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© Romina Marazzato Sparano
Plain Language 2.0 & Health Literacy
Romina Marazzato Sparano
languagecompass
© Romina Marazzato Sparano
LanguagesRomina Marazzato Sparano
© Romina Marazzato Sparano
What we’ll cover
 Health Literacy definition
 Factors that affect HL
 Context & statistics about literacy
 Plain Language definition & role
 Plain Language strategies
textuality: building sense, &
adequacy: addressing the audience
 Some extra points: readability formulas, versioning, design
© Romina Marazzato Sparano
Health Literacy
 Obtain
 Process
 Understand
basic health information & services
needed to make
appropriate health decisions
© Romina Marazzato Sparano
Health Literacy
 Gain access to
 Understand
 Use
information to
promote & maintain good health
for themselves,
their families, &
their communities
© Romina Marazzato Sparano
Limited Health Literacy
Emergency
Room
Hospitalizatio
n
Treatment
Preventive
Care
Health
Status
© Romina Marazzato Sparano
Health Communication in Plain Language
Skill,
Attitudes,
& Behavior
Skills &
Attitudes
Policy &
Services
Misperception
& Myths
Awareness
& Knowledge
© Romina Marazzato Sparano
Health Literacy
World & Health
Knowledge
General
Literacy &
Intelligence
Social &
Communication Skills
Providers’
Knowledge
& Skills
Culture
& Beliefs
© Romina Marazzato Sparano
languagecompass
© Romina Marazzato Sparano
Education for individuals & professionals to promote:
 Health literate citizens
 National Health Education Standards
 1995 & 2007 – Better implementation: Continuity & Scaffolding
 Partnerships for adult instruction & awareness
 Storylines, media advocacy, college
 Culturally sensitive professionals
 National Standards for Culturally and Linguistically
Appropriate Services (CLAS) in Health and Health Care
© Romina Marazzato Sparano
System Changes
 Policies / Federal & State Coordination
 Plain Writing Act: PLAIN is budget-less! (federal)
 §508 – Rehabilitation Act (federal)
 Quality Standards / Ethics
 Organizational Support
Ex: Process Redesign + Signage
UK Design Council:
Design Challenge to
improve patient experience
© Romina Marazzato Sparano
(Better) Plain Language Writing
Audience
Purpose
Structure
Design
Wording
© Romina Marazzato Sparano
In HL Audience
╪ Interlocutors
> Versioning?
Distressing &
Time-sensitive
Situations
© Romina Marazzato Sparano
Disabilities
Limited Schooling
Second Language
Expertise
Interests
Situational Literacy
Audience = Interlocutors
© Romina Marazzato Sparano
Situational Literacy
© Romina Marazzato Sparano
From Health Literacy In Clinical Research by
the Multi-regional Clinical Trials Center of Brigham and Women's Hospital
and Harvard
© Romina Marazzato Sparano
healthliteracy.bu.edu/all
 SAHL–S&E: Short Assessment of Health
Lit. Spanish & English
18-item – 403 sample
 REALM-SF: Rapid Estimate of Adult Lit. in
Medicine Short Form
8-item – 1500 sample
Questions on scale validation:
vocab knowledge vs. CALS
© Romina Marazzato Sparano
Health Literacy Levels
Below Basic
14%
Intermediate
53%
Basic
21%
Proficient & Above
12%
Identify
single item
Determine
single item
Make an
inference
Make multiple
inferences
© Romina Marazzato Sparano
Text Here
20%
Identify Determine Calculate Synthesize
© Romina Marazzato Sparano
14% Below 53% Intermediate21% Basic 12% Proficient & Above
IQ:
HL:
Health Literacy-IQ
Mismatch
2% Disability 68% Normal14% Low 16% Above Normal
© Romina Marazzato Sparano
What is Intelligence?
• IQ Tests & the Bell Curve
• Flynn Effect & Reversal
© Romina Marazzato Sparano 2019
© Romina Marazzato Sparano
14% Below 53% Intermediate21% Basic 12% Proficient
Health Literacy-IQ
Mismatch
IQ:
HL:
© Romina Marazzato Sparano
© Romina Marazzato Sparano
Japan
Finland
Netherlands
Australia
Sweden
Norway
Flanders (Belgium)
Czech Republic
Slovak Republic
Canada
Average
UK
Denmark
Germany
United States
Austria
© Romina Marazzato Sparano
Verbatim | Some Inference | Interpretation
50% higher level
inference
50% lower level
inference
OECD Assessment of Adult CompetenciesTOMATO SOUP
$1.15
Weight: 3.5 oz
Packaged on:
5/17/12
ORANGE JUICE
$2.99
Weight: 64 oz
Packaged on:
11/8/12
BEEF JERKY
$6.29
Weight: 16 oz
Packaged on:
2/24/12
PEANUT
BUTTER
$3.36
Weight: 28 oz
Packaged on:
3/24/12
© Romina Marazzato Sparano
Cater to All Readers (Consider Versions)
 25% do not understand Earth orbit
 30% astrology = science
 50% major bills have a scientific component
 Juries evaluate technical evidence
 Scientists do not reach one another
 73% more citations if in The New York Times
 No access to publicly funded research
1 year
* OECD, NSF, NCBI, & Pew Research
Public
Law
Science
© Romina Marazzato Sparano
Plain Language 2.0
LOCATE UNDERSTAND ACT UPON
relevant information
© Romina Marazzato Sparano
Plain Language
The idiomatic and
gramatical use of
language that that most
effectively
presents ideas
to the reader
© Romina Marazzato Sparano
SP War Corp.
1944
Consumer Affairs
1973
Plain English Campaign
1979
Land Management
1966
plainlanguage.gov
1994
Plain Writing Act
2010
Maury
Maverick
Kathryn
Catania
Katherine
Spivey
Chrissie Martin
Maher CuttsJohn O’Hayre
Bess
Myerson
Space + Time + MoneyPL Milestones
© Romina Marazzato Sparano
Oratory
~70CE
Spanish
~1250
English
~1420
Do not simply promote understanding,
prevent misunderstanding…
And, in matters of style, indulge in elegance,
for a writer wins but trivial praise if he gives
no more than clarity: his text seems free from weakness rather
than full of strength.
Quintilian Alphonse X Henry V
© Romina Marazzato Sparano
©
© Romina Marazzato Sparano
©
© Romina Marazzato Sparano
Address your readers needs
from their point of view

Simple English
Wikipedia

Regular Wikipedia

Links to Journal
© Romina Marazzato Sparano
Acceptance by the Bank of payments in arrears shall not constitute a
waiver of or otherwise affect any acceleration of payment hereunder or
other right or remedy exercisable hereunder. No failure or delay on the
part of the Bank in exercising, and no failure to file or otherwise
enforce the Bank’s security interest in or with respect to any Collateral,
shall operate as a waiver of any right or remedy hereunder or release
any of the undersigned, and the Obligation of the undersigned may be
extended or waived by the Bank, any contract or other agreement
evidencing or relating to any Obligation or any Collateral may be
amended and any Collateral exchanged, surrendered or otherwise dealt
with in accordance with any agreement relative thereto, all without
affecting the liability of any of the undersigned.
You can delay enforcing any of your rights
under this note without losing them.
© Romina Marazzato Sparano
Rhode Island Dep. of Health -
Division of Community Health
and Equity
And MAXIMUS Center for
Health Literacy
SPANISH
“Brexit means Brexit and we’re going to
make a Titanic success of it.”
British Politician
© Romina Marazzato Sparano
Dig Deeper: into the inner workings of text
© Romina Marazzato Sparano
Adequacy + Textuality
Wording
Grammaticality
Connectivity
Syntax
Word Order
Punctuation
Cohesion
Lexical
Grammatical
References
Recasting
Connectors
Coherence
Subject matter
Information Flow
Relationships
Better Plain Language Writing
© Romina Marazzato Sparano
Migraine is a disabling condition that affects nerves and blood vessels.
Its main symptom is sudden pounding pain usually on one side of the
head. Migraine also includes other symptoms like sensitivity…
Audience: More than lay term substitutions
Migraine is an incapacitating disorder of neurovascular nature,
characterized by paroxysmal attacks of unilateral throbbing headache
and autonomic nervous system dysfunction, including sensitivity…
Migraine is a type of headache that:
• causes pounding pain, often on one side of the head, and
• includes symptoms like sensitivity to sound, light, or smell.
© Romina Marazzato Sparano
What are polyps?
A colonoscope, the flexible device used to inspect the colon, can
grab and snip off polyps if they are relatively small. The timing of
follow-up depends on what kind of polyps the doctor finds, how
many, and how big they are.
What are colon polyps?
A polyp is a small clump of cells that forms on the lining of the
colon. Most colon polyps are harmless. But over time, some can
develop into colon cancer, which is often fatal when found in its
later stages.
