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24/09/2012




                                                                 Sequencing difficulties post brain injury

                                                                 Scaffolding

                                                                 What is GUIDE?
    Lauren O’Neill and Louise McCombe Occupational
     Therapists at Graham Anderson House, Glasgow,
                      Brain Injury Rehabilitation Trust
                                                                 Single n study as part of a wider randomised
                                                                  control




   Activities of daily living are complex                       Four categories of behaviour control
    sequences                                                     impairments
   A set of actions that must be performed in a
    certain order to achieve a goal state                         ◦ Energization (motivation / sustaining
                                                                    activity) localized to SMPFC
   Inability to carry out a complex sequence                     ◦ Emotional regulation (prioritisation /
    safely is widespread and disabling for many:                    inhibition) VMPFC
    ◦   Learning disability
                                                                  ◦ Task setting (verbal self regulation) LPFC
    ◦   Mental health problems
    ◦   Degenerative neurological conditions                      ◦ Meta cognition (monitoring) Area 10
    ◦   Stroke
    ◦   Acquired brain injury




   Within rehab units the use of scaffolding
    techniques to prompt self-care task are                  Support staff use a wide range of subtle
    common                                                    strategies
   It facilitates ability to build on skills and            Service users are not passive
    knowledge
   Instructions given are just beyond the level of          Service users often request help
    what the service user could do without                   But, service users often also resist help
    prompts                                                  Maybe service users are less likely to resist
   The staff member provides the service user                scaffolding from a technology?
    with the scaffolding to achieve an end goal
    (Olsen and Pratt, 2000)




                                                                                                                 1
24/09/2012




   Assistive Technology for cognition is the use         Other media have also used text or auditory
    of technology to extend or augment the                 prompts to overcome prospective memory
    mental functions, with particular application          difficulties;
    meeting the needs of people with cognitive         •   Voice recorders with a timer function (eg. van
    impairment                                             den Broek, Downes, Johnson, Dayus, & Hilton,
                                                           2000);
   Research includes use of paging system to
                                                       •   text messaging to mobile phones
    provide reminders of everyday tasks (Wilson            (Pijnenborg, Withaar, Evans, van den Bosch, &
    et al 2001).                                           Brouwer, 2007)
                                                       •   smartphone reminders (Svoboda & Richards,
                                                           2009)




   Care-givers provide cognitive support                 Rehabilitation relevant behaviour in persons
    ◦ Talking service users through tasks                  with early stage vascular dementia
    ◦ Providing prompts and checks                        O'Neill, B. Moran, K. & Gillespie, A. (2010).
                                                           Scaffolding rehabilitation behaviour using a
   GUIDE models care giver cognitive support              voice-mediated assistive technology for
    ◦ Prompts user through tasks                           cognition. Neuropsychological Rehabilitation,
    ◦ Receives verbal input                                18, 1-19.
    ◦ Simulates naturalistic conversation
    ◦ Automated, non-judgemental and
      emotionally neutral prompter (preferred by
      some individuals)




                                        Computer                                              Computer
                                      GUIDE software                                        GUIDE software



                                                                                      Prompt or
    User                                                   User                       Question




                                                                                                             2
24/09/2012




                                                                       The only prompting system that uses speech
                                      Speech
                                                                        recognition
                                      Recognition
                                                                        ◦ It simulates natural conversation

                                                                       No difficult technology interface
                                                    Computer
                                                                        ◦ It is as easy to use as having a conversation
                                                GUIDE software
                                                                       Builds upon users abilities
                                                                        o Rather than by-passing their abilities

                                        Prompt or
      User                              Question                       Technology may aid the transition from
                                                                        rehabilitation unit to home




      Randomised control trial

To develop and test laundry and morning routine
GUIDE protocols for use by people with acquired brain
injury.

Three year research project 2010-2013                             Single n experimental design – as part of the
                                                                                larger randomised control trial
  ◦ at Brain Injury Rehabilitation Trust’s Graham Anderson
    House in Glasgow
  ◦ funded by Chief Scientist Office of the Scottish Government




     62 year old man
     Twelve month history after intracerebral
      haemorrhage
     Severe cognitive impairment - memory
     n=1, Inpatient A-B-A-B; At home A-B
     Morning Checklist a. sequence performance
      score and b. carer prompts
     Inpatient = six weeks baseline then three
      weeks intervention
     Home = one week baseline then two week
      intervention (trial)




                                                                                                                          3
24/09/2012




   During the first intervention phase the
    Morning Checklist score was significantly
    increased in comparison with baseline

   This indicates that the number of prompts
    given by support staff significantly decreased
    in the first intervention phase, where the
    participant approached perfect performance
    (4.94/5.00).




