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aarda presentation 3.28.15
This document discusses common issues faced by those with chronic illnesses and provides strategies for managing them. It notes that chronic illnesses typically have a gradual onset, difficult diagnoses, involve trial and error treatment, and rarely have cures. It recommends goals of relieving symptoms, slowing progression, and preventing damage. Managing chronic illnesses also involves adjusting to a new "culture" with its own language, challenges, and approaches. Specific strategies discussed include managing fatigue, dealing with difficult emotions, using mindfulness, keeping action plans and to-do lists, focusing on what makes one feel good, reframing views of treatment, and choosing one's own attitude.
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- 1. Common Issues inChronic Illness and What You Can Do About Them American Autoimmune Related Diseases Forum Tampa, FL March 28,2015 Linda Ruescher Program Director Lupus Foundation of Florida
- 2. “Never deny adiagnosis, but DO deny the negative prediction that comes with it.” Anatomy of an Illness as Perceived by the Patient Norman Cousins
- 3. Onset Diagnosis TreatmentCure Clear Definitive Clear Likely Acute Illness
- 4. Chronic Illness • Onset-gradual •Diagnosis-difficult • Treatment-trial and error • Cure-rare
- 5. Treatment Goals • Relieveor reduce symptoms • Stop or slow progression • Prevent or minimize damage
- 6. Culture Shock • Inhabitants •Language • Society • Dwellings • Attire • Tools
- 7. Acute Chronic Beginning RapidGradual Cause Usually one Many Duration Short Indefinite Diagnostic Tests Often decisive Often uncertain especially early on Treatment Cure common Cure rare Role of Professional Select and conduct Teacher and partner therapy Role of patient Follow orders Partner of health professionals, responsible for daily management Lorig, Kate et al. Living a Healthy Life with Chronic Conditions, 3rd edition. Bull Publishing Company: Boulder, CO. 2006. Working with the Natives
- 8. The Symptom Cycle Lorig,Kate et al. Living a Healthy Life with Chronic Conditions, 3rd edition. Bull Publishing Company: Boulder, CO. 2006.
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- 10. “If you arebreathing, there is more right with you than there is wrong.” Jon Kabat-Zinn Full Catastrophe Living How sick are you?
- 14. • Awareness • Permission •Journal • Create • Get support • Therapy How can I do this? “You need to claim the events of your life to make yourself yours.“ Anne Wilson-Schaef The Artist’s Way Julia Cameron
- 16. What makes youfeel good? What do I need to do to take care of myself right now?
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- 18. • Rest beforeyou are tired • Don’t push • Rest/activity ratio • Talk to your doctor • Other causes of fatigue Depression Inactivity Anemia Poor hydration Nutrition Pain Medications Managing Fatigue
- 19. Never do forothers that which they are perfectly capable of doing for themselves! New Golden Rule Language of Letting Go Melodie Beattie Meditations for Women Who Do Too Much Ann Wilson -Schaef
- 20. Lists…To do orgot it done? TO DO Didn’t finish list. Beats self up. Feels like a failure. GOT IT DONE Did more than I thought. Pats self on back. Feels successful.
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- 22. Ifyoudon’t know whereyou’re going, Anyroad will get you there. -Cheshire Cat
- 23. Action Plans Break goalsdown into action steps/plans What will you do? How much will you do? How often will you do it? How long will you do it? How confident are you?
- 24. The Power ofthe Mind • What you think causes what you feel. • What you feel causes changes in your body. • Changes in your body affect your health. All that is comes from the mind; it is based on the mind; it is fashioned by the mind. -Pali Canon 500-250 B.C.E You Can’t Afford the Luxury of a Negative Thought: A Book for People with Any Life-Threatening Illness- Including Life John-Roger and Peter McWilliams
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- 28. Everything can betaken from a man or a woman but one thing: the last of human freedoms to choose one’s attitude in any given set of circumstances, to choose one’s own way. Viktor E. Frankl Linda Ruescher Linda.ruescher@gmail.com