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WELCOME 
LTC Year of Care Commissioning 
Early Implementer Sites Workshop 
1 December 2014
Plan for the day:
Events 
Date & Time Event & Time Location 
8 December 2014 
2 – 4pm 
EIS Project Leads Forum WebEx 
19 January 2015 
2 – 4pm 
EIS Project Leads Forum WebEx 
2 February 2015 
10.30am – 3.30pm 
LTC Year of Care EIS Workshop Workshop in London 
16 March 2015 
2 – 4pm 
EIS Project Leads Forum WebEx
LTC Lunch & Learn Series ….coming soon… 
To register email LTC@nhsiq.nhs.uk 
Date Webinar Hosted by Bev Matthews & 
3 December 2014 
1 – 2pm 
Population level commissioning 
for the future 
Dr Abraham George 
Kent County Council 
7 January 2015 
1 – 2pm 
Self Management Support 
Return on Investment 
Renata Drinkwater 
Chief Executive & Trustee Self 
Management UK 
21 January 2015 
1 – 2pm 
Commissioning for Outcomes Bob Ricketts CBE 
Director of Commissioning Support 
Services & Market Development, 
NHS England 
4 February 2015 
1 – 2pm 
Accountable Care Organisations 
in the USA & England testing, 
evaluating and learning what 
works 
Dr Rachael Addicot 
Senior Research Fellow, Kings Fund
www.england.nhs.uk 
Chronic 
conditions – a 
new approach 
Dr Martin McShane 
Director – Domain2 
Enhancing the quality of life for 
people with long term 
conditions
5YFV: 
Demand for care is rapidly growing 
We are facing a rising burden of avoidable illness 
across England from unhealthy lifestyles: 
•1 in 5 adults still smoke 
•1/3 of people drink too much alcohol 
•More than 6/10 men and 5/10 women are 
overweight or obese 
Furthermore: 
•70% of the NHS budget is now spent on long term 
conditions 
•People’s expectations are also changing 
www.england.nhs.uk 
4
5YFV: 
There are new opportunities 
New technologies and treatments 
•Improving our ability to predict, diagnose and treat disease 
•Keeping people alive longer 
•But resulting in more people living with long term 
conditions 
New ways to deliver care 
•Dissolving traditional boundaries in how care is delivered 
•Improving the coordination of care around patients 
•Improving outcomes and quality 
…but the financial challenge remains, with the gap in 2020/21 
previously projected at £30bn by NHS England, Monitor and 
independent think-tanks 
www.england.nhs.uk
The new ‘epidemic’? 
Number of Conditions1 % self reporting 
www.england.nhs.uk 
1 30% 
2 13% 
3+ 10% 
The 15 million people in England with long term 
conditions have the greatest healthcare needs of the 
population (50% of all GP appointments and 70% of all 
bed days) and their treatment and care absorbs 70% of 
NHS and social care budgets in England 
1. The percentage of people aged 18 and over self-reporting experiencing long-term conditions in the GP Patient Survey
Multimorbidity is very common 
Percentage with more than one of 17 major chronic conditions, by age and sex 
50 
45 
40 
35 
30 
25 
% 
20 
15 
10 
5 
0 
18-24 25-34 35-44 45-54 55-64 65-74 75-84 85+ 
Overall: 
Age-group 
16% of population have multimorbidity (based on 17 QOF diseases) 
57% have multimorbidity (based on 115 ACG diseases) 
MALE 
FEMALE 
Salisbury et al, BJGP, 2011
Impact on health care system 
Annual consultation rate by age and multimorbidity status 
14 
12 
10 
8 
6 
4 
2 
0 
Salisbury et al, BJGP 2011 
18-24 25-34 35-44 45-54 55-64 65-74 75-84 85+ 
annual consultation rate 
multimorbid not multimorbid 
People with multimorbidity account for 16% of the population 
but account for 33% of all consultations
Bridging the gap: Financial Context 
www.england.nhs.uk 
7
www.england.nhs.uk
Financial and population ‘gearing’ 
www.england.nhs.uk 
12/12/ 
2014 
Primary 
£200 
(6.5k) 
Community & 
MH 
£500 
Specialist 
£300 
Acute 
£1000 
(330k) 
Social Care 
Public Health
1990 
2014 
CARE 
GAP 
GP Specialist 
Specialist 
Activity 
Complexity 
www.england.nhs.uk 10
Care Context 
There are three levels of personalised care and support needed: 
• People who are without an LTC but who need proactive advice 
as they are at risk, e.g. of CVD or diabetes 
• Those with single or synergistic conditions for whom 
standardised care through evidence based practice is generally 
well established and national incentives, guidance and 
processes support a focus for this group, although there are still 
improvements to make. 
• However, the group yet for the NHS (and partners) to create the 
right system for are those with multiple conditions and the rising 
demand for the prevention and management of multi-morbidity 
through an individualised approach to care. 
www.england.nhs.uk
Levels of Care - Stratification 
Complex 
Simple 
No LTCs 
Stratifying risk Stratifying Care Design Stratifying care delivery 
www.england.nhs.uk 
12 
Multiple 
Single/ 
Synergistic 
Condition(s) 
Prevention 
Individualised 
Standardised 
Proactive advice
Specialist Functions….for a 
population 
www.england.nhs.uk 
Building 
generalist 
capability and 
quality 
Support 
for 
Generalist 
Specialist 
Services
5YFV: 
Developing new care models 
www.england.nhs.uk 
12/12/ 
2014 
•We need to take decisive steps to transition towards better care 
models 
•There is wide consensus that new care models need to: 
 Manage systems (networks of care), not just organisations 
 Deliver more care out of hospital 
 Integrate services around the patient 
 Learn faster, from the best examples around the world 
 Evaluate success of new models to ensure value for 
money
Multispecialty Community Providers 
What they are 
• Greater scale and scope of 
services that dissolve traditional 
boundaries between primary and 
secondary care 
• Targeted services for registered 
patients with complex ongoing 
needs (e.g. the frail elderly or 
those with chronic conditions) 
• Expanded primary care leadership 
and new ways of offering care 
• Making the most of digital 
technologies, new skills and roles 
• Greater convenience for patients 
www.england.nhs.uk 
How they could work 
• Larger GP practices could bring in 
a wider range of skills – including 
hospital consultants, nurses and 
therapists, employed or as 
partners 
• Shifting outpatient consultations 
and ambulatory care out of 
hospital 
• Potential to own or run local 
community hospitals 
• Delegated capitated budgets – 
including for health and social 
care 
• By addressing the barriers to 
change, enabling access to 
funding and maximising use of 
technology 
12/12/2014
Primary and Acute Care Systems 
What they are 
• A new way of ‘vertically’ 
integrating services 
• Single organisations providing 
NHS list-based GP and hospital 
services, together with mental 
