This document discusses how engaged e-patients can help improve healthcare. It describes the journey of "e-Patient Dave" from being diagnosed with stage IV kidney cancer in 2007 to becoming a full-time advocate for engaged patients and participatory medicine. It outlines how e-patients conduct their own research, connect with online communities, track their own health data, and share information - all of which allows them to become better informed and make more collaborative decisions with providers. The document argues that e-patients are a valuable healthcare resource and that the future of healthcare will be more patient-centered when it engages and empowers patients.
The document discusses the importance of engaged patients in the future of healthcare. It notes that patients are not third parties in their own care and that everyone performs better when better informed. It describes how the author became an advocate for engaged patients after being diagnosed with cancer in 2007 and researching his condition online. It outlines various activities engaged patients can do like researching their condition online, connecting with peer support communities, reading and sharing their own health data, and keeping personal health journals. The document argues that some of the most up-to-date health information can now exist outside traditional medical channels due to patients connecting with each other and their information online.
E-nursing involves the use of information and communication technologies to enhance nursing practice and improve patient outcomes. It allows nurses to access online resources, interact digitally with peers, and participate in telehealth initiatives. The goal of e-nursing is to help nurses benefit from technological advancements. It has the potential to improve decision-making, support evidence-based practice, and guide development of electronic health records. While e-nursing provides advantages, its implementation requires strategies to increase nurse competency and support within healthcare organizations.
The document discusses communication in nursing. It aims to define communication, list the channels and levels of communication in nursing, and understand factors influencing communication and techniques for therapeutic communication. Specific objectives include defining communication, understanding purposes of communication in nursing systems, barriers to communication, and addressing impaired verbal communication. Communication is defined as the exchange of information between individuals and is the foundation of nurse-patient interactions. Channels of communication include verbal, non-verbal, and written forms. Factors like developmental level and sociocultural differences can influence communication.
1. The document provides guidelines for the care of patients requiring mechanical ventilation including indications for ventilation, modes of ventilation, troubleshooting alarms, weaning criteria and processes, and complications.
2. Mechanical ventilation is used to support breathing for those unable to maintain adequate oxygen or CO2 levels spontaneously, including those with respiratory failure, neuromuscular diseases, or trauma/illnesses affecting breathing.
3. Modes of ventilation include controlled, assisted, intermittent mandatory, and pressure support modes. Nurses must monitor for alarms related to pressures, volumes, and apnea and address causes such as tubing issues or secretions.
The document outlines various techniques that nurses can use to develop therapeutic relationships with patients. It discusses key components of a therapeutic relationship such as positive regard, acceptance, genuine interest, empathy, and trust. It then describes techniques for therapeutic communication including accepting what the patient says, using broad opening questions, seeking clarification, exploring topics in more depth, focusing discussions, making observations, and reflecting back the patient's words and feelings. The goal is for the nurse to understand the patient's perspective and communicate that understanding.
Presentation by Šarūnas Narbutas, President of Lithuanian Cancer Patient Coalition (POLA), at a 2015 conference, regarding the many tricky issues around independence, funding, and trustworthiness of everyone in patient / industry partnerships.
The document discusses the importance of engaged patients in the future of healthcare. It notes that patients are not third parties in their own care and that everyone performs better when better informed. It describes how the author became an advocate for engaged patients after being diagnosed with cancer in 2007 and researching his condition online. It outlines various activities engaged patients can do like researching their condition online, connecting with peer support communities, reading and sharing their own health data, and keeping personal health journals. The document argues that some of the most up-to-date health information can now exist outside traditional medical channels due to patients connecting with each other and their information online.
E-nursing involves the use of information and communication technologies to enhance nursing practice and improve patient outcomes. It allows nurses to access online resources, interact digitally with peers, and participate in telehealth initiatives. The goal of e-nursing is to help nurses benefit from technological advancements. It has the potential to improve decision-making, support evidence-based practice, and guide development of electronic health records. While e-nursing provides advantages, its implementation requires strategies to increase nurse competency and support within healthcare organizations.
The document discusses communication in nursing. It aims to define communication, list the channels and levels of communication in nursing, and understand factors influencing communication and techniques for therapeutic communication. Specific objectives include defining communication, understanding purposes of communication in nursing systems, barriers to communication, and addressing impaired verbal communication. Communication is defined as the exchange of information between individuals and is the foundation of nurse-patient interactions. Channels of communication include verbal, non-verbal, and written forms. Factors like developmental level and sociocultural differences can influence communication.
