay in hospitals longer than
they need to
• Making sure people get good
quality care and support in
hospital and in the
community
The transforming care work
has three big aims:
www.england.nhs.uk
www.england.nhs.uk
What have we achieved?
• 6 fast tracks
• 48 new Transforming Care Partnerships
• 48 sets of plans to transform local services
for local people and families
• 48 sets of milestone plans that will enable
us to tell the story of change
www.england.nhs.uk
Further progress made on
• Fewer people in hospital
• Care and treatment
reviews rolled out
• Data quality
improvements
• Revised financial
guidance, Frequently
Asked Questions ‘Who
Pays’, aligning the
specialised
commissioning budget
www.england.nhs.uk
Working with seven groups of Transforming Care Partnerships who
have the greatest challenges. These TransformingCare Partnerships
together account for more than 50% of the proposed inpatient
reductions planned for 2016/17
• North East Group - Cumbria and the North East
• North West Group - Cheshire and Mersey, Lancashire, Greater
Manchester
• Yorkshire Group - North Yorkshire, Barnsley, Wakefield, Kirklees and
Calderdale, Bradford, Leeds, East Riding and Hull, and South Yorkshire
• West Midlands Group - Coventry, Rugby, North Warwickshire and South
Warwickshire, Black Country, Birmingham and Staffordshire
• Kent and Medway Group - Kent and Medway
• Hertfordshire, North London and Essex Group - NW London, NC
London, Essex and Hertfordshire
• North Central Midlands Group - Derbyshire and Nottinghamshire
Going further: Extending the community of
fast tracks
www.england.nhs.uk
£30 million over three years – about half the 24
Transforming Care Partnerships
funded for 2016/17
Funding distributed this week
Transformation funding
www.england.nhs.uk
• Learning and Improvement
• Working together
• Sharing what works
• National support offer for Transforming Care Partnerships:
• Putting you in touch with experts by experience
• Bespoke advice from our Change and Improvement
Steering Group
• Open access to the national team, comprehensive skills
mix
• Online learning and development (courses, webinars)
• Visits and onsite coaching
Focus today:
Supporting Sustainable change
Transforming care for people with learning disabilities
The Coventry, Warwickshire and Solihull Experience
Becky Hale, Strategic Commissioning Service Manager All Age Disability, Warwickshire County Council
Ali Cole, Project Manager Transforming Care, Arden & GEM CSU
Karen James, Operations Manager Specialist Community Services, Coventry and Warwickshire Partnership Trust
The Transforming Care Journey
• Our approach
• Our challenges
• Our achievements
• Our lessons
The Local Context – March 2016
• Learning Disability and Autism Population = 29,000.
Predicted to rise by 11% by 2030.
• Local inpatient facilities:
– Gosford Ward, Coventry (9 beds) (NHS)
– Brooklands Hospital, Solihull (96 beds) (NHS)
– No independent inpatient services
• Only 25 of 105 beds in the TCP area populated
with local residents.
• 1 person in acute mental health bed
• Out of area:
– 5 adults in forensic rehabilitation beds
– 2 adults in complex continuing care beds
– 11 adults in secure beds
– 11 young people in CAMHS beds
The Transforming Care Journey
• Winterbourne made us work together
• Dec 2013 - Accelerated Learning Event to shape
our strategic response
• 2014/2015 – Co-produced a new model of care
with stakeholders
• Learning from Solihull (since 2009)
• Learning Disability Strategies, Joint Plans and
Transforming Care structures in place across
health, social care and local provider
• Problem solving approach (we all own the issues)
• NHS Change Model
The Transforming Care Journey
• Summer 2015 - Fast Track Arden, Herefordshire
and Worcestershire.
– Development of the bid challenging – unfamiliar
footprint, timescale, beds vs people, bid support.
• Oct 2015 - Funding received from NHSE
• Dec 2015 - New model of care launch
• March 2016 - Gosford ward (9 beds) closed
• Building the Right Support – TCP area changed
to Coventry, Warwickshire and Solihull with
revised plan submitted in March 2016.
Vision for the future
“The future is where people with learning disabilities and autism:
 are not put in a position where they become unwell because of
their environment;
 don’t have to go into hospital unless absolutely necessary;
 are supported with their needs, emotions and feelings;
 are supported to grow and develop;
 are not taken away from their family and friends and isolated;
 live in their local community;
 go out in their local community;
 work in their local community;
 and are seen as a valued member of society”
• Living My Life DVD – Transforming Care Chapter
The Local Transformation Plan
• Outcome focused – Living my Life
• Reduction in inpatient beds in line with the 10 – 15 ratio.
• Reduced length of stay
• Transfer of funds from inpatient to community services
• Phased plan :
– Phase 1 – Enhanced Support and emergency
accommodation in the community for adults, Gosford ward
closure
– Phase 2 – community support for children and young
people, people with Autistic Spectrum Disorder only, people
from specialised services population, understanding impact
on specialised services
• Long term purpose built accommodation
• Personal budgets, joint commissioning and pooled budgets
Model of Care
Personalised care and
support
Extra support when
things change
Hospital is
a last
resort.
Support in
hospital to
return home
Craig’s StoryYouTube link
https://youtu.be/sQU2U-ACbnE
Implementing our new Model of Care
• Community Intensive Support Team
• Mental Health Liaison Nurses.
• Admission avoidance agreements, funds and
accommodation.
• Long term accommodation with support
developments.
• Re-design of mental health services for
children and young people (CAMHS).
• Model of care DVD and workforce
development.
• Continued customer and carer engagement.
Achievements so far……
• Phase 1 completed
– Intensive support team
– Emergency accommodation
– Gosford ward closed
• 33% reduction in inpatients
• Average length of stay reduced from 105 days
to 30 days*
• £1.4M reinvested in community services
*NB In Solihull, the numbers of inpatients are so small that average
length of stay is not a meaningful metric.
Current Focus
• At Risk Register.
• Understanding our cohort of children and young people
and people with autism in specialised services.
• Detailed planning (jointly) to support potential discharges.
• Understanding the potential pressure (financial and
capacity) and how to use current funding differently.
• Market engagement and development.
• Workforce development.
• Commissioning infrastructure - joint commissioning and
pooled budgets.
• Communication and engagement
• Developing new accommodation based services.
Challenges so far……
• People NOT numbers
• Understanding our target population with NHS
England and what this means (including
changing plans for discharges)
• Governance and financial context.
• Adjusting plans based on new partnership area.
• NHS England monitoring and timescales.
• Dedicated resource for the programme and
Care and Treatment Reviews
• Consultation plans – listening to the right people
• Making sure the right services are in the area to
support people (market development)
Benefits so far……
• Early agreement and clarity of purpose.
• Transitional funding – £825,000.
• Escalating pre existing plans.
• LD/Autism higher on the priority list locally.
• Focus on pooled budgets and joint working.
• Clinical review activity with NHS England
Specialised Commissioning.
• Overwhelming support for model of care.
Challenges so far……
• Recruitment & Development of the team
• Developing clear roles, differing opinions and
expectations
• Developing services at the same time – Acute Liaison
Nurse for mental health services, Intensive support
accommodation
• Issues around timely Care and Treatment Reviews,
decision making, involvement
• Different agencies at different stages of development
• Capacity
Benefits so far……
• Fewer people have gone into hospital
• People have returned home more quickly when they go into
hospital
• Worked alongside existing community teams who knew people
well
• More intensive involvement allowed more time and focus and
led to a better outcome for the person
• Working more closely with mental health staff
• Being able to access money quickly to put extra support in
place
Case Study - Dave
• The Intensive support team worked with Dave
during his hospital stay
• Joint assessment process across Health and
Social Care and new provider identified
• Ready for discharge – use of the enhanced
accommodation
• Joint transition work between the team and
service provider
• 5 weeks of intensive support from the IST
• Continued review and assessment of positive
interventions
• Handover back to the community team
Case Study - Dave
• Think differently
• Be creative
• Never give up!
Our Lessons Learned
• Build the model of care from the bottom up = buy in.
• Evidence-based change methodology
• Focus on enhancing work already happening locally.
• Learn from others (Solihull).
• Accessible model of care (DVD).
• Dedicated resources for ongoing customer and carer
engagement.
• Think about potential need for public consultation early.
• Transparency and collaborative working with service
providers.
• Consider best use of time and resources
Our Lessons Learned
• Culture change is key
• Be Brave! – change the conversation
• Working together and not being afraid to challenge -
“what is the art of the possible?”
• Openness
• Equal partners in the team
Questions?
www.england.nhs.uk/learningdisabilities
pping over
dication of
ople with
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abilities
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2016
www.england.nhs.uk/learningdisabilities
Thankyou for inviting us
David Branford
Carl Shaw
Ben Briggs
Learning Disability Programme
NHS England
www.england.nhs.uk/learningdisabilities
• Background to this work
• Why is this work important?
• The aims of STOMPLD
• YOUR role in this
What we’re going to talk about
www.england.nhs.uk/learningdisabilities
This work is part of Transforming Care
There are 6 partner organisations, and
48 local Transforming Care Partnerships.
We all work with people with learning
disabilities, families and services.
We want to:
1. Reduce the number of people in
learning disability and mental health
hospitals
2. Reduce how long people stay in these
hospitals
3. Improve the quality of care and
support for people in hospital and
community settings
www.england.nhs.uk/learningdisabilities
Medicines Programme Structure
Medicines Oversight Group
(Chaired by Hazel Watson)
Provides oversight, scrutiny and advice on the
work of the delivery group
Medicines Delivery Group
(Chaired by Anne Webster)
Responsible for delivering on the work set out in
the STOMPLD Project Plan, including
communications, TCP delivery of STOMP and
engagement with a wide range of stakeholders
Learning Disability
Programme Board
and Transforming Care
Assurance Board
Hazel Watson-
Quality Assurance and
Health Inequalities Work
stream Lead
www.england.nhs.uk/learningdisabilities
So what’s it all about?
www.england.nhs.uk/learningdisabilities
Psychotropic medication?
• Medication for psychosis –
antipsychotics
• Medication for depression –
antidepressants
• If people have psychosis or depression
these medicines can be really helpful
When is it a problem?
• Too much
• Too many
• Too long
• Giving prescriptions without finding out
what is wrong
• Using it to manage people’s behaviour
Problems of over-medication
www.england.nhs.uk/learningdisabilities
Ann and her son who was at
Winterbourne View Hospital
It was 3 years before he went home
This is why we’re here
www.england.nhs.uk/learningdisabilities
• If you are drugged up, you can’t
communicate with people properly
• The world passes you by
• It can make your behaviour more
challenging in the long run
• It doesn’t help you learn or change
• It doesn’t help you get out of
hospital, the opposite in fact
• People shouldn’t be living like that
A human rights issue
www.england.nhs.uk/learningdisabilities
Why?
