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Challenges and Solutions to Collecting
Data
Going Beyond The
Personal Story
Data collection is usually
expensive, takes a long
time, is generally a once-a
year event
● Involve your community
● Use simple, fast, convenient tools
● Ask culturally appropriate questions
● Give back the stories and data
Collecting Data and Stories
Santa Clara Low-income Latino Voices
Health Project
Project Objective: This project aims to better
understand the attitudes and beliefs about what
causes diabetes and prediabetes. We also seek
to uncover which channels encourage people to
take action to improve their health.
Target Population: People who live or work in
Santa Clara County who identify as
Hispanic/Latino
Sample Survey Questions:
What do you think causes diabetes?
Who motivates you to exercise more?
Adriana, a Mexican-American mother, lives in
San Jose.
My dad is diabetic. All my aunties and uncles from my dad’s
side (9 siblings) are diabetic.
My mom also just found out she is pre-diabetic. We believe
my mom got diabetes due to stress. She is constantly working
and paying bills.
Fresh food from local farms is expensive.
Most people I know work two jobs and don’t have the time to
cook meals or shop for fresh food.
Adriana’s Story
My dad completely changed his diet when he was diagnosed
with diabetes. He has limited intake of meat and only eats raw
vegetables.
Considering I’m a daughter of someone who has a history of
diabetes in my family—I like to exercise. I buy fresh produce
and don’t eat take out. My breakfast consists of oatmeal with
fresh fruit, vegetables for lunch and dinner. I am also learning
about indigenous foods and how that has helped maintain
people’s health for generations.
I also don’t drink things with sugar—only water, hibiscus tea,
Horchata, or homemade lemonade.
I like to get information through texting or video. Something
quick, visual, and accessible on-the-go.
Sure, I’d be willing try tasty recipes!
Hopeful Insights
Preliminary Data:
Latinos in Santa Clara County
Where do you live?
Preliminary Data:
Latinos & Information Preferences
How do you like getting health information?
● Involve community
● Research that is simple and
convenient to collect; fast results
● Ask culturally appropriate
questions
● Give back the data
Collecting Local Data
Collect data: Get insights and data
your community
Pay people fairly for their time: Text
e-Gift cards
Follow-up by text
Provide resources: Send phone
number to call, a video, or a weblink.
Simple and Suitable Tools
Be A Witness and Amplifier
of Voices
1) Write a 4 sentence pitch about your
organization that includes a story and a data
point.
(If you don’t have a story or a data point, think
about how you would get a story or get data) 10
minutes
2) Pitch to your group and get feedback 30min
Break-Out Group
Thank you!
@thekatecap
kate@greatnonprofits.org
kate@citizeninsights.org
Kate Capossela
How satisfied are Pittsburgh area
residents with services in their
neighborhood?
Collecting Data in Low-
Income Neighborhoods
Preliminary Data:
Women Use the Bus to Get To Work
How do you usually get to work?
Preliminary Data:
People are Searching For Jobs
Are you looking for a new job or have you in the past 6 months?
Preliminary Data:
Parents Are Satisfied With Public Schools
How satisfied are you with the school your child attends?
Community-Centered Program Design
Feedback
Community Data Collection
Data Analysis & Visualization
Sharing & Publishing Results
Our Methodology
Back up
Slides
What if you let your biggest
fans do your marketing
for you?
Image by webmuggle.co.uk
Emotion Logicover
$$ Big Marketing $$
Vehicle for Stories -
GreatNonprofits
Inspire and inform prospective donors and
volunteers – a platform for storytelling
– Differentiate between nonprofits beyond the
numbers
– Find nonprofits trusted by others
– Feel good about giving
– Help out further by sharing their experience
Enable great nonprofits to harness their most
authentic, effective advertising:
Stories of their Impact
McDonald’s and Coca-Cola have more
insights on
low-income communities
than policymakers, nonprofits, or
foundations.
The Information Gap
• 663 mm people worldwide
without clean water
• 33,636 firearms deaths
• Global illiteracy rate has
dropped from 46% to 18%
since 1970.
• 1 out of 6 children in
developing countries is
underweight
• funded 13,641 projects in 22
countries benefitting over
4.6 mm people
• 795 million people without
enough food
Sources: chritywater.org, World Food Programme.org,
cdc.gov
Data Overload
You Are A Witness
and Amplifier of Voices in the
Community
Use Stories and Data to
Engage Local Communities
and Decision-makers
● Involve your community
● Use simple, fast, convenient tools
● Ask culturally appropriate
questions
● Give back the stories and data
Collecting Data and Stories
Being The Community Voice
“I am dealing with one of the biggest/worst landlords
in NYC and PALANTE has helped me and my
neighbors get organized. We now have a tenant
association thanks to their support and we are ready to
work for humane living conditions. Elsia and the team
at PALANTE are angels. They help the most
vulnerable.”