health and community care 
services 
• In certain circumstances, an 
opportunity for hospitals to open 
their own GP surgeries with 
registered lists 
• Could be combined with 
‘horizontal’ integration of social 
and care 
www.england.nhs.uk 
How they could work 
• Increased flexibility for Foundation 
Trusts to utilise their surpluses 
and investment to kick-start the 
expansion of primary care 
• Contractual changes to enable 
hospitals to provide primary care 
services in some circumstances 
• At their most radical they could 
take accountability for all health 
needs for a register list – similar to 
Accountable Care Organisations
w1w2w/1.e2ng/l2an0d1.n4hs.uk
w1w2w/1.e2ng/l2an0d1.n4hs.uk
www.england.nhs.uk
Population system approach 
LTC Framework: 
• Empowered patient and carers 
• Professional collaboration 
• Best Practice (clinical and organisational) 
• Commissioning 
www.england.nhs.uk
www.england.nhs.uk 
The House of Care 
Organisational and clinical 
supporting processes 
Engaged, 
informed 
individuals 
and carers 
Health and 
care 
professionals 
committed to 
partnership 
working 
Person-centred 
coordinated 
care 
Commissioning
LTC Framework 
The table below sets out some of the key components needed to deliver the central 
aim for LTC Framework - Person Centred Coordinated Care 
www.england.nhs.uk 
22 
Organisational & 
Clinical 
Processes 
Informed and 
engaged patients 
and carers 
Health & Care 
Professionals 
committed to 
partnership 
working 
Commissioning 
• Information and 
technology 
• Case finding & risk 
stratification 
• Care Planning 
• Safety and 
Experience 
• Guidelines, 
evidence and 
national audits 
• Care Delivery 
• Self Management 
• Information and 
Technology 
• Group and Peer 
Support 
• Care Planning 
• Policies for carers 
• Voluntary sector 
patient & carer 
support 
• HSC Integration 
• Multi Disciplinary 
Teams 
• Culture 
• Workforce 
• Technology 
• Care Co-ordination 
• Care Planning 
• Needs 
Assessment and 
Planning 
• Joint 
Commissioning 
• Metrics and 
Evaluation 
• Service User and 
Public Involvement 
• Contracting and 
Procurement 
• Care Planning 
• Tools and Levers
Goal 
My 
goals/outcomes 
Emergencies 
www.england.nhs.uk 
Person centred 
coordinated care 
“My care is planned with people who 
work together to understand me and my 
carer(s), put me in control, co-ordinate 
and deliver services to achieve my best 
outcomes” 
Communication 
Information 
Care planning Decision-making 
Transitions 
23
http://www.england.nhs.uk/house-of-care/ 
Resources 
1.Toolkit 
2.Dashboard 
3.Infographic 
4.Improvement programme 
www.england.nhs.uk
The soft stuff…is the hard stuff 
Individual 
behaviours 
www.england.nhs.uk 
25 
Mindsets 
and beliefs 
Values 
SOURCE: Scott Keller and Colin Price, ‘Performance and Health: An evidence-based approach to transforming 
your organisation’, 2010. 
Needs 
(met or unmet)
ICare 
Community 
Care 
The Future: 2014-2019 
Social Care 
Primary 
Care 
University/ 
Specialist 
Facilities 
General 
Hospital 
www.england.nhs.uk 26
www.england.nhs.uk NHS Expo Seminar 
Domain 2 
27
Rob Meaker 
Director of Innovation, Barking, 
Havering and Redbridge CCGs
Complex Primary Care Practice in East London
East Of 
England 
Cluster 3 
Cluster 1 
Hospital LAS Station 
Cluster 1 
Central 
London 
Cluster 2 
Cluster 4 
Cluster5 
Cluster4 
Cluster 1 
Cluster2 
Cluster6 
Cluster 2 
Cluster 3 
Cluster 4 
Cluster 5 
Cluster 6 
Walk In 
Centre 
Total Population 759,285 
BHR 
Dashboard 
£55m 
Havering 
Non elective admissions 
£8.8m 
A&E attendances 
Barking 
£36.5m 
Non elective admissions 
£7.6m 
A&E attendances 
Redbridge 
£50m 
non elective admissions 
£7.6m 
A&E attendances 
Overview of BHR CCGs’ Health Economy
BHR CCGs’ Development Timeline 
2008 – Polysystems & Person Centred Care 
2009 – Risk Stratification 
2010 – Integrated data 
2011 – LTC management, & The Year of Care 
2012 – Integrated Case Management 
2013 – Rapid Response & Community Treatment Teams 
2014– Complex Primary Care Practice 
Health 1000 Ltd, the Complex Primary Care Practice, is a Primary Social and Acute Care 
System located in King George Hospital, Ilford
How BHR CCGs are Implementing a Primary, Social and Acute Care System 
Health1000 is a new primary care 
evolved provider organisation 
operating a new model of care being 
developed as part of the Prime 
Minister’s Challenge fund and aligned 
to the PACS (Primary and Acute Care 
Systems) models set out in the 5 Year 
Forward Plan. 
The Year of care work provided the 
foundation for the service design and 
the supporting capitated budget. 
The model has been designed in 
collaboration with the users it intends 
to serve and will be guided by what 
people with complex needs want to 
achieve from their health and social 
care
Aligning the PSACS model with existing services. 
EoL / CHC 
> 5 LTCs 
Frail/1-3%/2LTCs 
3-6%/1LTC 
Comm 
Pharmacy 
GP 
BHRUT 
NE 
London 
FT 
Cont. 
Heath 
Care 
Integrated 
Urgent & 
Emergency 
Care Service 
111 
Urgent 
Care 
Centres 
Voluntary 
Sector 
Meds Man 
Non 
Year of 
Care 
Year of 
Care 
Social 
Care 
Federated 
Urgent and 
Planned 
Primary Care 
Services 
Out of 
Hospital 
London 
Ambulance 
Complex 
Care model 
In the future, a unified urgent primary care service joins patients and clinicians 
Complex 
Patients 
Complex Care Service 
Individual 
Care 
Multidisciplinary 
Teams 
Patients 
Children Elderly or 
Full time 
mothers or 
carers 
Retired Unemployed 
Working 
Adults 
Planned GP 
Appointment 
Online Call2 
Practice 
Non-Direct 
Emergency Triage 
Primary Care Prof 
Support 
Online 
Existing urgent care services 
Implementing a new model of care, it is essential to align the model with other Key 
services. 
Unified 
point of 
access 
Urgent Primary Care Appointments 
Walk-in 
Centres 
GP Core 
Plus 6-10 pm Weekend 
opening 
GP core 
across BHR primary care 
New or significantly enhanced 
services 
Patients flow through primary 
Key care Existing services
Complex Care Practice Patient Selection 
Complex Care cohort 
Row Labels Cohort Hypertension CHD Diabetes Stroke Depression COPD Heart Failure Dementia 
LTC 5+ 100 99 96 80 70 80 69 75 36 
Scottish modified LTC 4+ 1924 1816 1559 1421 863 793 783 679 303 
Grand Total 2024 1915 1655 1501 933 873 852 754 339 
211 of the cohort currently receive Integrated case Management Services 
The Complex Primary Care Practice intends to register 1000, of the 2024 
eligible patients 
Eligible cohort, must have 4 diagnosed long term conditions from 
Hypertension, CHD, Diabetes, Stroke, Depression, Heart Failure and 
Dementia.
