This document summarizes Regina Greer-Smith's role and experience as a PCORI Ambassador. As a PCORI Ambassador, she is a volunteer partner aligned with PCORI's principles of patient-centered research, but does not speak on behalf of PCORI. Her experience includes participating in various PCORI workshops and panels to promote engagement of underrepresented communities in medical research. She aims to help communities of color have a voice in selecting and disseminating the results of research important to them.

1. PCORI Ambassador
Regina Greer-Smith MPH FACHE
Member- PCORI Advisory Panel on Patient Engagement
PCORI Ambassadors are volunteers, not members or representatives or agents of PCORI.
They do not speak on behalf of PCORI but are partners aligned with the principles of PCORI.
Opinions expressed by Ambassadors are their own and not necessarily those of PCORI
Patient-Centered Outcomes Research Institute
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2. OVERVIEW
• About the Patient-Centered Outcomes Research
Institute (PCORI)
• My experience as a Patient/Caregiver Advocate and
Board-Certified Healthcare Professional and what
inspires my involvement with PCORI
• Getting involved with PCORI has provided me with
the mission to share the opportunity for communities
of color to become engaged in the selection of topics
and questions that are important to them, then
develop, participate and disseminate the findings.
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3. PCORI 101
•
An independent non-profit research
organization authorized by Congress as part
of the 2010 Patient Protection and
Affordable Care Act (PPACA).
•
Committed to continuously seeking input
from patients and a broad range of
stakeholders to guide our work.
•
Mission: The Patient-Centered Outcomes
Research Institute (PCORI) helps people
make informed healthcare decisions, and
improves healthcare delivery and outcomes,
by producing and promoting high integrity,
evidence-based information that comes from
research guided by patients, caregivers and
the broader healthcare community.
Video: PCORI’s First Patient
Engagement WorkshopOctober 26-28, 2012
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4. PATIENT-CENTERED
OUTCOMES RESEARCH DEFINED
Patient-centered outcomes research (PCOR) helps people and
their caregivers communicate and make informed health care
decisions, allowing their voices to be heard in assessing the
value of health care options.
“Given my personal
characteristics,
conditions and
preferences, what
should I expect will
happen to me?”
“What are my options
and what are the
potential benefits and
harms of those
options?”
“What can I do to
improve the outcomes
that are most
important to me?”
“How can clinicians
and the care delivery
systems they work in
help me make the best
decisions about my
health and
healthcare?”
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5. MY EXPERIENCE WITH PCORI
PCORI- SPONSORED EVENTS
• National Workshop to Advance
Use of Electronic Data: July 23, 2012 Facilitating creation of
a National Data Infrastructure
to support PCOR Palo alto, CA
• As a member of the Working
Group for Transforming PatientCentered Research: Building
Partnerships and Promising
Models October 26-28, 2012,
in Washington, DC
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6. MY EXPERIENCE WITH PCORI
PCORI-SPONSORED EVENTS
• The Power of Partnerships
In Research: Improving
Healthcare Outcomes In
Rural Communities, Wichita,
KS, March 9, 2013
• As a member of the PCORIs
Advisory Panel on Patient
Engagement April, 2013
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7. MY EXPERIENCE WITH PCORI
•
•
COMMUNITY ACTIVITIES, OUTREACH, & ENGAGEMENT
Received an Honorable Mention in The
PCORI Challenge for developing the
S.T.A.R. Initiative – Strategically targeting
Appropriate Researchers, an innovative
patient/researcher matching program
focused on communities of color
engagement using mobile apps.
Partnered in several PCORI PFAs ,
presentations & workshops with
researchers, patients, and numerous
stakeholders
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8. GET INVOLVED AT WWW.PCORI.ORG
Learn about PCORI’s research
portfolio...some 200 projects
totaling more than $300 million –
and counting!
Apply to be an Advisory Panel
member?
Build a multi-stakeholder
partnership and apply for an
Engagement Award.
Attend a PCORI sponsored regional
event, webinar and/or training.
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