There’s usually a reason:
• Not listened to or understood?
• Abuse or trauma?
• Unable to deal with feelings?
• Too much physical restraint?
• Too little contact with others?
• Poor relationships with staff or
patients?
• Pain or illness?
• Is medication always the answer?
www.england.nhs.uk/learningdisabilities
Figures from Public Health England
Think of 100 adults with learning
disabilities
• Doctors are prescribing
antipsychotics for 17of those
people
• Doctors are prescribing
antidepressants for 17 of those
people.
www.england.nhs.uk/learningdisabilities
• 7 people are being
prescribed both
• Only 4 of those 100 adults
with learning disabilities have
psychosis
• Fewer than 7 people have
depression
• 16 are taking one or other
drug and don’t have either a
psychosis or depression
Figures from Public Health England
www.england.nhs.uk/learningdisabilities
Medicines Project Core Message
Public Health England estimates that
every day 30,000 to 35,000 adults
with a learning disability are being
wrongly prescribed an antipsychotic,
antidepressant or both.
Unnecessary use of these drugs, puts
people at risk of significant weight
gain, organ failure and even
premature death.
www.england.nhs.uk/learningdisabilities
Time to change - STOMPLD
• This is about improving people’s lives
• This is about helping people live
longer and giving families more time
with their loved ones
• This is about stopping the use of
these drugs to manage people’s
behaviour
• Stop Over Medicating People with
Learning Disabilities - STOMPLD
www.england.nhs.uk/learningdisabilities
The STOMPLD Pledge
The STOMPLD pledge was signed at a
summit in London on 1 June by
• Royal Colleges of Nursing,
Psychiatrists and GPs
• Royal Pharmaceutical Society
• Challenging Behaviour Foundation
• British Psychological Society
• NHS England
• The Minister Alistair Burt
They have pledged to work together
and with people with a learning
disability and their families, to take real
and measurable steps to stop over
medication
www.england.nhs.uk/learningdisabilities
First steps – GP campaign
• As part of this, a new booklet for
GPs has been launched.
• It was written by NHS England and
the Royal College of GPs
• It encourages family doctors to
only consider psychotropic drugs
to manage behaviour when the
person is at severe risk of harming
themselves or others
• And only when all other options
have been explored
www.england.nhs.uk/learningdisabilities
STOMPLD is about more than….
• Better record keeping
• Better transfer of information about
medicines between GPs and specialists
(and everyone else involved)
• Ensuring people get a diagnosis
• Stopping prescription errors
• Although these are all important too
• It is about quality of life
www.england.nhs.uk/learningdisabilities
Over to you
What can you or your
organisation do to
stop the over medication
of people with learning
disabilities or autism?
www.england.nhs.uk/learningdisabilities
• Visit the NHS England website
• www.england.nhs.uk/learningdisabilities
For more information
www.england.nhs.uk/learningdisabilities
www.england.nhs.uk/learningdisabilities
Health and Social Care Information Centre
Learning Disabilities Census Report –
Further analysis England, 30 September
2013
• Survey responses were received
from 104 provider organisations on
behalf of 3,250 service users
• Over two thirds of service users
(68.3% or 2,220) had been given
anti-psychotic medication leading up
to Census day. Of these, 93.0%
(2,064) had been given them on a
regular basis. .
www.england.nhs.uk/learningdisabilities
http://www.cqc.org.uk/sites/def
ault/files/20160209-
Survey_of_medication_for_det
ained_patients_with_a_learnin
g_disability.pdf
www.england.nhs.uk/learningdisabilities
Data from CPRD General Practice
prescribing study
www.england.nhs.uk/learningdisabilities
Data from CPRD General Practice
prescribing study
www.england.nhs.uk/learningdisabilities
www.england.nhs.uk/learningdisabilities
Make psychotropic medication the
last resort
The NICE guideline [NG11] Published date: May 2015 ‘Challenging
behaviour and learning disabilities: prevention and interventions for
people with learning disabilities whose behaviour challenges’
• Consider antipsychotic medication to manage
behaviour that challenges only if:
• psychological or other interventions alone do not
produce change within an agreed time or
• treatment for any coexisting mental or physical
health problem has not led to a reduction in the
behaviour or
• the risk to the person or others is very severe (for
example, because of violence, aggression or
self-injury).
• Only offer antipsychotic medication in combination
with psychological or other interventions.
www.england.nhs.uk/learningdisabilities
International guide to prescribing
psychotropic medication for the
management of problem behaviours in
adults with intellectual disabilities
Deb S et al ,World Psychiatry. 2009 Oct; 8(3): 181–186
• The medication should be prescribed at the
lowest possible dose and for the minimum
duration.
• Non-medication based management
strategies and the withdrawal of medication
should always be considered at regular
intervals.
• If the improvement of the behaviours that
challenge is unsatisfactory, an attempt
should be made to revisit and re-evaluate the
formulation and the management plan.
Transforming Care in Lincolnshire:
Coproduction, Coproduction,
Coproduction
Sharon Jeffreys – Head Commissioning
of Learning Disabilities and Autism
Jo Minchin - Expert by Experience
True Co-production with those
with a lived experience
- Engaging with people who use the
services and their families and
carers to find out what works well
and what we need to do better
- Partnership Boards
- Expert by Experience Workers
Engaging with people who use the services and
their families and carers to find out what works
well and what we need to do better
What we did
• Sent all invites in easy read
• Put our photos on the
invites
• Held events all around the
county
• Different times of the day
Feedback from Events
• People felt like we really
wanted them to attend
• High turn out compared to
other engagement events
• People felt listened to
• People liked that we
smiled on our pictures 
The Re-launch of the Autism
Partnership Board – 30th January 2015
The Re-launch of the Autism
Partnership Board – 30th January 2015
The Launch of Lincolnshire's All-age Autism
Strategy – 2nd April 2015.
The theme was
creativity of people
with ASD
Status Cards
Making bigger meetings
autism friendly
Also known as flapplause.
Flap, don’t Clap.
Display Cards
Other reasonable adjustments
• Maps to, and of the venue.
• Consider lighting and background noise.
• Ask participants if there are things that
might cause a problem before the
meeting.
• One page profiles.
• Making the adjustments individualised.
• Match people to their strengths.
Expert by Experience worker
I work with other autistic people, in one work stream I do this on the Autism
Partnership Board (APB). I chair the A-team, collaboration group of autists and
parent carers of autistic people, and I don’t think that the group would thrive as
it does if it were not being steered by an autistic person. I can also be seen by
the members to be a valued part of a bigger team within service shaping and
commissioning. I am paid to do my role, that is noteworthy and valued deeply
by the other A-team members. I don’t have to convince them that I am on their
side, and they see that I do bring their views and concerns to those deeper
within the commissioning team.
My involvement in Care and Treatment
Reviews (CTRs) has been both useful for
the team and for the individuals the CTR
has been for. In some cases, I am the
only member of the team the individual
has wanted to talk to. I have the
experience of a disability, there is already
a shared understanding between us.
Transforming Care Team Recruitment
The interview panel process and any other
activity that is conducive to enhancing
positive images, results, maintenance and
other such elements in relation to autistic
people and essentially the entire
community, is wholly endorsed by myself
and it was an absolute pleasure to be given
the opportunity to provide authentic input.
Authentic input is integral to all elements
mentioned above and beyond because
autistic people are not hopeless,
motionless, un-impactful beings and
deserve to be majorly if not completely
involved in everything that concerns them
and others which is not to imply 'them' and
'us' but to confidently communicate that this
approach is for everyone's benefit.
Callum, expert by experience
panel.
Transforming Care Team Recruitment
It was vital that we knew how the panellists felt about
working with autistic people. One of the best ways to
do that is to actually see how they interact with us, and
deal with our sometimes quirky behaviour.
One of the panellists conducted most of his part of the
interview whilst lying on the floor behind some filing
cabinets. I spent much of it spinning thread on my
spindle, and the other panellist had some pressing
questions on an issue that he is campaigning about.
We all had something different and unique to bring to
the process, and we made a good team
It was interesting to see how people responded to our
question about how they felt about working with us.
Most responded with a carer / patient scenario,
whereas a few more enlightened ones started talking
about us as work colleagues. That was the answer we
were looking for, though we admit, it’s a very forward
thinking model at the moment. I wish it wasn’t.Jo: Expert by experience panel
Transforming Care Team Recruitment
I feel that it was a good opportunity to see what
kinds of people wanted these jobs, and to see
how well they
could set aside the jargon and formality in
exchange for frank communication.
I will say that the technical qualifications went
over my head. I could not possibly judge
whether someone is capable of doing
something I cannot. However, seeing how an
applicant dealt with one of their interviewers
lying on the floor was a useful test, I think. It is
a very comfy floor.
And, of course, the obvious: It's good to have at
least one autistic person involved at in
selecting someone who will have significant
influence over many other autistic people.Joshua: Expert by experience
panel
Any Questions?
www.lincolnshire.gov.ukLAPB
Sharon.Jeffreys@SouthWestLincolnshireCCG.nhs.uk
Jo.Minchin@SouthWestLincolnshireCCG.nhs.uk
www.england.nhs.uk
Help us to Help you
Pól Toner RN MSc
Head of Improvement and enablement
Strategic Resettlement
“Thinking and Planning for a Better Future”
www.england.nhs.uk
Supporting Service Changes Locally
• We, as a national team are here to support you e.g.
• Practical support locally to help you improve more quickly
• Housing people working with us to help move more
quickly
• Service people working with us to get the care right and in
the right place for the many people we need to support
• Maggie and team will say how we will do this with
your help
• We welcome your views
• The help is about your needs
www.england.nhs.uk
Two Main Parts to Thinking and
Planning better services
• Thinking and Planning ahead to meet the needs locally.
• Working to ensure new services that are in place
provide what local people say they need and that they
are involved
• Sustainable and permanent positive change for
people with Learning Disability and ASD.
• “Personalisation at scale”
www.england.nhs.uk
• Firstly this is about thinking and planning ahead
• It relies on the partnerships locally having good plans
developed and prepared to meet the needs for this
patient group so changes can happen for many
patients quickly.
• Secondly the future needs to allow for other service
ideas so we can continue to meet the needs , for
people with Learning disabilities and ASD, both now
and for future Generations.
The basis
www.england.nhs.uk
What is Thinking and Planning
ahead?