— Client Edwin Torres, New York City
Donor Stories
Real Stories from Real
People
Volunteer Stories
Stories in Action
Stories on Facebook
Stories on Facebook
Stories on Twitter
Stories in E-mail Newsletters
Stories in Fundraising Letters
Distribution of Content to 20M
Mobile Apps Foundation Portals
Websites
Hopeful
and
Human

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My Birth Control: Engaging Patients and Providers in Shared Decision-Making Around Contraception

  • 1. Challenges and Solutions to Collecting Data Going Beyond The Personal Story
  • 2. Data collection is usually expensive, takes a long time, is generally a once-a year event
  • 3.
  • 4. ● Involve your community ● Use simple, fast, convenient tools ● Ask culturally appropriate questions ● Give back the stories and data Collecting Data and Stories
  • 5. Santa Clara Low-income Latino Voices Health Project Project Objective: This project aims to better understand the attitudes and beliefs about what causes diabetes and prediabetes. We also seek to uncover which channels encourage people to take action to improve their health. Target Population: People who live or work in Santa Clara County who identify as Hispanic/Latino Sample Survey Questions: What do you think causes diabetes? Who motivates you to exercise more?
  • 6. Adriana, a Mexican-American mother, lives in San Jose. My dad is diabetic. All my aunties and uncles from my dad’s side (9 siblings) are diabetic. My mom also just found out she is pre-diabetic. We believe my mom got diabetes due to stress. She is constantly working and paying bills. Fresh food from local farms is expensive. Most people I know work two jobs and don’t have the time to cook meals or shop for fresh food. Adriana’s Story
  • 7. My dad completely changed his diet when he was diagnosed with diabetes. He has limited intake of meat and only eats raw vegetables. Considering I’m a daughter of someone who has a history of diabetes in my family—I like to exercise. I buy fresh produce and don’t eat take out. My breakfast consists of oatmeal with fresh fruit, vegetables for lunch and dinner. I am also learning about indigenous foods and how that has helped maintain people’s health for generations. I also don’t drink things with sugar—only water, hibiscus tea, Horchata, or homemade lemonade. I like to get information through texting or video. Something quick, visual, and accessible on-the-go. Sure, I’d be willing try tasty recipes! Hopeful Insights
  • 8. Preliminary Data: Latinos in Santa Clara County Where do you live?
  • 9. Preliminary Data: Latinos & Information Preferences How do you like getting health information?
  • 10. ● Involve community ● Research that is simple and convenient to collect; fast results ● Ask culturally appropriate questions ● Give back the data Collecting Local Data
  • 11. Collect data: Get insights and data your community Pay people fairly for their time: Text e-Gift cards Follow-up by text Provide resources: Send phone number to call, a video, or a weblink. Simple and Suitable Tools
  • 12. Be A Witness and Amplifier of Voices
  • 13. 1) Write a 4 sentence pitch about your organization that includes a story and a data point. (If you don’t have a story or a data point, think about how you would get a story or get data) 10 minutes 2) Pitch to your group and get feedback 30min Break-Out Group
  • 15.
  • 16. How satisfied are Pittsburgh area residents with services in their neighborhood? Collecting Data in Low- Income Neighborhoods
  • 17. Preliminary Data: Women Use the Bus to Get To Work How do you usually get to work?
  • 18. Preliminary Data: People are Searching For Jobs Are you looking for a new job or have you in the past 6 months?
  • 19. Preliminary Data: Parents Are Satisfied With Public Schools How satisfied are you with the school your child attends?
  • 20. Community-Centered Program Design Feedback Community Data Collection Data Analysis & Visualization Sharing & Publishing Results Our Methodology
  • 22.
  • 23. What if you let your biggest fans do your marketing for you?
  • 26. Vehicle for Stories - GreatNonprofits Inspire and inform prospective donors and volunteers – a platform for storytelling – Differentiate between nonprofits beyond the numbers – Find nonprofits trusted by others – Feel good about giving – Help out further by sharing their experience Enable great nonprofits to harness their most authentic, effective advertising: Stories of their Impact
  • 27. McDonald’s and Coca-Cola have more insights on low-income communities than policymakers, nonprofits, or foundations. The Information Gap
  • 28.
  • 29. • 663 mm people worldwide without clean water • 33,636 firearms deaths • Global illiteracy rate has dropped from 46% to 18% since 1970. • 1 out of 6 children in developing countries is underweight • funded 13,641 projects in 22 countries benefitting over 4.6 mm people • 795 million people without enough food Sources: chritywater.org, World Food Programme.org, cdc.gov Data Overload
  • 30. You Are A Witness and Amplifier of Voices in the Community
  • 31. Use Stories and Data to Engage Local Communities and Decision-makers
  • 32.
  • 33.
  • 34. ● Involve your community ● Use simple, fast, convenient tools ● Ask culturally appropriate questions ● Give back the stories and data Collecting Data and Stories
  • 36. “I am dealing with one of the biggest/worst landlords in NYC and PALANTE has helped me and my neighbors get organized. We now have a tenant association thanks to their support and we are ready to work for humane living conditions. Elsia and the team at PALANTE are angels. They help the most vulnerable.” — Client Edwin Torres, New York City
  • 38. Real Stories from Real People Volunteer Stories
  • 43. Stories in E-mail Newsletters
  • 45. Distribution of Content to 20M Mobile Apps Foundation Portals Websites
  • 46.