The document discusses building a fair and sustainable social care system in the UK. It recommends implementing the Dilnot Commission's proposals to cap lifetime individual contributions to care costs. It also calls for increased baseline funding, new social care legislation, and reforms to improve delivery and ensure fair access to high-quality individualized care based on needs. Key principles for reform include freedom, fairness, and personal responsibility.

1. Building a fair and sustainable
care system
Simon Gillespie
Chief Executive, MS Society
Chair, Care and Support Alliance

2. Reasons for social care reform
• To enable more people to fully participate in
work and our society
• Demand for social care is exceeding our ability
to meet people’s needs
• The costs will become greater if we don’t act
now

3. Aims of Care and Support Alliance
• Fair and equitable access to high quality care
and support
• Care and support that is based on needs of
individuals

4. How to build a fair and sustainable
care system
• Seek improvements in social care delivery
• Ensure that there is a clear legal framework for
social care
• Work to resolve longer-term funding issues for
social care

5. Key recommendations identified by
Dilnot Commission
• A “zero cap” on an individual’s contribution to
lifetime care costs for disabled adults aged 18-
40, incrementally rising to £35,000 by aged 65
• An annual limit of £7,000 on an individual’s
contributions to living costs in residential care

6. Key recommendations identified by
Dilnot Commission
• Raising the savings threshold to £100,000
• A national system of eligibility and assessment
• Expanding preventative support for people with lesser
needs
• Also must be accompanied by increased baseline
spending on social care

7. Key principles for
social care reform
• Freedom
• Fairness
• Responsibility

8. Response of community and
voluntary sector
• Total package: Reform of social care into a modern
system, new legislation, plus Dilnot and additional
baseline funding
• Dilnot represents step change in state contribution
and what people contribute themselves - Partnership
• Reform of whole system offers opportunities for new
service development

9. Response of voluntary and
community sector
• Law reform could help to drive development of more
personalised and creative services
• Some challenges for voluntary and community sector
delivering personalisation i.e. fragmentation
• Sustainable funding solution needed for more
sustainable commissioning and delivery

10. White Paper:
‘Caring for our future: reforming care
and support’
• Draft bill: an historic moment for change
• Lack of clarity on proposals
• Proposals undermined by lack of commitment to
funding

11. White Paper:
‘Caring for our future: reforming care
and support’
• Information and advice
• Eligibility
• Portability
• Personalised care and support

12. White Paper:
‘Caring for our future: reforming care
and support’
• Quality
• Carers
• Integration
• Funding

13. Contacts
• www.careandsupportalliance.org
• Secretariat with Carers UK contact:
chloe.wright@carersuk.org
• Chair: Simon Gillespie, Chief Executive MS
Society – sgillespie@mssociety.org.uk