1. The document provides guidelines for the care of patients requiring mechanical ventilation including indications for ventilation, modes of ventilation, troubleshooting alarms, weaning criteria and processes, and complications.
2. Mechanical ventilation is used to support breathing for those unable to maintain adequate oxygen or CO2 levels spontaneously, including those with respiratory failure, neuromuscular diseases, or trauma/illnesses affecting breathing.
3. Modes of ventilation include controlled, assisted, intermittent mandatory, and pressure support modes. Nurses must monitor for alarms related to pressures, volumes, and apnea and address causes such as tubing issues or secretions.
The document outlines various techniques that nurses can use to develop therapeutic relationships with patients. It discusses key components of a therapeutic relationship such as positive regard, acceptance, genuine interest, empathy, and trust. It then describes techniques for therapeutic communication including accepting what the patient says, using broad opening questions, seeking clarification, exploring topics in more depth, focusing discussions, making observations, and reflecting back the patient's words and feelings. The goal is for the nurse to understand the patient's perspective and communicate that understanding.
Presentation by Šarūnas Narbutas, President of Lithuanian Cancer Patient Coalition (POLA), at a 2015 conference, regarding the many tricky issues around independence, funding, and trustworthiness of everyone in patient / industry partnerships.
- Dave deBronkart became an "e-patient" after being diagnosed with kidney cancer in 2007. He actively researched his condition online, connected with other patients, and tracked his own health data.
- deBronkart argues that patients can serve as a valuable resource in healthcare if they are engaged, empowered with information, and able to help improve the system. When patients are informed partners it can lead to better outcomes.
- However, some doctors are hesitant about patients having more access to health information and participating more actively. But studies show that when patients can see doctor's notes online it improves the patient-doctor relationship without increasing doctor workload.
The document discusses how patients can help improve healthcare through the use of technology and participation. It notes that patients are an underutilized resource in healthcare information systems and that giving patients access to their health records and engaging them can lead to improved health outcomes. The document advocates that patients should help define what high quality care means.
Dave deBronkart came to focus on participatory healthcare after being diagnosed with stage IV kidney cancer in 2007. Through online research and connecting with other patients, he learned about an immunotherapy treatment that significantly extended his survival, whereas his doctors had given him only a few months to live. This experience led him to become an advocate for empowering patients through technology and social media. He argues that empowered, engaged patients who actively manage their own healthcare can help doctors spend more time with each patient and potentially achieve better health outcomes.
This document discusses engaging and empowering patients for quality and safety in healthcare. It introduces several speakers who advocate for greater patient involvement and empowerment through access to health information and tools. It argues that underutilizing the knowledge and perspectives of patients represents a missed opportunity and inefficiency in the healthcare system. Greater consumer engagement at all levels is seen as key to improving care.
Companion video: http://www.epatientdave.com/2017/02/06/the-lost-keynote-video-aanp-2014/
The 2014 annual meeting of the American Association of Nurse Practitioners, in Nashville. One of my favorite talks of all time - nurse practitioners are by nature highly committed to putting power and competence in the hands of patients.
Connects to the social roots of the movement, particularly the women's movement, and emphasizes the patient's view: is it really a PROBLEM that we're surviving long enough to get chronic conditions?? Standing ovation.
- Dave deBronkart is an advocate for engaged patients and participatory medicine. He founded the e-Patient Scholars Academy.
- In 2007, he was diagnosed with stage IV kidney cancer but researched online and worked with other patients, which helped him find more effective treatment.
- Connected patients have access to more information sources than ever before due to the internet and social media. This shifts the traditional sources of medical knowledge and competence.
This document profiles "e-Patient Dave" deBronkart and his journey from being diagnosed with cancer in 2007 to becoming a prominent advocate for participatory medicine and empowering patients. It describes his early career in marketing and technology, how he turned to blogging and researching his condition online after his cancer diagnosis, and how he has since become a full-time speaker and advisor on issues of patient engagement and empowerment, publishing over 1400 blog posts and articles on the topic. It stresses the importance of patients being able to access and share health information online to become better informed and engaged in their own care.
The document summarizes the story of "e-Patient Dave" deBronkart and his role in advancing participatory medicine. It discusses how he came to be involved in this movement through his experience with cancer discovery and recovery in 2007-2008, which led him to become a blogger on these issues in 2008. It then summarizes some of his key insights, such as emphasizing that "patient" is not a third person term, and how access to online information and communities of other patients were invaluable for him during his own health issues.
