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CONNECTIONS: ACTIVITY ENGAGEMENT FOR PERSONS
DIAGNOSED WITH DEMENTIA
Ellen Phipps, CTRS, MSG
Alzheimer’s Association, CWVA; VCU
Governor’s Conference on Aging 2016
CONNECTIONS IS:
A one-on-one, personalized activity
intervention designed to create an
“activity station” to help persons with
dementia self-initiate engagement in a
meaningful activity.
CONNECTIONS IS EVIDENCED BASED
● Initial seed funding through a grant from UVA
● Funding from ARDRAF research award: 32 of 34
(94%) persons with dementia engaged in activity when
structured by the investigators, student visitors, and/or
caregivers. Caregivers reported increased confidence in
structuring activities in the home. Published in the
Journal of Therapeutic Recreation.
● AoA Grant for home-visitation program to rural areas
● Best practice award – National Caregivers Alliance
BENEFITS
● Prevent frustration
● Prevent boredom and challenging behaviors
● Provide mental stimulation
● Improve physical activity and general health
● Promote social interaction which will reduce
feelings of loneliness, isolation and depression
● Improve sleep habits
● Improve self esteem
● Provide enjoyment!!!
THERAPEUTIC OUTCOMES of MEANINGFUL
ACTIVITY
○ Reduces falls and injuries related to falls
○ Reduces disturbing behaviors exhibited by
individuals with dementia which leads to decreased
use of psychotropic medications and chemical
restraints
○ Decreases the symptoms of Depression and Anxiety
○ Decreases apathy/Increases engagement
○ Improves subjective well-being and quality of life
PRACTICE FIELDS: RECREATION THERAPY
● Recreation therapy – a process that utilizes activity-based interventions
based on the assessed needs of individuals with illness and/or disabling
conditions. The purpose of the process is to improve or maintain physical,
cognitive, social, emotional and spiritual functioning in order to facilitate full
participation in life
● Montessori - This unique approach builds on current strengths and abilities as
well as environmental modification. Montessori-Based Dementia Programming
uses rehabilitation principles including guided repetition, task breakdown, and
progressing from simple to complex.
● Cognitive Intervention - In dementia care, cognitive intervention approaches
often capitalize on the individual’s cognitive strengths, and care providers may
be trained to provide verbal cues as well as set up environmental modification to
assist persons with cognitive losses
Person-Centered Care
● Care is driven by the care recipient and
supported by the care professional.
● Recognizes the individuality of each person
● Honors respect and dignity
CORE PRINICPLES OF CONNECTIONS
● Trusting relationship
● Reflects individual preferences
● One-on-One or Self Initiation
● Strength-based
● Control the environment
● It’s about the PROCESS….
GETTING STARTED: STEP ONE:
BUILDING TRUST
TOOL: Conversation Starters
○ Where were you born?
○ Family / Spouse
○ School days
○ Childhood
○ Occupation
○ Volunteer Work
○ Social / Cultural
STEP TWO: LEISURE INTERESTS
TOOL: Leisure Interest Survey
Domains
!Creative / Expressive
!Intellectual
!Physical
!Productive / Work
!Social / Leisure/ Entertainment
!Spiritual / Insightful
STEP THREE: CURRENT LEVEL OF
FUNCTION
● TOOL: Cognitive Check List
● Medical Status
● Mobility
● Vision


FOCUS ON STRENGTHS
CONNECTIONS: FOCUS ON STRENGTHS
SYMPTOMS AND STRENGTHS CHART 

EARLY STAGE
SYMPTOMS AND STRENGTHS CHART 

MIDDLE STAGE
SYMPTOMS AND STRENGTHS CHART 

LATE STAGE
SUMMARY OF INFORMATION
✓ Personal information about past occupation,
personality and interests
✓ Leisure interests; hobbies
✓ Current level of function with focus on strengths
✓ Other important information about functional ability
– vision, hearing, mobility, etc.
IS SHE A MUSICIAN?
DAILY CHORES
IS SHE A SPORTS FAN?
VIEWING ART
WHAT WAS HIS PROFESSION?
MIDDLE
EXAMPLES THROUGH
THE STAGES
MUSIC
POLISHING SILVER
SHINING SHOES
25
DAILY CHORES
MAKING ART:CREATIVE EXPRESSION
DID HE ENJOY FISHING?
REMINISCE
28
VIEWING ART
ADAPTED GAMES
ADAPTED GAMES
LATER STAGE
EXAMPLES THROUGH THE
STAGES
MUSIC
DAILY CHORES
Care for the animals
Wipe off the bathroom counter with
spray and cloth
CREATIVE EXPRESSION
THROUGH THE SENSES
Sensory Aprons
GOING FOR A WALK
DOLL THERAPY
QUESTIONS
ACTIVITY RESOURCES
● A Different Visit (Joltin, Adena; Camp, Cameron; Noble, Beverely;
Antenucci, Vincent; Menorah Park Center for Senior Living)
● Activity Programming for Persons with Dementia
(Alzheimer’s Association)
● Best Friend’s Book of Alzheimer’s Activities (Bell, Virginia;
Troxel, David; Cox, Tonya; Hamon, Robin; Health Professions Press)
● Doing things (Zgola, Jitka; Johns Hopkins University Press)
● Positive interactions (Nissenboim, Sylvia; Vroman, Christine;
Health Professions Press)
● Reminiscence magazine
● 101 things to do…
CONTACT
Ellen Phipps, CTRS, MSG, Gerontologoist
Vice President Programs & Services
Alzheimer's Association Central & Western Virginia
1160 Pepsi Place, Suite 306
Charlottesville, VA 22901
Phone: 434-973-6122 , ext. 103 Fax: 434-973-4224
ellen.phipps@alz.org
www.alz.org/cwva