• Its about Planning
• Understanding the needs of the people you need to plan ahead
for
• Impact of much fewer beds in the system
• Understanding many people will be leaving hospital sooner and
how to make sure this goes smoothly
• Its about putting new services in place to meet changing needs
• Care and housing for many individuals
• Supporting people who give care now to understand why
change is happening and how they can help to meet the needs
of the new services as they happen
www.england.nhs.uk
How it fits
• Its business as usual but a little faster
• Planning is about Building the Right Support
• Fits with Discharge planning guidance
• We need to make sure we can do everything we said
we will do in our plan with the people and money we
have locally at the right time to meet local needs
www.england.nhs.uk
Strategic planning
 Transforming Care Partnerships need to understand the
needs of people with Learning Disabilities in their local
area
 Housing, care providers’ and workforce people need to be
involved and work to making sure the new services are
supported by the right workers and the right housing and
right care in the right place at the right time
 Plan to support people outside hospital rather than in
hospital beds
 Solid discharge planning and arrangements in place
www.england.nhs.uk
Strategic commissioning
• Bring all commissioning work together in the
local area
• Thinking and planning ahead should mean
that contracts in place support reducing beds
• Involve people who provide care
• Make sure the care system is in a good place
for now and the future
www.england.nhs.uk
In the Regions
• Regional teams all work slightly differently but will
need to ensure everything is working well
• Regional teams will support the changes planned or
underway locally
• The team can do this face to face or make it easier
using technology
• Managing a steady and consistent development of
community services and bed reduction as set out in
their plans.
www.england.nhs.uk
In the Regions
Much work is already underway
• Regional team should establish a resettlement team
function
• This resettlement function should develop expertise
• Ward/ unit/ hospital closure level changes should be led
by the local Transforming Care Partnership
commissioners including specialised commissioning,
with providers.
• National Team will support the regions with provider
engagement Regions will have a good understanding of
the entirety of the patient cohort
www.england.nhs.uk
Commissioning Development
 We need to consider the wider context of commissioning,
including Local Authority and Clinical Commissioning Group
commissioners and consider the impact on and expertise and
leadership required within these teams going forward.
 We need to strengthen coordinated commissioning for people a
learning disability or Autistic Spectrum Disorder.
 We need to strengthen admission and discharge management,
through length of stay and escalation management
 Encouraging life planning
www.england.nhs.uk
Over the summer and where work is
beginning
• Regional teams will be supported to expand their ideas about how
they will work with everyone else on this,
• Over July and august and by September 2016, each
Transforming Care Partnership and Region to have developed
local thinking and starting to plan ahead for engagement with
housing and care providers,
• Need to ensure those who organise more specialised care and
others who provide care are talking and working together
• Transforming Care Partnership’s to map out their plans and what
the issues are and what do we need to do to reduce any risks
around our plans
www.england.nhs.uk
• During the summer, regions will have identified, from this information
collectively from Clinical Commissioning Groups, wards and units for
Transforming Care Partnerships to earmark for closure and start to plan
closure, We can then support with next steps.
• Where units and wards have patients from outside the region, regions
and Transforming Care Partnerships will need to work together (and
where this is the case) identify a lead Clinical Commissioning Group to
manage the process and closure, based on a fairness model.
• At Regional level to enhance their plans to deliver the changes around
their patients at a steady state between then and march 2019, including
a ward/ unit closure programme.
• By October 2016, a full meeting will have been held to outline new
community model of care being proposed and new reducing based
model
Work will continue
www.england.nhs.uk
• As a goal we want Transforming Care Partnerships to
manage discharges/ movements and follow individual
bed closures
• We want regions to work together and to follow
regional closure profiles and ensure Clinical
Commissioning Groups work together on ward and
into closure
• Nationally we want to follow ward and unit closures
• So every patient is managed and their progress
recorded and help given if necessary
Prioritise Discharge Management
www.england.nhs.uk
The tasks/ expectation:
• Its not just about bed reduction, for all regions;
• its also about repatriation back nearer home and the
development of new service models
• Identify wards and units affected as part of their 3 year profile
to achieve the 50% closure.
• Expectation will be to now strategically discuss discharges
and ward and unit changes/closures, with providers, at
Transforming Care Partnerships and Regional Level based on
ambitions for new models of care and services,
• but local teams will still need to concentrate on patient centred
case management and personalised delivery of effective care.
www.england.nhs.uk
• Transforming Care Partnership planning process, will be
about moving the plans from planning to transformation
and closures.
• This is not just at patient level but at ward and unit closure
level and to permanently close the door to increased
admissions
• Effective provider engagement
• ensuring the new service model is sustainable and
supports people living well outside hospital with the right
support locally
• We will work with the systems to monitor and support
practical progress on this
In Conclusion
www.england.nhs.uk
“safe and sustainable personalised
care planning at scale and pace”.
Thank You
Pan Lancashire
Transforming Care Partnership
(TCP)
‘Right Track’
Plan
Transforming Care Partnership (TCP)
Providers
Population with Learning Disabilities and/or Autism
Specialised Commissioners
 NHS England via Northern England Programme
Board
 Calderstones & Mersey Care Partnership Board
 Lancashire Collaborative Commissioning Board
 Transforming Care Partnership Steering Group
 Learning Disabilities Commissioning Network
 Children’s Network
 Sub groups
 Health & Well Being Boards
 Overview & Scrutiny Committee
Reporting & Developing
Implementation
Steering Group
Comissioners
Networks Housing
Finance
Resettlement
Team Procurement Workforce
Co Production
Confirm & Challenge
CCB
Stakeholder Events
 Create a Vision for a New Community Model of Care
 Resettlement of long term hospital placements
 Understand the Financial Implications
 Development of Services to Support
 Consider New Methods of Delivery
look for Innovation and Partnership Approaches
 Improve Quality and User Experience
 Change the Culture
Pan Lancashire Priorities
Supports the delivery of the changes required
 Housing Strategy Development
 Procurement/Contracting/Commissioning – developing a flexible
agreement
 Workforce
 Understanding the Service Demand – Risk Registers/Data
Sharing
 Community Service Specification – New Model/All Age
 Avoiding Placement Breakdown/CRISIS
 Resettlement Programme
 Improving Health
Route Map- Work streams
Engagement
 Lancashire Confirm & Challenge group
established
 North West Events Supported
 Lists of existing groups
 Developing communication processes
 Asked about needs for homes, communities
, support requirements and staffing for
service users and carers
 Also invited to stakeholder events
What have we done and what have
we learned………………….….…!
Market Stimulation – ACEVO Report
 Undertook a Request For Information
February 16
 Held an event in March 16– 93 Providers
 Many providers are interested in Lancashire
 Need to strengthen Leadership
 Need to commission smarter
 Need to Quality Assurance
 Need to harness partnership working
 Currently developing a flexible agreement
Pan Lancashire
What have we done and what have
we learned………………….….…!
What have we done and what have
we learned………………….….…!
Community Model
 Held a community team stakeholder event
 Developed a draft integrated service
specification
 Shared and discussed at a wider adult
stakeholder workshop
 Shared and discussed at a wider children’s
stakeholder workshop
 Had a ballot for all age specification
 Currently incorporating the comments and feed
back
What have we done and what have
we learned………………….….…!
Housing
 Agreed to develop a Pan Lancashire Housing
Strategy
 Commenced data collection on population –
definitions and categorisation problematic
 Considered voids
 Engaged with District Councils
 Considered the models required to meet the
needs of the population
 Need to incorporate Children’s and transition
requirements
What have we done and what have
we learned………………….….…!
Finance
 Urgent requirement to establish a pooled budget
 Identified a set of principles
 Held a workshop to develop
 Identified risks and anxieties
 Devised an Memorandum of Understanding – requested
sign up from all organisations to agree to work together
 Developed a draft plan
 Identified the current spend/ organisation populations
 Local Authorities reviewed line by line to clarify inclusions
 Footprints to be agreed
 Risk agreement considered the priority
What have we done and what have
we learned………………….….…!
Workforce
 Plan developed with Health Education
England
 Stakeholder workshops held - adults and
children
 Engaged with providers to undertake mapping
 Considering how to incorporate into contracts
 PBS being considered as a specific
development
 Recruitment and retention are a concern and
have delayed discharges
What have we done and what have
we learned………………….….…!
Resettlement
 Ratified the cohort, Clinical Commissioning
Groups & Specialised Commissioned
 Discharge co-ordination team
 Report to the steering group
 Devised a 12 point discharge plan
 Started a strategic approach to
commissioning
 Considered models of care that will better
meet the needs of the population
 Complex cases – unique solutions in place
Ministry of Justice resistance
 Know the population – what data and from where
 Data Holding/Sharing issues
 Acquisition programme
 Commissioner resources to progress
 Additional resources to support transition
 Development of STP – differing footprint
 Pace – systems are not established to support
decision making
 Doing too much all at once
 Appetite to be bigger, bolder and braver
Challenges
This is just the beginning…..
 Need to maintain strong lasting partnerships
 Need to establish robust communication
links
 Need to learn what we still don’t know
 Engage those we haven’t yet reached
 Continue to work together to make a
difference
Ongoing Progress
Any Questions?
Maria.Howard1@nhs.net
Thank You
Building the right support
Workforce
Tim Alex
Unpaid – Family, Friends,
Carers
Work, Manager, HR, Admin
Local Authority
Health
Main stream
services Tim
Unpaid – Family, Friends,
Carers
Health
Main stream
services
Social
Care
Alex
Personal
Assistants
Social
Care
Health
Main stream
services
Alex
Work, Manager, HR,
Admin
Unpaid – Family,
Friends, Carers
Unpaid - Families and
Carers
Personal
Assistants
Social
Care
Health
Main stream services
Market supply and
confidence
Changes to
the nature of
work Technology
Shift of power
Effective
approaches
Commissioning
Inter-
disciplinary
Relationships
Todays
staff and
skills
Training
Pipeline
New Roles
Skill Development
Role Enhancement
Role enlargement
Skill Flexibility
Role substitution
Role Development
What's
needed
Adapted from Imersion,
Castle Clarke, and Weston
2016
People who are keen and want to stick around
Retention
Workers equipped with new skills meet Alex’s
needs
Reskilling
More social care and Personal Assistant’s
Recruitment
People working in new kinds of jobs that fit in
Alex’s life
Roles (new)
Retention
NHS Employers
Recruitment and retention
A working reflection tool for
practitioners
NHS Employers retain and
improve
Roles (new)
HEE Apprenticeships
Skills for Care Workforce planning
New Role Templates
Nursing Associate
Care Navigator
Reskilling
Learning Needs Analysis
Workforce Shaping (SfC),
Learning Disability Made clear
Autism awareness learning
resources
Co-production self-
assessment tool
Recruitment
Skills for care (int)
Workforce intelligence (int)
Competencies and Learning
Need Analysis (int)
Attracting recruiting for values
Learning Disability and the Transforming Care
Programme
James Moreton – Regional Director East
Who we are
• We are the recognised Sector Skills Council for the whole UK
Health Sector, licensed by Government
• We are a not–for-profit organisation
• Our aim is to improve the way health services are delivered
through improving operational efficiency, quality and
productivity
All Staff E-Rostering and
Time & Attendance
Consultancy
(Workforce Planning &
Organisation Development)
Learning & Development
Related Services
Occupational Standards
(Competence Frameworks)
HOW WE ARE INVOLVED WITH
LEARNING DISABILITY PROGRAMME?