This document discusses the empowerment of patients through access to online health information and connections with other patients. It describes how e-patients, or engaged and empowered online patients, are becoming recognized as important partners in healthcare. The story of a patient who was able to access information from other patients online and find better treatment options for his rare form of cancer is provided as an example of how online connections can benefit patients.
This document discusses the rise of empowered patients, or "e-patients", who use the internet to research their medical conditions and treatments. It describes how e-patients have formed online communities to share information and support each other. Some key points made are that e-patients feel more prepared to discuss their care with doctors due to their online research, and that the collective knowledge of e-patients researching online may uncover new findings more quickly than doctors alone. The document also outlines e-patients' wishlists for more online access to medical records and consultations.
Leveraging Technology to Empower and Engage PatientsDaniel Sands
This document summarizes a presentation about leveraging technology to empower and engage patients. It discusses how patient portals can be used to provide services like prescription refills and appointment requests. It also notes that e-communication can help provide patients with education and allow them to securely communicate with their doctors. The presentation argues that patients want to be more engaged in their care through improved communication and access to information, but that current systems do not always meet these desires. It advocates for a model of participatory medicine where patients and doctors work as partners.
This document profiles Dave deBronkart, known as "e-Patient Dave", a cancer survivor and advocate for engaged, empowered patients. It discusses how the rise of the internet and digital connectivity has shifted where medical information and expertise can be found, allowing patients to connect with each other and participate more actively in their own care. It argues that patients should have access to their own clear medical data and notes several examples of how patient engagement and empowerment can improve health outcomes.
1) The document presents a case study of "e-patient" Dave, who was diagnosed with stage IV renal cell carcinoma after an incidental finding on an x-ray. Dave utilized online resources and connections with other patients to participate actively in his care.
2) The case study highlights insights into how physicians and patients can embrace knowledge symmetry and online connections to empower patients, practices, and providers.
3) Connected technology, such as accessing online services and peer communities, can transform the patient experience through health and illness when used appropriately.
Patient Engagement is Changing What's Possible (e-Patient Dave at Intersystem...e-Patient Dave deBronkart
This document discusses how patient engagement is changing healthcare through increased access to information and connections between patients. It provides examples of how connected patients can share information that leads to better outcomes, such as a patient learning from an online community that an uncommon form of cancer was best treated at hospitals with extensive experience, which likely saved his life. It argues that empowering patients with access to their own health data and information will transform healthcare by supporting patient-clinician partnerships and facilitating patient contributions as vital members of the healthcare learning system.
Telehealth: It's Not About the TechnologyDaniel Sands
The document discusses telehealth and how it is not primarily about technology. It notes that while exciting technologies exist, simpler tools can also work if the focus is on addressing important questions like what outcomes are trying to be achieved, who the users are, how it will be used and funded, and how success will be measured. The document advocates that the focus should be on workflow, new care models, and addressing technological, social, political, organizational and financial issues rather than just seeing technology as the main solution.
National Cancer Patient Forum: "What might we be overlooking?" (A patient's p...e-Patient Dave deBronkart
The document discusses issues with the current healthcare system from the perspective of patients, including a risk of selection bias in only considering the views of certain patients and not hearing from those who have dropped out of the system. It advocates for asking patients directly if the system is working and ensuring information reaches those in need. The need to fix problems where information isn't reaching patients at the point of need is also discussed.
Parallel Session 4.6 Developing Your Team’s Safety Culture and Safety Practic...NHSScotlandEvent
The document discusses improving safety culture and practices in primary care through implementing a patient safety program. It outlines why safety is important in primary care given the high volume of patients and risk of harm from errors. The program aims to help primary care teams identify and reduce harm through tools like reliable care bundles, trigger tools to detect harm, and surveys to measure safety climate and culture.
The history of medicine has been a continuous evolution of methods, models, and paradigms as what's possible has changed with new technology. Today the frontier of medicine is "superpatients" - patients who don't just receive care, they literally extend science and create treatments: truly "super" patients. Video of this talk will be available soon!
As patient engagement (aka consumer engagement) earns attention, the question increasingly arises: “Where do we start? What can we do?” More specifically, “What do we mean when we say ‘patient engagement’?” The Patient Activation Measure is a powerful tool for understanding where someone's at and how to interact with them differently.
