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RETURNING TO EMPLOYMENT
FOLLOWING A DIAGNOSIS OF
CANCER: AN IRISH SURVEY
DATE
16th February 2021
AUTHOR
Sheelah Connolly, Helen
Russell, Edward Henry
www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications
@ESRIDublin #ESRIevents #ESRIpublications www.esri.ie
2 18 February 2021
Background
• Previous research suggests that not all people
of working age diagnosed with cancer can and
do return to work
• While for some this is a personal decision, for
others, personal or work-related factors can act
as a barrier to returning to work
www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications
@ESRIDublin #ESRIevents #ESRIpublications www.esri.ie
3 18 February 2021
Aim of research
To explore the experience of returning to
employment following a diagnosis of cancer in
Ireland
www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications
@ESRIDublin #ESRIevents #ESRIpublications www.esri.ie
4 18 February 2021
Methods
• ESRI/ICS developed “Returning to Work”
questionnaire
• Open to those
• In formal employment at diagnosis
• Diagnosed 2010-2020
• Aged <65 at time of diagnosis
www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications
@ESRIDublin #ESRIevents #ESRIpublications www.esri.ie
5 18 February 2021
Questionnaire
Questionnaire included questions on
• Working status
• Impact of diagnosis on career prospects
• Support from employer
• Reasons for returning to employment
• Barriers and facilitators to returning to
employment
• Health status
• Demographic and socio-economic status
www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications
@ESRIDublin #ESRIevents #ESRIpublications www.esri.ie
6 18 February 2021
Questionnaire respondents
• 377 unique responses to the online
questionnaire
• Data were weighted to address the low
response rate from some group
• Not all respondents were asked all questions
• Not all respondents answered all questions
www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications
@ESRIDublin #ESRIevents #ESRIpublications www.esri.ie
7 18 February 2021
Profile of respondents – sex and age-
group
Characteristic Percentage
Sex
Male 35%
Female 65%
Age-group
<35 4%
35-44 28%
45-54 26%
55-64 36%
65+ 6%
www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications
@ESRIDublin #ESRIevents #ESRIpublications www.esri.ie
8 18 February 2021
Profile of respondents – site, stage of cancer
Characteristic Percentage
Site of cancer
Breast 17%
Colorectal 7%
Cervix 24%
Prostate 9%
Lymphoma 3%
Skin 6%
Lung 5%
Ovary 1%
Other 28%
Stage of cancer
0 2%
1 30%
2 20%
3 20%
4 10%
Don’t know 18%
www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications
@ESRIDublin #ESRIevents #ESRIpublications www.esri.ie
9 18 February 2021
Profile of respondents – current health issues
Current health issues Percentage
Tiredness 86%
Insomnia/disturbed sleep 71%
Anxiety 66%
Difficulty remembering things 62%
Pain 56%
Bowel problems 44%
Shortness of breath 35%
Nausea 22%
Lack of appetite 20%
Behavioural problems 20%
Problem passing urine 19%
www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications
@ESRIDublin #ESRIevents #ESRIpublications www.esri.ie
10 18 February 2021
Profile of respondents – employment
characteristics
Characteristic Percentage
Employment status
Employee 86%
Self-employed 13%
On state training/employment scheme 1%
Employment sector
Public sector 37%
Semi-state sector 2%
The not-for-profit sector 4%
Private sector 57%
www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications
@ESRIDublin #ESRIevents #ESRIpublications www.esri.ie
11 18 February 2021
Profile of respondents – current
employment situation (n=373)
Returned to same
employment
77%
Did not take time off
7%
Returned to different
employment
2%
Not yet returned
14%
www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications
@ESRIDublin #ESRIevents #ESRIpublications www.esri.ie
12 18 February 2021
Impact of cancer diagnosis on career
prospects
• Impact of cancer diagnosis on career
prospects (n=375)
• No impact - 51%
• Negative impact - 47%
• Positive impact - 3%
www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications
@ESRIDublin #ESRIevents #ESRIpublications www.esri.ie
13 18 February 2021
Impact of cancer diagnosis on career prospects
• Differences observed across groups in % reporting negative impact
• Sex: Female (53%); males (35%)
• Age group: <35 (69%); 55-64 (33%)
• Employment status: Employee (44%); self-employed (61%)
• Sector: Public (59%); Private (39%)
• Length of leave also important: For those reporting a negative impact