Purpose: scaffold understanding with topic consistency
© Romina Marazzato Sparano
Topic, Frames & Isotopies
Semantic Frames
Conceptual Pragmatic
© Romina Marazzato Sparano
The procedure is actually quite simple. First you arrange items into
different groups. Of course one pile may be sufficient depending on how
much there is do. If you need to go somewhere else due to a lack of
facilities, then this is the next step; otherwise, you are pretty well set. It
is important not to overdo things. That is, it is better to do too few things
at once than too many. In the short run, this may not seem important
but complications can easily arise. A mistake can be expensive as
well. At first, the whole procedure will seem complicated. Soon, however,
it will become just another facet of life. It is difficult to foresee any end to
the necessity for this task in the future, but then, one can never
tell. After the procedure is completed, one arranges the materials into
different piles again. Eventually they will be used one more and the
whole cycle will then have to be repeated. However, that is part of life.
What is the passage about?
© Romina Marazzato Sparano
Wording: Go beyond bulleted advice
• Write as if you were speaking?
- Planned vs. Extemporaneous
- Tight vs. Loose Structure
- Productvs. Process
• Use active voice?
Charrow & Charrow:
“passives do not impede comprehension”
• Apply readability formulas?
Not a clear measure of comprehensibility
© Romina Marazzato Sparano
Wording: Grammaticality + Connectivity
GRAMMAR:
Syntax – Word Order – Semantic Roles – Punctuation
COHESION:
LEXICAL: Repetitions – Definitions – Associations
GRAMMATICAL: References – Recasting – Connectors
COHERENCE:
INFO FLOW: Topic – Frames – Conceptual Links
RELATIONSHIPS: Resemblance – Contiguity – Cause & Effect
© Romina Marazzato Sparano
Medical Text Features – Beyond the Lexicon
Colorectal cancer (CRC) is associated with a considerable mortality
rate that can be reduced by using different prevention strategies.
Among such strategies, endoscopic surveillance of high-risk
individuals and population-based endoscopic screening of average-
risk individuals enables detection and removal of premalignant
lesions (adenomas) as well as presymptomatic detection of cancer.
Similarly, implementation of cancer detection tests such as fecal
occult blood tests (FOBTs) is another strategy to reduce cancer
mortality by early detection of CRC. We hypothesize that
personalized management, based on information concerning
environmental and lifestyle factors, and phenotype in combination
with a variety of genotipic biomarkers will become more important as
a strategy to optimize CRC prevention in the future.
© Romina Marazzato Sparano
colorectal, implementation
similarly
that can be reduced
strategies
[exemplification] among such
strategies
we hypothesize
Technical Texts Features
complex terms
complex syntax
discourse markers
anaphoric reference
text organization
metalinguistic vocabulary
© Romina Marazzato Sparano
Grammaticality: “Miss stakes wee May knot sea”
Migraines strike twice as many women as do men.
The patient was side-swiped by a car riding a bicycle.
We advised the patient to force fluids through his interpreter.
Administer 4IU insulin.
4 international
units?
41 units?
© Romina Marazzato Sparano
Scaffolding is breaking up the learning into fragments and
then
you provide a tool, or structure, with each fragment.
Grammar: Parallel Structure
Occam’s Razor: SIMPLIFY
Scaffolding is breaking up the learning into chunks
and then providing a tool, or structure, with each
chunk.
© Romina Marazzato Sparano
Grammar: Garden Paths & Ambiguity
The new data convinced her students have the maturity to
talk about difficult subjects.
her that students have…
Object + Subordinate Clause
her students
NP: possessive + noun
convinced…
Small Word Matter!
© Romina Marazzato Sparano
Punctuation: The $5M Comma (?)
 Truck drivers sued a dairy for 4 years of due overtime pay
 Maine law exempts overtime pay for:
The canning, processing, preserving, freezing, drying,
marketing, storing, packing for shipment or distribution of:
(1) Agricultural produce;
(2) Meat and fish products; and
(3) Perishable foods.
No series comma!
No parallel structure, either!
-ing form
© Romina Marazzato Sparano
Commas are a pause
for the mind!
About Commas
Use commas with
 Lists
 Coordinated clauses
 Transition expressions
 Parenthetical expressions
Non-restrictives, appositives, etc.
 Displaced expressions (away from canonical position)
 but NEVER between a subject and its verb!
© Romina Marazzato Sparano
Noun Piling
Buried cable technician
© Romina Marazzato Sparano
Let’s Practice: Ambiguity & Noun Piling
Cell/Oxygen Research British-American Trio Medicine Nobel
Prize Winner
British-American Trio Awarded Nobel Prize in Medicine for
Cell/Oxygen Research
It plays a more important role in learning content delivery.
It plays a more important role in the delivery of learning
content.
…delivering educational content.
© Romina Marazzato Sparano
Cohesion: strategies to shorten & link sentences
Several techniques are available for removal of large
colorectal polyps found in the early stages which are
oncologically and technically successful for most such
polyps and remain one of the most effective interventions
for colorectal cancer prevention.
Several techniques are available to remove large
colorectal polyps early. Early removal of these
polyps remains one of the most effective
interventions for colorectal cancer prevention.
© Romina Marazzato Sparano
= Cohesion ≠ Adequacy
Several techniques are available to remove large
colorectal polyps early. Early removal of these polyps
remains one of the most effective interventions for
colorectal cancer prevention.
Doctors use different techniques to remove large
polyps (lumps or growths) from the bowel early.
Taking away these polyps early is one of the best
ways to prevent colon cancer (cancer in the bowel).
© Romina Marazzato Sparano
Nominalization is not Evil!
PRODUCT
PROCESS
The jaw replacement helped her
regain her confidence.
The surgeons replace the diseased jaw
with a titanium plate.
1. Abstraction: density
agent + action
2. Rhetorical organization:
process vs product
© Romina Marazzato Sparano
Nominalizations
3. Cohesive device:
information flow
Most importantly I strongly believe in the mission, vision
and direction of this project. These beliefs inspire me to
take on this new challenge....
LEXICAL
pronouns, repetitions
synonyms, hyponyms, hypernyms
definitions, explanations
word families & topical lexicons
GRAMMATICAL
ellipsis
references & substitutions
recasting: fronting, passive, cleft
discourse markers & punctuation
TAM system
© Romina Marazzato Sparano
Recasting Nominalization
 Reverse abstraction to habitual verbs
 Use a sensory experience (participant + process)
 Find an alternative cohesion strategy
shared knowledge and understanding all be on the same page
improvement / postponement bring up, put off
bring up, put off
© Romina Marazzato Sparano
Clinical Trial Text for Patients – BEFORE
Participants who were assigned to a study treatment group
will make 10 visits over a 7-week period. These visits will be
paid for by the study. Regardless of group assignment, all
participants will be contacted at 2, 6, and 12 months after the
start of the study for about a 20-minute telephone interview.
© Romina Marazzato Sparano
Clinical Trial Text for Patients – 1ST DRAFT
If you are in a study treatment group, you will make 10
visits over a 7-week period. The study will pay for these
visits. No matter which group you are in, we will call you
for three phone surveys that will last about 20 minutes
each. These surveys will take place 2, 6, and 12 months
after you join the study.
© Romina Marazzato Sparano
Clinical Trial Text for Patients – AFTER
You will answer three phone surveys at 2, 6, and 12
months after you join the study. These surveys will last
about 20 minutes each. If you are in a study treatment
group, you will also make 10 office visits over a period of
7 weeks. These visits will be free of charge.
© Romina Marazzato Sparano
Theme Rheme
Participants who were
assigned to a study
treatment group
will make 7 visits over a
7-week period.
These visits will be paid for by the study.
Regardless of group
assignment,
all participants
will be contacted at 2, 6, and
12 months after the start of the
study for about a 20-minute
telephone interview
Coherence: Flow & Hierarchy
© Romina Marazzato Sparano
Theme Rheme
If you are in a study
treatment group
you will make 7 visits over a
7-week period.
The study will pay for these visits.
No matter which group
you are in, we
will call you at 2, 6, and 12
months after the start of the
study for about a 20-minute
telephone interview
= Issues ≠ Adequacy
© Romina Marazzato Sparano
Theme Rheme
You will answer three phone surveys at 2, 6,
and 12 months after you join the study.
These surveys will last about 20 minutes each.
If you are in a
study treatment
group,
you will also make office visits once a
week for 7 weeks.
These visits will be free of charge.
Coherence + Adequacy (lay version)
© Romina Marazzato Sparano
Before & After: Streamlining the message
when
patients actions when cost
all survey months time
some visit weeks money (free)
© Romina Marazzato Sparano
Theme Rheme
All participants answer three phone surveys at 2, 6, and
12 months after joining the study.
These surveys last about 20 minutes each.
Participants in
a treatment
group
also make office visits once a week for 7
weeks.
