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Quality of Life approach
Quality of Life approach is made
up of:
Audits
- checking people’s quality of life from rights
based approach
Practice development
- changing the way people think and work with
people with disabilities
Quality of Life standards
• Rights based set of
standards covering a whole
life.
• Young people through to
adult.
What is a Quality of Life
audit?
• A Quality of Life audit is a
person centred way of
measuring how services and
community supports enable
people with disabilities to
lead an ‘ordinary life’.
• It is person centred because
it follows the person through
their life.
An ordinary life
We define an ‘ordinary life’ as:
• being part of the community
• being employed
• having access to education
which enables you to
develop as an individual
• living in your own home
• being in a relationship
• having friends and family
around you.
Rights based approach
• The approach we take in the
standards, audit and practice
development is not about
services.
• Our approach is about having
a LIFE!
• Based in belief that to lead a
full LIFE, a person needs
more than paid services.
• People need families, friends
and other natural supports
that you find in the
community, as well as paid
services and supports.
Reshaping services
So in walking through people’s
lives, we encourage services to
change and reshape
themselves so they are able to
support individuals to lead full
lives.
• Supported living
• Residential and nursing care
• Short breaks including residential
respite, support in the home and a
range of community provision
• After school clubs, youth clubs and
nurseries
Reshaping services
• Leisure provision
• Youth and community groups
and organizations
• The impact of direct payments
and personal budgets
• The impact of social work
teams both in adult and
children’s services
• Or they are used as a person
centred way of measuring the
effectiveness of a whole
service, for example, a local
authority learning disability
service.
• Over the last 3 years
our Quality of Life
audit team worked
with 1241 young
people and adults
covering 165 services
and community
supports.
Audit tools
• spending time with individuals
and ‘walking through’ their life
• meeting with the person’s
family
• unannounced visits of
services and supports
• interviewing staff teams,
managers, Directors, CEO
• observation of practice
• checking people’s plans
• checking strategic documents
such as commissioning
strategies, business plans for
providers
Practice development – getting people to
think and work differently !
• Challenge events – pledges
made for cultural change
followed by audit.
• Idea’s festivals
• Dragon’s Den
• Self-authored lives –
modelling planning for
Quality of Life.
Quality of Life
impacts on 3 levels
impact on individuals
impact on commissioning
impact on practice development and
cultural change
Impact on individuals
Impact on individuals
• More people being part of
their local community
• People moving to a place they
call home
• More people with profound
and multiple learning
disabilities using
Communication Passports
and increased numbers of
staff trained in different forms
of communication
• More people gaining paid
employment
• Changes in support staff
resulting in individuals getting
better person centred support.
Jayne Gallear
• Labelled as ‘challenging’, red stickered
• Demonised
• Isolated from peers and the community
• Skirted assessment and treatment
Jayne Gallear
Jayne
“My communication is respected.”
“I’m in my own home, with good staff.”
“I’m now treated like a human being.”
“I have individual support.”
“I have got to the top of the climbing wall.”
No one is too disabled
No one is too complex
No one is too challenging
To lead an ordinary life!
Impact on commissioning and
practice development
Changing Our Lives &
Sandwell MBC
Co-produced Activities
• Interviewing
• Audit of existing placements
and providers
• Standards in provider
contracts
• Challenging how we
measure quality - Is this
good enough?
• Listening to people. Making
sure they have a voice
• Working with providers to
raise quality.
• Winterbourne
• Commissioning alternatives.
• The Time
Machine: How
things have
changed!
• Looking back
over the past
100 years of how
life has changed
for someone with
a learning
disability
Co-production
Changing Times in learning
disability services
Co-production
Changing Times in learning
disability services
• Ideas Festival: How we
want things to change even
more!
• Taking time to listen and
think
• Challenge to commissioners
and providers
• What should services look
like in 2024?
• Dragon’s Den: What’s the
offer?
• Different needs: Different
provider?
www.changingourlives.org
ask@changingourlives.org
0300 302 0770