– average length of leave was 51 weeks relative to 32 weeks for those
that did not report a negative impact
www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications
@ESRIDublin #ESRIevents #ESRIpublications www.esri.ie
14 18 February 2021
Impact of cancer diagnosis on career prospects
• The observed difference between males and
females were largely explained by the fact that
a larger proportion of women work in the public
sector and have longer length of leave relative
to males
www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications
@ESRIDublin #ESRIevents #ESRIpublications www.esri.ie
15 18 February 2021
Reported appropriateness of length of leave
(n=319)
Shorter than wanted
38%
Longer than wanted
9%
What wanted
53%
www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications
@ESRIDublin #ESRIevents #ESRIpublications www.esri.ie
16 18 February 2021
Main reason for returning to employment (n=319
for all; n=103 for “Leave too short”)
0
10
20
30
40
50
60
Finanical
need
To regain a
sense of
normality
Felt able to
work
Work is
important to
me
To maintain
career
Illness
benefit
ended
Pressure
from
employer
Other
Percentage
of
respondents
All Leave too short
www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications
@ESRIDublin #ESRIevents #ESRIpublications www.esri.ie
17 18 February 2021
Level of support offered by organisation/manager
(n=299/290)
0
5
10
15
20
25
30
35
40
45
Very supportive Supportive Neither supportive
nor unsupportive
Unsupportive Very unsupportive
Percentage
of
respondents
Organisation Manager
www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications
@ESRIDublin #ESRIevents #ESRIpublications www.esri.ie
18 18 February 2021
Level of support offered by organisation/manager
• Differences observed across groups
• Organisation support – higher proportion reporting
unsupportive/very unsupportive organisation among
public sector respondents and those in small
organisations
• Managerial support - higher proportion reporting
unsupportive/very unsupportive manager among
males, public sector respondents
www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications
@ESRIDublin #ESRIevents #ESRIpublications www.esri.ie
19 18 February 2021
Factors which facilitated return (n=312)
0% 5% 10% 15% 20% 25% 30% 35% 40% 45% 50%
Phased return to full time work
Help and support from colleagues
Help and support from employer/manager
Time off for medical appointments
Flexible start and finish time
Part time
Change in work tasks
Working from home
Access to unpaid leave
Change in work environment
Percentage of respondents
www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications
@ESRIDublin #ESRIevents #ESRIpublications www.esri.ie
20 18 February 2021
Factors which acted as a barrier to return (n=139)
0% 10% 20% 30% 40% 50% 60% 70% 80% 90%
Physical health issues
Psychological health issues
Difficulty in completing job requirements
Unsupportive employer/manager
Inflexible working arrangements
Unsupportive colleagues
Difficulty in getting to work
Percentage of respondents
www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications
@ESRIDublin #ESRIevents #ESRIpublications www.esri.ie
21 18 February 2021
Experienced negative work-related issue (n=321)
0% 2% 4% 6% 8% 10% 12%
Reduction in salary/bonus
Given unsuitable workload/tasks
Didn’t get deserved promotion
Received unpleasant comments
Unfairly criticised or disciplined
Denied access to training
Made redundant or dismissed
Discouraged from attending medicals appointments
Received pay rise/bonus less than peers
Threatened with redunacy/dismissal
Treated so poorly felt had to leave
Percentage of respondents
www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications
@ESRIDublin #ESRIevents #ESRIpublications www.esri.ie
22 18 February 2021
Policy and practice implications
• For employer
• Facilitating flexible return
• Avoiding discrimination
• Financial supports
• For Government
• Entitlement to paid leave for appointments
• Development of statutory sick leave pay
• Providing information – employees and
employers
www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications
@ESRIDublin #ESRIevents #ESRIpublications www.esri.ie
RETURNING TO EMPLOYMENT
FOLLOWING A DIAGNOSIS OF
CANCER: AN IRISH SURVEY
DATE
16th February 2021
AUTHOR
Sheelah Connolly, Helen
Russell, Edward Henry

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Returning to employment following a diagnosis of cancer: An Irish survey