• Development of Competency Framework
in partnership with HEE and providers
• Developed Learning Needs Analysis tool
• Competency based Role Profiles
• LD Core Skills Training Framework
• Elearning related to Care Certificate
National and Regional Work
Learning Disabilities Core Skills
Training Framework
• The framework determines minimum standards for LD education
and training, and assists in ensuring the standards are met.
• Applicable to health/care employers and educational organisations
training those to be employed in the workforce.
• As individuals move employer, core training can be recognised to
minimise the duplication or repetition of training.
• Practical applications of the framework for employer organisations;
– Identifying key skills and knowledge for roles and teams
– Planning and designing content of education & training
– Commissioning of education & training
– Conducting training needs analysis
– Supporting performance management and the assessment of competence
Learning Disabilities Core Skills
Training Framework
Tier
3
Tier
2
Tier 1
Skills and knowledge for key staff working with/caring
for people living with LD
Skills and knowledge for roles that have
some regular contact with people living with
LD
Knowledge for roles that require
general awareness of LD
WHAT ELSE CAN WE OFFER
• Workforce development consultancy/support
• Apprentice Pathway Development – “Grow Your
Own”
• Strategic Workforce Planning
• Role development to meet future service needs
• Skills Passport
• Advice and guidance
Additional Services
• James Moreton – East
Mobile - 07795 301471
Email – james.moreton@skillsforhealth.org.uk
• Marc Lyall – West
Mobile – 0781 396 4752
Email – Marc.Lyall@skillsforhealth.org.uk
Contact details
Cultures and behaviours
“the focus person has begun calling people by their names, where previously she
was shouting man or woman”
“The focus person for the first time in her life was able to bake cupcakes.”
“He is living in his own flat and is actively supported out in the community there is
no Physical Interventions in his guidelines.”
We have recognised as a specialist CTPLD that the staff team at the home along
with it's managers have been struggling to cope with ***'s behaviours and those
of others in their home. The staff team presented as overwhelmed, 'out of their
depth' and unsupported. As a result of the training the staff team are now
demonstrating more resilience and capability and the management are reviewing
the ways they support their staff team.
Workforce redesign
Principle 1
 Take a whole systems view of organisational change
Principle 2
 Recognise the different ways people, organisations and partnerships
respond to change
Principle 3
 Nurture champions, innovators and leaders; encourage and support
organisational learning
Principle 4
 Engage people in the process; acknowledge value and utilise their
experience
Principle 5
 The different ways that people learn should influence how change is
introduced and the workforce supported
Principle 6
 Encourage and utilise people’s thinking about values, behaviours and
practice to shape innovation
Principle 7
 Actively engage with your community to understand its cultures and
strengths; work with the community to develop inclusive and creative
workforce planning strategies
Workforce integration
Principle
1
 Successful workforce integration focuses on better outcomes for people
with care and support needs
Principle
2
 Workforce integration involves the whole system
Principle
3
 To achieve genuine workforce integration, people need to acknowledge
and overcome resistance to change and transition. There needs to be
an acknowledgement of how integration will affect people’s roles and
professional identities
Principle
4
 A confident, engaged, motivated, knowledgeable and properly skilled
workforce supporting active and engaged communities is at the heart of
workforce integration
Principle
5
 Process matters—it gives messages, creates opportunities, and
demonstrates the way in which the workforce is valued
Principle
6
 Successful workforce integration creates new relationships, networks
and ways of working. Integrated workforce commissioning strategies
give each of these attention, creating the circumstances in which all can
thrive.
Change
www.england.nhs.uk/learningdisabilities
Question Time
Chaired by Carl Shaw
www.england.nhs.uk
Thank you
Contact us by emailing:
england.learning.disability@nhs.net

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Transforming care for learning disabilities

  • 1. www.england.nhs.uk Building the Right Support for Learning Disabilities Turning improvement ideas into local action Kia Oval, Surrey County Cricket Club, London SE11 5SS 19 July 2016
  • 2. www.england.nhs.uk Building the right support for people with learning disabilities: Turning improvement ideas into local action Dr Julie Higgins Senior Responsible Officer Transforming Care Programme Kia Oval 19 July 2016
  • 3. www.england.nhs.uk Making it happen – working together and turning plans to reality
  • 4. www.england.nhs.uk • Making sure less people are in hospitals by having better services in the community • Making sure people don’t stay in hospitals longer than they need to • Making sure people get good quality care and support in hospital and in the community The transforming care work has three big aims:
  • 6. www.england.nhs.uk What have we achieved? • 6 fast tracks • 48 new Transforming Care Partnerships • 48 sets of plans to transform local services for local people and families • 48 sets of milestone plans that will enable us to tell the story of change
  • 7. www.england.nhs.uk Further progress made on • Fewer people in hospital • Care and treatment reviews rolled out • Data quality improvements • Revised financial guidance, Frequently Asked Questions ‘Who Pays’, aligning the specialised commissioning budget
  • 8. www.england.nhs.uk Working with seven groups of Transforming Care Partnerships who have the greatest challenges. These TransformingCare Partnerships together account for more than 50% of the proposed inpatient reductions planned for 2016/17 • North East Group - Cumbria and the North East • North West Group - Cheshire and Mersey, Lancashire, Greater Manchester • Yorkshire Group - North Yorkshire, Barnsley, Wakefield, Kirklees and Calderdale, Bradford, Leeds, East Riding and Hull, and South Yorkshire • West Midlands Group - Coventry, Rugby, North Warwickshire and South Warwickshire, Black Country, Birmingham and Staffordshire • Kent and Medway Group - Kent and Medway • Hertfordshire, North London and Essex Group - NW London, NC London, Essex and Hertfordshire • North Central Midlands Group - Derbyshire and Nottinghamshire Going further: Extending the community of fast tracks
  • 9. www.england.nhs.uk £30 million over three years – about half the 24 Transforming Care Partnerships funded for 2016/17 Funding distributed this week Transformation funding
  • 10. www.england.nhs.uk • Learning and Improvement • Working together • Sharing what works • National support offer for Transforming Care Partnerships: • Putting you in touch with experts by experience • Bespoke advice from our Change and Improvement Steering Group • Open access to the national team, comprehensive skills mix • Online learning and development (courses, webinars) • Visits and onsite coaching Focus today: Supporting Sustainable change
  • 11. Transforming care for people with learning disabilities The Coventry, Warwickshire and Solihull Experience Becky Hale, Strategic Commissioning Service Manager All Age Disability, Warwickshire County Council Ali Cole, Project Manager Transforming Care, Arden & GEM CSU Karen James, Operations Manager Specialist Community Services, Coventry and Warwickshire Partnership Trust
  • 12. The Transforming Care Journey • Our approach • Our challenges • Our achievements • Our lessons
  • 13. The Local Context – March 2016 • Learning Disability and Autism Population = 29,000. Predicted to rise by 11% by 2030. • Local inpatient facilities: – Gosford Ward, Coventry (9 beds) (NHS) – Brooklands Hospital, Solihull (96 beds) (NHS) – No independent inpatient services • Only 25 of 105 beds in the TCP area populated with local residents. • 1 person in acute mental health bed • Out of area: – 5 adults in forensic rehabilitation beds – 2 adults in complex continuing care beds – 11 adults in secure beds – 11 young people in CAMHS beds
  • 14. The Transforming Care Journey • Winterbourne made us work together • Dec 2013 - Accelerated Learning Event to shape our strategic response • 2014/2015 – Co-produced a new model of care with stakeholders • Learning from Solihull (since 2009) • Learning Disability Strategies, Joint Plans and Transforming Care structures in place across health, social care and local provider • Problem solving approach (we all own the issues) • NHS Change Model
  • 15. The Transforming Care Journey • Summer 2015 - Fast Track Arden, Herefordshire and Worcestershire. – Development of the bid challenging – unfamiliar footprint, timescale, beds vs people, bid support. • Oct 2015 - Funding received from NHSE • Dec 2015 - New model of care launch • March 2016 - Gosford ward (9 beds) closed • Building the Right Support – TCP area changed to Coventry, Warwickshire and Solihull with revised plan submitted in March 2016.
  • 16. Vision for the future “The future is where people with learning disabilities and autism:  are not put in a position where they become unwell because of their environment;  don’t have to go into hospital unless absolutely necessary;  are supported with their needs, emotions and feelings;  are supported to grow and develop;  are not taken away from their family and friends and isolated;  live in their local community;  go out in their local community;  work in their local community;  and are seen as a valued member of society” • Living My Life DVD – Transforming Care Chapter
  • 17. The Local Transformation Plan • Outcome focused – Living my Life • Reduction in inpatient beds in line with the 10 – 15 ratio. • Reduced length of stay • Transfer of funds from inpatient to community services • Phased plan : – Phase 1 – Enhanced Support and emergency accommodation in the community for adults, Gosford ward closure – Phase 2 – community support for children and young people, people with Autistic Spectrum Disorder only, people from specialised services population, understanding impact on specialised services • Long term purpose built accommodation • Personal budgets, joint commissioning and pooled budgets
  • 18. Model of Care Personalised care and support Extra support when things change Hospital is a last resort. Support in hospital to return home
  • 19.
  • 21. Implementing our new Model of Care • Community Intensive Support Team • Mental Health Liaison Nurses. • Admission avoidance agreements, funds and accommodation. • Long term accommodation with support developments. • Re-design of mental health services for children and young people (CAMHS). • Model of care DVD and workforce development. • Continued customer and carer engagement.
  • 22. Achievements so far…… • Phase 1 completed – Intensive support team – Emergency accommodation – Gosford ward closed • 33% reduction in inpatients • Average length of stay reduced from 105 days to 30 days* • £1.4M reinvested in community services *NB In Solihull, the numbers of inpatients are so small that average length of stay is not a meaningful metric.
  • 23. Current Focus • At Risk Register. • Understanding our cohort of children and young people and people with autism in specialised services. • Detailed planning (jointly) to support potential discharges. • Understanding the potential pressure (financial and capacity) and how to use current funding differently. • Market engagement and development. • Workforce development. • Commissioning infrastructure - joint commissioning and pooled budgets. • Communication and engagement • Developing new accommodation based services.