These visits are free of charge to participants.
= Coherence ≠ Adequacy (technical version)
© Romina Marazzato Sparano
Abstract: Reassessing Hyterectomy
The surgery performed to remove the uterus is called a
hysterectomy. The removal of the uterus relieves symptoms caused
by medical conditions affecting this organ. It is usually only
considered if other treatments aren’t effective enough. It is a major
surgical procedure that is associated with risks and side effects.
Hysterectomy may be necessary to remove the tumor if a woman
has uterine or ovarian cancer.
© Romina Marazzato Sparano
Theme Rheme
The surgery
performed to remove
the uterus
is called a hysterectomy
The removal of
the uterus
relieves symptoms caused by medical
conditions affecting this organ.
So it [hysterectomy] is usually only considered if other
treatments aren’t effective enough.
It [hysterectomy]
Hysterectomy
is a major surgical procedure that is
associated with risks and side effects
may be necessary in order to remove the
tumor if a woman has uterine or … cancer
cancer © Romina Marazzato Sparano 2019
© Romina Marazzato Sparano
Abstract
A hysterectomy is a surgery to remove the uterus. The removal of
the uterus relieves symptoms caused by medical conditions
affecting this organ. If a woman has uterine or ovarian cancer, for
instance, a hysterectomy may be necessary in order to remove the
tumor. But it is a major surgical procedure that is associated with
risks and side effects. Because of these risks, it is usually only
considered if other treatments aren’t effective enough.
© Romina Marazzato Sparano
Theme Rheme
A hysterectomy is a surgery to remove the uterus.
The removal of
the uterus
relieves symptoms caused by medical
conditions affecting this organ.
If a woman has
uterine… cancer
hysterectomy may be necessary in order
order to remove the tumor.
But it
Because of these
risks, it
is a major surgical procedure that is
associated with risks and side effects.
is usually only considered if other
treatments aren’t effective enough.
© Romina Marazzato Sparano 2019
© Romina Marazzato Sparano
Recasting: Syntactic Redistribution
Rearrange structure
Preserve semantic roles
Old before new
References
Bad neighbors
Memory
Effect Subject ≠ Agent ≠ Topic
My keys disappeared.
© Romina Marazzato Sparano 2019
© Romina Marazzato Sparano
Recasting with Passive Voice: shedding light on the object
The baby, Jack tells his wife, had been brought to the
hospital by a fireman, who had been dissuaded from
adopting the child himself.
When agent is
Unknown
Ir/Relevant to object view
(Process vs. Product)
Heavy and new!
© Romina Marazzato Sparano
Sequence Timeline
Cause
Effect
Question
Answer
Hierarchy
Message Structure
© Romina Marazzato Sparano
Design & Data Visualization
 Credit: Wellcome Collection
© Romina Marazzato Sparano
Design
0
10000
20000
30000
40000
Most Populated Cities in M
38000
28000 25700
22700 22000 21700 21500 20000 19700 18700
Most Populated Cities in M
in M
City Population
in M
Tokyo 38,000
Delhi 28,000
Shanghai 25,700
Beijing 22,700
Mumbai 22,000
Sao Paulo 21,700
Mexico City 21,500
Cairo 20,000
Dakha 19,700
New York 18,700
© Romina Marazzato Sparano
Design
© Romina Marazzato Sparano
Trebecular Bone
Trebeculae: 3D Lattice
• Structural support and flexibility
• Lighter than compact bone
Inspired in a presentation by Dr. Genevieve Brown
© Romina Marazzato Sparano
Show, Don’t Tell
Work
Education
Eating
Self-care
Sleeping
Phone Calls
Religion
Sport
s
Leisure
Shopping
Prof. Svc.
Non-
household
Household
Homework
Misc.
Volunteering
Traveling
1,000 people
average day
© Romina Marazzato Sparano
Accessibility
 Section 508 of the Rehabilitation Act:
provide ICT accessible to people with disabilities
Do not take
a bath
© Romina Marazzato Sparano
© Romina Marazzato Sparano
Scaffolding New Attitudes
Hey guys, I don’t even feel any
rain! Why are you doing this
again? Just put down the
stupid umbrellas—they’re bad
for your arms anyway.
Immunization Campaign
&
Herd Immunity
© Romina Marazzato Sparano
Use of Metaphor
 Conceptual metaphors
 Structure most basic understanding of experience
 Shape perceptions & actions without us noticing
 Metaphors We Live By - Lakoff & Johnson
• Time is Money: spend/save time
• Status has height: lofty/lowly position
 Teaching thinking by analogy
• Explain how MRI works
© Romina Marazzato Sparano
Amenable mortality:
preventable by timely and
effective health care inside
and outside of hospitals.
Caution about
Simplification
Inefficacy of the
Health Care System
© Romina Marazzato Sparano
Summary
1. Health Literacy encompasses:
• Individual Skills
• Providers’ Skills
• System Features
• Plain Language Use
2. Room for improvement in every dimension
3. In Plain Language > Strategies for a deeper dive into:
• Textuality:
grammar, structure, cohesion/coherence, design
• Adequacy:
suitability to the audience
© Romina Marazzato Sparano
Wording
Audience
Purpose
Structure
Design
Dig Deeper! Better Plain Language Writing
Review for and adequacy
© Romina Marazzato Sparano
Plain Language is Also for Health Experts!
© Romina Marazzato Sparano
Readability Formulas
Flesch Reading Ease
Flesch-Kincaid Grade Level
SMOG
Fry’s Readability Graph
New Dale-Chall
Robert Gunning’s Fog Index
Fry’s Readability Graph
FORCAST
Spache
© Romina Marazzato Sparano
SMOG Formula
Count polysyllables in 30 sentences
 10 from START
 10 from MIDDLE
 10 from END
~ Grade = #polysyllables√ + 3
Grade =
#polysyllables
#sentences
+ 3.1291√30 x1.0430
© Romina Marazzato Sparano
Dale-Chall
Raw Score = 0.1579 x PDW + 0.0496 x ASL
PDW: Percentage of Difficult Words
ASL: Average Sentence Length in Words
If PDW > 5%, use Adjusted Score (> 4th gr)
Adjusted Score = Raw Score + 3.6365
© Romina Marazzato Sparano
Flesch’s Reading Ease RE = (hard) 0-100 (easy)
( )total words
total sentences
1.015 x ( )total syllables
total words
206.835 - - 84.6 x
( )total words
total sentences
0.39 x ( )total syllables
total words
+ 11.8 - 15.59
Flesch-Kinciad Grade Level
© Romina Marazzato Sparano
Don’t Let Readability Formulas Fool You!
Before scoring text:
 Strip formatting
 Watch out for poor manipulation
 Check grammaticality
 Ensure cohesion and coherence of the content
© Romina Marazzato Sparano
Scoring Text
We need to talk about dealing with
distractions and, um… interruptions when
we’re trying to work. Yeah, I mean, it’s really
important. And I think, nowadays, you know,
for people with families.
Transcript
Great Readability Scores?!
© Romina Marazzato Sparano
Scoring Text
The Virginia opossum is alone. In North
America like kangaroos. Female opossums
have babies. They use a pouch like
kangaroos. They have thumbs and tail.
They can grasp easily. They use them to
help themselves climb. While hairless they
are cute. They have a pointy snout and look
like rats, opossums are not even in the
same family as rodents.
© Romina Marazzato Sparano
These rescission risks for an investor are more prevalent during swift upward
price movement periods. The market conditions which favor speculator
activity are precisely the same conditions that cause a seller of a property to
demand their home be returned. A profit has come about within two years
which is now sought by both the investor, who speculated and gained by a
flip, and the seller, who believes they were ripped off of the profit taken by
the investor..
Realty Publications
© Romina Marazzato Sparano
© Romina Marazzato Sparano
© Romina Marazzato Sparano
Investor
These rescission risks for an investor are more prevalent
during swift upward price movement periods. The market
conditions which favor speculator activity are precisely the
same conditions that cause a seller of a property to demand
their home be returned.
Seller
A profit has come about within two years which is now
sought by both the investor, who speculated and gained by
a flip, and the seller, who believes they were ripped off of
the profit taken by the investor.
© Romina Marazzato Sparano
Readability Formulas
Word Length
Sentence Length
Need Proper Text Manipulation
 Grammaticality & Connectivity?
 Structure & Design?
 Meaningful & Interesting?
© Romina Marazzato Sparano
Bonus Practice: Polycytemia vera
 Panhyperplastic, malignant, and neoplastic marrow disorder.
Spleen
© Romina Marazzato Sparano
Not about jargon!
With disease progression splenomegaly occurred in
most cases and the bone marrow is showing increasing
signs of fibrosis, which causes extramedullary
erythropoiesis during the disease course.
