SlideShare a Scribd company logo
Social Media for
family support workers
      Aaron Johannes
 aaron@spectrumsociety.org
      @imagineacircle
Flow of our Fun Day
• Parking Lot Questions
• What do we know?
• What do we wonder?
• Why is this important?
• Some social media starters…
• Defining how we are present as people with
  disabilities, families, supporters, organizations and a
  movement
• Start With Hi / Support Networks for Self Advocates
  Workbook
• Parking Lot Questions
Social Media:
where will we get the time?
Think of it as not as “more”
but as doing things differently
Here Comes Everyone!
Lee-Anne Ragan: let’s assume we’re
smart enough and we can do this…
The hardest part to get used to:
      endless newness…
Facebook is easiest, then instagram
Social Presence: why it matters
 Aaron Johannes    Jules Andre-Brown
Social Presence
        • Profile pictures
        • Disclosure – even where
          you are on a map…
        • Open-ended questions
          that invite participation
        • Icons to signal “it’s a
          joke” or “I’m okay”
        • #Foodporn! (instagram)
Lee-Anne: focus on one thing
  at a time, find a mentor
Research: A tiny percentage of a tiny
 percentage of a tiny percentage…
Research: A tiny percentage of a tiny
 percentage of a tiny percentage…
Research: A tiny percentage of a tiny
 percentage of a tiny percentage…
www.101friends.ca
blog / newsletter / links
www.101friends.ca
               blog / newsletter / links


Publications
and mission
                          - Books for
                           sale: social
                           enterprise


                                           - We control
                                           this conversation
www.101friends.ca
                   blog / newsletter / links


Publications
and mission
                              - Books for
Our messages:                  sale: social
- People with disabilities     enterprise
  are great citizens
- There is hope
- Research and                                 - We control
  information is available                     this conversation
- Reflection is good
- People can make
  friends, get jobs, have
  fun
www.101friends.ca
                  blog / newsletter / links


Publications
and mission
                             - Books for
Our messages:                 sale: social
- They can and do write       enterprise
  books
- They can and do lead
- Staff need support too                      - We control
- There are great                             this conversation
  agencies out there
- Agencies can change
- We hope for
  partnership
Those messages went out
    to 37,027 people
Since Feb 25 2012…
we reached more than 100 countries
During a week in May 2012
  1,800 people on blog
    1,200 on facebook
Total Hopeful Messages
•   Blog
•   Enewsletter (Mail Chimp)
•   Facebook
•   Twitter
•   Slideshare
•   www.spectrumsociety.org
•   www.spectrumpress.ca (store)
•   www.101friends.ca (projects)
•   www.imagineacircle.com (me)
Good Planning Is Possible
LinkedIn Influence Map
Feb 2013
What are they talking about?
What do people with disabilities want
              to talk about?
•   jobs
•   Supports
•   Equality
•   Relationships
•   community
“disability employment”
“people first self advocacy”
The “R” word
Here Comes Everyone!
Only true if we are present.
33,332 “likes”
The “Wall of Awesome”
Rick Smith is my hero 
Staying Safe
•   Aaron Johannes-Rosenberg
•   hey all - for family support workers (who support families with children with disabilities) - how do you think they
    might use social media to connect? what's your good idea for me to copy your answers into my presentation :)
•   Top of Form
•   NS freenode irc #wrongplanet autisim chat it is awesome CONNECT
•   AK A story a bout my struggles and addiction but now I look healthy SHARE STORIES
•   CG advertising - workshops, online webinars, groups, resources, sharing experiences, knowledge, ideas and beliefs
    (eg. inclusive communities,human rights), etc. SHARE INFORMATION
•   Barb Fowke arron are you watching the super bowl who is playing do you
    know?????????????????????????????????????????????????????
•   Aaron Johannes-Rosenberg Nope but it's about football
•   EH I find that social media is good for sharing information but when they need to connection for emotional
    support, nothing beats face to face and a cup of tea! the barrier to meeting with others is always time and child
    care. but I do have some families that are starting to use social media (FB) to ask questions. SHARE INFORMATION
    / ASK QUESTIONS
•   SN · Friends with EH
•   A friend of mine commented on this so forgive me while I chime in. I am in Kenora and we have a closed site for
    Mom's. No one can see this site and you must be invited in order to join. It is so great. Moms are really honest
    about their questions and their answers. Many of the members have children with different issues but so many of
    us have had similar experiences with our personal or work lives. The key to this site being so successful is that we
    all feel safe asking and answering questions. I agree that face to face is better but when you are at home, feeling
    all alone and needng help or support, this type of group can be amazing! SHARE INFORMATION / CONNECT /
    QUESTIONS
•   EH you're right SN about having support when you need it. I think the big difference for us here is that we aren't
    as remote and there are services, groups, etc. A group I know tried to do an online support group but it never got
    off the ground. Not sure why; perhaps because there are so many other ways to connect (they all rec'd
    1:1services)? Facilitators may need to be a different skill set? SUPPORT WHEN YOU NEED IT
•   FB Talk to Karen De Long. KAREN DE LONG
•   MT Events, community locations with radical hospitality, connection ideas,
    friendship/transit/practicum/employment building ideas, research reports, comparing notes (confidentially),
    supporting parents/caregiver ideas, inspiration, etc. INFORMATION / SUPPORT
•   SP Call me would love to chat…
Parking Lot Questions?

