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This document asks a series of questions to assess an individual's preferences for end-of-life care, including whether they would prefer to die at home or in a hospital, if they have appointed someone as a healthcare power of attorney, and if they have completed any advanced directives. It encourages completing advance care planning to ensure end-of-life wishes are known and can be advocated for by loved ones.
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![[object Object],[object Object],[object Object],[object Object],[object Object],Can You and Your Loved Ones Answer These Questions About Your End of Life Preferences? 1 2 3 4 5 Don't give up on me no matter what, try any proven and unproven intervention possible Let me die in my own bed, without any medical intervention engage with grace .org The One Slide Project](https://image.slidesharecdn.com/theoneslide-091123211545-phpapp01/85/The-One-Slide-1-320.jpg)
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From “Let Patients Help” to “Get Out of My Way”: Why some patients want ALL ...e-Patient Dave deBronkart
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* FHIR = Fast Healthcare Interoperability Resources FHIR.HL7.orgPresentation to TraceLink's "FutureLink" conference, Nov 2018
This document profiles "e-Patient Dave" deBronkart and his journey from being diagnosed with cancer in 2007 to becoming a prominent advocate for participatory medicine and empowering patients. It describes his early career in marketing and technology, how he turned to blogging and researching his condition online after his cancer diagnosis, and how he has since become a full-time speaker and advisor on issues of patient engagement and empowerment, publishing over 1400 blog posts and articles on the topic. It stresses the importance of patients being able to access and share health information online to become better informed and engaged in their own care.
Doctors & Patients on the Same Page: #SIIM18 opening keynote
This document outlines the principles of participatory medicine as described by "e-Patient Dave" deBronkart. It discusses how access to information empowers patients and allows them to contribute to medical knowledge. When patients are informed and engaged in their care, they can perform better. The emergence of online communities and social media has created new opportunities for patients to connect with information and each other outside of traditional healthcare systems. True empowerment involves treating patients as partners in decisions about their own care.
National Cancer Patient Forum: "What might we be overlooking?" (A patient's p...
National Cancer Patient Forum: "What might we be overlooking?" (A patient's p...e-Patient Dave deBronkart
The document discusses issues with the current healthcare system from the perspective of patients, including a risk of selection bias in only considering the views of certain patients and not hearing from those who have dropped out of the system. It advocates for asking patients directly if the system is working and ensuring information reaches those in need. The need to fix problems where information isn't reaching patients at the point of need is also discussed.How “e-patients” can help healthcare achieve its potential
This document profiles Dave deBronkart, known as "e-Patient Dave", an advocate for empowering patients through access to health information and online communities. It discusses his background and work promoting participatory medicine. It outlines how patients can help healthcare achieve its potential by checking their medical records, asking clinicians to share screens, accessing open notes, reviewing hospital safety scores, accessing podcasts and case managers. The overall message is that when patients are informed and engaged, medicine can better achieve its goals.
Let Patients Help Improve Everything - including the science
This document profiles "e-Patient Dave" deBronkart, a patient engagement advocate. It summarizes his journey from a marketing career to becoming a full-time patient advocate after being diagnosed with cancer in 2007. It describes how he utilized online resources and patient communities to help make treatment decisions and find an effective immunotherapy. The document advocates for greater patient empowerment and participation in healthcare, citing examples of highly engaged "e-patients" who are helping to advance medicine through open data sharing and DIY medical innovations.
Patient Satisfaction: the big clue to what works in the patient's life
- Dave deBronkart is an "e-patient" advocate who became involved in participatory healthcare after being diagnosed with stage IV kidney cancer in 2007.
- Through online research and peer support groups, he learned about treatment options that saved his life, experiencing firsthand how engaged patients can access valuable information.
- He now works full-time advocating for patient empowerment and engagement, speaking internationally at over 500 events about how empowered, informed patients lead to better outcomes and more cost-effective care.
e-Patient Dave at NCPF 2017-07-24
This document discusses the need for a patient perspective in healthcare. It notes that existing data may have selection bias by not accounting for people who have dropped out of the system or given up. It advocates for giving patients and caregivers more control over their care goals and outcomes. The document argues that patients should have veto-level approval power and be asked if new approaches to survivorship care are working. It also suggests healthcare can be improved by addressing issues like high costs and better informing patients.
Patients as consumers: paradigm change required!
This document profiles Dave deBronkart, known as "e-Patient Dave", an advocate for engaged patients and participatory healthcare. It summarizes his journey from being diagnosed with late-stage kidney cancer in 2007 to becoming a full-time patient engagement advocate by 2010. It highlights how he utilized online resources and connected with other patients to actively participate in his own care and treatment decisions, ultimately finding success through an unconventional therapy. The document advocates that patients can be an underused resource and that online connections allow information and support to exist outside traditional healthcare channels.
Presentation to Merrimack Valley Section of American Society for Quality
Presentation to Merrimack Valley Section of American Society for Quality: "Improving Healthcare Quality through Patient Participation."
Opening keynote at AANP 2014
Companion video: http://www.epatientdave.com/2017/02/06/the-lost-keynote-video-aanp-2014/
The 2014 annual meeting of the American Association of Nurse Practitioners, in Nashville. One of my favorite talks of all time - nurse practitioners are by nature highly committed to putting power and competence in the hands of patients.
Connects to the social roots of the movement, particularly the women's movement, and emphasizes the patient's view: is it really a PROBLEM that we're surviving long enough to get chronic conditions?? Standing ovation.
Šarūnas Narbutas: Why Patient Organisations Need to Be Trustworhy
Presentation by Šarūnas Narbutas, President of Lithuanian Cancer Patient Coalition (POLA), at a 2015 conference, regarding the many tricky issues around independence, funding, and trustworthiness of everyone in patient / industry partnerships.
Four Laws of Transformation (and three diseases)
This document discusses the transformation of healthcare through empowered patients or "e-patients" and outlines four laws of transformation and three diseases that patients face. It advocates that patients should be stakeholders in their own care and informed partners. It highlights examples of patients using technology like Fitbit and diabetes apps to better manage their conditions. The document warns of resistance to change from the medical system and advocates patients demanding access to their own health data to become better informed.
Address to 50th Congress of Dutch OB/GYNs, Nov 18 2016
The congress theme is "How far is the future?" This 20 minute talk discusses the sociological and technological changes that are enabling Participatory Medicine, and what it means for the future of providers' practices.
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Superpatients webinar for Natl Network of Libraries of Medicine
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Patient Experience, Empowerment, Engagement: A Business Leader’s View
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From “Let Patients Help” to “Get Out of My Way”: Why some patients want ALL ...
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Presentation to TraceLink's "FutureLink" conference, Nov 2018
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Doctors & Patients on the Same Page: #SIIM18 opening keynote
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How “e-patients” can help healthcare achieve its potential
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Let Patients Help Improve Everything - including the science
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Patient Satisfaction: the big clue to what works in the patient's life
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Šarūnas Narbutas: Why Patient Organisations Need to Be Trustworhy
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5. ECG in Medical Practice by ABM Abdullah, 4th edition
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