As the disease progresses, the size of spleen increased
in most cases. The bone marrow shows more and more
scar tissue. The body produces red blood cells outside
of the bone marrow.
© Romina Marazzato Sparano
Normal
Erythropoiesis
Extramedullary
Erythropoiesis
© Romina Marazzato Sparano
Plain Language for Experts
With disease progression splenomegaly occurred in
most cases and the bone marrow is showing increasing
signs of fibrosis, which causes extra medullary
erythropoiesis during the disease course.
In most cases, the bone marrow undergoes varying
degrees of fibrosis, forcing the spleen into extra
medullary erythropoiesis and resulting in
splenomegaly.
© Romina Marazzato Sparano
Plain Language for Lay Audiences
In most cases, the bone marrow undergoes varying
degrees of fibrosis, eventually forcing the spleen into
extra medullary erythropoiesis and resulting in
splenomegaly.
In most cases, scar tissue takes over the bone
marrow. Normally, bone marrow produces blood
cells. But the scarred bone marrow cannot produce
blood cells. Because of this, the spleen has to work
harder to produce red blood cells outside of the bone
marrow. This causes the spleen to enlarge.
© Romina Marazzato Sparano
Techniques
 Align verb tenses for consistent time reference
 Use parallel structure for equivalent ideas
 Repair and express logical relations
Rearrange sequential order
Indicate similarity and contrast
Express cause/effect
 Adapt register and terminology different audiences
© Romina Marazzato Sparano
Plain Language for Experts: Tighten your Wording
 Smoking Cessation Programs Comparative Study
 Comparative Study on Smoking Cessation Programs
© Romina Marazzato Sparano
Smoking Cessation Text: BEFORE
The requirement participants must meet will change each day but
if they keep meeting the criterion, the payment escalated by 10
pesos (equivalent to $.50). If participants ask how to meet the
specified condition, they were advised that they will definitely
meet the criterion if they stop smoking completely; nevertheless,
they may still meet the criterion by cutting down on their
smoking. Answering any of the participant's questions, the
scheduling of morning and afternoon appointments proceeds for
each of 5 consecutive days, regardless of workdays or weekend
days, in the next week.
© Romina Marazzato Sparano
Smoking Cessation Text: Target AFTER
The requirement that participants must meet changes every day,
but, if they keep meeting the requirement, participants receive
an additional 10 pesos (equivalent to $.50).
If participants ask how to meet the requirement, they are advised
that:
• they will meet the requirement if they stop smoking
completely, and that
• they may meet the requirement if they reduce their smoking.
After answering questions, the research assistant proceeds to
schedule morning and afternoon appointments for each
participant on 5 consecutive days during the following week.
© Romina Marazzato Sparano
Smoking Cessation Text: Target AFTER – LAY AUDIENCE
The goal for you will change every day, but, if you meet each new
goal, you will receive an additional 50 cents.
How to meet your goal
• stop smoking completely, or
• reduce your smoking. But know that this may not be enough
to meet your goal.
Questions?
Ask our research assistant! They will be happy to answer.
…
© Romina Marazzato Sparano
Techniques
 Use consistent terminology
 Abide by collocations:
“someone meets a requirement“
 Match verb tenses for logical time reference
 Create lists for structural clarity
 Use parallel structure for equivalent ideas
 Add headings to guide the reader
 Apply economy of words: include only relevant content
Grice's Maxims: quantity, quality, relevance, manner
© Romina Marazzato Sparano
Health Literacy
World & Health
Knowledge
General
Literacy &
Intelligence
Social &
Communication Skills
Providers’
Knowledge
& Skills
Culture
& Beliefs
© Romina Marazzato Sparano
languagecompass
© Romina Marazzato Sparano
© Romina Marazzato Sparano
THANK YOU!!!
Follow me on
@LanguageCompass
Image Attributions
• Used for education
• For-fee accounts at 123rf.com &
Clipart.com
• Collaboration with illustrators
• Logos and Trademarks belong
to their owners

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Plain Language and Health Literacy

  • 1. © Romina Marazzato Sparano Plain Language 2.0 & Health Literacy Romina Marazzato Sparano languagecompass
  • 2. © Romina Marazzato Sparano LanguagesRomina Marazzato Sparano
  • 3. © Romina Marazzato Sparano What we’ll cover  Health Literacy definition  Factors that affect HL  Context & statistics about literacy  Plain Language definition & role  Plain Language strategies textuality: building sense, & adequacy: addressing the audience  Some extra points: readability formulas, versioning, design
  • 4. © Romina Marazzato Sparano Health Literacy  Obtain  Process  Understand basic health information & services needed to make appropriate health decisions
  • 5. © Romina Marazzato Sparano Health Literacy  Gain access to  Understand  Use information to promote & maintain good health for themselves, their families, & their communities
  • 6. © Romina Marazzato Sparano Limited Health Literacy Emergency Room Hospitalizatio n Treatment Preventive Care Health Status
  • 7. © Romina Marazzato Sparano Health Communication in Plain Language Skill, Attitudes, & Behavior Skills & Attitudes Policy & Services Misperception & Myths Awareness & Knowledge
  • 8. © Romina Marazzato Sparano Health Literacy World & Health Knowledge General Literacy & Intelligence Social & Communication Skills Providers’ Knowledge & Skills Culture & Beliefs © Romina Marazzato Sparano languagecompass
  • 9. © Romina Marazzato Sparano Education for individuals & professionals to promote:  Health literate citizens  National Health Education Standards  1995 & 2007 – Better implementation: Continuity & Scaffolding  Partnerships for adult instruction & awareness  Storylines, media advocacy, college  Culturally sensitive professionals  National Standards for Culturally and Linguistically Appropriate Services (CLAS) in Health and Health Care
  • 10. © Romina Marazzato Sparano System Changes  Policies / Federal & State Coordination  Plain Writing Act: PLAIN is budget-less! (federal)  §508 – Rehabilitation Act (federal)  Quality Standards / Ethics  Organizational Support Ex: Process Redesign + Signage UK Design Council: Design Challenge to improve patient experience
  • 11. © Romina Marazzato Sparano (Better) Plain Language Writing Audience Purpose Structure Design Wording
  • 12. © Romina Marazzato Sparano In HL Audience ╪ Interlocutors > Versioning? Distressing & Time-sensitive Situations
  • 13. © Romina Marazzato Sparano Disabilities Limited Schooling Second Language Expertise Interests Situational Literacy Audience = Interlocutors
  • 14. © Romina Marazzato Sparano Situational Literacy
  • 15. © Romina Marazzato Sparano From Health Literacy In Clinical Research by the Multi-regional Clinical Trials Center of Brigham and Women's Hospital and Harvard
  • 16. © Romina Marazzato Sparano healthliteracy.bu.edu/all  SAHL–S&E: Short Assessment of Health Lit. Spanish & English 18-item – 403 sample  REALM-SF: Rapid Estimate of Adult Lit. in Medicine Short Form 8-item – 1500 sample Questions on scale validation: vocab knowledge vs. CALS
  • 17. © Romina Marazzato Sparano Health Literacy Levels Below Basic 14% Intermediate 53% Basic 21% Proficient & Above 12% Identify single item Determine single item Make an inference Make multiple inferences
  • 18. © Romina Marazzato Sparano Text Here 20% Identify Determine Calculate Synthesize
  • 19. © Romina Marazzato Sparano 14% Below 53% Intermediate21% Basic 12% Proficient & Above IQ: HL: Health Literacy-IQ Mismatch 2% Disability 68% Normal14% Low 16% Above Normal
  • 20. © Romina Marazzato Sparano What is Intelligence? • IQ Tests & the Bell Curve • Flynn Effect & Reversal © Romina Marazzato Sparano 2019
  • 21. © Romina Marazzato Sparano 14% Below 53% Intermediate21% Basic 12% Proficient Health Literacy-IQ Mismatch IQ: HL:
  • 23. © Romina Marazzato Sparano Japan Finland Netherlands Australia Sweden Norway Flanders (Belgium) Czech Republic Slovak Republic Canada Average UK Denmark Germany United States Austria
  • 24. © Romina Marazzato Sparano Verbatim | Some Inference | Interpretation 50% higher level inference 50% lower level inference OECD Assessment of Adult CompetenciesTOMATO SOUP $1.15 Weight: 3.5 oz Packaged on: 5/17/12 ORANGE JUICE $2.99 Weight: 64 oz Packaged on: 11/8/12 BEEF JERKY $6.29 Weight: 16 oz Packaged on: 2/24/12 PEANUT BUTTER $3.36 Weight: 28 oz Packaged on: 3/24/12
  • 25. © Romina Marazzato Sparano Cater to All Readers (Consider Versions)  25% do not understand Earth orbit  30% astrology = science  50% major bills have a scientific component  Juries evaluate technical evidence  Scientists do not reach one another  73% more citations if in The New York Times  No access to publicly funded research 1 year * OECD, NSF, NCBI, & Pew Research Public Law Science
  • 26. © Romina Marazzato Sparano Plain Language 2.0 LOCATE UNDERSTAND ACT UPON relevant information
  • 27. © Romina Marazzato Sparano Plain Language The idiomatic and gramatical use of language that that most effectively presents ideas to the reader
  • 28. © Romina Marazzato Sparano SP War Corp. 1944 Consumer Affairs 1973 Plain English Campaign 1979 Land Management 1966 plainlanguage.gov 1994 Plain Writing Act 2010 Maury Maverick Kathryn Catania Katherine Spivey Chrissie Martin Maher CuttsJohn O’Hayre Bess Myerson Space + Time + MoneyPL Milestones
  • 29. © Romina Marazzato Sparano Oratory ~70CE Spanish ~1250 English ~1420 Do not simply promote understanding, prevent misunderstanding… And, in matters of style, indulge in elegance, for a writer wins but trivial praise if he gives no more than clarity: his text seems free from weakness rather than full of strength. Quintilian Alphonse X Henry V
  • 30. © Romina Marazzato Sparano ©
  • 31. © Romina Marazzato Sparano ©
  • 32. © Romina Marazzato Sparano Address your readers needs from their point of view  Simple English Wikipedia  Regular Wikipedia  Links to Journal
  • 33. © Romina Marazzato Sparano Acceptance by the Bank of payments in arrears shall not constitute a waiver of or otherwise affect any acceleration of payment hereunder or other right or remedy exercisable hereunder. No failure or delay on the part of the Bank in exercising, and no failure to file or otherwise enforce the Bank’s security interest in or with respect to any Collateral, shall operate as a waiver of any right or remedy hereunder or release any of the undersigned, and the Obligation of the undersigned may be extended or waived by the Bank, any contract or other agreement evidencing or relating to any Obligation or any Collateral may be amended and any Collateral exchanged, surrendered or otherwise dealt with in accordance with any agreement relative thereto, all without affecting the liability of any of the undersigned. You can delay enforcing any of your rights under this note without losing them.
