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Thom Kearney lookiing to the future PHAC KE forum Nov 2010 1
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Looking to the future
How social media and
emerging communication
technologies can
positively influence public
health and assist in
chronic disease
prevention.
PHAC Knowledge Exchange Forum, November 24, 2010
Thom Kearney, @thomkearney
www.nusum.wordpress.com
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Outline
1. The meta change
2. The future information environment
3. Future perspectives
4. Some examples
5. PHAC’s role
6. Things to do
7. A closing thought
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“It is not the strongest of the
species that survive, nor
the most intelligent, but the
one most responsive to change.”
Charles Darwin
Why collaborate?
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The meta change
Its as big as the industrial revolution – the
dawn of a new era
The cost of connecting continues to drop
• Cognitive surplus becoming accessible
• Many experiments underway
First time in history we have had the capacity
to self organize on a mass scale.
Social media, Web 2.0, Gov 2.0, Health 2.0 …
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Shift happens
…Possibly the greatest failure of the current healthcare system is that it clearly doesn't engage a large part of the population. And
when we don't think about our health we get unhealthy. Close to two-thirds (63.1 percent) of adult Americans are becoming
overweight or obese, exercising less, and eating unhealthy foods. Compared to healthy-weight people, overweight and obese people
have particularly unhealthy lifestyles--lifestyles that contribute to the skyrocketing rates of preventable diseases like diabetes and
heart conditions, which are among the most costly public health afflictions. A population truly engaged in the issue of wellness
would not act so recklessly with respect to its own wellbeing. To change that, we need to shift from a model of health care where
patients are passive recipients of care
only after they become sick to one in which one where
patients become much more active in
managing their own health over their lifespan. A main benefit, as studies show, is
that when patients are more engaged in managing their own health, they are more committed to being healthy. Collaborative healthcare could
not just improve health it could reduce costs of a system that is close to 20 percent of the GDP and acting as an anchor on the economy.
Don Tapscott and Anthony Williams
Macrowikinomics: Rebooting the Economy
http://www.huffingtonpost.com/don-
tapscott/macrowikinomics-rebooting_1_b_779701.html
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The future
Mobile – think apps not web sites
Networks of people and things
Widgets and linked data
• Diverged & converged, networked, not linear
Health info integrated with EHRS?
Government amplifies grass roots initiatives
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Health perspectives
Patient Focus:
• Rapid communications
• Tools to self manage
• Shared experiences
Professional Focus:
• Share and collaborate
• Find radical efficiencies
These will happen
with, or without you
These will only happen
with your commitment.
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and to collectively learn
“Will you add to our collective knowledge...
and help change the course of healthcare?”
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PHAC Roles?
Trusted content source – scope (breadth vs depth)
• Criteria – what makes a best practice?
• Surveillance products
• Synthesizer of diverse content
Trusted connector
Communicator – creator of widgets and aps?
Facilitate and connect, play a broker role, help with
Knowledge Exchange
Partner in a national knowledge exchange platform?
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A thought
The great thing about
enabling technologies
is that they
enable people.
You are people.
Consider yourself enabled.
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Things to do
1. Find a new conversation online that is
relevant to you. (twitter #publichealth)
2. Search for and join some communities that
already exist in your area of interest
3. Learn – Create – Share
4. Look for similarities instead of differences
Relevance = Trust = Engagement
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Last question
When I go back to the office I will:
A. Share some of what I learned
B. Change at least one thing in my routine
C. Experiment with new ways of working
D. Reinvent myself
E. Do nothing
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Plenary Discussion Idea 1
Brainstorm the types of materials and stories
you could share with your colleagues
Brainstorm ideas for Mass Collaboration or
public engagement
Mass Collaboration
100,000+
Small Group Collaboration
< 25
More Technology Less
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Plenary Discussion Idea 2
Discuss PHAC roles going forward:
Trusted content source – scope (breadth vs depth)
• Criteria – what makes a best practice?
• Surveillance products
• Synthesizer of diverse content
Trusted connector
Communicator – creator of widgets and aps?
Facilitate and connect, play a broker role, help with
Knowledge Exchange
Partner in a national knowledge exchange platform?
The second presentation near the end of the day will Look to the future and provide a glimpse of how emerging social communication technologies could positively influence public health and chronic disease presentation. It will attempt to synthesize some of the discussion to that point and provide the basis for a lively plenary discussion leading to personal actions attendees can take when they return to work.
Concept borrowed from http://www.mangospring.com/engage_collaboration_suite
Darwin image http://commons.wikimedia.org/wiki/File:Charles_Darwin_01.jpg
We cant predict the future but we do know change is happening faster.
Tools to self manage
Talk about SMS
“Most healthcare websites have a Privacy Policy. Naturally, we do too. But at PatientsLikeMe, we’re more excited about our Openness Philosophy. It may sound counterintuitive, but it’s what drives our groundbreaking concept.
You see, we believe sharing your healthcare experiences and outcomes is good. Why? Because when patients share real-world data, collaboration on a global scale becomes possible. New treatments become possible. Most importantly, change becomes possible. At PatientsLikeMe, we are passionate about bringing people together for a greater purpose: speeding up the pace of research and fixing a broken healthcare system.”
PatientsLikeMe, by encouraging patients to share data about themselves, is trying to reverse a strong cultural tradition of keeping such information private, and, said Shirky, “I don’t know if they’ll succeed.” But he emphasized that it’s the cultural and social changes rather than the tools that really make a difference. The tools are a means to the end, and social contracts are very powerful.
Clay Shirky also talks about PatientsLikeMe.com, a site that allows patients with chronic diseases to share their health information, both for personal advice, but also as participants in clinical trials. Patients Like Me only works because patients are willing to share their personal healthcare information, and that is a cultural shift from the strict privacy that usually surrounds information about your personal health. Patients participating in Patients Like Me obviously think that the benefits from sharing their personal healthcare information outweigh the risks.