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Social mediaforfamilysupprtworkers

  • 1. Social Media for family support workers Aaron Johannes aaron@spectrumsociety.org @imagineacircle
  • 2. Flow of our Fun Day • Parking Lot Questions • What do we know? • What do we wonder? • Why is this important? • Some social media starters… • Defining how we are present as people with disabilities, families, supporters, organizations and a movement • Start With Hi / Support Networks for Self Advocates Workbook • Parking Lot Questions
  • 3. Social Media: where will we get the time?
  • 4. Think of it as not as “more” but as doing things differently
  • 5.
  • 7. Lee-Anne Ragan: let’s assume we’re smart enough and we can do this…
  • 8. The hardest part to get used to: endless newness…
  • 9. Facebook is easiest, then instagram
  • 10. Social Presence: why it matters Aaron Johannes Jules Andre-Brown
  • 11. Social Presence • Profile pictures • Disclosure – even where you are on a map… • Open-ended questions that invite participation • Icons to signal “it’s a joke” or “I’m okay” • #Foodporn! (instagram)
  • 12. Lee-Anne: focus on one thing at a time, find a mentor
  • 13.
  • 14.
  • 15.
  • 16.
  • 17.
  • 18. Research: A tiny percentage of a tiny percentage of a tiny percentage…
  • 19. Research: A tiny percentage of a tiny percentage of a tiny percentage…
  • 20. Research: A tiny percentage of a tiny percentage of a tiny percentage…
  • 22. www.101friends.ca blog / newsletter / links Publications and mission  - Books for sale: social enterprise - We control this conversation
  • 23. www.101friends.ca blog / newsletter / links Publications and mission  - Books for Our messages: sale: social - People with disabilities enterprise are great citizens - There is hope - Research and - We control information is available this conversation - Reflection is good - People can make friends, get jobs, have fun
  • 24. www.101friends.ca blog / newsletter / links Publications and mission  - Books for Our messages: sale: social - They can and do write enterprise books - They can and do lead - Staff need support too - We control - There are great this conversation agencies out there - Agencies can change - We hope for partnership
  • 25. Those messages went out to 37,027 people
  • 26. Since Feb 25 2012… we reached more than 100 countries
  • 27. During a week in May 2012 1,800 people on blog 1,200 on facebook
  • 28. Total Hopeful Messages • Blog • Enewsletter (Mail Chimp) • Facebook • Twitter • Slideshare • www.spectrumsociety.org • www.spectrumpress.ca (store) • www.101friends.ca (projects) • www.imagineacircle.com (me)
  • 29. Good Planning Is Possible
  • 32. What are they talking about?
  • 33. What do people with disabilities want to talk about? • jobs • Supports • Equality • Relationships • community
  • 35. “people first self advocacy”
  • 37. Here Comes Everyone! Only true if we are present.
  • 38.
  • 40. The “Wall of Awesome”
  • 41.
  • 42. Rick Smith is my hero 
  • 44. Aaron Johannes-Rosenberg • hey all - for family support workers (who support families with children with disabilities) - how do you think they might use social media to connect? what's your good idea for me to copy your answers into my presentation :) • Top of Form • NS freenode irc #wrongplanet autisim chat it is awesome CONNECT • AK A story a bout my struggles and addiction but now I look healthy SHARE STORIES • CG advertising - workshops, online webinars, groups, resources, sharing experiences, knowledge, ideas and beliefs (eg. inclusive communities,human rights), etc. SHARE INFORMATION • Barb Fowke arron are you watching the super bowl who is playing do you know????????????????????????????????????????????????????? • Aaron Johannes-Rosenberg Nope but it's about football • EH I find that social media is good for sharing information but when they need to connection for emotional support, nothing beats face to face and a cup of tea! the barrier to meeting with others is always time and child care. but I do have some families that are starting to use social media (FB) to ask questions. SHARE INFORMATION / ASK QUESTIONS • SN · Friends with EH • A friend of mine commented on this so forgive me while I chime in. I am in Kenora and we have a closed site for Mom's. No one can see this site and you must be invited in order to join. It is so great. Moms are really honest about their questions and their answers. Many of the members have children with different issues but so many of us have had similar experiences with our personal or work lives. The key to this site being so successful is that we all feel safe asking and answering questions. I agree that face to face is better but when you are at home, feeling all alone and needng help or support, this type of group can be amazing! SHARE INFORMATION / CONNECT / QUESTIONS • EH you're right SN about having support when you need it. I think the big difference for us here is that we aren't as remote and there are services, groups, etc. A group I know tried to do an online support group but it never got off the ground. Not sure why; perhaps because there are so many other ways to connect (they all rec'd 1:1services)? Facilitators may need to be a different skill set? SUPPORT WHEN YOU NEED IT • FB Talk to Karen De Long. KAREN DE LONG • MT Events, community locations with radical hospitality, connection ideas, friendship/transit/practicum/employment building ideas, research reports, comparing notes (confidentially), supporting parents/caregiver ideas, inspiration, etc. INFORMATION / SUPPORT • SP Call me would love to chat…
  • 45.
  • 46.
  • 47.
  • 48.

Editor's Notes

  1. http://en.wikipedia.org/wiki/Social_presence_theory
  2. On Facebook or at www.noahsdad.com
  3. www.icanbesafeonline.com
  4. aaron@spectrumsociety.org
  5. aaron@spectrumsociety.org
  6. http://startwithhi.ca/