The trend in adjusted cost for all patient in the complex care cohort by service type 
The costs have increased for these patients over the 7 years, presumably as more of the patients in the 
cohorts need services and/or patients in the cohorts need greater volumes of services 
The greatest cost increases over the period for patients in the cohorts were primary care and 
community care. In percentage terms, the cost of acute care has decreased over the period.
Activity Cost (£) 
2012/13 2013/14 2014/15 2012/13 2013/14 2014/15 
Cost and Activity for the selected cohort 
Primary Care Contact 42.1 45.2 45.1 1,897 2,032 2,030 
Pharmacy 134.8 134.1 135.5 2,373 2,362 2,387 
Acute care A&E 1.2 1.2 1.0 137 144 120 
Outpatient 5.7 5.5 5.6 602 742 764 
Daycase 0.6 0.5 0.3 424 366 217 
Elective 0.1 0.1 0.1 286 194 174 
NEL short-stay 0.2 0.2 0.2 246 228 166 
NEL long-stay 0.5 0.5 0.4 1,568 1,570 1,254 
Community care Face-to-Face 6.0 10.2 12.3 1,092 1,884 2,172 
Telephone 0.5 0.9 1.1 27 47 54 
Combined average cost per patient (£) 8,652 9,569 9,337 
Total annual cost of patient cohort (£million) 17.51 19.37 18.90 
Average annual number of events and average annual cost per patient in the cohort - all CCGs 
The averages hide a great deal of variation. If we take one example, patient's in the cohorts on average visit A&E once 
a year but over 50% of patients did not visit A&E at all during 2013/14, and one patient visited 41 times . 
Perhaps the most striking feature of the data is that large percentages of patient in the complex care cohorts didn't 
require acute inpatient care at all in 2013/14.
Commissioning the Service, Who, Where, When 
Acute Trust Community 
Trust 
Health1000 
Private 
Provider 
Voluntary 
Sector 
GP 
Federation
PSCAS model for implementation 
1. Pre-registration Work up 2. Initial Visit 3. Proactive Care 4. Reactive
PSCAS staffing model 
ROLE WTE at 
start up 
Start up Cover provided WTE by 
month 3 
MD and Geriatrician (50:50 
role) 
1.0 20 hours direct patient care plus 17.5 hours management 
plus on call support as required 
1.0 
HCS Key workers 5.0 73.5 hours per week 8am to 18.30pm Monday to Sunday. 
This is a dual function role covering reception and health 
care support and requires two members of staff to be on 
duty during 08.00 to 18.30pm Monday to Friday 
6.0 
GPs 3.0 52 hours per week 08am to 18.30pm Monday to Friday 
plus 
On call for 5 hours per week Monday to Friday 6.30 to 
8pm and 24 hours on Saturday and Sunday from 8am to 
8pm 
A total of 81 hours per week 
3.0 
Practice Manager 1.0 37.5 hours per week as required to cover 7 days per week 
on rota 
0.5 
Nurse 1.0 37.5 hours per week during 8am to 6.30pm 0 
OT 0.5 18.5 hours per week during 8am to 6.30pm 3.0 
Physiotherapist 0.5 18.5 hours per week during 8am to 6.30pm 2.0 
Pharmacist 0.5 18 hours per week Monday to Friday as required 1 
Community Nurse 0.0 Not applicable 4.0 
Mental health Nurse 0 Not applicable 0.5 
Social Worker 1.0 Seconded from Local Authority
Patient Feedback resulting in design changes 
People interviewed about the new 
Health1000 service told us: 
“We feel helpless trying to get the 
best care for our mum.” 
“The professionals don’t understand 
all of my needs.” 
“I just want to be able to go fishing. I 
don’t want any more operations or 
medication, I just want to be able to 
o Fly Fishing again. Why wont 
anyone help me achieve this ? 
Complex Care Service 
Individual 
Care 
Multidisciplinary 
Teams 
4+ LTCs 
Mental Health 
Social Isolation 
End of Life Needs Complex 
Patients 
Care plan 
developed 
Care Navigator 
Care 
Navigation 
package 
New and existing services 
(Sectors including Voluntary, Charities, 
Private Sector, Social models, Communities, 
user developed services etc) 
Health 
1000 
Directory of 
Services 
Scope of existing services Scope of IPC development 
a 
Updated Service updated to meet the registered 
patient needs
Information Governance: LTC Year of 
Care Early Implementer Sites 
Mark Golledge 
Programme Lead – Health and Care Informatics 
Local Government Association 
1st December 2014
Background 
• Role funded by Department of Health – employed by Local Government Association; 
• Aim is to support work of the Integrated Care Pioneer sites around Informatics – liaising with 
Government to help unblock challenges, barriers and encourage sharing, learning and 
joined up approaches (previous roles in CSU and before that Local Authority Informatics – 
although not directly IG); 
• Pioneer Informatics Network – one of four work-streams across the Pioneer programme 
(others are provider development; workforce and leadership; pricing and finance led by 
Monitor); 
• Eight areas of focus for the Pioneers on Informatics – my role is to coordinate amongst all 
eight: 
1. PSN / N3 Interconnect; 
2. Secure Email; 
3. IG Toolkit (Health and Local Gov); 
4. People Driven Citizen Services; 
5. Whole Place Analytics; 
6. Access to NHS Number; 
7. Integrated Digital Care Records 
8. Info Sharing for Commissioning;
Information Sharing for Commissioning 
• Acting as a link between Integrated Pioneer Sites and DH / HSCIC / NHSE / IG Alliance 
given existing challenges – including engagement in IG Forum; 
What do we know about where we are? 
• Information Sharing doc consulted on over the summer currently being reviewed by DH; 
• Various S251 arrangements in place until March 2015 including risk stratification covering 
health flows although doesn’t cover social care (unless legal basis); 
• Challenges around social care flows; 
• Monitor guidance around whole place data linkage (including IG section) & Risk Stratification 
work underway; 
• Southend application to CAG in Dec – element of consent / fair processing; 
• Options available (but pros and cons of these e.g. data quality, re-identification limitations): 
consent (“gold standard”), pseudonimisation at source, pseudonimisation on landing, 
applying for support under section 5 of S251 regulations (Southend), work through HSCIC 
using it’s power to collect (but only flows in, not out); 
• Best practice / requirement for informing people what is happening with their data;
Information Sharing for Commissioning 
What Next? 
• DH response to consultation on information sharing – we hope will provide details on end-state 
and transition arrangements; 
• Southend application for S251 (December) and then clarity on next steps for others with DH 
(consideration in light of the above) – sessions over next couple of weeks (will continue to 
push Year of Care point); 
• Seek resolution of social care flows into HSCIC - consideration in light of the above (but 
need to also address flows out); 
• Sharing of examples where flows are legally happening – pseudonymisation / consent 
(whilst recognising limitations of approaches); 
• Continuation on work re. informing clients / patients – again sharing examples of good 
practice; 
• Continue to flag up specific challenges with us so we can raise with DH / IG Alliance; 
……What have we missed?