   The use of guide was withdrawn due to               Similar pattern of improvement at home
    subject error (being turned off ) for 4 days        Significant improvement in morning checklist
                                                         ratings from baseline and intervention
   Within this period the results demonstrate a         conditions
    greater number of prompts required                  Guide error rates at home were slightly higher
                                                        This may have been an artefact of difference
   When the GUIDE was re-introduced the                 in observers or due to the change of
    results indicate an increase in function             environment




                                                                                                          4
24/09/2012




   Inpatient errors: getting up and going
    straight back to bed, hesitating during
    sequence, not being able to find clothes that
    are in the room, and not getting all the
    clothes ready to be fully dressed

   Home errors: not getting all clothes to be
    fully dressed, wearing dirty or mismatched
    clothes, forgetting to pick up phone/GPS and
    inappropriate clothes for the weather




   Guide reduced participant errors to near zero      Many service users object to being observed
    in the intervention phase                           and prompted. The use of an automated,
   Led to ratings of ‘independent’ on half of          non-judgemental and emotionally neutral
    intervention trials                                 prompter may be preferable (O’Neill &
   Guide can emulate the supportive action of          Gillespie, 2008; Lo Presti et al., 2004)
    carers in the performance of a complex ADL         The technology may aid in the transition from
    sequence                                            rehabilitation centre to home
   Augmentation of rehabilitation, facilitating       This could have huge financial implications
    discharge and home support
   Increased prompting without increasing staff
    costs




   If the person can carry out the sequence with      Single n experimental design
    prompting support, then Guide or a context         Participant had interested in technologies
    aware prompter may allow that person to be         Highly motivated by hope of discharge home
    independent                                        Increases in error rates and decreases in
                                                        prompt score ratings of independence
                                                        occurred on return home and baseline
   This could have functional implications in
    terms of discharge planning and could              Feedback on appearance and performance
    perhaps reduce the need for long term carer        Perhaps once more settled within his home
    support
                                                        environment and into an established routine
                                                        with support the long term use of GUIDE
                                                        could have maximised his function




                                                                                                        5
24/09/2012




   From a functional perspective the use of the
    GUIDE system alongside a rehabilitation
    program could maintain sequencing abilities
    with complex ADL tasks

   It could be implemented as a less intrusive
    way of supporting an individual with personal
    care routines

   This could in turn perhaps have longer term
    implications for reducing carer costs




                                                            6

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louise and lauren paper presentations development of guide assistive technology