- Dave deBronkart became an "e-patient" after being diagnosed with kidney cancer in 2007. He actively researched his condition online, connected with other patients, and tracked his own health data.
- deBronkart argues that patients can serve as a valuable resource in healthcare if they are engaged, empowered with information, and able to help improve the system. When patients are informed partners it can lead to better outcomes.
- However, some doctors are hesitant about patients having more access to health information and participating more actively. But studies show that when patients can see doctor's notes online it improves the patient-doctor relationship without increasing doctor workload.
The document discusses how patients can help improve healthcare through the use of technology and participation. It notes that patients are an underutilized resource in healthcare information systems and that giving patients access to their health records and engaging them can lead to improved health outcomes. The document advocates that patients should help define what high quality care means.
Dave deBronkart came to focus on participatory healthcare after being diagnosed with stage IV kidney cancer in 2007. Through online research and connecting with other patients, he learned about an immunotherapy treatment that significantly extended his survival, whereas his doctors had given him only a few months to live. This experience led him to become an advocate for empowering patients through technology and social media. He argues that empowered, engaged patients who actively manage their own healthcare can help doctors spend more time with each patient and potentially achieve better health outcomes.
This document discusses engaging and empowering patients for quality and safety in healthcare. It introduces several speakers who advocate for greater patient involvement and empowerment through access to health information and tools. It argues that underutilizing the knowledge and perspectives of patients represents a missed opportunity and inefficiency in the healthcare system. Greater consumer engagement at all levels is seen as key to improving care.
Companion video: http://www.epatientdave.com/2017/02/06/the-lost-keynote-video-aanp-2014/
The 2014 annual meeting of the American Association of Nurse Practitioners, in Nashville. One of my favorite talks of all time - nurse practitioners are by nature highly committed to putting power and competence in the hands of patients.
Connects to the social roots of the movement, particularly the women's movement, and emphasizes the patient's view: is it really a PROBLEM that we're surviving long enough to get chronic conditions?? Standing ovation.
- Dave deBronkart is an advocate for engaged patients and participatory medicine. He founded the e-Patient Scholars Academy.
- In 2007, he was diagnosed with stage IV kidney cancer but researched online and worked with other patients, which helped him find more effective treatment.
- Connected patients have access to more information sources than ever before due to the internet and social media. This shifts the traditional sources of medical knowledge and competence.
This document profiles "e-Patient Dave" deBronkart and his journey from being diagnosed with cancer in 2007 to becoming a prominent advocate for participatory medicine and empowering patients. It describes his early career in marketing and technology, how he turned to blogging and researching his condition online after his cancer diagnosis, and how he has since become a full-time speaker and advisor on issues of patient engagement and empowerment, publishing over 1400 blog posts and articles on the topic. It stresses the importance of patients being able to access and share health information online to become better informed and engaged in their own care.
The document summarizes the story of "e-Patient Dave" deBronkart and his role in advancing participatory medicine. It discusses how he came to be involved in this movement through his experience with cancer discovery and recovery in 2007-2008, which led him to become a blogger on these issues in 2008. It then summarizes some of his key insights, such as emphasizing that "patient" is not a third person term, and how access to online information and communities of other patients were invaluable for him during his own health issues.
This document discusses the empowerment of patients through access to online health information and connections with other patients. It describes how e-patients, or engaged and empowered online patients, are becoming recognized as important partners in healthcare. The story of a patient who was able to access information from other patients online and find better treatment options for his rare form of cancer is provided as an example of how online connections can benefit patients.
This document discusses the rise of empowered patients, or "e-patients", who use the internet to research their medical conditions and treatments. It describes how e-patients have formed online communities to share information and support each other. Some key points made are that e-patients feel more prepared to discuss their care with doctors due to their online research, and that the collective knowledge of e-patients researching online may uncover new findings more quickly than doctors alone. The document also outlines e-patients' wishlists for more online access to medical records and consultations.
Leveraging Technology to Empower and Engage PatientsDaniel Sands
This document summarizes a presentation about leveraging technology to empower and engage patients. It discusses how patient portals can be used to provide services like prescription refills and appointment requests. It also notes that e-communication can help provide patients with education and allow them to securely communicate with their doctors. The presentation argues that patients want to be more engaged in their care through improved communication and access to information, but that current systems do not always meet these desires. It advocates for a model of participatory medicine where patients and doctors work as partners.