Long Term Conditions Improvement Programme 
Your Local House – EI Sites perspective on Lessons 
Learnt & Knowledge Capture 
Lesley Callow & Jill Lockhart 
Delivery Support Manager 
Improving health outcomes across England by providing 
improvement and change expertise
Long Term Conditions House of Care 
• The 15 million people in 
England with long term 
conditions have the greatest 
needs of the population 
• People living with long term 
conditions report that they 
require person centred coordinated 
care 
• The House of Care provides 
a framework for this to be 
delivered
The House of Care in value to 
people/patients: The House supports 
National Voices ‘I’ statements 
My goals/outcomes 
All my needs as a person were 
assessed and taken into 
account. 
Communication 
I always knew who was the 
main person in charge of 
my care. 
Information 
I could see my health and 
care records at any time to 
check what was going on. 
Decision-making 
I was as involved in 
discussions and decisions 
about my care and treatment 
Care planning as I wanted to be. 
I had regular reviews of my care 
and treatment, and of my care 
plan. 
Emergencies 
I had systems in place so that 
I could get help at an early 
stage to avoid a crisis. 
Transitions 
When I went to a new 
service, they knew who I 
was, and about my own 
views, preferences and 
circumstances.
The House of Care in 
value to NHS: 
£1.2bn: 
Avoid ambulatory care 
sensitive admissions 
though e.g. following 
NICE guidelines (1) 
£0.8bn: 
Reduction of hospital 
admissions for common 
LTCs through integrated care 
esp frailty, comorbid (2) 
£0.8-1.2bn: 
Reduce use of low value drugs, 
devices and elective procedures 
using commissioning analytics 
and clinician education (3) 
£0.2-0.4bn: 
Empower people in 
supportive self-management 
(4) 
£1-1.6bn: 
Shift activity to cost 
effective settings 
e.g. pharmacy minor 
ailments (5) 
£0.4-0.6bn: 
Avoidance of drug errors 
e.g. through electronic 
records/e-prescribing (7)
Over to you: 
As an Early Implementer team please now: 
• Rate you status with regard to implementation 
of each component 
• Considering each component, please populate 
the A3 table with your recommendations for 
actions that will need to be taken 
25 mins
Component Key Messages 
Foundation 
Left Wall 
Right Wall 
Roof
Making self-management work for people with 
long-term conditions 
LTC Year of Care: Early Implementer Sites (EIS) workshop 
Renata Drinkwater 
Chief Executive
Agenda 
 What is self management uk? 
 What are the evidence based benefits of self-management 
to patients? 
 What do patients say they want in relation to self-management? 
 Zev Taylor’s self-management story 
 What are the benefits to clinicians, healthcare 
professionals and the wider system? 
 Discussion
self management uk 
 Formerly the Expert Patients Programme Community 
Interest Company, now a registered Charity 
 Over 12 years’ experience working within/for the NHS 
 At the forefront of self-management education and training 
 Facilitated delivery of programmes to 100,000+ patients with 
long-term conditions 
 Also programmes for clinicians/healthcare professionals 
 Delivered face-to-face or online
Benefits of self-management to patients 
 Increased self-confidence and reassurance 
 Increased control over own health and wellbeing 
 Better involvement in shared-decision making about own 
health and wellbeing 
 Reduced time off work 
 Better symptom management, such as reduction in pain, 
anxiety, depression and tiredness 
 Improved physical symptoms and clinical outcomes in people 
with arthritis, asthma, diabetes, hypertension, heart disease, 
heart failure, stroke, cancer and other conditions
Asking patients what they 
want 
Our 2013 survey
Patients want to help themselves! 
43% 38% 
62% 
Say ‘Having a GP that 
understands the difficulties of 
living with a long-term condition’ 
25% 
Say ‘Being able to connect with 
others living with my condition’ 
Say ‘Healthcare professionals 
treating me as an equal with a say 
in my treatment’ 
Say ‘Getting the right advice to 
support me in managing my 
condition’
but the healthcare system is still reluctant to 
help them to help themselves … 
How much time elapsed between the first diagnosis of your condition and you 
being offered a place on a self management course? 
11% 10% 9% 10% 
6% 7% 
48% 
Less then 6 
Months 
6 - 12 
Months 
1-2 Years 2-3 Years 3-4 Years 4-5 Years More then 
5 Years
Asking patients what they 
want 
Our 2014 survey
Self-management does make a difference 
The self-management course had a positive impact on my life? 
55% 
30% 
11% 
4% 
Strongly Agree Agree Disagree Strongly Disagree
Self-management boosts patient confidence 
37% 
18% 
35% 
6% 
4% 
Strongly Agree Agree Stayed the same Disagree Strongly 
Disagree 
The self-management course has improved my confidence?
Overwhelming endorsement from participants 
Would you recommend a self-management course to your friends or family? 
39% 
49% 
9% 
3% 
Strongly Agree Agree Disagree Strongly Disagree
The tangible impact of self-management 
Reduced use of NHS resources 
“The course has made a major difference to the way I approach 
all health professionals with self-confidence and self-belief. The 
number of times I need to visit health professionals has been 
reduced massively. Over the last two years my medication has 
reduced by about 25%, and I believe this is due to the 
knowledge I gained from attending the course.” 
Self-confidence  wellbeing 
“The course makes people more aware of how their 
symptoms/condition affect their day-to-day health and 
wellbeing. If you have more control over your condition, you 
have more choice. You can’t let your condition run your life.”
The tangible impact of self-management 
Helping people get back into work 
“I am now able to spend time with my family, go out with my friends 
and socialise, and go away on holidays, which I never thought I would 
be able to do. I have also created an opportunity for myself to get back 
into work and I am extremely proud of this achievement.” 
Supporting healthcare professionals 
“The course promotes respect and empathy for doctors and the 
pressure they are under. I remember one instance where I was taken 
to AE and the triage nurse was amazed at how quickly I was able to 
describe my symptoms and tell her about my medication. She told me 
she often spent 20 minutes on the patient’s medical history. She said it 
would save the NHS a fortune if everyone could do what I did that 
night.”
Zev Taylor’s Story
Benefits to clinicians, healthcare 
professionals and the wider system 
Percentage savings delivered by self management 
programmes [1] 
GP visits 2.3% Inpatient visits 50% 
Nurse visits 13.8% 
Outpatients 
visits 
6.2% 
AE visits 12% 
Medication 
saved 
5.4% 
[1] Department of Health (2005). Supporting People with Long-term Conditions: An NHS and social care model to 
support local innovation and integration. London: Department of Health
Benefits to clinicians, healthcare professionals 
and the wider system 
 New self management uk tool developed for Commissioners to 
demonstrate benefits 
 Based on model originally co-developed with the Department of 
Health, now significantly enhanced 
 Shows financial benefits of delivering our programmes patients 
(e.g. Self Management for Life/Expert Patients Programme) 
 Uses Department of Health/Office for National Statistics figures 
and evidence from other key studies 
 Calculates impact for any Clinical Commissioning Group
Typical return on investment 
For ever £1 spent: £2.24 is 
saved!