  • 34. © Romina Marazzato Sparano Rhode Island Dep. of Health - Division of Community Health and Equity And MAXIMUS Center for Health Literacy SPANISH “Brexit means Brexit and we’re going to make a Titanic success of it.” British Politician
  • 35. © Romina Marazzato Sparano Dig Deeper: into the inner workings of text
  • 36. © Romina Marazzato Sparano Adequacy + Textuality Wording Grammaticality Connectivity Syntax Word Order Punctuation Cohesion Lexical Grammatical References Recasting Connectors Coherence Subject matter Information Flow Relationships Better Plain Language Writing
  • 37. © Romina Marazzato Sparano Migraine is a disabling condition that affects nerves and blood vessels. Its main symptom is sudden pounding pain usually on one side of the head. Migraine also includes other symptoms like sensitivity… Audience: More than lay term substitutions Migraine is an incapacitating disorder of neurovascular nature, characterized by paroxysmal attacks of unilateral throbbing headache and autonomic nervous system dysfunction, including sensitivity… Migraine is a type of headache that: • causes pounding pain, often on one side of the head, and • includes symptoms like sensitivity to sound, light, or smell.
  • 38. © Romina Marazzato Sparano What are polyps? A colonoscope, the flexible device used to inspect the colon, can grab and snip off polyps if they are relatively small. The timing of follow-up depends on what kind of polyps the doctor finds, how many, and how big they are. What are colon polyps? A polyp is a small clump of cells that forms on the lining of the colon. Most colon polyps are harmless. But over time, some can develop into colon cancer, which is often fatal when found in its later stages. Purpose: scaffold understanding with topic consistency
  • 39. © Romina Marazzato Sparano Topic, Frames & Isotopies Semantic Frames Conceptual Pragmatic
  • 40. © Romina Marazzato Sparano The procedure is actually quite simple. First you arrange items into different groups. Of course one pile may be sufficient depending on how much there is do. If you need to go somewhere else due to a lack of facilities, then this is the next step; otherwise, you are pretty well set. It is important not to overdo things. That is, it is better to do too few things at once than too many. In the short run, this may not seem important but complications can easily arise. A mistake can be expensive as well. At first, the whole procedure will seem complicated. Soon, however, it will become just another facet of life. It is difficult to foresee any end to the necessity for this task in the future, but then, one can never tell. After the procedure is completed, one arranges the materials into different piles again. Eventually they will be used one more and the whole cycle will then have to be repeated. However, that is part of life. What is the passage about?
  • 41. © Romina Marazzato Sparano Wording: Go beyond bulleted advice • Write as if you were speaking? - Planned vs. Extemporaneous - Tight vs. Loose Structure - Productvs. Process • Use active voice? Charrow & Charrow: “passives do not impede comprehension” • Apply readability formulas? Not a clear measure of comprehensibility
  • 42. © Romina Marazzato Sparano Wording: Grammaticality + Connectivity GRAMMAR: Syntax – Word Order – Semantic Roles – Punctuation COHESION: LEXICAL: Repetitions – Definitions – Associations GRAMMATICAL: References – Recasting – Connectors COHERENCE: INFO FLOW: Topic – Frames – Conceptual Links RELATIONSHIPS: Resemblance – Contiguity – Cause & Effect
  • 43. © Romina Marazzato Sparano Medical Text Features – Beyond the Lexicon Colorectal cancer (CRC) is associated with a considerable mortality rate that can be reduced by using different prevention strategies. Among such strategies, endoscopic surveillance of high-risk individuals and population-based endoscopic screening of average- risk individuals enables detection and removal of premalignant lesions (adenomas) as well as presymptomatic detection of cancer. Similarly, implementation of cancer detection tests such as fecal occult blood tests (FOBTs) is another strategy to reduce cancer mortality by early detection of CRC. We hypothesize that personalized management, based on information concerning environmental and lifestyle factors, and phenotype in combination with a variety of genotipic biomarkers will become more important as a strategy to optimize CRC prevention in the future.
  • 44. © Romina Marazzato Sparano colorectal, implementation similarly that can be reduced strategies [exemplification] among such strategies we hypothesize Technical Texts Features complex terms complex syntax discourse markers anaphoric reference text organization metalinguistic vocabulary
  • 45. © Romina Marazzato Sparano Grammaticality: “Miss stakes wee May knot sea” Migraines strike twice as many women as do men. The patient was side-swiped by a car riding a bicycle. We advised the patient to force fluids through his interpreter. Administer 4IU insulin. 4 international units? 41 units?
  • 46. © Romina Marazzato Sparano Scaffolding is breaking up the learning into fragments and then you provide a tool, or structure, with each fragment. Grammar: Parallel Structure Occam’s Razor: SIMPLIFY Scaffolding is breaking up the learning into chunks and then providing a tool, or structure, with each chunk.
  • 47. © Romina Marazzato Sparano Grammar: Garden Paths & Ambiguity The new data convinced her students have the maturity to talk about difficult subjects. her that students have… Object + Subordinate Clause her students NP: possessive + noun convinced… Small Word Matter!
  • 48. © Romina Marazzato Sparano Punctuation: The $5M Comma (?)  Truck drivers sued a dairy for 4 years of due overtime pay  Maine law exempts overtime pay for: The canning, processing, preserving, freezing, drying, marketing, storing, packing for shipment or distribution of: (1) Agricultural produce; (2) Meat and fish products; and (3) Perishable foods. No series comma! No parallel structure, either! -ing form
  • 49. © Romina Marazzato Sparano Commas are a pause for the mind! About Commas Use commas with  Lists  Coordinated clauses  Transition expressions  Parenthetical expressions Non-restrictives, appositives, etc.  Displaced expressions (away from canonical position)  but NEVER between a subject and its verb!
  • 50. © Romina Marazzato Sparano Noun Piling Buried cable technician
  • 51. © Romina Marazzato Sparano Let’s Practice: Ambiguity & Noun Piling Cell/Oxygen Research British-American Trio Medicine Nobel Prize Winner British-American Trio Awarded Nobel Prize in Medicine for Cell/Oxygen Research It plays a more important role in learning content delivery. It plays a more important role in the delivery of learning content. …delivering educational content.
  • 52. © Romina Marazzato Sparano Cohesion: strategies to shorten & link sentences Several techniques are available for removal of large colorectal polyps found in the early stages which are oncologically and technically successful for most such polyps and remain one of the most effective interventions for colorectal cancer prevention. Several techniques are available to remove large colorectal polyps early. Early removal of these polyps remains one of the most effective interventions for colorectal cancer prevention.
  • 53. © Romina Marazzato Sparano = Cohesion ≠ Adequacy Several techniques are available to remove large colorectal polyps early. Early removal of these polyps remains one of the most effective interventions for colorectal cancer prevention. Doctors use different techniques to remove large polyps (lumps or growths) from the bowel early. Taking away these polyps early is one of the best ways to prevent colon cancer (cancer in the bowel).