This document profiles Dave deBronkart, known as "e-Patient Dave", a cancer survivor and advocate for engaged, empowered patients. It discusses how the rise of the internet and digital connectivity has shifted where medical information and expertise can be found, allowing patients to connect with each other and participate more actively in their own care. It argues that patients should have access to their own clear medical data and notes several examples of how patient engagement and empowerment can improve health outcomes.
1) The document presents a case study of "e-patient" Dave, who was diagnosed with stage IV renal cell carcinoma after an incidental finding on an x-ray. Dave utilized online resources and connections with other patients to participate actively in his care.
2) The case study highlights insights into how physicians and patients can embrace knowledge symmetry and online connections to empower patients, practices, and providers.
3) Connected technology, such as accessing online services and peer communities, can transform the patient experience through health and illness when used appropriately.
Patient Engagement is Changing What's Possible (e-Patient Dave at Intersystem...e-Patient Dave deBronkart
This document discusses how patient engagement is changing healthcare through increased access to information and connections between patients. It provides examples of how connected patients can share information that leads to better outcomes, such as a patient learning from an online community that an uncommon form of cancer was best treated at hospitals with extensive experience, which likely saved his life. It argues that empowering patients with access to their own health data and information will transform healthcare by supporting patient-clinician partnerships and facilitating patient contributions as vital members of the healthcare learning system.
Telehealth: It's Not About the TechnologyDaniel Sands
The document discusses telehealth and how it is not primarily about technology. It notes that while exciting technologies exist, simpler tools can also work if the focus is on addressing important questions like what outcomes are trying to be achieved, who the users are, how it will be used and funded, and how success will be measured. The document advocates that the focus should be on workflow, new care models, and addressing technological, social, political, organizational and financial issues rather than just seeing technology as the main solution.
National Cancer Patient Forum: "What might we be overlooking?" (A patient's p...e-Patient Dave deBronkart
The document discusses issues with the current healthcare system from the perspective of patients, including a risk of selection bias in only considering the views of certain patients and not hearing from those who have dropped out of the system. It advocates for asking patients directly if the system is working and ensuring information reaches those in need. The need to fix problems where information isn't reaching patients at the point of need is also discussed.
Parallel Session 4.6 Developing Your Team’s Safety Culture and Safety Practic...NHSScotlandEvent
The document discusses improving safety culture and practices in primary care through implementing a patient safety program. It outlines why safety is important in primary care given the high volume of patients and risk of harm from errors. The program aims to help primary care teams identify and reduce harm through tools like reliable care bundles, trigger tools to detect harm, and surveys to measure safety climate and culture.
The history of medicine has been a continuous evolution of methods, models, and paradigms as what's possible has changed with new technology. Today the frontier of medicine is "superpatients" - patients who don't just receive care, they literally extend science and create treatments: truly "super" patients. Video of this talk will be available soon!
As patient engagement (aka consumer engagement) earns attention, the question increasingly arises: “Where do we start? What can we do?” More specifically, “What do we mean when we say ‘patient engagement’?” The Patient Activation Measure is a powerful tool for understanding where someone's at and how to interact with them differently.
This document provides 10 reasons why patients should Google their medical conditions. It begins with a story about a man brought to the emergency room for ingesting an unknown substance. The doctors shut his laptop without determining what he ingested. The document then lists 10 reasons patients should Google: 1) Knowledge is power 2) People perform better when informed 3) No one knows everything 4) Medical advice changes over time 5) New information doesn't instantly reach all doctors 6) Online information can reach patients directly 7) Useful information exists outside medical journals 8) Some medical studies have flaws 9) Patients have a right to know their options 10) Patients have the most at stake in their own health.
High-powered webcast to NNLM Feb 21, 2019. Introduces the Superpatient concept, contrasts it with generic "citizen scientists," gives several examples, addresses the cultural obstacles that hold back progress, and asks how medical libraries might encourage and support superpatients in their efforts.
Opening keynote at DIA Europe, Vienna, Feb 5, 2019. Our paradigm of patient is significantly out of date, and it's holding back progress - a new class of "Superpatients" are *extending* science when the doctors are out of answers. Amazing!
From “Let Patients Help” to “Get Out of My Way”: Why some patients want ALL ...e-Patient Dave deBronkart
High speed talk to developers at the annual FHIR* Developer Days conference in Amsterdam. The world of health data migration is advancing very rapidly, and the time has come to call for developers to let PATIENTS have full access to every kind of data they need.