CCG Case Study - Typical system usage and 
medication spend 
Statistics for CCG Value 
People with a Long-Term Condition 61,539 
People Newly Diagnosed (Per year) 4,308 
Total GP Visits 300,347 
Total Nurse Visits 165,191 
Total AE visits 67,941 
Total Emergency Admissions 17,015 
Total Hospital Admissions 40,004 
Total Outpatients Visits 203,576 
Total Medication Spend £27,968,172
Typical Savings 
Population with long-term conditions: 61,539 
If training delivered to just 240 patients per 
annum 
(15 x 7 week programmes) 
Potential gross saving due to reduced 
healthcare utilisation: £210,000 per annum
Typical Return on Investment 
Cost Benefit Default Costs 
Total Cost of Programme £93,750 
Total Practice and Commissioner Savings £210,073 
Total Saving over Contract Length £116,323 
Saving per Year £116,323 
Return on Investment: For every £1 spent: £2.24 is saved 
Yes, £2.24 saving per £1.00 spent
Benefits to clinicians, healthcare professionals 
and the wider system 
Finally, we calculate if self management uk 
programmes were commissioned across England 
for just 10% of people with Long Term Conditions 
(c1.57m), there would be: 
Gross potential system savings of some £1.38bn 
per annum 
Net potential savings of some £763m pa
Enabling patients
Group Discussion 
How can we make sure self-management 
training is offered to 
more patients diagnosed with a long-term 
condition at the earliest 
opportunity in their care pathway?
Thank you 
Questions?
Renata Drinkwater 
Chief Executive 
T: 03333 445 840 
M: 07500 039 736 
renata.drinkwater@selfmanagementuk.org 
hello@selfmanagmentuk.org

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Ltc year-of-care-commissioning-early-implementer-sites-workshop

  • 1. WELCOME LTC Year of Care Commissioning Early Implementer Sites Workshop 1 December 2014
  • 3.
  • 4. Events Date & Time Event & Time Location 8 December 2014 2 – 4pm EIS Project Leads Forum WebEx 19 January 2015 2 – 4pm EIS Project Leads Forum WebEx 2 February 2015 10.30am – 3.30pm LTC Year of Care EIS Workshop Workshop in London 16 March 2015 2 – 4pm EIS Project Leads Forum WebEx
  • 5.
  • 6. LTC Lunch & Learn Series ….coming soon… To register email LTC@nhsiq.nhs.uk Date Webinar Hosted by Bev Matthews & 3 December 2014 1 – 2pm Population level commissioning for the future Dr Abraham George Kent County Council 7 January 2015 1 – 2pm Self Management Support Return on Investment Renata Drinkwater Chief Executive & Trustee Self Management UK 21 January 2015 1 – 2pm Commissioning for Outcomes Bob Ricketts CBE Director of Commissioning Support Services & Market Development, NHS England 4 February 2015 1 – 2pm Accountable Care Organisations in the USA & England testing, evaluating and learning what works Dr Rachael Addicot Senior Research Fellow, Kings Fund
  • 7. www.england.nhs.uk Chronic conditions – a new approach Dr Martin McShane Director – Domain2 Enhancing the quality of life for people with long term conditions
  • 8. 5YFV: Demand for care is rapidly growing We are facing a rising burden of avoidable illness across England from unhealthy lifestyles: •1 in 5 adults still smoke •1/3 of people drink too much alcohol •More than 6/10 men and 5/10 women are overweight or obese Furthermore: •70% of the NHS budget is now spent on long term conditions •People’s expectations are also changing www.england.nhs.uk 4
  • 9. 5YFV: There are new opportunities New technologies and treatments •Improving our ability to predict, diagnose and treat disease •Keeping people alive longer •But resulting in more people living with long term conditions New ways to deliver care •Dissolving traditional boundaries in how care is delivered •Improving the coordination of care around patients •Improving outcomes and quality …but the financial challenge remains, with the gap in 2020/21 previously projected at £30bn by NHS England, Monitor and independent think-tanks www.england.nhs.uk
  • 10. The new ‘epidemic’? Number of Conditions1 % self reporting www.england.nhs.uk 1 30% 2 13% 3+ 10% The 15 million people in England with long term conditions have the greatest healthcare needs of the population (50% of all GP appointments and 70% of all bed days) and their treatment and care absorbs 70% of NHS and social care budgets in England 1. The percentage of people aged 18 and over self-reporting experiencing long-term conditions in the GP Patient Survey
  • 11. Multimorbidity is very common Percentage with more than one of 17 major chronic conditions, by age and sex 50 45 40 35 30 25 % 20 15 10 5 0 18-24 25-34 35-44 45-54 55-64 65-74 75-84 85+ Overall: Age-group 16% of population have multimorbidity (based on 17 QOF diseases) 57% have multimorbidity (based on 115 ACG diseases) MALE FEMALE Salisbury et al, BJGP, 2011
  • 12. Impact on health care system Annual consultation rate by age and multimorbidity status 14 12 10 8 6 4 2 0 Salisbury et al, BJGP 2011 18-24 25-34 35-44 45-54 55-64 65-74 75-84 85+ annual consultation rate multimorbid not multimorbid People with multimorbidity account for 16% of the population but account for 33% of all consultations
  • 13. Bridging the gap: Financial Context www.england.nhs.uk 7
  • 15. Financial and population ‘gearing’ www.england.nhs.uk 12/12/ 2014 Primary £200 (6.5k) Community & MH £500 Specialist £300 Acute £1000 (330k) Social Care Public Health
  • 16. 1990 2014 CARE GAP GP Specialist Specialist Activity Complexity www.england.nhs.uk 10
  • 17. Care Context There are three levels of personalised care and support needed: • People who are without an LTC but who need proactive advice as they are at risk, e.g. of CVD or diabetes • Those with single or synergistic conditions for whom standardised care through evidence based practice is generally well established and national incentives, guidance and processes support a focus for this group, although there are still improvements to make. • However, the group yet for the NHS (and partners) to create the right system for are those with multiple conditions and the rising demand for the prevention and management of multi-morbidity through an individualised approach to care. www.england.nhs.uk
  • 18. Levels of Care - Stratification Complex Simple No LTCs Stratifying risk Stratifying Care Design Stratifying care delivery www.england.nhs.uk 12 Multiple Single/ Synergistic Condition(s) Prevention Individualised Standardised Proactive advice
  • 19. Specialist Functions….for a population www.england.nhs.uk Building generalist capability and quality Support for Generalist Specialist Services
  • 20. 5YFV: Developing new care models www.england.nhs.uk 12/12/ 2014 •We need to take decisive steps to transition towards better care models •There is wide consensus that new care models need to:  Manage systems (networks of care), not just organisations  Deliver more care out of hospital  Integrate services around the patient  Learn faster, from the best examples around the world  Evaluate success of new models to ensure value for money