  • 54. © Romina Marazzato Sparano Nominalization is not Evil! PRODUCT PROCESS The jaw replacement helped her regain her confidence. The surgeons replace the diseased jaw with a titanium plate. 1. Abstraction: density agent + action 2. Rhetorical organization: process vs product
  • 55. © Romina Marazzato Sparano Nominalizations 3. Cohesive device: information flow Most importantly I strongly believe in the mission, vision and direction of this project. These beliefs inspire me to take on this new challenge.... LEXICAL pronouns, repetitions synonyms, hyponyms, hypernyms definitions, explanations word families & topical lexicons GRAMMATICAL ellipsis references & substitutions recasting: fronting, passive, cleft discourse markers & punctuation TAM system
  • 56. © Romina Marazzato Sparano Recasting Nominalization  Reverse abstraction to habitual verbs  Use a sensory experience (participant + process)  Find an alternative cohesion strategy shared knowledge and understanding all be on the same page improvement / postponement bring up, put off bring up, put off
  • 57. © Romina Marazzato Sparano Clinical Trial Text for Patients – BEFORE Participants who were assigned to a study treatment group will make 10 visits over a 7-week period. These visits will be paid for by the study. Regardless of group assignment, all participants will be contacted at 2, 6, and 12 months after the start of the study for about a 20-minute telephone interview.
  • 58. © Romina Marazzato Sparano Clinical Trial Text for Patients – 1ST DRAFT If you are in a study treatment group, you will make 10 visits over a 7-week period. The study will pay for these visits. No matter which group you are in, we will call you for three phone surveys that will last about 20 minutes each. These surveys will take place 2, 6, and 12 months after you join the study.
  • 59. © Romina Marazzato Sparano Clinical Trial Text for Patients – AFTER You will answer three phone surveys at 2, 6, and 12 months after you join the study. These surveys will last about 20 minutes each. If you are in a study treatment group, you will also make 10 office visits over a period of 7 weeks. These visits will be free of charge.
  • 60. © Romina Marazzato Sparano Theme Rheme Participants who were assigned to a study treatment group will make 7 visits over a 7-week period. These visits will be paid for by the study. Regardless of group assignment, all participants will be contacted at 2, 6, and 12 months after the start of the study for about a 20-minute telephone interview Coherence: Flow & Hierarchy
  • 61. © Romina Marazzato Sparano Theme Rheme If you are in a study treatment group you will make 7 visits over a 7-week period. The study will pay for these visits. No matter which group you are in, we will call you at 2, 6, and 12 months after the start of the study for about a 20-minute telephone interview = Issues ≠ Adequacy
  • 62. © Romina Marazzato Sparano Theme Rheme You will answer three phone surveys at 2, 6, and 12 months after you join the study. These surveys will last about 20 minutes each. If you are in a study treatment group, you will also make office visits once a week for 7 weeks. These visits will be free of charge. Coherence + Adequacy (lay version)
  • 63. © Romina Marazzato Sparano Before & After: Streamlining the message when patients actions when cost all survey months time some visit weeks money (free)
  • 64. © Romina Marazzato Sparano Theme Rheme All participants answer three phone surveys at 2, 6, and 12 months after joining the study. These surveys last about 20 minutes each. Participants in a treatment group also make office visits once a week for 7 weeks. These visits are free of charge to participants. = Coherence ≠ Adequacy (technical version)
  • 65. © Romina Marazzato Sparano Abstract: Reassessing Hyterectomy The surgery performed to remove the uterus is called a hysterectomy. The removal of the uterus relieves symptoms caused by medical conditions affecting this organ. It is usually only considered if other treatments aren’t effective enough. It is a major surgical procedure that is associated with risks and side effects. Hysterectomy may be necessary to remove the tumor if a woman has uterine or ovarian cancer.
  • 66. © Romina Marazzato Sparano Theme Rheme The surgery performed to remove the uterus is called a hysterectomy The removal of the uterus relieves symptoms caused by medical conditions affecting this organ. So it [hysterectomy] is usually only considered if other treatments aren’t effective enough. It [hysterectomy] Hysterectomy is a major surgical procedure that is associated with risks and side effects may be necessary in order to remove the tumor if a woman has uterine or … cancer cancer © Romina Marazzato Sparano 2019
  • 67. © Romina Marazzato Sparano Abstract A hysterectomy is a surgery to remove the uterus. The removal of the uterus relieves symptoms caused by medical conditions affecting this organ. If a woman has uterine or ovarian cancer, for instance, a hysterectomy may be necessary in order to remove the tumor. But it is a major surgical procedure that is associated with risks and side effects. Because of these risks, it is usually only considered if other treatments aren’t effective enough.
  • 68. © Romina Marazzato Sparano Theme Rheme A hysterectomy is a surgery to remove the uterus. The removal of the uterus relieves symptoms caused by medical conditions affecting this organ. If a woman has uterine… cancer hysterectomy may be necessary in order order to remove the tumor. But it Because of these risks, it is a major surgical procedure that is associated with risks and side effects. is usually only considered if other treatments aren’t effective enough. © Romina Marazzato Sparano 2019
  • 69. © Romina Marazzato Sparano Recasting: Syntactic Redistribution Rearrange structure Preserve semantic roles Old before new References Bad neighbors Memory Effect Subject ≠ Agent ≠ Topic My keys disappeared. © Romina Marazzato Sparano 2019
  • 70. © Romina Marazzato Sparano Recasting with Passive Voice: shedding light on the object The baby, Jack tells his wife, had been brought to the hospital by a fireman, who had been dissuaded from adopting the child himself. When agent is Unknown Ir/Relevant to object view (Process vs. Product) Heavy and new!
  • 71. © Romina Marazzato Sparano Sequence Timeline Cause Effect Question Answer Hierarchy Message Structure
  • 72. © Romina Marazzato Sparano Design & Data Visualization  Credit: Wellcome Collection
  • 73. © Romina Marazzato Sparano Design 0 10000 20000 30000 40000 Most Populated Cities in M 38000 28000 25700 22700 22000 21700 21500 20000 19700 18700 Most Populated Cities in M in M City Population in M Tokyo 38,000 Delhi 28,000 Shanghai 25,700 Beijing 22,700 Mumbai 22,000 Sao Paulo 21,700 Mexico City 21,500 Cairo 20,000 Dakha 19,700 New York 18,700
  • 74. © Romina Marazzato Sparano Design
  • 75. © Romina Marazzato Sparano Trebecular Bone Trebeculae: 3D Lattice • Structural support and flexibility • Lighter than compact bone Inspired in a presentation by Dr. Genevieve Brown
  • 76. © Romina Marazzato Sparano Show, Don’t Tell Work Education Eating Self-care Sleeping Phone Calls Religion Sport s Leisure Shopping Prof. Svc. Non- household Household Homework Misc. Volunteering Traveling 1,000 people average day
  • 77. © Romina Marazzato Sparano Accessibility  Section 508 of the Rehabilitation Act: provide ICT accessible to people with disabilities Do not take a bath
  • 79. © Romina Marazzato Sparano Scaffolding New Attitudes Hey guys, I don’t even feel any rain! Why are you doing this again? Just put down the stupid umbrellas—they’re bad for your arms anyway. Immunization Campaign & Herd Immunity
  • 80. © Romina Marazzato Sparano Use of Metaphor  Conceptual metaphors  Structure most basic understanding of experience  Shape perceptions & actions without us noticing  Metaphors We Live By - Lakoff & Johnson • Time is Money: spend/save time • Status has height: lofty/lowly position  Teaching thinking by analogy • Explain how MRI works
  • 81. © Romina Marazzato Sparano Amenable mortality: preventable by timely and effective health care inside and outside of hospitals. Caution about Simplification Inefficacy of the Health Care System
  • 82. © Romina Marazzato Sparano Summary 1. Health Literacy encompasses: • Individual Skills • Providers’ Skills • System Features • Plain Language Use 2. Room for improvement in every dimension 3. In Plain Language > Strategies for a deeper dive into: • Textuality: grammar, structure, cohesion/coherence, design • Adequacy: suitability to the audience
  • 83. © Romina Marazzato Sparano Wording Audience Purpose Structure Design Dig Deeper! Better Plain Language Writing Review for and adequacy
  • 84. © Romina Marazzato Sparano Plain Language is Also for Health Experts!