* FHIR = Fast Healthcare Interoperability Resources FHIR.HL7.org
This document outlines the principles of participatory medicine as described by "e-Patient Dave" deBronkart. It discusses how access to information empowers patients and allows them to contribute to medical knowledge. When patients are informed and engaged in their care, they can perform better. The emergence of online communities and social media has created new opportunities for patients to connect with information and each other outside of traditional healthcare systems. True empowerment involves treating patients as partners in decisions about their own care.
This document profiles Dave deBronkart, known as "e-Patient Dave", an advocate for empowering patients through access to health information and online communities. It discusses his background and work promoting participatory medicine. It outlines how patients can help healthcare achieve its potential by checking their medical records, asking clinicians to share screens, accessing open notes, reviewing hospital safety scores, accessing podcasts and case managers. The overall message is that when patients are informed and engaged, medicine can better achieve its goals.
This document profiles "e-Patient Dave" deBronkart, a patient engagement advocate. It summarizes his journey from a marketing career to becoming a full-time patient advocate after being diagnosed with cancer in 2007. It describes how he utilized online resources and patient communities to help make treatment decisions and find an effective immunotherapy. The document advocates for greater patient empowerment and participation in healthcare, citing examples of highly engaged "e-patients" who are helping to advance medicine through open data sharing and DIY medical innovations.
- Dave deBronkart is an "e-patient" advocate who became involved in participatory healthcare after being diagnosed with stage IV kidney cancer in 2007.
- Through online research and peer support groups, he learned about treatment options that saved his life, experiencing firsthand how engaged patients can access valuable information.
- He now works full-time advocating for patient empowerment and engagement, speaking internationally at over 500 events about how empowered, informed patients lead to better outcomes and more cost-effective care.
This document discusses the need for a patient perspective in healthcare. It notes that existing data may have selection bias by not accounting for people who have dropped out of the system or given up. It advocates for giving patients and caregivers more control over their care goals and outcomes. The document argues that patients should have veto-level approval power and be asked if new approaches to survivorship care are working. It also suggests healthcare can be improved by addressing issues like high costs and better informing patients.
This document profiles Dave deBronkart, known as "e-Patient Dave", an advocate for engaged patients and participatory healthcare. It summarizes his journey from being diagnosed with late-stage kidney cancer in 2007 to becoming a full-time patient engagement advocate by 2010. It highlights how he utilized online resources and connected with other patients to actively participate in his own care and treatment decisions, ultimately finding success through an unconventional therapy. The document advocates that patients can be an underused resource and that online connections allow information and support to exist outside traditional healthcare channels.
This document discusses the transformation of healthcare through empowered patients or "e-patients" and outlines four laws of transformation and three diseases that patients face. It advocates that patients should be stakeholders in their own care and informed partners. It highlights examples of patients using technology like Fitbit and diabetes apps to better manage their conditions. The document warns of resistance to change from the medical system and advocates patients demanding access to their own health data to become better informed.
The congress theme is "How far is the future?" This 20 minute talk discusses the sociological and technological changes that are enabling Participatory Medicine, and what it means for the future of providers' practices.
Dave deBronkart discusses the rise of the participatory patient. He became an engaged e-patient after being diagnosed with cancer in 2007. He researched his condition online and connected with other patients, which helped him receive the best treatment. deBronkart believes that empowering patients with information enables them to make informed healthcare choices and become partners in their care. When patients are engaged at this level, it can improve outcomes for all.
The document discusses the transformation of healthcare knowledge access and sharing due to the internet and rise of connected patients. It notes how patients can now connect to information and each other online, changing the traditional closed system of healthcare knowledge. Examples are provided of early visions of online health from the 1990s becoming reality, as well as specific patient innovators creating open source medical devices and data sharing projects today. The challenges institutions face in adapting to these changes are also addressed.
NI2016 is the Nursing Informatics conference, in a different country every other year; this year it's Geneva, Switzerland. This talk focused on how nursing informatics can empower patients and families by sharing medical data.
The document discusses how views of aging have changed since the 1970s. It notes that in her writing from that time, author Simone de Beauvoir seemed fatalistic and hopeless about aging. However, the document suggests de Beauvoir would now encourage empowerment rather than fatalism, given advances in medicine, health, technology, and individuals' increased access to information. Empowering patients and families with information helps them make choices and improve their health and care.