  • 21. Multispecialty Community Providers What they are • Greater scale and scope of services that dissolve traditional boundaries between primary and secondary care • Targeted services for registered patients with complex ongoing needs (e.g. the frail elderly or those with chronic conditions) • Expanded primary care leadership and new ways of offering care • Making the most of digital technologies, new skills and roles • Greater convenience for patients www.england.nhs.uk How they could work • Larger GP practices could bring in a wider range of skills – including hospital consultants, nurses and therapists, employed or as partners • Shifting outpatient consultations and ambulatory care out of hospital • Potential to own or run local community hospitals • Delegated capitated budgets – including for health and social care • By addressing the barriers to change, enabling access to funding and maximising use of technology 12/12/2014
  • 22. Primary and Acute Care Systems What they are • A new way of ‘vertically’ integrating services • Single organisations providing NHS list-based GP and hospital services, together with mental health and community care services • In certain circumstances, an opportunity for hospitals to open their own GP surgeries with registered lists • Could be combined with ‘horizontal’ integration of social and care www.england.nhs.uk How they could work • Increased flexibility for Foundation Trusts to utilise their surpluses and investment to kick-start the expansion of primary care • Contractual changes to enable hospitals to provide primary care services in some circumstances • At their most radical they could take accountability for all health needs for a register list – similar to Accountable Care Organisations
  • 26. Population system approach LTC Framework: • Empowered patient and carers • Professional collaboration • Best Practice (clinical and organisational) • Commissioning www.england.nhs.uk
  • 27. www.england.nhs.uk The House of Care Organisational and clinical supporting processes Engaged, informed individuals and carers Health and care professionals committed to partnership working Person-centred coordinated care Commissioning
  • 28. LTC Framework The table below sets out some of the key components needed to deliver the central aim for LTC Framework - Person Centred Coordinated Care www.england.nhs.uk 22 Organisational & Clinical Processes Informed and engaged patients and carers Health & Care Professionals committed to partnership working Commissioning • Information and technology • Case finding & risk stratification • Care Planning • Safety and Experience • Guidelines, evidence and national audits • Care Delivery • Self Management • Information and Technology • Group and Peer Support • Care Planning • Policies for carers • Voluntary sector patient & carer support • HSC Integration • Multi Disciplinary Teams • Culture • Workforce • Technology • Care Co-ordination • Care Planning • Needs Assessment and Planning • Joint Commissioning • Metrics and Evaluation • Service User and Public Involvement • Contracting and Procurement • Care Planning • Tools and Levers
  • 29. Goal My goals/outcomes Emergencies www.england.nhs.uk Person centred coordinated care “My care is planned with people who work together to understand me and my carer(s), put me in control, co-ordinate and deliver services to achieve my best outcomes” Communication Information Care planning Decision-making Transitions 23
  • 30. http://www.england.nhs.uk/house-of-care/ Resources 1.Toolkit 2.Dashboard 3.Infographic 4.Improvement programme www.england.nhs.uk
  • 31. The soft stuff…is the hard stuff Individual behaviours www.england.nhs.uk 25 Mindsets and beliefs Values SOURCE: Scott Keller and Colin Price, ‘Performance and Health: An evidence-based approach to transforming your organisation’, 2010. Needs (met or unmet)
  • 32. ICare Community Care The Future: 2014-2019 Social Care Primary Care University/ Specialist Facilities General Hospital www.england.nhs.uk 26
  • 33. www.england.nhs.uk NHS Expo Seminar Domain 2 27
  • 34. Rob Meaker Director of Innovation, Barking, Havering and Redbridge CCGs
  • 35. Complex Primary Care Practice in East London
  • 36. East Of England Cluster 3 Cluster 1 Hospital LAS Station Cluster 1 Central London Cluster 2 Cluster 4 Cluster5 Cluster4 Cluster 1 Cluster2 Cluster6 Cluster 2 Cluster 3 Cluster 4 Cluster 5 Cluster 6 Walk In Centre Total Population 759,285 BHR Dashboard £55m Havering Non elective admissions £8.8m A&E attendances Barking £36.5m Non elective admissions £7.6m A&E attendances Redbridge £50m non elective admissions £7.6m A&E attendances Overview of BHR CCGs’ Health Economy
  • 37. BHR CCGs’ Development Timeline 2008 – Polysystems & Person Centred Care 2009 – Risk Stratification 2010 – Integrated data 2011 – LTC management, & The Year of Care 2012 – Integrated Case Management 2013 – Rapid Response & Community Treatment Teams 2014– Complex Primary Care Practice Health 1000 Ltd, the Complex Primary Care Practice, is a Primary Social and Acute Care System located in King George Hospital, Ilford
  • 38. How BHR CCGs are Implementing a Primary, Social and Acute Care System Health1000 is a new primary care evolved provider organisation operating a new model of care being developed as part of the Prime Minister’s Challenge fund and aligned to the PACS (Primary and Acute Care Systems) models set out in the 5 Year Forward Plan. The Year of care work provided the foundation for the service design and the supporting capitated budget. The model has been designed in collaboration with the users it intends to serve and will be guided by what people with complex needs want to achieve from their health and social care
  • 39. Aligning the PSACS model with existing services. EoL / CHC > 5 LTCs Frail/1-3%/2LTCs 3-6%/1LTC Comm Pharmacy GP BHRUT NE London FT Cont. Heath Care Integrated Urgent & Emergency Care Service 111 Urgent Care Centres Voluntary Sector Meds Man Non Year of Care Year of Care Social Care Federated Urgent and Planned Primary Care Services Out of Hospital London Ambulance Complex Care model In the future, a unified urgent primary care service joins patients and clinicians Complex Patients Complex Care Service Individual Care Multidisciplinary Teams Patients Children Elderly or Full time mothers or carers Retired Unemployed Working Adults Planned GP Appointment Online Call2 Practice Non-Direct Emergency Triage Primary Care Prof Support Online Existing urgent care services Implementing a new model of care, it is essential to align the model with other Key services. Unified point of access Urgent Primary Care Appointments Walk-in Centres GP Core Plus 6-10 pm Weekend opening GP core across BHR primary care New or significantly enhanced services Patients flow through primary Key care Existing services
  • 40. Complex Care Practice Patient Selection Complex Care cohort Row Labels Cohort Hypertension CHD Diabetes Stroke Depression COPD Heart Failure Dementia LTC 5+ 100 99 96 80 70 80 69 75 36 Scottish modified LTC 4+ 1924 1816 1559 1421 863 793 783 679 303 Grand Total 2024 1915 1655 1501 933 873 852 754 339 211 of the cohort currently receive Integrated case Management Services The Complex Primary Care Practice intends to register 1000, of the 2024 eligible patients Eligible cohort, must have 4 diagnosed long term conditions from Hypertension, CHD, Diabetes, Stroke, Depression, Heart Failure and Dementia.
  • 41. The trend in adjusted cost for all patient in the complex care cohort by service type The costs have increased for these patients over the 7 years, presumably as more of the patients in the cohorts need services and/or patients in the cohorts need greater volumes of services The greatest cost increases over the period for patients in the cohorts were primary care and community care. In percentage terms, the cost of acute care has decreased over the period.