  • 85. © Romina Marazzato Sparano Readability Formulas Flesch Reading Ease Flesch-Kincaid Grade Level SMOG Fry’s Readability Graph New Dale-Chall Robert Gunning’s Fog Index Fry’s Readability Graph FORCAST Spache
  • 86. © Romina Marazzato Sparano SMOG Formula Count polysyllables in 30 sentences  10 from START  10 from MIDDLE  10 from END ~ Grade = #polysyllables√ + 3 Grade = #polysyllables #sentences + 3.1291√30 x1.0430
  • 87. © Romina Marazzato Sparano Dale-Chall Raw Score = 0.1579 x PDW + 0.0496 x ASL PDW: Percentage of Difficult Words ASL: Average Sentence Length in Words If PDW > 5%, use Adjusted Score (> 4th gr) Adjusted Score = Raw Score + 3.6365
  • 88. © Romina Marazzato Sparano Flesch’s Reading Ease RE = (hard) 0-100 (easy) ( )total words total sentences 1.015 x ( )total syllables total words 206.835 - - 84.6 x ( )total words total sentences 0.39 x ( )total syllables total words + 11.8 - 15.59 Flesch-Kinciad Grade Level
  • 89. © Romina Marazzato Sparano Don’t Let Readability Formulas Fool You! Before scoring text:  Strip formatting  Watch out for poor manipulation  Check grammaticality  Ensure cohesion and coherence of the content
  • 90. © Romina Marazzato Sparano Scoring Text We need to talk about dealing with distractions and, um… interruptions when we’re trying to work. Yeah, I mean, it’s really important. And I think, nowadays, you know, for people with families. Transcript Great Readability Scores?!
  • 91. © Romina Marazzato Sparano Scoring Text The Virginia opossum is alone. In North America like kangaroos. Female opossums have babies. They use a pouch like kangaroos. They have thumbs and tail. They can grasp easily. They use them to help themselves climb. While hairless they are cute. They have a pointy snout and look like rats, opossums are not even in the same family as rodents.
  • 92. © Romina Marazzato Sparano These rescission risks for an investor are more prevalent during swift upward price movement periods. The market conditions which favor speculator activity are precisely the same conditions that cause a seller of a property to demand their home be returned. A profit has come about within two years which is now sought by both the investor, who speculated and gained by a flip, and the seller, who believes they were ripped off of the profit taken by the investor.. Realty Publications
  • 95. © Romina Marazzato Sparano Investor These rescission risks for an investor are more prevalent during swift upward price movement periods. The market conditions which favor speculator activity are precisely the same conditions that cause a seller of a property to demand their home be returned. Seller A profit has come about within two years which is now sought by both the investor, who speculated and gained by a flip, and the seller, who believes they were ripped off of the profit taken by the investor.
  • 96. © Romina Marazzato Sparano Readability Formulas Word Length Sentence Length Need Proper Text Manipulation  Grammaticality & Connectivity?  Structure & Design?  Meaningful & Interesting?
  • 97. © Romina Marazzato Sparano Bonus Practice: Polycytemia vera  Panhyperplastic, malignant, and neoplastic marrow disorder. Spleen
  • 98. © Romina Marazzato Sparano Not about jargon! With disease progression splenomegaly occurred in most cases and the bone marrow is showing increasing signs of fibrosis, which causes extramedullary erythropoiesis during the disease course. As the disease progresses, the size of spleen increased in most cases. The bone marrow shows more and more scar tissue. The body produces red blood cells outside of the bone marrow.
  • 99. © Romina Marazzato Sparano Normal Erythropoiesis Extramedullary Erythropoiesis
  • 100. © Romina Marazzato Sparano Plain Language for Experts With disease progression splenomegaly occurred in most cases and the bone marrow is showing increasing signs of fibrosis, which causes extra medullary erythropoiesis during the disease course. In most cases, the bone marrow undergoes varying degrees of fibrosis, forcing the spleen into extra medullary erythropoiesis and resulting in splenomegaly.
  • 101. © Romina Marazzato Sparano Plain Language for Lay Audiences In most cases, the bone marrow undergoes varying degrees of fibrosis, eventually forcing the spleen into extra medullary erythropoiesis and resulting in splenomegaly. In most cases, scar tissue takes over the bone marrow. Normally, bone marrow produces blood cells. But the scarred bone marrow cannot produce blood cells. Because of this, the spleen has to work harder to produce red blood cells outside of the bone marrow. This causes the spleen to enlarge.
  • 102. © Romina Marazzato Sparano Techniques  Align verb tenses for consistent time reference  Use parallel structure for equivalent ideas  Repair and express logical relations Rearrange sequential order Indicate similarity and contrast Express cause/effect  Adapt register and terminology different audiences
  • 103. © Romina Marazzato Sparano Plain Language for Experts: Tighten your Wording  Smoking Cessation Programs Comparative Study  Comparative Study on Smoking Cessation Programs
  • 104. © Romina Marazzato Sparano Smoking Cessation Text: BEFORE The requirement participants must meet will change each day but if they keep meeting the criterion, the payment escalated by 10 pesos (equivalent to $.50). If participants ask how to meet the specified condition, they were advised that they will definitely meet the criterion if they stop smoking completely; nevertheless, they may still meet the criterion by cutting down on their smoking. Answering any of the participant's questions, the scheduling of morning and afternoon appointments proceeds for each of 5 consecutive days, regardless of workdays or weekend days, in the next week.
  • 105. © Romina Marazzato Sparano Smoking Cessation Text: Target AFTER The requirement that participants must meet changes every day, but, if they keep meeting the requirement, participants receive an additional 10 pesos (equivalent to $.50). If participants ask how to meet the requirement, they are advised that: • they will meet the requirement if they stop smoking completely, and that • they may meet the requirement if they reduce their smoking. After answering questions, the research assistant proceeds to schedule morning and afternoon appointments for each participant on 5 consecutive days during the following week.
  • 106. © Romina Marazzato Sparano Smoking Cessation Text: Target AFTER – LAY AUDIENCE The goal for you will change every day, but, if you meet each new goal, you will receive an additional 50 cents. How to meet your goal • stop smoking completely, or • reduce your smoking. But know that this may not be enough to meet your goal. Questions? Ask our research assistant! They will be happy to answer. …
  • 107. © Romina Marazzato Sparano Techniques  Use consistent terminology  Abide by collocations: “someone meets a requirement“  Match verb tenses for logical time reference  Create lists for structural clarity  Use parallel structure for equivalent ideas  Add headings to guide the reader  Apply economy of words: include only relevant content Grice's Maxims: quantity, quality, relevance, manner
  • 108. © Romina Marazzato Sparano Health Literacy World & Health Knowledge General Literacy & Intelligence Social & Communication Skills Providers’ Knowledge & Skills Culture & Beliefs © Romina Marazzato Sparano languagecompass
  • 110. © Romina Marazzato Sparano THANK YOU!!! Follow me on @LanguageCompass Image Attributions • Used for education • For-fee accounts at 123rf.com & Clipart.com • Collaboration with illustrators • Logos and Trademarks belong to their owners

Editor's Notes

  1. Health Literacy is defined as an individual’s ability to obtain, process, and understand information and services needed to make appropriate health decisions. This is the current definition under Healthy People 2020, a decennial federal initiative in the US based on previous Surgeon General’s Reports to promote a healthier America. This definition stems primarily from the report Health Literacy: A Prescription to End Confusion by the National Academy of Medicine (formerly the Institute of Medicine), which examines the body of knowledge in the field of health literacy and recommends actions to promote health literacy. Planning for Healthy People 2030, the Federal Registry has requested comments for an updated health literacy definition to reflect the evolution of the concept. Success in health communication no longer hinges solely upon an individual’s ability, but also on the accessibility, clarity, and actionability of health information and health services.
  2. A wider understanding of health literacy sees it as a multidimensional construct that enables successful health communication. Health literacy is, then, the set of world and health knowledge, general intelligence and literacy, and social and communication skills that allow an individual to seek, obtain, understand, assess, and apply health information in daily life and health care contexts. This ability is mediated by: the individual’s culture and beliefs, including education and language, the knowledge, intelligence, literacy, communication skills, culture, and beliefs of health care and health information providers, the demands and complexities of the healthcare system, the use of plain language in communication. For successful health communication, health care and health information providers have a responsibility to provide health information in plain language, that is, in coherent, cohesive, adequate, and accessible language. Operationalizing this definition would call for separate assessments for: -individual health literacy -provider health communication aptitude -system accessibility -plain language use in communications/materials  
  3. The need for better health communication is made clear by statistics from OECD-style surveys to assess adult competencies. A subset of questions in a general literacy assessment designed to measure health literacy in the US show that over 90 million adults, amounting to 1/3 of the adult population, have difficulty understanding and using health information beyond a basic level.
