To help determine what constitutes P/FCC for young adults with hearing loss and their family members.

1. Patient- and Family-Centred Care for Young Adults
with Hearing Loss and Their Family Members
David Allen1,2, Nerina Scarinci1,2, Louise Hickson1,2, and Alison King3
1School of Health and Rehabilitation Sciences, The University of Queensland
2HEARing Cooperative Research Centre, Melbourne, Australia
3Australian Hearing, New South Wales, Australia
Introduction
• More than 7,000 young Australians aged
16–25 are currently accessing rehabilitative
services for hearing loss.1
• Patient- and family-centred care (P/FCC)
improves efficiency, effectiveness, and
acceptability of care for people with chronic
diseases.2
• It is not known what constitutes P/FCC for
young adults with hearing loss and their family
members.
Aims & Methods
1. To identify the nature of P/FCC, and its
impact on the effectiveness and
acceptability of care, for young adults with
chronic diseases  systematic review
2. To gather descriptive information on the
characteristics of young adults with hearing
loss and their family members  online
survey
3. To describe what constitutes P/FCC among
young adults with hearing loss and their
families  qualitative interview study
creating sound value www.hearingcrc.org
Systematic Review
Two papers currently in production:
• one addressing qualitative literature on the
nature of P/FCC,
• one addressing quantitative literature on
the impacts of P/FCC.
Preliminary qualitative results show
similarities with existing models of patient-
and family-centred care, particularly the
importance of patient-practitioner
relationships (see Figure 3 below).
Future Directions
• Online survey to young adult Australians
with hearing loss asking about
demographics, educational and
employment situations, family structure,
life satisfaction, hearing loss, and
experience of hearing rehabilitation.
• Qualitative interviews of young people and
family members, regarding experiences of
and preferences for audiological
rehabilitation. Will use a grounded
theoretic analysis3 to generate a theory of
PFCC in this population.
References
1. Australian Hearing. (2016). Demographic Details of young Australians aged less than 26 years with a
hearing impairment, who have been fitted with a hearing aid or cochlear implant at 31 December 2014
Retrieved from https://www.hearing.com.au/wp-content/uploads/2015/01/Demographics-of-aided-young-
Australians-under-26-years-of-age-Dec-2014.pdf
2. Hudon, C., Fortin, M., Haggerty, J., Loignon, C., Lambert, M., & Poitras, M. E. (2012). Patient-centered care
in chronic disease management: a thematic analysis of the literature in family medicine. Patient Educ Couns,
88(2), 170-176. doi: 10.1016/j.pec.2012.01.009
3. Charmaz, K. (2006). Constructing Grounded Theory: A Practical Guide through Qualitative Analysis. London:
SAGE Publications.
4. Stewart, M., Brown, J. B., Weston, W. W., McWhinney, I. R., McWilliam, C. L., & Freeman, T. R. (2014).
Patient-centered medicine: transforming the clinical method (3 ed.). Abingdon: Radcliffe Medical Press.
Patient-
Centred
Care
Illness
Experience
The whole
person
Common
Ground
Patient-
Clinician
Relationship
Figure 2: Four interactive components of patient-centred care,
developed by Stewart and colleagues by analysing consultations
in family practice.4
Patient-
and
Family-
Centred
Care
Trust
Equal
Relationships
Addressing
Needs
Empowering
Young
People
The Place of
Family
Figure 3: Results of qualitative systematic review.
Facets of patient- and family-centred care for
16-25 year-old people living with chronic disease and their
family members.
Figure 1: Flow of articles through systematic review process