  • 42. Activity Cost (£) 2012/13 2013/14 2014/15 2012/13 2013/14 2014/15 Cost and Activity for the selected cohort Primary Care Contact 42.1 45.2 45.1 1,897 2,032 2,030 Pharmacy 134.8 134.1 135.5 2,373 2,362 2,387 Acute care A&E 1.2 1.2 1.0 137 144 120 Outpatient 5.7 5.5 5.6 602 742 764 Daycase 0.6 0.5 0.3 424 366 217 Elective 0.1 0.1 0.1 286 194 174 NEL short-stay 0.2 0.2 0.2 246 228 166 NEL long-stay 0.5 0.5 0.4 1,568 1,570 1,254 Community care Face-to-Face 6.0 10.2 12.3 1,092 1,884 2,172 Telephone 0.5 0.9 1.1 27 47 54 Combined average cost per patient (£) 8,652 9,569 9,337 Total annual cost of patient cohort (£million) 17.51 19.37 18.90 Average annual number of events and average annual cost per patient in the cohort - all CCGs The averages hide a great deal of variation. If we take one example, patient's in the cohorts on average visit A&E once a year but over 50% of patients did not visit A&E at all during 2013/14, and one patient visited 41 times . Perhaps the most striking feature of the data is that large percentages of patient in the complex care cohorts didn't require acute inpatient care at all in 2013/14.
  • 43. Commissioning the Service, Who, Where, When Acute Trust Community Trust Health1000 Private Provider Voluntary Sector GP Federation
  • 44. PSCAS model for implementation 1. Pre-registration Work up 2. Initial Visit 3. Proactive Care 4. Reactive
  • 45. PSCAS staffing model ROLE WTE at start up Start up Cover provided WTE by month 3 MD and Geriatrician (50:50 role) 1.0 20 hours direct patient care plus 17.5 hours management plus on call support as required 1.0 HCS Key workers 5.0 73.5 hours per week 8am to 18.30pm Monday to Sunday. This is a dual function role covering reception and health care support and requires two members of staff to be on duty during 08.00 to 18.30pm Monday to Friday 6.0 GPs 3.0 52 hours per week 08am to 18.30pm Monday to Friday plus On call for 5 hours per week Monday to Friday 6.30 to 8pm and 24 hours on Saturday and Sunday from 8am to 8pm A total of 81 hours per week 3.0 Practice Manager 1.0 37.5 hours per week as required to cover 7 days per week on rota 0.5 Nurse 1.0 37.5 hours per week during 8am to 6.30pm 0 OT 0.5 18.5 hours per week during 8am to 6.30pm 3.0 Physiotherapist 0.5 18.5 hours per week during 8am to 6.30pm 2.0 Pharmacist 0.5 18 hours per week Monday to Friday as required 1 Community Nurse 0.0 Not applicable 4.0 Mental health Nurse 0 Not applicable 0.5 Social Worker 1.0 Seconded from Local Authority
  • 46. Patient Feedback resulting in design changes People interviewed about the new Health1000 service told us: “We feel helpless trying to get the best care for our mum.” “The professionals don’t understand all of my needs.” “I just want to be able to go fishing. I don’t want any more operations or medication, I just want to be able to o Fly Fishing again. Why wont anyone help me achieve this ? Complex Care Service Individual Care Multidisciplinary Teams 4+ LTCs Mental Health Social Isolation End of Life Needs Complex Patients Care plan developed Care Navigator Care Navigation package New and existing services (Sectors including Voluntary, Charities, Private Sector, Social models, Communities, user developed services etc) Health 1000 Directory of Services Scope of existing services Scope of IPC development a Updated Service updated to meet the registered patient needs
  • 47. Information Governance: LTC Year of Care Early Implementer Sites Mark Golledge Programme Lead – Health and Care Informatics Local Government Association 1st December 2014
  • 48. Background • Role funded by Department of Health – employed by Local Government Association; • Aim is to support work of the Integrated Care Pioneer sites around Informatics – liaising with Government to help unblock challenges, barriers and encourage sharing, learning and joined up approaches (previous roles in CSU and before that Local Authority Informatics – although not directly IG); • Pioneer Informatics Network – one of four work-streams across the Pioneer programme (others are provider development; workforce and leadership; pricing and finance led by Monitor); • Eight areas of focus for the Pioneers on Informatics – my role is to coordinate amongst all eight: 1. PSN / N3 Interconnect; 2. Secure Email; 3. IG Toolkit (Health and Local Gov); 4. People Driven Citizen Services; 5. Whole Place Analytics; 6. Access to NHS Number; 7. Integrated Digital Care Records 8. Info Sharing for Commissioning;
  • 49. Information Sharing for Commissioning • Acting as a link between Integrated Pioneer Sites and DH / HSCIC / NHSE / IG Alliance given existing challenges – including engagement in IG Forum; What do we know about where we are? • Information Sharing doc consulted on over the summer currently being reviewed by DH; • Various S251 arrangements in place until March 2015 including risk stratification covering health flows although doesn’t cover social care (unless legal basis); • Challenges around social care flows; • Monitor guidance around whole place data linkage (including IG section) & Risk Stratification work underway; • Southend application to CAG in Dec – element of consent / fair processing; • Options available (but pros and cons of these e.g. data quality, re-identification limitations): consent (“gold standard”), pseudonimisation at source, pseudonimisation on landing, applying for support under section 5 of S251 regulations (Southend), work through HSCIC using it’s power to collect (but only flows in, not out); • Best practice / requirement for informing people what is happening with their data;
  • 50. Information Sharing for Commissioning What Next? • DH response to consultation on information sharing – we hope will provide details on end-state and transition arrangements; • Southend application for S251 (December) and then clarity on next steps for others with DH (consideration in light of the above) – sessions over next couple of weeks (will continue to push Year of Care point); • Seek resolution of social care flows into HSCIC - consideration in light of the above (but need to also address flows out); • Sharing of examples where flows are legally happening – pseudonymisation / consent (whilst recognising limitations of approaches); • Continuation on work re. informing clients / patients – again sharing examples of good practice; • Continue to flag up specific challenges with us so we can raise with DH / IG Alliance; ……What have we missed?
  • 51. Long Term Conditions Improvement Programme Your Local House – EI Sites perspective on Lessons Learnt & Knowledge Capture Lesley Callow & Jill Lockhart Delivery Support Manager Improving health outcomes across England by providing improvement and change expertise
  • 52. Long Term Conditions House of Care • The 15 million people in England with long term conditions have the greatest needs of the population • People living with long term conditions report that they require person centred coordinated care • The House of Care provides a framework for this to be delivered
  • 53. The House of Care in value to people/patients: The House supports National Voices ‘I’ statements My goals/outcomes All my needs as a person were assessed and taken into account. Communication I always knew who was the main person in charge of my care. Information I could see my health and care records at any time to check what was going on. Decision-making I was as involved in discussions and decisions about my care and treatment Care planning as I wanted to be. I had regular reviews of my care and treatment, and of my care plan. Emergencies I had systems in place so that I could get help at an early stage to avoid a crisis. Transitions When I went to a new service, they knew who I was, and about my own views, preferences and circumstances.