  • 1. www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications @ESRIDublin #ESRIevents #ESRIpublications www.esri.ie RETURNING TO EMPLOYMENT FOLLOWING A DIAGNOSIS OF CANCER: AN IRISH SURVEY DATE 16th February 2021 AUTHOR Sheelah Connolly, Helen Russell, Edward Henry
  • 2. www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications @ESRIDublin #ESRIevents #ESRIpublications www.esri.ie 2 18 February 2021 Background • Previous research suggests that not all people of working age diagnosed with cancer can and do return to work • While for some this is a personal decision, for others, personal or work-related factors can act as a barrier to returning to work
  • 3. www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications @ESRIDublin #ESRIevents #ESRIpublications www.esri.ie 3 18 February 2021 Aim of research To explore the experience of returning to employment following a diagnosis of cancer in Ireland
  • 4. www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications @ESRIDublin #ESRIevents #ESRIpublications www.esri.ie 4 18 February 2021 Methods • ESRI/ICS developed “Returning to Work” questionnaire • Open to those • In formal employment at diagnosis • Diagnosed 2010-2020 • Aged <65 at time of diagnosis
  • 5. www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications @ESRIDublin #ESRIevents #ESRIpublications www.esri.ie 5 18 February 2021 Questionnaire Questionnaire included questions on • Working status • Impact of diagnosis on career prospects • Support from employer • Reasons for returning to employment • Barriers and facilitators to returning to employment • Health status • Demographic and socio-economic status
  • 6. www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications @ESRIDublin #ESRIevents #ESRIpublications www.esri.ie 6 18 February 2021 Questionnaire respondents • 377 unique responses to the online questionnaire • Data were weighted to address the low response rate from some group • Not all respondents were asked all questions • Not all respondents answered all questions
  • 7. www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications @ESRIDublin #ESRIevents #ESRIpublications www.esri.ie 7 18 February 2021 Profile of respondents – sex and age- group Characteristic Percentage Sex Male 35% Female 65% Age-group <35 4% 35-44 28% 45-54 26% 55-64 36% 65+ 6%
  • 8. www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications @ESRIDublin #ESRIevents #ESRIpublications www.esri.ie 8 18 February 2021 Profile of respondents – site, stage of cancer Characteristic Percentage Site of cancer Breast 17% Colorectal 7% Cervix 24% Prostate 9% Lymphoma 3% Skin 6% Lung 5% Ovary 1% Other 28% Stage of cancer 0 2% 1 30% 2 20% 3 20% 4 10% Don’t know 18%
  • 9. www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications @ESRIDublin #ESRIevents #ESRIpublications www.esri.ie 9 18 February 2021 Profile of respondents – current health issues Current health issues Percentage Tiredness 86% Insomnia/disturbed sleep 71% Anxiety 66% Difficulty remembering things 62% Pain 56% Bowel problems 44% Shortness of breath 35% Nausea 22% Lack of appetite 20% Behavioural problems 20% Problem passing urine 19%
  • 10. www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications @ESRIDublin #ESRIevents #ESRIpublications www.esri.ie 10 18 February 2021 Profile of respondents – employment characteristics Characteristic Percentage Employment status Employee 86% Self-employed 13% On state training/employment scheme 1% Employment sector Public sector 37% Semi-state sector 2% The not-for-profit sector 4% Private sector 57%
  • 11. www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications @ESRIDublin #ESRIevents #ESRIpublications www.esri.ie 11 18 February 2021 Profile of respondents – current employment situation (n=373) Returned to same employment 77% Did not take time off 7% Returned to different employment 2% Not yet returned 14%
  • 12. www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications @ESRIDublin #ESRIevents #ESRIpublications www.esri.ie 12 18 February 2021 Impact of cancer diagnosis on career prospects • Impact of cancer diagnosis on career prospects (n=375) • No impact - 51% • Negative impact - 47% • Positive impact - 3%
  • 13. www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications @ESRIDublin #ESRIevents #ESRIpublications www.esri.ie 13 18 February 2021 Impact of cancer diagnosis on career prospects • Differences observed across groups in % reporting negative impact • Sex: Female (53%); males (35%) • Age group: <35 (69%); 55-64 (33%) • Employment status: Employee (44%); self-employed (61%) • Sector: Public (59%); Private (39%) • Length of leave also important: For those reporting a negative impact – average length of leave was 51 weeks relative to 32 weeks for those that did not report a negative impact
