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Facilitating the Development of
Research Data Management Services
at Health Sciences Libraries
Kevin Read, Alisa Surkis
Data Services @
NYU Langone Health
Data-related Competencies
National Postdoctoral Association
● Establishing data back up protocols
● Sharing of data with collaborators
● Ownership and access to data
Clinical and Translational Science Awards Core Competencies
● Implement quality assurance systems with control procedures for data intake,
management, and monitoring for different study designs.
NIH Rigor and Reproducibility Guidelines
● Require formal instruction in scientific rigor and transparency to enhance
reproducibility for all individuals supported by institutional training grants
Training Shortcomings
Lack of data management training
● Barone L, Williams J, Micklos D. Unmet Needs for Analyzing Biological Big
Data: A Survey of 704 NSF Principal Investigators. bioRxiv. 2017.
Need for improved training in data sharing, management and collection practices
● Jahnke L, Asher A, Henry C, Keralis SDC. The Problem of Data. Council on
Library and Information Resources. 2012:1-43.
Libraries Providing Data Services
NLM New Data Hub at NIH
“NLM is now poised to build on its activities in computational-based research, data
dissemination, and training to assume the NIH leadership role in data science.”
- Advisory Committee to the NIH Director
“The challenges of big data—its size, variability, and accessibility—align with the
strengths of the library. “
- NLM Director, Patti Brennan
Widespread data management training
● Basic science institute
● Postdoctoral scholars
● Clinical and translational science trainees
● Individual research groups
Research Data Management @ NYU Langone Health
Required 1-credit course for first-year PhD, MD/PhD students
Titled: Fundamental Skills and Tools for Research
Includes:
● Research data management
● Rigor and reproducibility
● Open science/data
● Data visualization
● Git and GitHub
Research Data Management @ NYU Langone Health
Data Day to Day Series
● 8-12+ data classes offered 3 times/year
● Mix of library-taught, and classes offered by collaborators
Classes offered
Summer 2016 Fall 2016 Spring 2017 Summer 2017
Data Visualization (2) REDCap (2) Intro to R (2) Intro to R (2)
RDM Essentials Data Visualization Data Visualization (2) Data viz w/ggplot2
Intro to REDCap & i2b2 Qualitative Study Designs REDCap (2) Data Viz w/GraphPad Prism (3)
Qualitative Data Analysis QGIS (2) Git & GitHub Git & GitHub
Big Data in Medicine Qualitative Interviews RDM Workshop REDCap (3)
Data Wrangling Intro to R Data Saturation in Qualitative Res. Regression Analysis
Clinical Data Management Research w/ Limited English Pop Research w/Limited English Pop
Hypothesis Testing in R Survey Design
High Performance Computing
Machine Learning
SPSS
Data Services Development for
Health Sciences Librarians
Continuing education classes for medical librarians
NIH Big Data to Knowledge training grant
National Network of Libraries of Medicine funded pilot
Data Management Training for Medical Librarians
Learning Objectives:
● Current roles libraries play in research data management (RDM)
● Research process
● Differences between clinical and bench science researchers and their RDM
needs
● Current climate around data management and sharing
● Best practices in data documentation and description
● Relevance of standards to data management
● Issues in storage, preservation, and sharing of data
Continuing Education for Medical Librarians
NIH Big Data to Knowledge Initiative
● Launched in 2014 to facilitate broad use of biomedical big data
● Develop and disseminate analysis methods and software
● Enhance training relevant for large-scale data analysis
● Establish centers of excellence for biomedical big data
Awarded training grant R25 LM012283 2015-2017
● Preparing Medical Librarians to Understand and Teach Research Data
Management
Online Librarian Training
Practice of research
Story of data
Fundamentals of RDM
Cohort of biomedical librarians
Varied teaching experience
Slides + script
Evaluation methods
“Edutainment” videos
Observing librarians teach
Follow-up interviews with
librarians
Knowledge gain
Satisfaction
Intent to practice
Dissemination to
Biomedical Library
Community
Piloting
In-person
Curriculum
Knowledge gain & satisfaction
Comfort level/Intent to teach
Qualitative follow-up
Librarians Teaching Researchers