  • 24. Challenges so far…… • People NOT numbers • Understanding our target population with NHS England and what this means (including changing plans for discharges) • Governance and financial context. • Adjusting plans based on new partnership area. • NHS England monitoring and timescales. • Dedicated resource for the programme and Care and Treatment Reviews • Consultation plans – listening to the right people • Making sure the right services are in the area to support people (market development)
  • 25. Benefits so far…… • Early agreement and clarity of purpose. • Transitional funding – £825,000. • Escalating pre existing plans. • LD/Autism higher on the priority list locally. • Focus on pooled budgets and joint working. • Clinical review activity with NHS England Specialised Commissioning. • Overwhelming support for model of care.
  • 26. Challenges so far…… • Recruitment & Development of the team • Developing clear roles, differing opinions and expectations • Developing services at the same time – Acute Liaison Nurse for mental health services, Intensive support accommodation • Issues around timely Care and Treatment Reviews, decision making, involvement • Different agencies at different stages of development • Capacity
  • 27. Benefits so far…… • Fewer people have gone into hospital • People have returned home more quickly when they go into hospital • Worked alongside existing community teams who knew people well • More intensive involvement allowed more time and focus and led to a better outcome for the person • Working more closely with mental health staff • Being able to access money quickly to put extra support in place
  • 28. Case Study - Dave • The Intensive support team worked with Dave during his hospital stay • Joint assessment process across Health and Social Care and new provider identified • Ready for discharge – use of the enhanced accommodation • Joint transition work between the team and service provider • 5 weeks of intensive support from the IST • Continued review and assessment of positive interventions • Handover back to the community team
  • 29. Case Study - Dave • Think differently • Be creative • Never give up!
  • 30. Our Lessons Learned • Build the model of care from the bottom up = buy in. • Evidence-based change methodology • Focus on enhancing work already happening locally. • Learn from others (Solihull). • Accessible model of care (DVD). • Dedicated resources for ongoing customer and carer engagement. • Think about potential need for public consultation early. • Transparency and collaborative working with service providers. • Consider best use of time and resources
  • 31. Our Lessons Learned • Culture change is key • Be Brave! – change the conversation • Working together and not being afraid to challenge - “what is the art of the possible?” • Openness • Equal partners in the team
  • 34. www.england.nhs.uk/learningdisabilities Thankyou for inviting us David Branford Carl Shaw Ben Briggs Learning Disability Programme NHS England
  • 35. www.england.nhs.uk/learningdisabilities • Background to this work • Why is this work important? • The aims of STOMPLD • YOUR role in this What we’re going to talk about
  • 36. www.england.nhs.uk/learningdisabilities This work is part of Transforming Care There are 6 partner organisations, and 48 local Transforming Care Partnerships. We all work with people with learning disabilities, families and services. We want to: 1. Reduce the number of people in learning disability and mental health hospitals 2. Reduce how long people stay in these hospitals 3. Improve the quality of care and support for people in hospital and community settings
  • 37. www.england.nhs.uk/learningdisabilities Medicines Programme Structure Medicines Oversight Group (Chaired by Hazel Watson) Provides oversight, scrutiny and advice on the work of the delivery group Medicines Delivery Group (Chaired by Anne Webster) Responsible for delivering on the work set out in the STOMPLD Project Plan, including communications, TCP delivery of STOMP and engagement with a wide range of stakeholders Learning Disability Programme Board and Transforming Care Assurance Board Hazel Watson- Quality Assurance and Health Inequalities Work stream Lead
  • 39. www.england.nhs.uk/learningdisabilities Psychotropic medication? • Medication for psychosis – antipsychotics • Medication for depression – antidepressants • If people have psychosis or depression these medicines can be really helpful When is it a problem? • Too much • Too many • Too long • Giving prescriptions without finding out what is wrong • Using it to manage people’s behaviour Problems of over-medication
  • 40. www.england.nhs.uk/learningdisabilities Ann and her son who was at Winterbourne View Hospital It was 3 years before he went home This is why we’re here
  • 41. www.england.nhs.uk/learningdisabilities • If you are drugged up, you can’t communicate with people properly • The world passes you by • It can make your behaviour more challenging in the long run • It doesn’t help you learn or change • It doesn’t help you get out of hospital, the opposite in fact • People shouldn’t be living like that A human rights issue
  • 42. www.england.nhs.uk/learningdisabilities Why? There’s usually a reason: • Not listened to or understood? • Abuse or trauma? • Unable to deal with feelings? • Too much physical restraint? • Too little contact with others? • Poor relationships with staff or patients? • Pain or illness? • Is medication always the answer?
  • 43. www.england.nhs.uk/learningdisabilities Figures from Public Health England Think of 100 adults with learning disabilities • Doctors are prescribing antipsychotics for 17of those people • Doctors are prescribing antidepressants for 17 of those people.
  • 44. www.england.nhs.uk/learningdisabilities • 7 people are being prescribed both • Only 4 of those 100 adults with learning disabilities have psychosis • Fewer than 7 people have depression • 16 are taking one or other drug and don’t have either a psychosis or depression Figures from Public Health England
  • 45. www.england.nhs.uk/learningdisabilities Medicines Project Core Message Public Health England estimates that every day 30,000 to 35,000 adults with a learning disability are being wrongly prescribed an antipsychotic, antidepressant or both. Unnecessary use of these drugs, puts people at risk of significant weight gain, organ failure and even premature death.
  • 46. www.england.nhs.uk/learningdisabilities Time to change - STOMPLD • This is about improving people’s lives • This is about helping people live longer and giving families more time with their loved ones • This is about stopping the use of these drugs to manage people’s behaviour • Stop Over Medicating People with Learning Disabilities - STOMPLD
  • 47. www.england.nhs.uk/learningdisabilities The STOMPLD Pledge The STOMPLD pledge was signed at a summit in London on 1 June by • Royal Colleges of Nursing, Psychiatrists and GPs • Royal Pharmaceutical Society • Challenging Behaviour Foundation • British Psychological Society • NHS England • The Minister Alistair Burt They have pledged to work together and with people with a learning disability and their families, to take real and measurable steps to stop over medication
  • 48. www.england.nhs.uk/learningdisabilities First steps – GP campaign • As part of this, a new booklet for GPs has been launched. • It was written by NHS England and the Royal College of GPs • It encourages family doctors to only consider psychotropic drugs to manage behaviour when the person is at severe risk of harming themselves or others • And only when all other options have been explored
  • 49. www.england.nhs.uk/learningdisabilities STOMPLD is about more than…. • Better record keeping • Better transfer of information about medicines between GPs and specialists (and everyone else involved) • Ensuring people get a diagnosis • Stopping prescription errors • Although these are all important too • It is about quality of life
  • 50. www.england.nhs.uk/learningdisabilities Over to you What can you or your organisation do to stop the over medication of people with learning disabilities or autism?
  • 51. www.england.nhs.uk/learningdisabilities • Visit the NHS England website • www.england.nhs.uk/learningdisabilities For more information
  • 53. www.england.nhs.uk/learningdisabilities Health and Social Care Information Centre Learning Disabilities Census Report – Further analysis England, 30 September 2013 • Survey responses were received from 104 provider organisations on behalf of 3,250 service users • Over two thirds of service users (68.3% or 2,220) had been given anti-psychotic medication leading up to Census day. Of these, 93.0% (2,064) had been given them on a regular basis. .
  • 55. www.england.nhs.uk/learningdisabilities Data from CPRD General Practice prescribing study
  • 56. www.england.nhs.uk/learningdisabilities Data from CPRD General Practice prescribing study
  • 58. www.england.nhs.uk/learningdisabilities Make psychotropic medication the last resort The NICE guideline [NG11] Published date: May 2015 ‘Challenging behaviour and learning disabilities: prevention and interventions for people with learning disabilities whose behaviour challenges’ • Consider antipsychotic medication to manage behaviour that challenges only if: • psychological or other interventions alone do not produce change within an agreed time or • treatment for any coexisting mental or physical health problem has not led to a reduction in the behaviour or • the risk to the person or others is very severe (for example, because of violence, aggression or self-injury). • Only offer antipsychotic medication in combination with psychological or other interventions.
  • 59. www.england.nhs.uk/learningdisabilities International guide to prescribing psychotropic medication for the management of problem behaviours in adults with intellectual disabilities Deb S et al ,World Psychiatry. 2009 Oct; 8(3): 181–186 • The medication should be prescribed at the lowest possible dose and for the minimum duration. • Non-medication based management strategies and the withdrawal of medication should always be considered at regular intervals. • If the improvement of the behaviours that challenge is unsatisfactory, an attempt should be made to revisit and re-evaluate the formulation and the management plan.
  • 60. Transforming Care in Lincolnshire: Coproduction, Coproduction, Coproduction Sharon Jeffreys – Head Commissioning of Learning Disabilities and Autism Jo Minchin - Expert by Experience
  • 61. True Co-production with those with a lived experience - Engaging with people who use the services and their families and carers to find out what works well and what we need to do better - Partnership Boards - Expert by Experience Workers
  • 62. Engaging with people who use the services and their families and carers to find out what works well and what we need to do better What we did • Sent all invites in easy read • Put our photos on the invites • Held events all around the county • Different times of the day Feedback from Events • People felt like we really wanted them to attend • High turn out compared to other engagement events • People felt listened to • People liked that we smiled on our pictures 
  • 63. The Re-launch of the Autism Partnership Board – 30th January 2015
  • 64. The Re-launch of the Autism Partnership Board – 30th January 2015
  • 65. The Launch of Lincolnshire's All-age Autism Strategy – 2nd April 2015. The theme was creativity of people with ASD
  • 67. Making bigger meetings autism friendly Also known as flapplause. Flap, don’t Clap.
  • 69. Other reasonable adjustments • Maps to, and of the venue. • Consider lighting and background noise. • Ask participants if there are things that might cause a problem before the meeting. • One page profiles. • Making the adjustments individualised. • Match people to their strengths.
  • 70. Expert by Experience worker I work with other autistic people, in one work stream I do this on the Autism Partnership Board (APB). I chair the A-team, collaboration group of autists and parent carers of autistic people, and I don’t think that the group would thrive as it does if it were not being steered by an autistic person. I can also be seen by the members to be a valued part of a bigger team within service shaping and commissioning. I am paid to do my role, that is noteworthy and valued deeply by the other A-team members. I don’t have to convince them that I am on their side, and they see that I do bring their views and concerns to those deeper within the commissioning team. My involvement in Care and Treatment Reviews (CTRs) has been both useful for the team and for the individuals the CTR has been for. In some cases, I am the only member of the team the individual has wanted to talk to. I have the experience of a disability, there is already a shared understanding between us.
  • 71. Transforming Care Team Recruitment The interview panel process and any other activity that is conducive to enhancing positive images, results, maintenance and other such elements in relation to autistic people and essentially the entire community, is wholly endorsed by myself and it was an absolute pleasure to be given the opportunity to provide authentic input. Authentic input is integral to all elements mentioned above and beyond because autistic people are not hopeless, motionless, un-impactful beings and deserve to be majorly if not completely involved in everything that concerns them and others which is not to imply 'them' and 'us' but to confidently communicate that this approach is for everyone's benefit. Callum, expert by experience panel.