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Meaningful activity later in life connections for governors conference 2016

  • 1. CONNECTIONS: ACTIVITY ENGAGEMENT FOR PERSONS DIAGNOSED WITH DEMENTIA Ellen Phipps, CTRS, MSG Alzheimer’s Association, CWVA; VCU Governor’s Conference on Aging 2016
  • 2. CONNECTIONS IS: A one-on-one, personalized activity intervention designed to create an “activity station” to help persons with dementia self-initiate engagement in a meaningful activity.
  • 3. CONNECTIONS IS EVIDENCED BASED ● Initial seed funding through a grant from UVA ● Funding from ARDRAF research award: 32 of 34 (94%) persons with dementia engaged in activity when structured by the investigators, student visitors, and/or caregivers. Caregivers reported increased confidence in structuring activities in the home. Published in the Journal of Therapeutic Recreation. ● AoA Grant for home-visitation program to rural areas ● Best practice award – National Caregivers Alliance
  • 4. BENEFITS ● Prevent frustration ● Prevent boredom and challenging behaviors ● Provide mental stimulation ● Improve physical activity and general health ● Promote social interaction which will reduce feelings of loneliness, isolation and depression ● Improve sleep habits ● Improve self esteem ● Provide enjoyment!!!
  • 5. THERAPEUTIC OUTCOMES of MEANINGFUL ACTIVITY ○ Reduces falls and injuries related to falls ○ Reduces disturbing behaviors exhibited by individuals with dementia which leads to decreased use of psychotropic medications and chemical restraints ○ Decreases the symptoms of Depression and Anxiety ○ Decreases apathy/Increases engagement ○ Improves subjective well-being and quality of life
  • 6. PRACTICE FIELDS: RECREATION THERAPY ● Recreation therapy – a process that utilizes activity-based interventions based on the assessed needs of individuals with illness and/or disabling conditions. The purpose of the process is to improve or maintain physical, cognitive, social, emotional and spiritual functioning in order to facilitate full participation in life ● Montessori - This unique approach builds on current strengths and abilities as well as environmental modification. Montessori-Based Dementia Programming uses rehabilitation principles including guided repetition, task breakdown, and progressing from simple to complex. ● Cognitive Intervention - In dementia care, cognitive intervention approaches often capitalize on the individual’s cognitive strengths, and care providers may be trained to provide verbal cues as well as set up environmental modification to assist persons with cognitive losses
  • 7. Person-Centered Care ● Care is driven by the care recipient and supported by the care professional. ● Recognizes the individuality of each person ● Honors respect and dignity
  • 8. CORE PRINICPLES OF CONNECTIONS ● Trusting relationship ● Reflects individual preferences ● One-on-One or Self Initiation ● Strength-based ● Control the environment ● It’s about the PROCESS….
  • 9. GETTING STARTED: STEP ONE: BUILDING TRUST TOOL: Conversation Starters ○ Where were you born? ○ Family / Spouse ○ School days ○ Childhood ○ Occupation ○ Volunteer Work ○ Social / Cultural
  • 10. STEP TWO: LEISURE INTERESTS TOOL: Leisure Interest Survey Domains !Creative / Expressive !Intellectual !Physical !Productive / Work !Social / Leisure/ Entertainment !Spiritual / Insightful
  • 11. STEP THREE: CURRENT LEVEL OF FUNCTION ● TOOL: Cognitive Check List ● Medical Status ● Mobility ● Vision
  • 14. SYMPTOMS AND STRENGTHS CHART 
 EARLY STAGE
  • 15. SYMPTOMS AND STRENGTHS CHART 
 MIDDLE STAGE
  • 16. SYMPTOMS AND STRENGTHS CHART 
 LATE STAGE
  • 17. SUMMARY OF INFORMATION ✓ Personal information about past occupation, personality and interests ✓ Leisure interests; hobbies ✓ Current level of function with focus on strengths ✓ Other important information about functional ability – vision, hearing, mobility, etc.
  • 18. IS SHE A MUSICIAN?
  • 20. IS SHE A SPORTS FAN?
  • 22. WHAT WAS HIS PROFESSION?
  • 24. MUSIC
  • 27. DID HE ENJOY FISHING?
  • 33. MUSIC
  • 34. DAILY CHORES Care for the animals Wipe off the bathroom counter with spray and cloth
  • 38. GOING FOR A WALK
  • 41. ACTIVITY RESOURCES ● A Different Visit (Joltin, Adena; Camp, Cameron; Noble, Beverely; Antenucci, Vincent; Menorah Park Center for Senior Living) ● Activity Programming for Persons with Dementia (Alzheimer’s Association) ● Best Friend’s Book of Alzheimer’s Activities (Bell, Virginia; Troxel, David; Cox, Tonya; Hamon, Robin; Health Professions Press) ● Doing things (Zgola, Jitka; Johns Hopkins University Press) ● Positive interactions (Nissenboim, Sylvia; Vroman, Christine; Health Professions Press) ● Reminiscence magazine ● 101 things to do…
  • 42. CONTACT Ellen Phipps, CTRS, MSG, Gerontologoist Vice President Programs & Services Alzheimer's Association Central & Western Virginia 1160 Pepsi Place, Suite 306 Charlottesville, VA 22901 Phone: 434-973-6122 , ext. 103 Fax: 434-973-4224 ellen.phipps@alz.org www.alz.org/cwva