  • 14. www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications @ESRIDublin #ESRIevents #ESRIpublications www.esri.ie 14 18 February 2021 Impact of cancer diagnosis on career prospects • The observed difference between males and females were largely explained by the fact that a larger proportion of women work in the public sector and have longer length of leave relative to males
  • 15. www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications @ESRIDublin #ESRIevents #ESRIpublications www.esri.ie 15 18 February 2021 Reported appropriateness of length of leave (n=319) Shorter than wanted 38% Longer than wanted 9% What wanted 53%
  • 16. www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications @ESRIDublin #ESRIevents #ESRIpublications www.esri.ie 16 18 February 2021 Main reason for returning to employment (n=319 for all; n=103 for “Leave too short”) 0 10 20 30 40 50 60 Finanical need To regain a sense of normality Felt able to work Work is important to me To maintain career Illness benefit ended Pressure from employer Other Percentage of respondents All Leave too short
  • 17. www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications @ESRIDublin #ESRIevents #ESRIpublications www.esri.ie 17 18 February 2021 Level of support offered by organisation/manager (n=299/290) 0 5 10 15 20 25 30 35 40 45 Very supportive Supportive Neither supportive nor unsupportive Unsupportive Very unsupportive Percentage of respondents Organisation Manager
  • 18. www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications @ESRIDublin #ESRIevents #ESRIpublications www.esri.ie 18 18 February 2021 Level of support offered by organisation/manager • Differences observed across groups • Organisation support – higher proportion reporting unsupportive/very unsupportive organisation among public sector respondents and those in small organisations • Managerial support - higher proportion reporting unsupportive/very unsupportive manager among males, public sector respondents
  • 19. www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications @ESRIDublin #ESRIevents #ESRIpublications www.esri.ie 19 18 February 2021 Factors which facilitated return (n=312) 0% 5% 10% 15% 20% 25% 30% 35% 40% 45% 50% Phased return to full time work Help and support from colleagues Help and support from employer/manager Time off for medical appointments Flexible start and finish time Part time Change in work tasks Working from home Access to unpaid leave Change in work environment Percentage of respondents
  • 20. www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications @ESRIDublin #ESRIevents #ESRIpublications www.esri.ie 20 18 February 2021 Factors which acted as a barrier to return (n=139) 0% 10% 20% 30% 40% 50% 60% 70% 80% 90% Physical health issues Psychological health issues Difficulty in completing job requirements Unsupportive employer/manager Inflexible working arrangements Unsupportive colleagues Difficulty in getting to work Percentage of respondents
  • 21. www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications @ESRIDublin #ESRIevents #ESRIpublications www.esri.ie 21 18 February 2021 Experienced negative work-related issue (n=321) 0% 2% 4% 6% 8% 10% 12% Reduction in salary/bonus Given unsuitable workload/tasks Didn’t get deserved promotion Received unpleasant comments Unfairly criticised or disciplined Denied access to training Made redundant or dismissed Discouraged from attending medicals appointments Received pay rise/bonus less than peers Threatened with redunacy/dismissal Treated so poorly felt had to leave Percentage of respondents
  • 22. www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications @ESRIDublin #ESRIevents #ESRIpublications www.esri.ie 22 18 February 2021 Policy and practice implications • For employer • Facilitating flexible return • Avoiding discrimination • Financial supports • For Government • Entitlement to paid leave for appointments • Development of statutory sick leave pay • Providing information – employees and employers
  • 23. www.esri.ie @ESRIDublin #ESRIevents #ESRIpublications @ESRIDublin #ESRIevents #ESRIpublications www.esri.ie RETURNING TO EMPLOYMENT FOLLOWING A DIAGNOSIS OF CANCER: AN IRISH SURVEY DATE 16th February 2021 AUTHOR Sheelah Connolly, Helen Russell, Edward Henry