  • 72. Transforming Care Team Recruitment It was vital that we knew how the panellists felt about working with autistic people. One of the best ways to do that is to actually see how they interact with us, and deal with our sometimes quirky behaviour. One of the panellists conducted most of his part of the interview whilst lying on the floor behind some filing cabinets. I spent much of it spinning thread on my spindle, and the other panellist had some pressing questions on an issue that he is campaigning about. We all had something different and unique to bring to the process, and we made a good team It was interesting to see how people responded to our question about how they felt about working with us. Most responded with a carer / patient scenario, whereas a few more enlightened ones started talking about us as work colleagues. That was the answer we were looking for, though we admit, it’s a very forward thinking model at the moment. I wish it wasn’t.Jo: Expert by experience panel
  • 73. Transforming Care Team Recruitment I feel that it was a good opportunity to see what kinds of people wanted these jobs, and to see how well they could set aside the jargon and formality in exchange for frank communication. I will say that the technical qualifications went over my head. I could not possibly judge whether someone is capable of doing something I cannot. However, seeing how an applicant dealt with one of their interviewers lying on the floor was a useful test, I think. It is a very comfy floor. And, of course, the obvious: It's good to have at least one autistic person involved at in selecting someone who will have significant influence over many other autistic people.Joshua: Expert by experience panel
  • 75. www.england.nhs.uk Help us to Help you Pól Toner RN MSc Head of Improvement and enablement Strategic Resettlement “Thinking and Planning for a Better Future”
  • 76. www.england.nhs.uk Supporting Service Changes Locally • We, as a national team are here to support you e.g. • Practical support locally to help you improve more quickly • Housing people working with us to help move more quickly • Service people working with us to get the care right and in the right place for the many people we need to support • Maggie and team will say how we will do this with your help • We welcome your views • The help is about your needs
  • 77. www.england.nhs.uk Two Main Parts to Thinking and Planning better services • Thinking and Planning ahead to meet the needs locally. • Working to ensure new services that are in place provide what local people say they need and that they are involved • Sustainable and permanent positive change for people with Learning Disability and ASD. • “Personalisation at scale”
  • 78. www.england.nhs.uk • Firstly this is about thinking and planning ahead • It relies on the partnerships locally having good plans developed and prepared to meet the needs for this patient group so changes can happen for many patients quickly. • Secondly the future needs to allow for other service ideas so we can continue to meet the needs , for people with Learning disabilities and ASD, both now and for future Generations. The basis
  • 79. www.england.nhs.uk What is Thinking and Planning ahead? • Its about Planning • Understanding the needs of the people you need to plan ahead for • Impact of much fewer beds in the system • Understanding many people will be leaving hospital sooner and how to make sure this goes smoothly • Its about putting new services in place to meet changing needs • Care and housing for many individuals • Supporting people who give care now to understand why change is happening and how they can help to meet the needs of the new services as they happen
  • 80. www.england.nhs.uk How it fits • Its business as usual but a little faster • Planning is about Building the Right Support • Fits with Discharge planning guidance • We need to make sure we can do everything we said we will do in our plan with the people and money we have locally at the right time to meet local needs
  • 81. www.england.nhs.uk Strategic planning  Transforming Care Partnerships need to understand the needs of people with Learning Disabilities in their local area  Housing, care providers’ and workforce people need to be involved and work to making sure the new services are supported by the right workers and the right housing and right care in the right place at the right time  Plan to support people outside hospital rather than in hospital beds  Solid discharge planning and arrangements in place
  • 82. www.england.nhs.uk Strategic commissioning • Bring all commissioning work together in the local area • Thinking and planning ahead should mean that contracts in place support reducing beds • Involve people who provide care • Make sure the care system is in a good place for now and the future
  • 83. www.england.nhs.uk In the Regions • Regional teams all work slightly differently but will need to ensure everything is working well • Regional teams will support the changes planned or underway locally • The team can do this face to face or make it easier using technology • Managing a steady and consistent development of community services and bed reduction as set out in their plans.
  • 84. www.england.nhs.uk In the Regions Much work is already underway • Regional team should establish a resettlement team function • This resettlement function should develop expertise • Ward/ unit/ hospital closure level changes should be led by the local Transforming Care Partnership commissioners including specialised commissioning, with providers. • National Team will support the regions with provider engagement Regions will have a good understanding of the entirety of the patient cohort
  • 85. www.england.nhs.uk Commissioning Development  We need to consider the wider context of commissioning, including Local Authority and Clinical Commissioning Group commissioners and consider the impact on and expertise and leadership required within these teams going forward.  We need to strengthen coordinated commissioning for people a learning disability or Autistic Spectrum Disorder.  We need to strengthen admission and discharge management, through length of stay and escalation management  Encouraging life planning
  • 86. www.england.nhs.uk Over the summer and where work is beginning • Regional teams will be supported to expand their ideas about how they will work with everyone else on this, • Over July and august and by September 2016, each Transforming Care Partnership and Region to have developed local thinking and starting to plan ahead for engagement with housing and care providers, • Need to ensure those who organise more specialised care and others who provide care are talking and working together • Transforming Care Partnership’s to map out their plans and what the issues are and what do we need to do to reduce any risks around our plans
  • 87. www.england.nhs.uk • During the summer, regions will have identified, from this information collectively from Clinical Commissioning Groups, wards and units for Transforming Care Partnerships to earmark for closure and start to plan closure, We can then support with next steps. • Where units and wards have patients from outside the region, regions and Transforming Care Partnerships will need to work together (and where this is the case) identify a lead Clinical Commissioning Group to manage the process and closure, based on a fairness model. • At Regional level to enhance their plans to deliver the changes around their patients at a steady state between then and march 2019, including a ward/ unit closure programme. • By October 2016, a full meeting will have been held to outline new community model of care being proposed and new reducing based model Work will continue
  • 88. www.england.nhs.uk • As a goal we want Transforming Care Partnerships to manage discharges/ movements and follow individual bed closures • We want regions to work together and to follow regional closure profiles and ensure Clinical Commissioning Groups work together on ward and into closure • Nationally we want to follow ward and unit closures • So every patient is managed and their progress recorded and help given if necessary Prioritise Discharge Management
  • 89. www.england.nhs.uk The tasks/ expectation: • Its not just about bed reduction, for all regions; • its also about repatriation back nearer home and the development of new service models • Identify wards and units affected as part of their 3 year profile to achieve the 50% closure. • Expectation will be to now strategically discuss discharges and ward and unit changes/closures, with providers, at Transforming Care Partnerships and Regional Level based on ambitions for new models of care and services, • but local teams will still need to concentrate on patient centred case management and personalised delivery of effective care.
  • 90. www.england.nhs.uk • Transforming Care Partnership planning process, will be about moving the plans from planning to transformation and closures. • This is not just at patient level but at ward and unit closure level and to permanently close the door to increased admissions • Effective provider engagement • ensuring the new service model is sustainable and supports people living well outside hospital with the right support locally • We will work with the systems to monitor and support practical progress on this In Conclusion
  • 91. www.england.nhs.uk “safe and sustainable personalised care planning at scale and pace”. Thank You
  • 92. Pan Lancashire Transforming Care Partnership (TCP) ‘Right Track’ Plan
  • 93. Transforming Care Partnership (TCP) Providers Population with Learning Disabilities and/or Autism Specialised Commissioners
  • 94.  NHS England via Northern England Programme Board  Calderstones & Mersey Care Partnership Board  Lancashire Collaborative Commissioning Board  Transforming Care Partnership Steering Group  Learning Disabilities Commissioning Network  Children’s Network  Sub groups  Health & Well Being Boards  Overview & Scrutiny Committee Reporting & Developing
  • 95. Implementation Steering Group Comissioners Networks Housing Finance Resettlement Team Procurement Workforce Co Production Confirm & Challenge CCB Stakeholder Events
  • 96.  Create a Vision for a New Community Model of Care  Resettlement of long term hospital placements  Understand the Financial Implications  Development of Services to Support  Consider New Methods of Delivery look for Innovation and Partnership Approaches  Improve Quality and User Experience  Change the Culture Pan Lancashire Priorities
  • 97. Supports the delivery of the changes required  Housing Strategy Development  Procurement/Contracting/Commissioning – developing a flexible agreement  Workforce  Understanding the Service Demand – Risk Registers/Data Sharing  Community Service Specification – New Model/All Age  Avoiding Placement Breakdown/CRISIS  Resettlement Programme  Improving Health Route Map- Work streams
  • 98. Engagement  Lancashire Confirm & Challenge group established  North West Events Supported  Lists of existing groups  Developing communication processes  Asked about needs for homes, communities , support requirements and staffing for service users and carers  Also invited to stakeholder events What have we done and what have we learned………………….….…!
  • 99. Market Stimulation – ACEVO Report  Undertook a Request For Information February 16  Held an event in March 16– 93 Providers  Many providers are interested in Lancashire  Need to strengthen Leadership  Need to commission smarter  Need to Quality Assurance  Need to harness partnership working  Currently developing a flexible agreement Pan Lancashire What have we done and what have we learned………………….….…!