  • 54. The House of Care in value to NHS: £1.2bn: Avoid ambulatory care sensitive admissions though e.g. following NICE guidelines (1) £0.8bn: Reduction of hospital admissions for common LTCs through integrated care esp frailty, comorbid (2) £0.8-1.2bn: Reduce use of low value drugs, devices and elective procedures using commissioning analytics and clinician education (3) £0.2-0.4bn: Empower people in supportive self-management (4) £1-1.6bn: Shift activity to cost effective settings e.g. pharmacy minor ailments (5) £0.4-0.6bn: Avoidance of drug errors e.g. through electronic records/e-prescribing (7)
  • 55. Over to you: As an Early Implementer team please now: • Rate you status with regard to implementation of each component • Considering each component, please populate the A3 table with your recommendations for actions that will need to be taken 25 mins
  • 56. Component Key Messages Foundation Left Wall Right Wall Roof
  • 57. Making self-management work for people with long-term conditions LTC Year of Care: Early Implementer Sites (EIS) workshop Renata Drinkwater Chief Executive
  • 58. Agenda What is self management uk? What are the evidence based benefits of self-management to patients? What do patients say they want in relation to self-management? Zev Taylor’s self-management story What are the benefits to clinicians, healthcare professionals and the wider system? Discussion
  • 59. self management uk Formerly the Expert Patients Programme Community Interest Company, now a registered Charity Over 12 years’ experience working within/for the NHS At the forefront of self-management education and training Facilitated delivery of programmes to 100,000+ patients with long-term conditions Also programmes for clinicians/healthcare professionals Delivered face-to-face or online
  • 60. Benefits of self-management to patients Increased self-confidence and reassurance Increased control over own health and wellbeing Better involvement in shared-decision making about own health and wellbeing Reduced time off work Better symptom management, such as reduction in pain, anxiety, depression and tiredness Improved physical symptoms and clinical outcomes in people with arthritis, asthma, diabetes, hypertension, heart disease, heart failure, stroke, cancer and other conditions
  • 61. Asking patients what they want Our 2013 survey
  • 62. Patients want to help themselves! 43% 38% 62% Say ‘Having a GP that understands the difficulties of living with a long-term condition’ 25% Say ‘Being able to connect with others living with my condition’ Say ‘Healthcare professionals treating me as an equal with a say in my treatment’ Say ‘Getting the right advice to support me in managing my condition’
  • 63. but the healthcare system is still reluctant to help them to help themselves … How much time elapsed between the first diagnosis of your condition and you being offered a place on a self management course? 11% 10% 9% 10% 6% 7% 48% Less then 6 Months 6 - 12 Months 1-2 Years 2-3 Years 3-4 Years 4-5 Years More then 5 Years
  • 64. Asking patients what they want Our 2014 survey
  • 65. Self-management does make a difference The self-management course had a positive impact on my life? 55% 30% 11% 4% Strongly Agree Agree Disagree Strongly Disagree
  • 66. Self-management boosts patient confidence 37% 18% 35% 6% 4% Strongly Agree Agree Stayed the same Disagree Strongly Disagree The self-management course has improved my confidence?
  • 67. Overwhelming endorsement from participants Would you recommend a self-management course to your friends or family? 39% 49% 9% 3% Strongly Agree Agree Disagree Strongly Disagree
  • 68. The tangible impact of self-management Reduced use of NHS resources “The course has made a major difference to the way I approach all health professionals with self-confidence and self-belief. The number of times I need to visit health professionals has been reduced massively. Over the last two years my medication has reduced by about 25%, and I believe this is due to the knowledge I gained from attending the course.” Self-confidence wellbeing “The course makes people more aware of how their symptoms/condition affect their day-to-day health and wellbeing. If you have more control over your condition, you have more choice. You can’t let your condition run your life.”
  • 69. The tangible impact of self-management Helping people get back into work “I am now able to spend time with my family, go out with my friends and socialise, and go away on holidays, which I never thought I would be able to do. I have also created an opportunity for myself to get back into work and I am extremely proud of this achievement.” Supporting healthcare professionals “The course promotes respect and empathy for doctors and the pressure they are under. I remember one instance where I was taken to AE and the triage nurse was amazed at how quickly I was able to describe my symptoms and tell her about my medication. She told me she often spent 20 minutes on the patient’s medical history. She said it would save the NHS a fortune if everyone could do what I did that night.”
  • 71. Benefits to clinicians, healthcare professionals and the wider system Percentage savings delivered by self management programmes [1] GP visits 2.3% Inpatient visits 50% Nurse visits 13.8% Outpatients visits 6.2% AE visits 12% Medication saved 5.4% [1] Department of Health (2005). Supporting People with Long-term Conditions: An NHS and social care model to support local innovation and integration. London: Department of Health
  • 72. Benefits to clinicians, healthcare professionals and the wider system New self management uk tool developed for Commissioners to demonstrate benefits Based on model originally co-developed with the Department of Health, now significantly enhanced Shows financial benefits of delivering our programmes patients (e.g. Self Management for Life/Expert Patients Programme) Uses Department of Health/Office for National Statistics figures and evidence from other key studies Calculates impact for any Clinical Commissioning Group
  • 73. Typical return on investment For ever £1 spent: £2.24 is saved!
  • 74. CCG Case Study - Typical system usage and medication spend Statistics for CCG Value People with a Long-Term Condition 61,539 People Newly Diagnosed (Per year) 4,308 Total GP Visits 300,347 Total Nurse Visits 165,191 Total AE visits 67,941 Total Emergency Admissions 17,015 Total Hospital Admissions 40,004 Total Outpatients Visits 203,576 Total Medication Spend £27,968,172
  • 75. Typical Savings Population with long-term conditions: 61,539 If training delivered to just 240 patients per annum (15 x 7 week programmes) Potential gross saving due to reduced healthcare utilisation: £210,000 per annum
  • 76. Typical Return on Investment Cost Benefit Default Costs Total Cost of Programme £93,750 Total Practice and Commissioner Savings £210,073 Total Saving over Contract Length £116,323 Saving per Year £116,323 Return on Investment: For every £1 spent: £2.24 is saved Yes, £2.24 saving per £1.00 spent
  • 77. Benefits to clinicians, healthcare professionals and the wider system Finally, we calculate if self management uk programmes were commissioned across England for just 10% of people with Long Term Conditions (c1.57m), there would be: Gross potential system savings of some £1.38bn per annum Net potential savings of some £763m pa
  • 79. Group Discussion How can we make sure self-management training is offered to more patients diagnosed with a long-term condition at the earliest opportunity in their care pathway?
  • 81. Renata Drinkwater Chief Executive T: 03333 445 840 M: 07500 039 736 renata.drinkwater@selfmanagementuk.org hello@selfmanagmentuk.org