This presentation is all about problem faced by challenged Families as u know Challenged families are the ones having challenged children either physically or mentally or both.

1. Family Pattern and Issues
Abdul Aziz Ch
Certified Success Coach
Certified Youth Trainer
Certified Wellness Coach
Special Educationist
03459124990

2. CONTENTS
 DEFINITIONS
 CHALLENGED FAMILY
 CHALLENGED CHILDREN
 PSYCHO-SOCIAL PROBLEMS
 PSYCHO-SOCIAL PROBLEMS FACED BY
 PARENTS OF CHALLENGED
 SIBLINGS OF CHALLENGED
 RIGHTS OF CHALLENGED CHILD & FAMILY
 COPING RESPONSES BY
 •PARENTS
 •SIBLINGS •
 COPING STATEGIES
 •PARENTS
 •PROFESSIONALS •
 COMMUNITY
 CONCLUSION

3. CHALLENGED FAMILY
Challenged families are the ones having challenged
children either physically or mentally or both.

4. CHALLENGED CHILDREN
 The child who is mentally challenged or he may have
any learning disability associated with physical
impairment.
 They are often called as ―Special child‖ thus having
special needs of personal attention to attain their
fullest potential.

5. PSYCHO-SOCIAL PROBLEMS
 Psycho-social relates to one's psychological
development in, and interaction with, a social
environment .
 Problems that occur in one's psychosocial functioning
can be referred to as "psycho-social dysfunction”.

6. PROBLEMS FACED BY CHALLENGED PARENTS
 Parents
 Parents the legal guardian of a challenged child face a
great deal of problems while bringing up their
children.

7. PROBLEMS FACED BY PARENTS

8. EMOTIONAL ISSUES

9. Loss of Self-esteem
 Our society tends to foster the concept that children
are extensions of their parents and reflect on their
parents.
 Life goals may be radically altered when it becomes
obvious that one's child will be perceived as a "loser"
rather than a "winner."

10. Shame
 Parents may anticipate Social Rejection, pity and related
loss of prestige.
These expectations are all too often quite realistic.

11. GUILT
 They often struggle with guilt as if they somehow
caused the child to be disabled.

12. Depression
 Typically, parents are disappointed in their child and
realistically concerned about his future.
 To some, mental retardation symbolizes the death of
the child and hence precipitates the type of grief
reaction associated with the loss of a loved one.

13. STRESS
 Due to the many responsibilities & burden of coping
with a disable child they experience a lot of stress.

14. DISAPPOINTMENT
 Parents hold high hopes when the child is born and
when disability diagnosed, feels disappointed that
their goal won‘t be possible.

15. EMBARRASSMENT
Parents feel embarrassed
that their child is not
mentally or physically
stable.

16. BY PARENTS
 Strive for different diagnosis, i.e. frequent visits to health
professionals. They want their children to see at minimum
scale of disability.
 Some become very much Psychologically stressed and go
for spiritual treatments.
 After acceptance of a disability of child, they seek to learn
more and more about that disability.
 Search for health care professionals to improve child‘s
health status.
 Educated ones attend seminars and workshops to learn
coping strategies.

17. LOSS OF SOCIAL RELATIONS
 They become socially very isolated.

18. Self-sacrifice
 Some parents dedicate themselves entirely to the
retarded child, make great personal sacrifices.
 Family disturbance, including neglect of other
children and marital conflicts, may go together with
this pattern.

19. Defensiveness
 Parents may become hypersensitive to perceived
criticism of their retarded child and respond with
anger.
 In extreme cases they may deny the existence of
retardation, rationalize the child's shortcomings, and
seek professional opinions to confirm their own
conviction that "there is really nothing wrong" with
him.

20. PHYSICAL ISSUES
 Tiredness
 Close medical monitoring
 Avoid self harm

21. MONITOR BEHAVIOUR
 Parents might have to keep a close eye and monitor the
child‘s behavior at school in order to ensure that he or
she is not being bullied at.

22. EDUCATIONAL ISSUES

23. SEARCHING FOR EDUCATION
 Parents usually have to search for private education or
an satisfactory public education which provides all the
needs.

24. TRANSPORTATION
 Transportation to and from the school might be an
issue, hence, home schooling a better option.

25. FINANCIAL ISSUES
 Care giving expenses
 Private education
 Professional help

26. PROBLEMS FACED BY SIBLINGS
 Experience of disturbance
 Lack of parental attention
 Adverse emotional problems
 Feelings of unequal consideration
 Feelings of insecurity
 Loss of property
 Low Self esteem
 Fear of having same type of children

27. RIGHTS OF CHALLENGED
 Right to be treated with dignity
 Right to education
 Right to confidentiality
 Right to vocational rehabilitation
 Right to social support
 Right to transportation
 Right to refuse treatment while in residential care
 Right to privacy

28. Right to be treated with dignity
 Right to be treated with dignity These individuals may
not be neglected, verbally harassed, or physically
abused in any setting.

29. Right to confidentiality
 They must be aware of and agree to the distribution
personnel records. They must also have access to
records.

30. Right to education
 Education must include necessary related services and
an individualized education program.

31. Right to social support
 These individuals are eligible to receive Supplemental
Security Income, Medicare, and Medicaid.

32. Right to vocational rehabilitation
 Vocational rehabilitation services include:
 Vocational evaluation
 Career guidance
 Employment counseling
 Medical and psychiatric care
 Vocational training etc.

33. COPING RESPONSES

34. THINKING WORK STRATEGY
1. Separating disability from a child.
2. Thinking positively. Parents made an effort to think
positively about their own coping abilities.
3. Maintaining a helpful focus.
4. Keeping expectations realistic.

35. CAPACITY WORK STRATEGY
 Managing other activities.
 Skill learning.
 Working together.
 Using social support.

36. Parents of Children with Disabilities
 Chronic sadness/grief/sense of loss.
 The challenges of parenting cause parents to neglect their own
wellbeing
 Running out of physical and psychological energy
 Finding adequate child care for children with special needs
 Managing complex medical and developmental demands (for
example, doctor appointments, therapies, treatments
 Developing and managing special education plans for child
 Giving enough time and attention to manage other
relationships, including spouse/partner, other children,
friendships
 Confusion about how much to expect/push achievement for
child

37. Parents Of Children With Disabilities
 Accept grief and loss, don’t deny it
 Prioritize self-care
 Monitor physical and psychological well-being and adjust schedule
accordingly
 Talk with child care provider about possible child care issues and make
sure they will support your child’s special needs
 Have back-up childcare plans (Plan B, Plan C, Plan D)
 Organize, prioritize and schedule treatment for child. May mean
delaying some treatment
 Use special education advocate and set up ongoing communication plan
with school
 Build in dedicated time for relationships that support caregiver
 Seek out other parents of children with similar disabilities (online is good
source)
 Research current information about your child’s disability