  • 100. What have we done and what have we learned………………….….…! Community Model  Held a community team stakeholder event  Developed a draft integrated service specification  Shared and discussed at a wider adult stakeholder workshop  Shared and discussed at a wider children’s stakeholder workshop  Had a ballot for all age specification  Currently incorporating the comments and feed back
  • 101. What have we done and what have we learned………………….….…! Housing  Agreed to develop a Pan Lancashire Housing Strategy  Commenced data collection on population – definitions and categorisation problematic  Considered voids  Engaged with District Councils  Considered the models required to meet the needs of the population  Need to incorporate Children’s and transition requirements
  • 102. What have we done and what have we learned………………….….…! Finance  Urgent requirement to establish a pooled budget  Identified a set of principles  Held a workshop to develop  Identified risks and anxieties  Devised an Memorandum of Understanding – requested sign up from all organisations to agree to work together  Developed a draft plan  Identified the current spend/ organisation populations  Local Authorities reviewed line by line to clarify inclusions  Footprints to be agreed  Risk agreement considered the priority
  • 103. What have we done and what have we learned………………….….…! Workforce  Plan developed with Health Education England  Stakeholder workshops held - adults and children  Engaged with providers to undertake mapping  Considering how to incorporate into contracts  PBS being considered as a specific development  Recruitment and retention are a concern and have delayed discharges
  • 104. What have we done and what have we learned………………….….…! Resettlement  Ratified the cohort, Clinical Commissioning Groups & Specialised Commissioned  Discharge co-ordination team  Report to the steering group  Devised a 12 point discharge plan  Started a strategic approach to commissioning  Considered models of care that will better meet the needs of the population  Complex cases – unique solutions in place Ministry of Justice resistance
  • 105.  Know the population – what data and from where  Data Holding/Sharing issues  Acquisition programme  Commissioner resources to progress  Additional resources to support transition  Development of STP – differing footprint  Pace – systems are not established to support decision making  Doing too much all at once  Appetite to be bigger, bolder and braver Challenges
  • 106. This is just the beginning…..  Need to maintain strong lasting partnerships  Need to establish robust communication links  Need to learn what we still don’t know  Engage those we haven’t yet reached  Continue to work together to make a difference Ongoing Progress
  • 108. Building the right support Workforce
  • 110. Unpaid – Family, Friends, Carers Work, Manager, HR, Admin Local Authority Health Main stream services Tim
  • 111. Unpaid – Family, Friends, Carers Health Main stream services Social Care Alex
  • 113. Unpaid - Families and Carers Personal Assistants Social Care Health Main stream services Market supply and confidence Changes to the nature of work Technology Shift of power Effective approaches Commissioning Inter- disciplinary Relationships
  • 114. Todays staff and skills Training Pipeline New Roles Skill Development Role Enhancement Role enlargement Skill Flexibility Role substitution Role Development What's needed Adapted from Imersion, Castle Clarke, and Weston 2016
  • 115. People who are keen and want to stick around Retention Workers equipped with new skills meet Alex’s needs Reskilling More social care and Personal Assistant’s Recruitment People working in new kinds of jobs that fit in Alex’s life Roles (new)
  • 116. Retention NHS Employers Recruitment and retention A working reflection tool for practitioners NHS Employers retain and improve Roles (new) HEE Apprenticeships Skills for Care Workforce planning New Role Templates Nursing Associate Care Navigator Reskilling Learning Needs Analysis Workforce Shaping (SfC), Learning Disability Made clear Autism awareness learning resources Co-production self- assessment tool Recruitment Skills for care (int) Workforce intelligence (int) Competencies and Learning Need Analysis (int) Attracting recruiting for values
  • 117. Learning Disability and the Transforming Care Programme James Moreton – Regional Director East
  • 118. Who we are • We are the recognised Sector Skills Council for the whole UK Health Sector, licensed by Government • We are a not–for-profit organisation • Our aim is to improve the way health services are delivered through improving operational efficiency, quality and productivity All Staff E-Rostering and Time & Attendance Consultancy (Workforce Planning & Organisation Development) Learning & Development Related Services Occupational Standards (Competence Frameworks)
  • 119. HOW WE ARE INVOLVED WITH LEARNING DISABILITY PROGRAMME?
  • 120. • Development of Competency Framework in partnership with HEE and providers • Developed Learning Needs Analysis tool • Competency based Role Profiles • LD Core Skills Training Framework • Elearning related to Care Certificate National and Regional Work
  • 121. Learning Disabilities Core Skills Training Framework • The framework determines minimum standards for LD education and training, and assists in ensuring the standards are met. • Applicable to health/care employers and educational organisations training those to be employed in the workforce. • As individuals move employer, core training can be recognised to minimise the duplication or repetition of training. • Practical applications of the framework for employer organisations; – Identifying key skills and knowledge for roles and teams – Planning and designing content of education & training – Commissioning of education & training – Conducting training needs analysis – Supporting performance management and the assessment of competence
  • 122. Learning Disabilities Core Skills Training Framework Tier 3 Tier 2 Tier 1 Skills and knowledge for key staff working with/caring for people living with LD Skills and knowledge for roles that have some regular contact with people living with LD Knowledge for roles that require general awareness of LD
  • 123. WHAT ELSE CAN WE OFFER
  • 124. • Workforce development consultancy/support • Apprentice Pathway Development – “Grow Your Own” • Strategic Workforce Planning • Role development to meet future service needs • Skills Passport • Advice and guidance Additional Services
  • 125. • James Moreton – East Mobile - 07795 301471 Email – james.moreton@skillsforhealth.org.uk • Marc Lyall – West Mobile – 0781 396 4752 Email – Marc.Lyall@skillsforhealth.org.uk Contact details
  • 126.
  • 128. “the focus person has begun calling people by their names, where previously she was shouting man or woman” “The focus person for the first time in her life was able to bake cupcakes.” “He is living in his own flat and is actively supported out in the community there is no Physical Interventions in his guidelines.” We have recognised as a specialist CTPLD that the staff team at the home along with it's managers have been struggling to cope with ***'s behaviours and those of others in their home. The staff team presented as overwhelmed, 'out of their depth' and unsupported. As a result of the training the staff team are now demonstrating more resilience and capability and the management are reviewing the ways they support their staff team.
  • 129.
  • 130. Workforce redesign Principle 1  Take a whole systems view of organisational change Principle 2  Recognise the different ways people, organisations and partnerships respond to change Principle 3  Nurture champions, innovators and leaders; encourage and support organisational learning Principle 4  Engage people in the process; acknowledge value and utilise their experience Principle 5  The different ways that people learn should influence how change is introduced and the workforce supported Principle 6  Encourage and utilise people’s thinking about values, behaviours and practice to shape innovation Principle 7  Actively engage with your community to understand its cultures and strengths; work with the community to develop inclusive and creative workforce planning strategies
  • 131. Workforce integration Principle 1  Successful workforce integration focuses on better outcomes for people with care and support needs Principle 2  Workforce integration involves the whole system Principle 3  To achieve genuine workforce integration, people need to acknowledge and overcome resistance to change and transition. There needs to be an acknowledgement of how integration will affect people’s roles and professional identities Principle 4  A confident, engaged, motivated, knowledgeable and properly skilled workforce supporting active and engaged communities is at the heart of workforce integration Principle 5  Process matters—it gives messages, creates opportunities, and demonstrates the way in which the workforce is valued Principle 6  Successful workforce integration creates new relationships, networks and ways of working. Integrated workforce commissioning strategies give each of these attention, creating the circumstances in which all can thrive.
  • 132.
  • 133. Change
  • 135. www.england.nhs.uk Thank you Contact us by emailing: england.learning.disability@nhs.net

Editor's Notes

  1. People and families – why we’re all here 48 TCPs – local delivery National team – tailored advice and solutions Regional Transforming Care leads – manage and support Alliance of national organisations – empowerment, workforce, regulation All of us – motivate, learn, inspire, challenge, reflect, collaborate
  2. Pace and amount of achievement in short pace of time
  3. Published Building the Right Support 6 Fast Tracks established National and local governance mechanisms in place Mobilised wholescale national delivery through 48 new Transforming Care Partnerships – health and social care SROs in place (7 local authority SROs) Embedded Care and treatment reviews to support right care in the right place for individuals – over 3000 CTRS now completed Published update to Who Pays guidance and commitment from DH to update regulations Started the work on understanding the children and young peoples population and surveyed 52 week placements and awarded grants in excess of £800,000 Consulted, engaged and revised Created new opportunities and piloting of new ways of working Established working groups and task specific groups Discharged more people than were admitted Helped changed peoples lives
  4. Impact Credibility Sustainability Match funding Affordability
  5. Today you will: For the first time, come together as a community of Transforming Care Partnerships Hear about the national support offer Get to know the national team and how we can help We hope you will: Get to know your TCP colleagues, talk and learn through shared experiences Tell us what you need and contribute to our ‘Improvement Exchange’ [bank of good ideas, to discuss] Ask for our support
  6. Key messages: Locally we have been advanced in our thinking and planning on our new model of care. The footprint for the Fast Track has been a real challenge as there is no natural synergies apart from Coventry and Warwickshire. Patient flows largely cover Birmingham not Herefordshire and Worcestershire.
  7. Key Messages: Ambition has been developed and jointly signed off as part of our joint plan in response to Winterbourne and is also key to our new LD Statement of Intent. New model of care predicated on personalised local services, hospital being the last resort.
  8. Key Messages: Ambition has been developed and jointly signed off as part of our joint plan in response to Winterbourne and is also key to our new LD Statement of Intent. New model of care predicated on personalised local services, hospital being the last resort.
  9. Jacqueline – use your words – the below are some suggested points to cover and tried to keep it plain english where possible. You have 10 minutes in the agenda so it only needs to be the key points. People will have an easy read version of the model of care to refer to. The Model of care has been developed through engagement with lots of people It focusses on giving people support which is personalised to their needs and which gives people choices about how they live their life. We want to support people to do the activities they enjoy, to have friends and a good life There are some things we want to do better to support people: Key staff – 1 person who coordinates your care and support Learn about you – learn more about things that upset and worry you or that make you feel unwell and how you would like to be supported when you are unwell · Training- Your carers can have training to understand the best ways to support you when you feel upset or unwell. Your carers will help you understand and communicate your feelings and needs. Sometimes you need more help than your carers can give you. This is because you are unwell or have had changes in your behaviours and the plans your carers have are not keeping you safe and well. When this happens we will provide extra support in your home. This could mean:   · More people caring for you and more hours of support each day  · Carers will have more training to understand your needs and to support your care plans  · You get treated for any mental illnesses that are making you feel upset or unwell We will have emergency accommodation available in the community for when people need somewhere to stay for a few days. This is not a hospital, but will provide a safe place for people to stay if they can’t be in their home. When people need extra support we want to make sure they get it as soon as they need it so that things don’t get worse. Often we can anticipate when people need extra support So we want to get better at supporting people to stay at home and not go into hospital Sometimes people will still need to go into hospital, but we want this to be a last resort. When this happens we are going to support that person so that their stay in hospital is not a long one and they can return to their own home as soon as possible.
  10. Community Intensive Support Teams implemented. LD and MH Liaison Nurse posts. Admission avoidance agreements, funds and accommodation. Long term accommodation with support developments. CAMHS Re-design. Model of care DVD and workforce development. Continued customer and carer engagement.
  11. Key messages: Poor take up of screening and primary healthcare - perpetuates inequalities, health problems going unnoticed. Need a better understanding of our children’s population – especially those transitioning into adult services. People out of area due to a lack of appropriate accommodation with care locally. Short term assessment and treatment beds – used because they are there. Recognise the need to support people in specialised commissioning to return to their local area – more active involvement early on to support effective discharge.
  12. Key messages: Poor take up of screening and primary healthcare - perpetuates inequalities, health problems going unnoticed. Need a better understanding of our children’s population – especially those transitioning into adult services. People out of area due to a lack of appropriate accommodation with care locally. Short term assessment and treatment beds – used because they are there. Recognise the need to support people in specialised commissioning to return to their local area – more active involvement early on to support effective discharge.