Librarian
Evaluation
Piloting
Web-based
Curriculum
Evaluation
Researcher
Online Librarian Training
Practice of research
Story of data
Fundamentals of RDM
Web-based
Curriculum
Variable
Name
Field type Description Choices
subject_id Text Unique identifier for each
subject
last_name Text Subject last name
first_name Text Subject first name
birth_date Date Subject birth date
sex Integer Subject sex
RDM Best Practices
Variable
Name
Field type Description Choices
subject_id Text Unique identifier for each
subject
last_name Text Subject last name
first_name Text Subject first name
birth_date Date Subject birth date
sex Integer Subject sex
DNA by pedro baños cancer https://thenounproject.com/search/?q=genome&i=182407
lab flasks by Carla Dias https://thenounproject.com/search/?q=lab+animal&i=546042
RDM Best Practices Understanding Research Context
Online Modules: Story of Data
Online Modules: Data Lifecycle
Online Modules: Data Lifecycle
Online Modules: Understanding Researchers
Online Modules: RDM Climate
Online Modules: RDM Best Practices
Online Modules: Data Standards
Online Modules: Data Standards
NO STANDARD FOR STANDARDS
Online Modules: Storage, Preservation, and Sharing
Online Modules: Getting Started
Sufficient Knowledge to Teach RDM
Comfort Level Before and After Modules
Other Use of Knowledge Gained
Online Modules
http://bit.ly/RDM_Modules
Librarians Teaching Researchers
Cohort of biomedical librarians
Interviews with librarians
In-person
Curriculum
Slides & Script
Evaluation materials
“Edutainment” Videos
In-Person Pilot
Semi-structured observations of classroom
Evaluation of students for satisfaction, intent to use
Follow-up interview with librarians
Previous Training
Use of Knowledge Gained
Teaching Toolkit for Librarians
http://bit.ly/RDM_TeachingToolkit
Data Services Pilot Program
National Network of Libraries of Medicine
Health Science Libraries
Data Community
NNLM
Region
NYU
Langone
SUNY
Stony
Brook
University
of Buffalo
Temple
University
Drexel
University
University
of
Delaware
Health Science Libraries
Data Community
NNLM
Region
NYU
Langone
SUNY
Stony
Brook
University
of Buffalo
Temple
University
Drexel
University
University
of
Delaware
Project Goals
Support health sciences libraries in developing a viable research data management
component to their service offerings
Establish a community of librarians and libraries offering data services
Project Components
Training
Online Modules: http://bit.ly/RDM_Modules
Service
Teaching Toolkit: http://bit.ly/2s1Nmqg
Data Interviews: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4511052/
Data Series: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5370612/
Data Interviews
Philosophy of why we designed the interviews
Necessary for gaining a better understanding of researchers data management
challenges and opportunities
Identified researchers conducting basic science and clinical research
Used active grant system to identify a range of researchers
Template
Conversational in nature with prompts
Room for open ended responses
About the researcher NOT the library
Effectiveness
Associates library with data
Helps librarians understand the language and perceptions of researchers
Led to:
● New training opportunities
● Better context and understanding when communicating with researchers about
their data
● New strategies for developing library services and resources
Data Series
Why a data series?
● Creates/strengthens partnership with data expertise across institution
● Wider range of classes draws more attention to library classes
● Focus marketing efforts
How/who we’ve partnered with
● Institute for Innovations in Medical Education
● Department of Population Health
● College of Nursing
● Medical Center IT
● DataCore
● Main Campus Library Data Services
Effectiveness
Associates library with data
Bigger presence than library can achieve on its own
Gives the library time to develop more courses
Summer 2016
DDTD
Fall 2016
DDTD
Spring 2017
DDTD
REDCap Consults and Workshops
Data
Management
Training
@ NYU Langone
Data
Management
Training
@ NYU Langone
Informationist
Grants
Lab
Management
Tool
Data
Management
Training
Data
Interviews
@ NYU Langone
Data
Management
Training
Data
Consult
Service
1-credit
Graduate
Course
Data
Series
@ NYU Langone
Data
Management
Training
Data
Consult
Service
1-credit
Graduate
Course
Data
Series
NIH BD2K
Grant
NNLM
Pilot
Program
@ NYU Langone Health Sciences
Library Community
Questions?