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Quality of Life Approach practised by care provider Changing Our Lives

  • 1. Quality of Life approach
  • 2. Quality of Life approach is made up of: Audits - checking people’s quality of life from rights based approach Practice development - changing the way people think and work with people with disabilities
  • 3. Quality of Life standards • Rights based set of standards covering a whole life. • Young people through to adult.
  • 4. What is a Quality of Life audit? • A Quality of Life audit is a person centred way of measuring how services and community supports enable people with disabilities to lead an ‘ordinary life’. • It is person centred because it follows the person through their life.
  • 5. An ordinary life We define an ‘ordinary life’ as: • being part of the community • being employed • having access to education which enables you to develop as an individual • living in your own home • being in a relationship • having friends and family around you.
  • 6. Rights based approach • The approach we take in the standards, audit and practice development is not about services. • Our approach is about having a LIFE! • Based in belief that to lead a full LIFE, a person needs more than paid services. • People need families, friends and other natural supports that you find in the community, as well as paid services and supports.
  • 7. Reshaping services So in walking through people’s lives, we encourage services to change and reshape themselves so they are able to support individuals to lead full lives. • Supported living • Residential and nursing care • Short breaks including residential respite, support in the home and a range of community provision • After school clubs, youth clubs and nurseries
  • 8. Reshaping services • Leisure provision • Youth and community groups and organizations • The impact of direct payments and personal budgets • The impact of social work teams both in adult and children’s services • Or they are used as a person centred way of measuring the effectiveness of a whole service, for example, a local authority learning disability service.
  • 9. • Over the last 3 years our Quality of Life audit team worked with 1241 young people and adults covering 165 services and community supports.
  • 10. Audit tools • spending time with individuals and ‘walking through’ their life • meeting with the person’s family • unannounced visits of services and supports • interviewing staff teams, managers, Directors, CEO • observation of practice • checking people’s plans • checking strategic documents such as commissioning strategies, business plans for providers
  • 11. Practice development – getting people to think and work differently ! • Challenge events – pledges made for cultural change followed by audit. • Idea’s festivals • Dragon’s Den • Self-authored lives – modelling planning for Quality of Life.
  • 12. Quality of Life impacts on 3 levels impact on individuals impact on commissioning impact on practice development and cultural change
  • 14. Impact on individuals • More people being part of their local community • People moving to a place they call home • More people with profound and multiple learning disabilities using Communication Passports and increased numbers of staff trained in different forms of communication • More people gaining paid employment • Changes in support staff resulting in individuals getting better person centred support.
  • 15. Jayne Gallear • Labelled as ‘challenging’, red stickered • Demonised • Isolated from peers and the community • Skirted assessment and treatment
  • 17. Jayne “My communication is respected.” “I’m in my own home, with good staff.” “I’m now treated like a human being.” “I have individual support.” “I have got to the top of the climbing wall.”
  • 18. No one is too disabled
  • 19. No one is too complex
  • 20. No one is too challenging
  • 21. To lead an ordinary life!
  • 22. Impact on commissioning and practice development
  • 23. Changing Our Lives & Sandwell MBC Co-produced Activities • Interviewing • Audit of existing placements and providers • Standards in provider contracts • Challenging how we measure quality - Is this good enough? • Listening to people. Making sure they have a voice • Working with providers to raise quality. • Winterbourne • Commissioning alternatives.
  • 24. • The Time Machine: How things have changed! • Looking back over the past 100 years of how life has changed for someone with a learning disability Co-production Changing Times in learning disability services
  • 25. Co-production Changing Times in learning disability services • Ideas Festival: How we want things to change even more! • Taking time to listen and think • Challenge to commissioners and providers • What should services look like in 2024? • Dragon’s Den: What’s the offer? • Different needs: Different provider?

Editor's Notes

  1. Jayne – starting with the person first, and a blank sheet then add
  2. Emphasise that we do not audit services, we focus on the person’s life and then reshape service!
  3. You will have all sorts of different impacts for individuals – here are just some typical impacts