  4. Comparing the potential for normal performance in terms of intelligence and the health literacy numbers shows us that we have room for improvement. As you may know, intelligence refers to the ability to classify the world, use logic on abstractions, and consider the hypothetical in order to solve problems. Intelligence, like any natural phenomena, follows a Gaussian distribution that takes the shape of a bell curve. The crown and shoulders of the curve represent most people’s intelligence and the tapering ends represent below and above normal intelligence. Even when we take into account the reversal of the Flynn, IQ scores still show room for improvement of health literacy. The Flynn Effect refers to the increase in IQ scores throughout the 20th century, while formal education, nutrition, spread of scientific thinking, and a modern life changed how we perceived the world. In the last 4 decades, developed countries have seen a plateauing and even a decrease in scores. Perhaps the return to a concrete, individualistic, and utilitarian mentality, has affected our ability to think logically.
  5. Comparing the potential for normal performance in terms of intelligence and the health literacy numbers shows us that we have room for improvement. As you may know, intelligence refers to the ability to classify the world, use logic on abstractions, and consider the hypothetical in order to solve problems. Intelligence, like any natural phenomena, follows a Gaussian distribution that takes the shape of a bell curve. The crown and shoulders of the curve represent most people’s intelligence and the tapering ends represent below and above normal intelligence. Even when we take into account the reversal of the Flynn, IQ scores still show room for improvement of health literacy. The Flynn Effect refers to the increase in IQ scores throughout the 20th century, while formal education, nutrition, spread of scientific thinking, and a modern life changed how we perceived the world. In the last 4 decades, developed countries have seen a plateauing and even a decrease in scores. Perhaps the return to a concrete, individualistic, and utilitarian mentality, has affected our ability to think logically.
  6. How can plain language contribute to health literacy? By learning from its own mistakes. When trying to convert a wall of text into an accessible piece, plain language writers often focus on design and jargon, and miss questioning the rhetorical aspects of text. Zooming into the details can help us streamline communication. I often find that shortened sentences no longer express logical connections or that jargon is mechanically replaced by lay terms without attention to the flow of information, for instance. So, my call today is to dig deeper into the inner workings of text to produce for better communication.
  7. Digging deeper in plain language writing requires reassessing how we approach drafting. It is not just a matter of familiar words or simple syntax, but a matter of proper grammar both at the sentence and at the whole text level. I’m assuming some familiarity with grammar and syntax. But, what does it mean to have proper grammar at the whole text level? This is a feature that some authors call textuality. Textuality ensures that text is more than a collection of random sentences through cohesion and coherence. Cohesion is the visible unity of text achieved by reiterating concepts (through synonyms or repetitions, for instance), or using grammatical strategies to link sentences. Grammatical strategies for cohesion include using references (such as pronouns and nominalizations), recasting sentences to change syntactic function or emphasis without changing the basic meaning, and expressing relationships with connectors. Coherence is the conceptual unity of text achieved by sticking to the subject matter, ensuring adequate information flow, and making sure logical and pragmatic relation ships expressed or inferable are true to the message. Adapting text to different audiences is a matter of adequacy. In health literacy writing, we have put so much emphasis on adequacy that we have lost sight of textuality. Several studies show that patients who initially welcome first plain language versions (thanks to design and de-jargoning) are in fact unable to understand and apply the information they read due to lack of textuality.
  8. Plain Language 2.0—as I like to call it—requires much more than lay term substitutions to be a conduit for successful communication. The simple substitution of jargon by daily words does not guarantee coherence of content, proper structuring of the message, and accessible design. In “bullet point” reviews, design and jargon often take precedence to the detriment of grammaticality and connectivity. I see often errors in these categories dismissed by “but you know what I meant” comments, as if they appeared in ephemeral text messages. However, as writers, we must attend to the nitty-gritty details. Starting with grammar, we must make sure syntax, word order, and punctuation are applied to properly map the events and logical relationships actually meant in the message. We must, then, consider how cohesive strategies are used to support the coherence of text. Are we using lexical chains properly to support text unity (isotopy)? Do references (a pronoun, a relative clause, etc.) actually refer to the proper antecedents? Have we used the syntax of sentences to support text flow, that is, create a rhythm of increasing information that the reader can follow? Are the logical and pragmatic relationships clear at a conceptual level and marked in the text? (through connectors, proper subordination and use of complements, etc.)
  9. My plea for you and for plain language writers today is to break free from “bulleted advice” that, in trying to simplify explanations, has missed its mark. Relaxed writing does not read like speech. Speech is extemporaneous, has a loose structure, and is full of false starts, fillers, restatements, changes of topic, unspoken content, and complicity with the interlocutor. Speech a process synchronous with its own revision. In contrast, written text is a product, asynchronous with revision. Readers have—and want—no access to the drafts that gave rise to the text. They expect content that has been planned and structured so that information is concise and direct, an approach often avoided in speech. Among different “bullet point” tips, quick plain language guides warn against the passive voice. Several studies since Charrow and Charrow1 in 1979 have shown that passives don’t hinder understanding when used appropriately, as they are part of common language. This is confirmed once and again in popular music, such as Elvis’ All Shook Up, Eurythmics’ Sweet dreams are made of this by, ABBA’s Chiquitita “enchained by [her] own sorrow.” Another set of misused tools includes readability formulas. Although they indicate the presence of lengthy sentences, they do not measure grammaticality, semantic coherence, contextual adequacy, or accessible design, all of which affect comprehension. As early as in Charrow and Charrow’s research, a negative correlation between readability score and reader performance was found possible. 1Charrow, R. and Charrow, V. (1979) “Making Legal Language Understandable: A Psycholinguistic Study of Jury Instructions” In Columbia Law Review. Vol. 79, No. 7 (Nov., 1979), pp. 1306-1374.
  10. How do we dig deeper in grammar? By attending to the details of syntax, word order, and punctuation. To prevent misunderstandings, we may need to shift a phrase, insert or erase a word, rethink our punctuation. In a discharge situation, a caregiver was given instructions to administer 4 international units of insulin. The care giver misinterpreted the order as 41 units. As a result, the patient became seriously hypoglycemic. Many times, medication order errors are fatal. (insulin accounts for 13% of all medication errors according to research published by the American Diabetes Association.)
  11. Beyond the sentence level, cohesion strategies can help us break up a complex thought to give the reader time to process. In this example, rather than rushing into a lay version, it helps to apply plain language to the technical version first. We can use cohesion strategies to create better flow. Here, we can have split a complex thought by stating one concept per sentence. In the first sentence, we turn a noun into a verb and use the nominalization in the second sentence. This noun picks up information from the previous predicate linking the two sentences and creating a pause for processing.
  12. Then, we can move onto drafting a lay version by adapting the same strategies we just used. In the lay version, we can substitute the nominalization with the more familiar gerund form. We can also tackle jargon with explanations of technical terms (to help patients look up additional information) and substitutions with lay term, such as a familiar hypernym (ways) instead of a more technical one (interventions.)
  13. To tackle coherence, we need to look into the information we are presenting and how we are presenting it. In this example from a clinical study, the technical version provides information about a subset first and the whole set later and uses a fairly loose flow.
  14. If we rush into the lay version, we risk reproducing the same issues and introducing new ones, even as we tackle adequacy. Replacing jargon and avoiding the passive voice here actually lead to an even looser structure and no gain in information flow. If I was patient not assigned to a treatment group, I’d stop reading after the first sentence, right before the information pertaining to me as a general participant is introduced.
  15. We need to tackle the textuality of this passage before its adequacy to make it readable and accessible. If we switch the order, we can start from the general and go into the particular. In a lay version, this means we can address and attract all participants as “you” without restrictions. We can also create a rhythm of parallel structure between the information about all participants and the information about some of the participants (namely, the treatment group): we have one sentence talking about the activity and another sentence talking about the cost of the activity.
  16. This is a visual representation of the before and after versions when tackling textuality. In the first version, we have multiple entities with a haphazard appearance into the text. In the second, we streamline the flow of information from the general to the specific, creating a parallel between activities (survey and visits) and cost (time and money.)
  17. And we can use the same structure with technical terms to create a perfectly clear technical version.
  18. We all know the benefits of using plain language in health communication. My intention today, in the context of a multidimensional definition of health literacy, is to inspire you to see textuality as a key factor in readability and comprehensibility.
  19. I hope I have inspired in you the urgent need to review health communication materials for textuality and adequacy.
  20. A wider understanding of health literacy sees it as a multidimensional construct that enables successful health communication. Health literacy is, then, the set of world and health knowledge, general intelligence and literacy, and social and communication skills that allow an individual to seek, obtain, understand, assess, and apply health information in daily life and health care contexts. This ability is mediated by: the individual’s culture and beliefs, including education and language, the knowledge, intelligence, literacy, communication skills, culture, and beliefs of health care and health information providers, the demands and complexities of the healthcare system, the use of plain language in communication. For successful health communication, health care and health information providers have a responsibility to provide health information in plain language, that is, in coherent, cohesive, adequate, and accessible language. Operationalizing this definition would call for separate assessments for: -individual health literacy -provider health communication aptitude -system accessibility -plain language use in communications/materials