kevin.read@med.nyu.edu
alisa.surkis@med.nyu.edu

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Read Surkis Facilitating Development of Research Data Services

  • 1. Facilitating the Development of Research Data Management Services at Health Sciences Libraries Kevin Read, Alisa Surkis
  • 2. Data Services @ NYU Langone Health
  • 3. Data-related Competencies National Postdoctoral Association ● Establishing data back up protocols ● Sharing of data with collaborators ● Ownership and access to data Clinical and Translational Science Awards Core Competencies ● Implement quality assurance systems with control procedures for data intake, management, and monitoring for different study designs. NIH Rigor and Reproducibility Guidelines ● Require formal instruction in scientific rigor and transparency to enhance reproducibility for all individuals supported by institutional training grants
  • 4. Training Shortcomings Lack of data management training ● Barone L, Williams J, Micklos D. Unmet Needs for Analyzing Biological Big Data: A Survey of 704 NSF Principal Investigators. bioRxiv. 2017. Need for improved training in data sharing, management and collection practices ● Jahnke L, Asher A, Henry C, Keralis SDC. The Problem of Data. Council on Library and Information Resources. 2012:1-43.
  • 6. NLM New Data Hub at NIH “NLM is now poised to build on its activities in computational-based research, data dissemination, and training to assume the NIH leadership role in data science.” - Advisory Committee to the NIH Director “The challenges of big data—its size, variability, and accessibility—align with the strengths of the library. “ - NLM Director, Patti Brennan
  • 7. Widespread data management training ● Basic science institute ● Postdoctoral scholars ● Clinical and translational science trainees ● Individual research groups Research Data Management @ NYU Langone Health
  • 8. Required 1-credit course for first-year PhD, MD/PhD students Titled: Fundamental Skills and Tools for Research Includes: ● Research data management ● Rigor and reproducibility ● Open science/data ● Data visualization ● Git and GitHub Research Data Management @ NYU Langone Health
  • 9. Data Day to Day Series ● 8-12+ data classes offered 3 times/year ● Mix of library-taught, and classes offered by collaborators
  • 10. Classes offered Summer 2016 Fall 2016 Spring 2017 Summer 2017 Data Visualization (2) REDCap (2) Intro to R (2) Intro to R (2) RDM Essentials Data Visualization Data Visualization (2) Data viz w/ggplot2 Intro to REDCap & i2b2 Qualitative Study Designs REDCap (2) Data Viz w/GraphPad Prism (3) Qualitative Data Analysis QGIS (2) Git & GitHub Git & GitHub Big Data in Medicine Qualitative Interviews RDM Workshop REDCap (3) Data Wrangling Intro to R Data Saturation in Qualitative Res. Regression Analysis Clinical Data Management Research w/ Limited English Pop Research w/Limited English Pop Hypothesis Testing in R Survey Design High Performance Computing Machine Learning SPSS
  • 11. Data Services Development for Health Sciences Librarians
  • 12. Continuing education classes for medical librarians NIH Big Data to Knowledge training grant National Network of Libraries of Medicine funded pilot Data Management Training for Medical Librarians
  • 13. Learning Objectives: ● Current roles libraries play in research data management (RDM) ● Research process ● Differences between clinical and bench science researchers and their RDM needs ● Current climate around data management and sharing ● Best practices in data documentation and description ● Relevance of standards to data management ● Issues in storage, preservation, and sharing of data Continuing Education for Medical Librarians
  • 14. NIH Big Data to Knowledge Initiative ● Launched in 2014 to facilitate broad use of biomedical big data ● Develop and disseminate analysis methods and software ● Enhance training relevant for large-scale data analysis ● Establish centers of excellence for biomedical big data Awarded training grant R25 LM012283 2015-2017 ● Preparing Medical Librarians to Understand and Teach Research Data Management