  • 1. 24/09/2012  Sequencing difficulties post brain injury  Scaffolding  What is GUIDE? Lauren O’Neill and Louise McCombe Occupational Therapists at Graham Anderson House, Glasgow, Brain Injury Rehabilitation Trust  Single n study as part of a wider randomised control  Activities of daily living are complex  Four categories of behaviour control sequences impairments  A set of actions that must be performed in a certain order to achieve a goal state ◦ Energization (motivation / sustaining activity) localized to SMPFC  Inability to carry out a complex sequence ◦ Emotional regulation (prioritisation / safely is widespread and disabling for many: inhibition) VMPFC ◦ Learning disability ◦ Task setting (verbal self regulation) LPFC ◦ Mental health problems ◦ Degenerative neurological conditions ◦ Meta cognition (monitoring) Area 10 ◦ Stroke ◦ Acquired brain injury  Within rehab units the use of scaffolding techniques to prompt self-care task are  Support staff use a wide range of subtle common strategies  It facilitates ability to build on skills and  Service users are not passive knowledge  Instructions given are just beyond the level of  Service users often request help what the service user could do without  But, service users often also resist help prompts  Maybe service users are less likely to resist  The staff member provides the service user scaffolding from a technology? with the scaffolding to achieve an end goal (Olsen and Pratt, 2000) 1
  • 2. 24/09/2012  Assistive Technology for cognition is the use  Other media have also used text or auditory of technology to extend or augment the prompts to overcome prospective memory mental functions, with particular application difficulties; meeting the needs of people with cognitive • Voice recorders with a timer function (eg. van impairment den Broek, Downes, Johnson, Dayus, & Hilton, 2000);  Research includes use of paging system to • text messaging to mobile phones provide reminders of everyday tasks (Wilson (Pijnenborg, Withaar, Evans, van den Bosch, & et al 2001). Brouwer, 2007) • smartphone reminders (Svoboda & Richards, 2009)  Care-givers provide cognitive support  Rehabilitation relevant behaviour in persons ◦ Talking service users through tasks with early stage vascular dementia ◦ Providing prompts and checks  O'Neill, B. Moran, K. & Gillespie, A. (2010). Scaffolding rehabilitation behaviour using a  GUIDE models care giver cognitive support voice-mediated assistive technology for ◦ Prompts user through tasks cognition. Neuropsychological Rehabilitation, ◦ Receives verbal input 18, 1-19. ◦ Simulates naturalistic conversation ◦ Automated, non-judgemental and emotionally neutral prompter (preferred by some individuals) Computer Computer GUIDE software GUIDE software Prompt or User User Question 2
  • 3. 24/09/2012  The only prompting system that uses speech Speech recognition Recognition ◦ It simulates natural conversation  No difficult technology interface Computer ◦ It is as easy to use as having a conversation GUIDE software  Builds upon users abilities o Rather than by-passing their abilities Prompt or User Question  Technology may aid the transition from rehabilitation unit to home Randomised control trial To develop and test laundry and morning routine GUIDE protocols for use by people with acquired brain injury. Three year research project 2010-2013 Single n experimental design – as part of the larger randomised control trial ◦ at Brain Injury Rehabilitation Trust’s Graham Anderson House in Glasgow ◦ funded by Chief Scientist Office of the Scottish Government  62 year old man  Twelve month history after intracerebral haemorrhage  Severe cognitive impairment - memory  n=1, Inpatient A-B-A-B; At home A-B  Morning Checklist a. sequence performance score and b. carer prompts  Inpatient = six weeks baseline then three weeks intervention  Home = one week baseline then two week intervention (trial) 3
  • 4. 24/09/2012  During the first intervention phase the Morning Checklist score was significantly increased in comparison with baseline  This indicates that the number of prompts given by support staff significantly decreased in the first intervention phase, where the participant approached perfect performance (4.94/5.00).  The use of guide was withdrawn due to  Similar pattern of improvement at home subject error (being turned off ) for 4 days  Significant improvement in morning checklist ratings from baseline and intervention  Within this period the results demonstrate a conditions greater number of prompts required  Guide error rates at home were slightly higher  This may have been an artefact of difference  When the GUIDE was re-introduced the in observers or due to the change of results indicate an increase in function environment 4
  • 5. 24/09/2012  Inpatient errors: getting up and going straight back to bed, hesitating during sequence, not being able to find clothes that are in the room, and not getting all the clothes ready to be fully dressed  Home errors: not getting all clothes to be fully dressed, wearing dirty or mismatched clothes, forgetting to pick up phone/GPS and inappropriate clothes for the weather  Guide reduced participant errors to near zero  Many service users object to being observed in the intervention phase and prompted. The use of an automated,  Led to ratings of ‘independent’ on half of non-judgemental and emotionally neutral intervention trials prompter may be preferable (O’Neill &  Guide can emulate the supportive action of Gillespie, 2008; Lo Presti et al., 2004) carers in the performance of a complex ADL  The technology may aid in the transition from sequence rehabilitation centre to home  Augmentation of rehabilitation, facilitating  This could have huge financial implications discharge and home support  Increased prompting without increasing staff costs  If the person can carry out the sequence with  Single n experimental design prompting support, then Guide or a context  Participant had interested in technologies aware prompter may allow that person to be  Highly motivated by hope of discharge home independent  Increases in error rates and decreases in prompt score ratings of independence occurred on return home and baseline  This could have functional implications in terms of discharge planning and could  Feedback on appearance and performance perhaps reduce the need for long term carer  Perhaps once more settled within his home support environment and into an established routine with support the long term use of GUIDE could have maximised his function 5
  • 6. 24/09/2012  From a functional perspective the use of the GUIDE system alongside a rehabilitation program could maintain sequencing abilities with complex ADL tasks  It could be implemented as a less intrusive way of supporting an individual with personal care routines  This could in turn perhaps have longer term implications for reducing carer costs 6