  13. Key messages: Poor take up of screening and primary healthcare - perpetuates inequalities, health problems going unnoticed. Need a better understanding of our children’s population – especially those transitioning into adult services. People out of area due to a lack of appropriate accommodation with care locally. Short term assessment and treatment beds – used because they are there. Recognise the need to support people in specialised commissioning to return to their local area – more active involvement early on to support effective discharge.
  14. Key messages: Poor take up of screening and primary healthcare - perpetuates inequalities, health problems going unnoticed. Need a better understanding of our children’s population – especially those transitioning into adult services. People out of area due to a lack of appropriate accommodation with care locally. Short term assessment and treatment beds – used because they are there. Recognise the need to support people in specialised commissioning to return to their local area – more active involvement early on to support effective discharge.
  15. Key messages: Poor take up of screening and primary healthcare - perpetuates inequalities, health problems going unnoticed. Need a better understanding of our children’s population – especially those transitioning into adult services. People out of area due to a lack of appropriate accommodation with care locally. Short term assessment and treatment beds – used because they are there. Recognise the need to support people in specialised commissioning to return to their local area – more active involvement early on to support effective discharge.
  16. Key messages: Poor take up of screening and primary healthcare - perpetuates inequalities, health problems going unnoticed. Need a better understanding of our children’s population – especially those transitioning into adult services. People out of area due to a lack of appropriate accommodation with care locally. Short term assessment and treatment beds – used because they are there. Recognise the need to support people in specialised commissioning to return to their local area – more active involvement early on to support effective discharge.
  17. Key messages: Poor take up of screening and primary healthcare - perpetuates inequalities, health problems going unnoticed. Need a better understanding of our children’s population – especially those transitioning into adult services. People out of area due to a lack of appropriate accommodation with care locally. Short term assessment and treatment beds – used because they are there. Recognise the need to support people in specialised commissioning to return to their local area – more active involvement early on to support effective discharge.
  18. Key messages: Poor take up of screening and primary healthcare - perpetuates inequalities, health problems going unnoticed. Need a better understanding of our children’s population – especially those transitioning into adult services. People out of area due to a lack of appropriate accommodation with care locally. Short term assessment and treatment beds – used because they are there. Recognise the need to support people in specialised commissioning to return to their local area – more active involvement early on to support effective discharge.
  19. Key messages: Poor take up of screening and primary healthcare - perpetuates inequalities, health problems going unnoticed. Need a better understanding of our children’s population – especially those transitioning into adult services. People out of area due to a lack of appropriate accommodation with care locally. Short term assessment and treatment beds – used because they are there. Recognise the need to support people in specialised commissioning to return to their local area – more active involvement early on to support effective discharge.
  20. Key messages: Poor take up of screening and primary healthcare - perpetuates inequalities, health problems going unnoticed. Need a better understanding of our children’s population – especially those transitioning into adult services. People out of area due to a lack of appropriate accommodation with care locally. Short term assessment and treatment beds – used because they are there. Recognise the need to support people in specialised commissioning to return to their local area – more active involvement early on to support effective discharge.
  21. Key messages: Poor take up of screening and primary healthcare - perpetuates inequalities, health problems going unnoticed. Need a better understanding of our children’s population – especially those transitioning into adult services. People out of area due to a lack of appropriate accommodation with care locally. Short term assessment and treatment beds – used because they are there. Recognise the need to support people in specialised commissioning to return to their local area – more active involvement early on to support effective discharge.
  22. Key messages: Poor take up of screening and primary healthcare - perpetuates inequalities, health problems going unnoticed. Need a better understanding of our children’s population – especially those transitioning into adult services. People out of area due to a lack of appropriate accommodation with care locally. Short term assessment and treatment beds – used because they are there. Recognise the need to support people in specialised commissioning to return to their local area – more active involvement early on to support effective discharge.
  23. Key messages: Poor take up of screening and primary healthcare - perpetuates inequalities, health problems going unnoticed. Need a better understanding of our children’s population – especially those transitioning into adult services. People out of area due to a lack of appropriate accommodation with care locally. Short term assessment and treatment beds – used because they are there. Recognise the need to support people in specialised commissioning to return to their local area – more active involvement early on to support effective discharge.
  24. Ben, Carl and David introduce themselves
  25. We’re really interested in hearing what people think about our core message.
  26. Ask the audience what they think the medication work is all about…
  27. Reference: Department of Health (2012) Transforming Care: A national response to Winterbourne View Hospital Final Report, (p.45).
  28. ‘My son has had many indignities foisted upon him. He was deprived of his liberty, abused, removed from his home and medicated all without his consent. In his position would you stand for it?’
  29. Carl/Ben- In the run up to Care and Treatment Reviews which are now carried out by local teams around the country, our Improving Lives team at NHS England carried out well over 100 in depth reviews of people’s care. Of the people we reviewed who were still in hospital (whose situations were particularly complex), at least 3 out of 5 people were receiving regular anti-psychotic medication. There is robust evidence that certain categories of drugs prescribed for certain mental health problems such as psychosis and medication for seizures can adversely influence physical health outcomes, especially without regular monitoring.
  30. Ben (Quote from a parent) “In the past my son was prescribed 3 different drugs to manage his behavioural difficulties. The behavioural problems were often a result of environmental issues such as bullying, excessive use of restraint, the use of punitive/aversive approaches or rapid staff turnover which resulted in a failure to deliver the person centred care plan. Pain from physical problems such as an undiagnosed, untreated, bleeding stomach ulcer, an untreated urinary tract infection and other commonly occurring illnesses would often result in Challenging Behaviour. Once the health issues were addressed and proper person centred care was in place the medication was not needed. Regrettably the issues around sustaining the right model of care and support proved impossible to resolve and the decision to use Sertraline and Carbamazepine in an effort to compensate for environmental issues which could not be solved was reluctantly accepted by us”
  31. Reference: Public Health England (2015) Prescribing of psychotropic medication to people with learning disabilities and/or autism by general practitioners in England, London: Public Health England. In 2015 Public Health England estimated that, on an average day in England, between 30,000 and 35,000 adults with a learning disability are being prescribed an antipsychotic, an antidepressant or both without an appropriate clinical reason. Unnecessary use of these drugs, puts people at risk of significant weight gain, organ failure and premature death. Is one of these 35,000 people your patient? Stop this happening and take action today. Check and review your patients immediately to ensure another day of potential harm doesn’t go by. -Prescribing Observatory for Mental Health: Nationally, over 60% of people with a learning disability who are seeing a psychiatrist, are being prescribed an antipsychotic drug but only half of these have the diagnosis of a psychotic mental illness that these drugs were developed to treat Ask people what they think of this message. Is it strong enough? Should it be stronger?
  32. Fellow Nurses! Ask them “What do you think of this message?”
  33. David
  34. Principle 1. The way that people relate to each other in organisations and across partnerships affects what needs to change and how people are affected. Workers, people in need of care and support, their families and friends are all part of the system and cannot be treated in isolation from it. A planning and workforce development process that is participatory, inclusive and evolving has more chance of success. The culture and the character of an organisation or partnership is determined by the people who work for it and who take responsibility for problems and solutions. Supporting people in different parts of the system through the whole process of change is integral to any strartegy and vision. Principle 2. Change can be threatening to individuals, making them feel ‘de-skilled’ and vulnerable. People are resistant to change that goes against the current work culture. Resources to support change, including time, need to be in place if transformation is to be successful and sustainable. People learn and change at different rates, so change programmes need to be flexible to accommodate this. Regular and two way communication that keeps people involved and updated will help to reduce negativity and anxiety. Principle 3. People learn and change at different rates, so change programmes need to be flexible to accommodate this. Regular and two way communication that keeps people involved and updated will help to reduce negativity and anxiety. Opportunities to support individuals in developing the confidence, skills and expertise they need to work in redesigned services need to be incorporated into all plans. Principle 4 Identifying and sharing the experiences, ideas and concerns of people within the organisation, gives a strong and positive message about the way in which individuals are valued. Sharing learning and experience across organisations, partnerships and communities provides a strong foundation for service transformation and supports the creation of effective networks and relationships. Encouraging the use of life experience in the workplace, and seeking out the learning from people’s work enriches and improves the quality of care and support. What works in practice is best learned from those people directly involved in it. Systems and processes that encourage the sharing of learning across organisations and partnerships are the infrastructure that makes this possible. Principle 5 The different ways that people learn should influence how change is introduced and the workforce supported. Adults are keen to learn where they see a practical application and can use their learning to help them solve problems. Learning is reinforced when it is used in everyday practice. People learn in different ways, and at different paces. Previous learning and educational experiences have an impact on confidence and attitude towards present learning; this can be positive or negative. The way in which learning takes place can be as important as the content. Learning occurs in many different settings, including daily activities, observing others, and supervision. Good learning environments blend these with opportunities for training and qualifications. Principle 6 Encourage and utilise the understanding of values, behaviours and practice to shape innovation Working with people’s attitudes, beliefs and understanding has a greater impact on cultural change and service transformation than focusing on behavioural changes. Individuals with a personal commitment to the organisation’s values and goals make a positive contribution to transformation and on-going improvement. Listening to people, encouraging questioning, valuing experiences and supporting new ideas makes people more confident and proactive in contributing to service transformation. “Doing the same better” limits any vision of high quality care and support. Focusing on the preferences and identified needs and wishes of people receiving care and support encourages imaginative and innovative ways of working with people. Principle 7. Social care and support takes place within local communities, and is itself part of that community. Local communities are made up of people with diverse skills and talents. Lifestyles vary according to culture and other circumstances. Involving the whole community in discussions and decision making about transformation ensures local need is identified and encourages people in the local area to contribute to its delivery. Approaches to recruitment, volunteering and employment should reflect the local picture, encouraging talented people from all backgrounds into social care and support roles. People living in the local community needing care and support should have their needs met in ways that fit with their individual lifestyle and preferences. The more diverse the workforce, the better this will be achieved.
  35. The principles are the result of an exploration of the existing evidence, an ongoing dialogue between partners, and listening to people and organisations doing workforce integration now. The principles are about working together in any context. For example: between adult social care and health or housing or children’s services between organisations, departments or practitioners and families or carers between any of these and people with care and support needs. The principles can also be used when thinking about large scale organisational change or looking at individual, or team, practices. Successful workforce integration focuses on better outcomes for people with care and support needs. Workforce integration involves the whole system. To achieve genuine workforce integration, people need to acknowledge and overcome resistance to change and transition. There needs to be an acknowledgement of how integration will affect people’s roles and professional identities. A confident, engaged, motivated, knowledgeable and properly skilled workforce supporting active communities is at the heart of workforce integration. Process matters - it gives messages, creates opportunities, and demonstrates the way in which the workforce is valued. Successful workforce integration creates new relationships, networks and ways of working. Integrated workforce commissioning strategies pay attention to each of these, creating the circumstances in which all can thrive.
  36. Ask the audience what they think the medication work is all about…