  • 15. Online Librarian Training Practice of research Story of data Fundamentals of RDM Cohort of biomedical librarians Varied teaching experience Slides + script Evaluation methods “Edutainment” videos Observing librarians teach Follow-up interviews with librarians Knowledge gain Satisfaction Intent to practice Dissemination to Biomedical Library Community Piloting In-person Curriculum Knowledge gain & satisfaction Comfort level/Intent to teach Qualitative follow-up Librarians Teaching Researchers Librarian Evaluation Piloting Web-based Curriculum Evaluation Researcher
  • 16. Online Librarian Training Practice of research Story of data Fundamentals of RDM Web-based Curriculum
  • 17. Variable Name Field type Description Choices subject_id Text Unique identifier for each subject last_name Text Subject last name first_name Text Subject first name birth_date Date Subject birth date sex Integer Subject sex RDM Best Practices
  • 18. Variable Name Field type Description Choices subject_id Text Unique identifier for each subject last_name Text Subject last name first_name Text Subject first name birth_date Date Subject birth date sex Integer Subject sex DNA by pedro baños cancer https://thenounproject.com/search/?q=genome&i=182407 lab flasks by Carla Dias https://thenounproject.com/search/?q=lab+animal&i=546042 RDM Best Practices Understanding Research Context
  • 20. Online Modules: Data Lifecycle
  • 21. Online Modules: Data Lifecycle
  • 24. Online Modules: RDM Best Practices
  • 25. Online Modules: Data Standards
  • 26. Online Modules: Data Standards NO STANDARD FOR STANDARDS
  • 27. Online Modules: Storage, Preservation, and Sharing
  • 30. Comfort Level Before and After Modules
  • 31. Other Use of Knowledge Gained
  • 33. Librarians Teaching Researchers Cohort of biomedical librarians Interviews with librarians In-person Curriculum Slides & Script Evaluation materials “Edutainment” Videos
  • 34. In-Person Pilot Semi-structured observations of classroom Evaluation of students for satisfaction, intent to use Follow-up interview with librarians
  • 37. Teaching Toolkit for Librarians http://bit.ly/RDM_TeachingToolkit
  • 39. National Network of Libraries of Medicine
  • 40. Health Science Libraries Data Community NNLM Region NYU Langone SUNY Stony Brook University of Buffalo Temple University Drexel University University of Delaware
  • 41. Health Science Libraries Data Community NNLM Region NYU Langone SUNY Stony Brook University of Buffalo Temple University Drexel University University of Delaware
  • 42. Project Goals Support health sciences libraries in developing a viable research data management component to their service offerings Establish a community of librarians and libraries offering data services
  • 43. Project Components Training Online Modules: http://bit.ly/RDM_Modules Service Teaching Toolkit: http://bit.ly/2s1Nmqg Data Interviews: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4511052/ Data Series: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5370612/
  • 45. Philosophy of why we designed the interviews Necessary for gaining a better understanding of researchers data management challenges and opportunities Identified researchers conducting basic science and clinical research Used active grant system to identify a range of researchers
  • 46. Template Conversational in nature with prompts Room for open ended responses About the researcher NOT the library
  • 47. Effectiveness Associates library with data Helps librarians understand the language and perceptions of researchers Led to: ● New training opportunities ● Better context and understanding when communicating with researchers about their data ● New strategies for developing library services and resources
  • 49. Why a data series? ● Creates/strengthens partnership with data expertise across institution ● Wider range of classes draws more attention to library classes ● Focus marketing efforts
  • 50. How/who we’ve partnered with ● Institute for Innovations in Medical Education ● Department of Population Health ● College of Nursing ● Medical Center IT ● DataCore ● Main Campus Library Data Services
  • 51. Effectiveness Associates library with data Bigger presence than library can achieve on its own Gives the library time to develop more courses
  • 52. Summer 2016 DDTD Fall 2016 DDTD Spring 2017 DDTD REDCap Consults and Workshops